Paul's Heart

Life As A Dad, And A Survivor

Sepsis – A Silent Killer

Today marks the 5th anniversary of my first run-in with sepsis.  I had heard of it before, through other cancer survivors.  I remember the scary stories from them, one fellow survivor actually developing septic shock, the 4th stage of sepsis, which normally leads to death.

Before I get into the details of sepsis, here is what transpired five years ago.  I went to bed around 11pm on Sunday night, following a very busy, yet uneventful weekend of activities, including celebrating my daughter’s birthday.  I had just brushed my teeth, changed my clothing, and went to bed.

I woke up at 3am, violently vomiting, rushing for the toilet, leaving a trail of puke as I finally collapse by the toilet.  I do not really recall the moments that followed, but I do know that I ended up in my bed, again, losing consciousness.  Again, I wake up, this time screaming in immense pain, like I had never felt before ( author’s note – I have had open heart surgery, abdominal surgery, and a kidney stone – so I know levels of pain).  I would pass out again.  Another brief moment of consciousness, I would see paramedics and police in my bedroom, though not sure if I was hallucinating from the pain or whatever was happening, but one of the paramedics looked like my former brother-in-law, though I never knew him to be an EMT.  Blacked out again.  The final thing I remember just before being rolled out of my house on an ambulance stretcher, was seeing the scared expressions on both of my daughters’ faces, horrified as to what could be happening.

I am not sure what time I finally came to.

But when I finally awoke, a nurse explained to me that a doctor was coming in to talk to me.  I asked her what was going on.  She just explained that I was on high dose antibiotics and that I had pneumonia in my left lung.  As I have come to learn in my survivorship, I can read when someone is keeping information from me, and I knew the nurse was not being completely up front.  With the doctor coming in just moments later, it did not matter.

The doctor confirmed that I did indeed have pneumonia in my left lung, but they were waiting for blood cultures to come back to determine the cause.  But definitely confirmed, I was suffering from severe sepsis.  In fact, one of the main tests to confirm, my lactate level was well over 4.  Only one stage left which I was quickly approaching, septic shock, which has an 80% chance of mortality.  But the doctor was confident that there was time for me to recover.  With sepsis, survival is all about timing.

Complicating my diagnosis, are several issues that I have to deal with from my cancer survivorship.

I have no spleen which means I am more susceptible to infections and illnesses.  Developing pneumonia made no sense as I did not have a cold, no cough, no sign of anything respiratory.  But discovered during the diagnosis, the lower lobe of my left lung is “dead”, likely destroyed from 4000 grays of ionized radiation, and the chemotherapy drug, Bleomyacin.  Also, with my left lung, I have several unidentified “spots” on that left lung, which are followed up annually to see if they develop into cancer.  But none of this made any sense to me that it could lead to lead to pneumonia.

Further testing would reveal the accurate diagnosis, aspiration pneumonia.  What is aspiration pneumonia?  Aspiration is defined as “inhaling.”  So what exactly could I have inhaled?  Though the detailed answer is going to be saved for a different post, the culprit is my esophagus, which was weakened from radiation damage as well as gastrointestinal issues from my treatments decades ago.  There is a malfunction with my esophagus, called a “Venker’s Diverticulum” which traps food and liquid, which of course, normally breaks down further in the digestive process.  Unfortunately, with this DV, the remaining bacteria in my esophagus was inhaled into my lung, which turned into a raging case of sepsis.  Which explains why I never felt anything coming until it actually hit.

The truth is, most victims of sepsis have no idea that they have it, nor did I.  That is why this disease is often called a “silent killer.”  And up until recently, most emergency rooms and doctors were not in the habit of looking for sepsis.  Many times, patients faced fatality because of the lack of diagnosis, which appears to occur a lot more than once believed.

I have written about sepsis many times.  And I will keep writing about it, because it is not discussed commonly enough yet.  Too many still do not even know what it is.  And just like me, you can feel fine one minute, and hours later, be placed in an intensive care unit.  My personal doctor scolded me, as testing confirmed that I was actually septic for at least 48 hours before I had been brought into the hospital.  And with an illness that depends on a timely response for survival, I could not help but wonder, how close I actually came to dying.  Many friends and followers have written to me about their experiences with sepsis, neither of us were aware.  And this is where you, the reader, can make the difference.  Share this article.  Learn about sepsis.  Make a difference.

Pneumonia would return again nine months later, in both lungs, again, in the same manner.  No prior warnings.  For me, there is nothing I can do to prevent it from occurring due to the permanent irreversible damage.  And given my tolerance for pain and discomfort, I rely on my ability for regular follow-up appointments with my doctors.

Family After Cancer – Never Give Up

March 14th is always an easy day for me to remember.  It is my late grandfather’s birthday.  Also, the birthday of my niece.  But it is also one of two important dates in my life, the first of two times I became a father.

I will not speak for other cancer patients or survivors, but for me, I had three concerns once I was diagnosed.  The first and most important, I did not want to die.  Second, I did not want to lose my hair.  And finally, I did not want to lose my ability to have children.

Speaking now as a Hodgkin’s Lymphoma survivor, back as late as the early 1990’s, mustragen was a popular component in a chemotherapy cocktail to give remission to Hodgkin’s patients.  Along with it being a deadly poison used by monsters such as Sadaam Hussein to kill his people, it was also very effective against Hodgkin’s.  Along with its toxicity, it was known to cause sterility in men.  In fact, just as I completed my 8th cycle, a study had been released stating that sterility was likely after the 6th cycle.  Dammit.  This study came out 3 months too late for me.

Hodgkin’s is a blood cancer, though considered rare, effects two groups of people more often than others, younger ages, and older ages.  Middle aged people can develop Hodgkin’s but it is more likely to be diagnosed in the other two groups.  And for the younger group, fertility is a real concern.  And for many women, the concern is even more dire, as some are often diagnosed when they are pregnant.  And just with any other cancer, decisions need to be made in the best interest of not just the patient, but the baby.

As I said, for me, pre-testing before I began my chemo, it was determined that any ability I had to get someone pregnant, was slim, most likely caused by the stress I was under, so I did not take the option of storing sperm before I began treatment.  And of course, once treatment was done, so were my chances of having a biological child.

I have written about my decisions since that discovery in past posts, and if you have any questions and do not wish to go through the archives, please feel free to ask or comment.  But the truth is, decades later, there are new opportunities to more accurately determine and often reverse sterility.

But in my case, adoption was the best option for me.  And as far as adoption was concerned, it was a matter of deciding open or closed, domestic or international.  In my case, and with my health history, international, China in particular, actually offered me the best opportunity of becoming a father.  China would not discriminate against me, as many agencies in the United States had done.

I completed all the paperwork.  I went through all the processes required by both China and the US.  And thirteen years ago, on this date, my oldest daughter was placed in my arms.  I will celebrate another anniversary for my younger daughter in a couple of months.

There is plenty of help out there to answer and guide cancer patients in all areas of care, during treatment and post treatment.  It is the hope of “Paul’s Heart”, that this blog is one of the tools that will inspire and inform that there is not only life after cancer, but a whole lot more.  Perhaps not the way we dreamed about, but it is still a good thing.

Cancer No Match For This Cop

I am always willing to share stories of other cancer survivors on “Paul’s Heart”.  One of the missions of this page is to provide inspiration and hope.  And to do that, you have to do more than just take my word for it.  So, just like other stories I have shared, please meet Glen.

Glen is a former police officer for the Escondido police department which being a cop is something to appreciate by itself.  But like me, Glen is also a long term survivor of Hodgkin’s Lymphoma.  In fact, he has 2 years on my 27 years of survivorship.  But also noted, he has not only battled cancer once, but three times.

Glen’s story is an inspiring one for a number of reasons.  Glen is married to his wife Debbie over 30 years.  For many men who were treated for Hodgkin’s back before the 1990’s, sterility was almost guaranteed for men.  Yet not only did Glen and Debbie have three children, they are also grandparents.

Glen and Debbie recently co-authored a book titled, “Overcome – A Story of Intervention, Rescue, and Redemption”, based on their approach to dealing with the many aspects of facing cancer.  Together they explain how the two of them got through his battles, and where they drew their strength from.  The book is available on Amazon so I do not want to spoil any of the good stuff in the book.

Glen and his wife were also featured in a news story of the Times-Advocate, printed in Escondido, California.

There are many inspirational stories of cancer survivorship.  And if you have one, I am always willing to share them through “Paul’s Heart”.

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