Paul's Heart

Life As A Dad, And A Survivor

Archive for the month “December, 2020”

Another Year Of “Paul’s Heart” On The Way


I just received notification that my domain name has come up for its annual renewal.  Though technically, “Paul’s Heart” shows as only having started January 6th, 2013, it actually began the year before, as a technical glitch, forced me to begin all over, transferring all of my stories over.  Fortunately at that point, it was only a few dozen.

Although my first post, was just a “Welcome To Paul’s Heart” message, and what my blog was going to be about, life as a cancer survivor and as a dad to two wonderful daughters, the first official post was called, “What Happens When You Outlive Statistics.”  That was written eight years ago.  My health had already turned from my late side effects from Hodgkin’s Lymphoma back twelve years earlier.  And now, I am a survivor of cancer of more than thirty years.

The thing that keeps me going, is I have goals.  Goals with my daughters, and things I still want to complete.  The Covid19 pandemic has given me the best start of writing my first book, written solely by me.  In fact, not even completed, I have ideas for three more after that one.

Then there are the things I have written here.  I have published 922 posts so far, and I have 254 prompts started.  So I am not running out of material any time soon.

But what has meant the most to me, are the comments that I have received over the years, either encouragement or appreciation because of knowledge gained from my experiences.  Honestly, I have a lot longer to go.

Remembering A “Rival” Survivor


Last week, I found out that a fellow long term survivor of Hodgkin’s Lymphoma had passed away suddenly.  I am going to apologize in advance for what may seem like a scattered and unorganized post.  Normally, as I do these posts, remembering fellow survivors, I am a bit more put together with my thoughts.

Those of us who knew Michele, were all caught off guard by the news, and likely discovered by mistake.  In our circle of survivors, it is not uncommon for us to disappear into the background, and just watch what is going on.  Combined with the all-consuming issue of Covid19, we found out Michele passed away long ago, just as states were beginning to set restrictions.  Her last post was actually two days before she passed away, showing no awareness that her end was near.

Typical of one of us, a long term survivor of Hodgkin’s Lymphoma, she struggled with many late side effects from the treatments that cured her of her cancer.  Some days were more difficult than others.  She found most of her strongest support among our group, because with all of us dealing with similar issues, we not only understood what she was going through, we knew what she was going through.

Just before Covid19 took over, she and I had a discussion about two issues that we shared (I will not state them out respect for her privacy).  But as I had experienced these events, and their causes, she found direction to assist her doctor in directions to pursue not only answers, but hopefully management.  Multiple trips to the hospital for the same thing, left her frustrated, as it does all of us.

Michele was not really complicated.  She had two young children as do I.  They were her world.  And now their mother is gone, a feeling I do not wish on anyone, including my own.  Unfortunately the reality for so many of my fellow survivors.  But any strength or stamina she had, it went to her children.

Over the years, we did have other little “non” Hodgkin’s related banter, especially when she found out I was a Seattle Seahawk fan.  Being from New England, she was all to happy to remind me of the awful finish to the Super Bowl where her Patriots ended up victorious due to a huge coaching error.

There were a lot of fun things written about Michele in her memoriam that showed, in spite of all of the health struggles she had, she still made the most of her life with her children.

But as for us survivors, the suddenness of her passing, in spite of her struggles, and not really knowing what ultimately caused her passing, has shaken us.  We know our health is fragile, and we do not take our days lightly.  Even when we are not having our best day, we do not want it to be our last.

Our group of survivors continues to grow, and I can only wish that they would have had the chance to meet Michele.  Like I said, she was inspirational to so many.

Dinosaurs To Degrees


I have always enjoyed singing to both of my daughters.  I sang the classic lullabies to them, as well as contemporary songs, that as a disc jockey, I came across that would always be a reminder to me whenever I would hear them on the radio or elsewhere.  At least early on, I know my daughters enjoyed the entertainment.  It was soothing to them as they fell asleep.  Not so much as they grew into teenagers however.  They know that I can sing, it is just, just as I directed the lullabies at them, if I sang a song and they were with me, I was always going to dedicate the song to them bringing them a house-full of eyes staring at them, in the warm, endearing moment it was meant to be.  And these are always songs that reflect the daddy/child relationships.

John Berry is a country music singer, and recorded one of those songs that I sang to my daughters as babies.  The song was called “How Much Do You Love Me.”  The song told of the relationship between child and father from toddler to teenager to adulthood.  Powerful descriptive lines:

“Dad, I’m playin’ dinosaurs.  ‘Do you want to be one too?’
I set my grown-up world aside and said: ‘I’ll be right there'”

“She called me from a party late one night, her junior year
And bravely gave an address through the stories and the tears”

“Children grow and years go by moms and dads get grey
Little girl’s get married and give their dinosaurs away
They’ll live their grown up lives and call their daddies now and then”

And each chorus sings the same message as the daughter asks her father and then the father answers her back:

“How much do you love me?”
“How much do you really care?”
I touched heart, spread my wings, and said:
“All the way to there”

I would play this song annually at a particular Daddy/Daughter Dance for a family friend.  It did not take long for me to learn how to sing it, and to this day, the song holds a special meaning to me.

My daughters have always been my priority.  I know that I always have two sets of eyes watching me, as I try to set examples for them, to be their role model, as a father should be.

I cherished every moment I had to play with them, read to them, and yes, sing to them.  One fact that I knew I had to quickly accept, they would not always stay young.  But I made sure that they learned to enjoy life, and have a lot of fun.

As they have grown, one of the things that I have been pleasantly surprised by, they both have a great sense of humor.  Yes, they have all of the other traits that parents want their children to have, but they have picked up some of my mannerisms from imitations to snarkiness.

More important than picking up my sense of humor, they are at the stage where they have to learn that decisions they make today, may have an impact on their lives tomorrow, especially when it comes to college.  I try to impress upon them some of the things that institutions look at when approving students, that they may not realize a big deal after all.  School attendance, being caught even as a bystander in a situation requiring legal enforcement, to participation in outreach and social organizations.  All the while, behind the scenes, I know, having been a teenager eons ago, my daughters will face some peer challenges along the way.  And it is important to me that my daughters know that I will always be there for them, no questions asked, no matter what.

There is so much happening at this stage that I wish we could just take a break and go back to playing with dinosaurs again.  But before they are on their own, they need to learn how to handle money.  I want my daughters to learn the respectful way to challenge authority, and when it is necessary.  It is easier to do this now with a school course, than it would be with an employer.  It is important to me that they learn to diversify and look for as many examples to help them form their own opinions.  And yes, one of the most important lessons, when to take on a fight, and when to walk away, and how to take on that fight if that option is chosen.

And as quickly as their childhoods will be past, so will their teenage years, and then the “dinosaurs” will be just a memory.  And I just hope that I have done all I can to prepare them for this world and all that they will have to contribute to it.

But the one thing that I want them to always remember, is how much I love them, and always have, as I “touch my heart, and spread my wings and say, all the way to there.”

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