Paul's Heart

Life As A Dad, And A Survivor

Flag Day, Remembering My Grandmother


(photo created with ChatGPT)

Somewhere in my childhood home, still owned by my family, is the very first essay I had ever written. I was in 7th grade I believe. I put a lot of work and research into it, and justifiably got a great grade on it. My topic was Flag Day. The paper was filled with all kinds of facts, from all the different flags representing our country and the different changes that it went through. Though there are only 8 flags shown in the photo above, there were actually 27 throughout these 250 years. It was not until the 1800’s that there were between 20-30 stars, finally approaching the 20th century (that would be the 1900’s), did we have flags in the 40-count.

Some odd facts, the 48-star flag flew for 47 years (1912-1959) made it one of the longest-serving flags. The 49-star flag lasted only one year when Alaska became a state. And our current 50-star flag became official on July 4, 1960, after Hawaii joined the Union. In two years, barring any other states joining the US, “old glory will become the longest serving flag.

There were plenty of other facts about our flag in that report, about how to display it, and how to care for it, especially when it was “worn,” and how to respectfully dispose of it. I would describe myself as a flag “purist” as a result of that report, so one particular beef I have with today’s “patriotism” are the violations of the United States Code. What are some of the codes?

  • raise the flag quickly, lower it slowly
  • the flag is supposed to be flown from sunrise to sundown, unless properly lit
  • the flag does not touch anything below it (ground, water, etc.)
  • do not hang in the wrong direction, if hanging, the stars go in the upper left
  • the flag hangs in the rain only if an “all weather” material

But there are two things that people do that irritate me to no end to the display of our flag. The first, flying it from a vehicle. Sure, according to the US code, the flag is supposed to flow free, but if on a vehicle, it should be flown from the right front end of the car.

But as the photo above shows, the flag is shown mounted on the rear of the truck. This disgusts me every time I see it, and I see this truck a lot. The flag is attached to the back of the truck, sucking exhaust, and being coated with soot. This is probably the 2nd most disrespectful way to treat the flag. Not to mention it is tattered from the violent wind gusts from the speed of the truck.

The most disrrespectful and intentional thing to do with the flag, is wear it as clothing. Sure, everyone thinks they are showing their patriotism by wearing the stars and stripes, but it is actually written to not wear the flag as apparel; clothing, hats, swimsuits. Wear the colors red, white, and blue, sure. But to wear the flag, stars and stripes as swim shorts, soaking up ball sweat and swamp ass as if a patriotic maxipad is just wrong.

Also, one final peeve of mine, the flag serves and represents only one thing. It is not to be used for other causes, such as “thin blue line” or professional sports teams using their team colors. If you need a flag of your own, make one. Hands off the stars and stripes. Make your own flag.

I used to be super involved with celebrating Flag Day until 1998, a day that changed my life forever, the day my grandmother passed away from cancer.

My grandmother was one of the most influencial people in my life, not just from a rearing standpoint (my mother worked 2nd shift as a single mom – so my grandmother handled everything during the week), but she was also my first actively involved cancer survivor I had known in great detail. I lost two of my other grandparents to cancer, lung and gall bladder. My maternal grandmother had been diagnosed with breast cancer. Between mastectomy and chemo, she had beaten it, becoming the first person I had known to beat cancer.

Of course, her story with breast cancer, would be pivotal with decisions I would face with my own battle with cancer, Hodgkin’s Lymphoma. But it was she who inspired me to take on Hodgkin’s with the same courage and stoicism that she did.

However, in May of 1998, she was diagnosed with her second cancer, this time ovarian. Having had my own battle with cancer, I was a lot more sensative to the things that would be said about her case. But I had not doubt, she would take it on and beat it just like she did with the breast cancer.

She had surgery to remove the cancer, and the surgeon told all of us, “he got it all.” That is in quotes for a reason. He continued on that he wanted to have my grandmother undergo preventative chemo, which I did not see as unreasonable. But then he stated the amount he wanted her to do. I could tell something was wrong.

I told my mother, that she needed to talk to her two brothers, something was wrong. If the doctor got all the cancer, and while preventative chemo is not unreasonable to get periforal cells left behind, the amount of chemo the doctor was talking about, was a full treatmant plan. Something was wrong. Of course, my pleas fell on deaf ears.

On Saturday, June 13th, I stopped by my grandmother for a short visit. She was to start chemo that Monday. When I came into the house, she was sitting on her couch, staring off, lost. Off to the left, I could see her treatment books, untouched, not opened even once. My grandmother just sat there, and I noticed she had actually had her hair cut, “high and tight” as if to prepare to lose the hair, something that did not happen for her with her breast cancer. She was deep in thought, real deep.

“Is everything okay Grandma?” I asked.

“Yeah,” she responded, “I just want to get this over with.” I couldn’t blame her, I know how bad chemo is to go through. She continued to just sit there and stare. After a short while longer, I told her I would call her to see how she made out, and went home. That was the last time I would see her alive.

The next day, as I prepared to go to church, as I had activities to run with the church’s youth group, I got a phone call, “your grandmother was taken to the hospital. She has fluid in her lungs.” I said that I would be right there, trusting my fellow parents to handle things, but was told, “she said you were to stay at the church, she knows you have youth group. She will see you later.”

Around 2:30pm, the afternoon of June 14th, the phone rang in the church office. One of my advisors had answered it, and as I looked over toward her, I could see it was an upsetting phone call for her. But then she held the phone to me. My heart sank. As I grabbed the phone, my advisor did all she could to offer “I’m so sorry Paul.”

My grandmother had passed.

I have a strange and baffling defense mechanism that kicked in right away. I went right back to work with the kids. My advisors would tell me they could take care of everything, and I knew they could, but I insisted on staying.

My worst fears came true. My grandmother was worse than what the doctor told us, and I knew it. No one would listen to me. Did my grandmother intentionally instruct the doctor to lie to us? Being a Catholic hospital (my grandmother was not Catholic), did they convince her to go through chemo for the sake of the sanctity of life? Did they tell her that chemo would buy her time to see her other son who would fly in two months later? There were plenty of other signs that my grandmother did know, this would be it for her.

Her taking charge of her fate has done nothing to ease the grief that I still cling to twenty-eight years later. She was my moral compass. I talked to her about everything. Her opinion mattered to me. And if I did something she did not agree with, she did not hold back her opposition, and if I went against her counsel, she stood by me regardless. To this day, I miss her so. How I wish she could see and spend time with her two great-granddaughters. They would simply love her.

I am currently dealing with a medical crisis with my mother, my grandmother’s second child. Unlike the passive approach with my grandmother, expecting my mother and uncles to do more, my mother has me advocating for her now. I lost my father to lung cancer (3rd of six relatives with cancer, all dead). And I am doing all I can to help my mother with this health challenge.

I don’t take the time to reflect on Flag Day like I used to. And because of my grandmother’s passing, I can never forget when it happened. And the only thing at this point in my life, is what comes the week after Flag Day, what I consider one of the most important days of my life, Father’s Day. This is the day that gets me through today, even all these years later. My daughters mean the world to me, and now, as adults are aware of the health struggles I deal with, and are as much a part of my survival as the doctors who care for me.

Goodbye Old Friend, Again


“Hello darkness my old friend. I need to give you up again.”

Coca-cola and I go way back. In fact, nearly forty-five years ago. I delivered the morning newspapers as a teenager, and during the winter it was especially cold, and halfway through my route, I would duck inside a foyer of one of the buildings to get warm. Counter to that effort, there was a soda vending machine just outside the building, and of course, being Winter, that meant the soda would be much colder than the temperature set for the machine, giving the soda a much stronger appeal and taste. My beverage of choice, Coke. And it was good, real good. From there, I was hooked.

In the battle of Cola’s, Pepsi, RC, A-treat, or any other generic, Coke has always been my preference. It was always about the flavor. As an adult, it became more about the boost I would get from the caffeine and sugar. I regularly burned the candle at both ends, and in the late 80’s I would rely on “NoDoze” caffeine capsules to get me through.

In the 21st century however, Coke became a regular part of my diet, easily replacing the recommendation of drinking 8 glasses of water a day. I was easily drinking two to three liters of Coke a day. For the most part, my body was handling all the sugar, or at least it was assumed because it was never checked.

Then in 2008 things changed. Due to late side effects from my treatments for Hodgkin’s Lymphoma, I had to undergo an emergency double bypass, which then led to a major change in my personal care, medical surveillance.

Drinking as much Coke as I was, had a major impact on two blood tests, my A1C would eventually climbe to 9.0 (not good) which is type 2 diabetic level, and my thyroid levels ended up all wonky, which they were bad enough from my radiation treatments. Additionally, with my heart as bad as it is, all factors considered, I really need to quit drinking Coke.

(photo courtesy of ChatGPT)

I have tried multiple times. I see a date ahead, bloodwork. They are going to be looking for my A1C and my thyroid. I have three months to get my numbers corrected, and in theory, if I quit drinking the Coke during that period, they should be happy. Notice, I said “they.”

The problem comes, after my blood test. Two things generally happen following this test, I spend time away with my daughters, which means eating out a lot, or I am facing a stressful period that I need some extra energy. I cannot due energy drinks because of my heart. In both situations, the answer is simple and easy, not just fall off the wagon, I do a backflip triple flare summersault off of the wagon.

The numbers usually come back reflecting the cessation of Coke. I don’t usually lose any weight, something always pushed, in fact, this last time, I actually gained 10 pounds in 4 days. I was definitely not happy about that. I was not about to let that discourage me. I have a goal, three months from now, when I am do for my blood test.

I don’t do drugs, smoke, or drink alcohol, so Coke is really my only vice. And whether my attitude about my health, all of the issues I have from my cancer treatment late effects, it actually makes little or no difference, I am still trying.

I am pretty sure it won’t last, once August rolls around. While Coke is not “literally” addictive in the way nicotine or alcohol is, it can feel addictive, mainly because of its ingredients. Caffeine can cause dependence as a stimulant, craving it. And yes, I get headaches and fatigue hits when I stop. Then, there is the extraordinary amount of sugar in Coke which activates the brain’s reward system with a full blast release of dopamine, making you want more. And then, it is just a matter of habit, at meals, on work breaks, and as in my case, a pick-me-up. I am literally conditioned to associate comfort and energy when I drink Coke, and I end up drinking it again.

For now, I keep trying. But it is so hard right now as once again, I am battling some extreme stress, not sleeping well, and want a Coke.

It’s National Cancer Survivors Day Today


Today is the day, being the first Sunday of the month of June, recognized as National Cancer Survivor Day. It is the day that we recognize and honor ALL cancer survivors, no matter what stage of the disease that person is at. The term “cancer survivor” covers everyone from diagnosis, through treatment, through initial remission, through long term survivorship, and those who have passed from cancer.

Back in 1988, cancer was so rare in my life, I knew of no one who had dealt with cancer and lived other than my grandmother. Today, my life is filled with thousands of long term survivors who have come into my life. In my family, I have had six other family members face cancer.

Now my 37th year recognizing my status as a cancer survivor, there are two driving forces behind my survivorship at this point in my life; my daughters and my advocacy.

Of course my daughters were not even born yet when I went through treatments for Hodgkin’s Lymphoma, but they know my story. But as they came into my life, halfway into my survivorship, I never looked back at where I came from, and only planned for one thing, to watch my daughters grow up, and provide me with milestones I never thought I would see.

My survivorship has come at a cost, in the form of late side effects from my treatments, considered unknown back in 1988, now finally getting the attention and recognition to help an entire society of survivors, struggling with the mysterious issues that come up with their bodies, from both chemotherapy and raditation therapy.

As my health continues to take hits, one after another, my focus remains clear, my daughters. I have so much that I still want to experience with my daughters. I have so much that I think I need to prepare them for as their enter their younger years in adulthood. I am not ready for them to feel the grief and loss of a parent. I know that I do not control my longevity, but that does not change my desire, my drive, my fight, to survive.

The other crucial part of my survival, has come from fellow survivors that have come into my life. I made a promise to myself, that I would help and support all that I could, in their battles with cancer, whether it be through peer to peer support, research, or through social media. Never in my wildest dream did I think I would ever write a book about my experience as a cancer survivor, and all of the other published things I have written such as Paul’s Heart, and the various social media pages that I have.

As I said, cancer survivors cover all stages of the cancer journey from the scariest of all, hearing the words “you have cancer”, to the physical and emotional struggles of getting through treatments, fighting the fears of relapsing once in remission, doing life as a long term survivor sometimes having to deal with late side effects, and to the realization that not all are here today in person to be recognized that together we are all survivors in a “club” none of us ever wanted to be a part of.

But here we are, whether day one, or 37 years, or even 40 or 50 years, today is a day to inspire, give hope, and support everyone whose lives have been touched by cancer.

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