Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Family and Friends”

My Dad Was Just Like Me


Every year, I make a contribution to a book called “Visible Ink.”  This is a book published via Memorial Sloan Kettering Cancer Center, written entirely by cancer patients and survivors.  This year, marked the seventh edition.  I submitted two pieces, and the following piece is the chapter that was selected for this year’s book.  The story is very personal to me, a tribute to my father who lost his battle of lung cancer last May.

Birth photo 1965 dad and I 1

“Like Father, like son.” A timeless expression echoed by the lyrics to the song, “Cats In The Cradle,” popularly recognized from Harry Chapin. The song tells the story of the birth of a son, the absence of the father in his life because he is trying to provide for his son. When the son is grown and on his own, the father tries to capture moments of fatherhood, only to find out his son is busy juggling his own life between work and family. One of the final lyrics in the song, the father says, “As I hung up the phone it occurred to me, he’d grown up just like me. My boy was just like me.”

last photo of my dad and I before his cancer

For years I had often wondered, what would have reminded my father about me. But it was during my father’s battle with lung cancer, I discovered a new expression, “like son, like Father.” Most people grow up with two main role models in their life, their parents. But how often does a child get thrust into the role of role model for a parent?

my dad

My father had reached out to me, a long term cancer survivor, because he had just received news that doctors think he might have lung cancer. Though the news should not have come as a shock for a sixty-year-smoker, a spot on his lung was confirmed by a PET scan. My father was now the fifth family member besides me, to be diagnosed with cancer. And up to this point, I was the only one who had survived.

most recent portrait

The times had changed dramatically even in just over two decades since I had been treated for Hodgkin’s Lymphoma. There were better options available. Better technologies were to diagnose patients. Even the chemotherapy suites were more inviting, like a local coffee shop complete with meals and entertainment.

treatments

As time went on, my father underwent successful surgery to remove the tumor. Under doctor’s recommendations, my father underwent both chemotherapy and radiation therapies for preventative measures. It was during the radiation treatments, something went horribly wrong. Though there was no evidence of his lung cancer present during even the chemotherapy, some cells that had survived the chemo had transformed into an even more aggressive, and rapidly growing cancer.

We were all gathered by his side when the doctors came to discuss the situation with my father. His cancer was now terminal. My father always knew that lung cancer had been a possibility, and that he had cancer, and might die from it. But up until that moment, he believed he would beat it. Refusing to give up hope, although acknowledging the doctor’s prognosis, my dad’s response to the doctor’s final question, broke me down into tears due to the words, I was not prepared to hear.

The doctor and his care team had just explained to my father all the things that they would do to care for him, as the cancer progressed, to keep him comfortable. But my dad’s denial and defiance shined bright when the doctor asked, “What is one thing we can do for you right now?” My father responded, “I want to be a survivor like my son.” He pointed over to me as everyone in the room turned their heads in my direction.

the last photo with my dad

This hit me two ways. I beat my cancer, Hodgkin’s Lymphoma. I had his genes, his personality, his pride, his determination, and perseverance. If anyone had a better chance of defying a cancer death sentence, it was my father. I survived cancer. My dad witnessed it could be done.

just before

But in that same moment, I saw his comment for what I truly think he meant. We never expressed feelings in my family, and up to that point, my father and I could have just been two ships passing in the night. But I took his words that I will always remember, he was telling me that he was proud of me. I had never heard that from my father before that moment.

He would live another three months. And as I sat by his bedside each and every day, we share memories that we remembered, and memories that we did not share in the past. We forgave each other for things we had done and said. And during the night before he passed, as he lapsed into a calm and peaceful state, for the first time in our lives, he heard my voice, not in spoken form, but in music. As I said goodbye to my father, who was a true survivor and just could not recognize it, I sang to him, the words that I could not speak, “Cats In The Cradle.”

his empty chair the day he passed

In the end “Dad”, your boy is just like you. I am glad we had the chance to know that.

Dad, I miss you so much.

An Astounding And Humbling Number


I am sitting here completely humbled.

20,000 views.  WOW!!!

Though my current efforts and goals with “Paul’s Heart” have changed over the last two years, the purpose behind it has not.

Writing is therapeutic.  Not just for the patient putting his feelings and concerns onto paper, but also for those who read what they cannot put into words themselves.  The writing does not have to be anything published.  It can be a simple comment  on a post-it note.  It is a simple concept, being able to bring out and internal feeling releases at least some burden and stress.  And that is therapeutic.  Getting to release any kind of negative energy, when you have nowhere else to turn, writing allows that.

I have always enjoyed writing.  And over the last several years, I have been given many opportunities to have many of my writings published.  And with my published works, not only do I provide therapy for myself with the many trials and tribulations that I deal with, my posts and stories provide therapy to those reading them.  Because I write from experience, good or bad, it is my hope that readers can relate to my stories.  And by relating to my stories, hopefully the reader can come away with a feeling, that perhaps the struggles that they are dealing with, are not only normal, that they are not alone, and that the struggles can be overcome.  And that is therapeutic.

I wish “Paul’s Heart” could be an endless supply of Euphoria type stories.  But that is not realistic.  We do have to deal with some bad things in our lives.  And it is a difficult balance that I try to maintain when I write these posts.  I view the results with the statistics on each story I write about.

There is so much more to come on “Paul’s Heart.”  But for now, I want to humbly thank each and every one of your for your support and your encouragement.

The Beauty Of Surviving Cancer


Yesterday afternoon, I gave a cancer survivor speech I titled “The Beauty Of Surviving Cancer” for a special Garden Party filled with cancer survivors.  The speech is actually a continuation of the speech that I gave a few weeks ago.  You can find that transcript on March 10 in the archives under the title “Defeating Cancer As A Team.”

Below is the transcript of my speech “The Beauty Of Surviving Cancer.”

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“I could not think of a better place to be celebrating the beauty of cancer survivorship than here, at this event at Moorings Park. That’s right, I said, the beauty of cancer survivorship.

From the moment we hear the words, “you have cancer,” it is all we can think about. “I want to survive.” And we trust everyone involved with our care, to make sure that it happens. A beautiful sentence, “I want to survive.” The ultimate fist-shaking of defiance at something so ugly.

The time from diagnosis to treatment, to hearing the beautiful words, “you are in remission,” seem to take forever. But nothing is more beautiful than remission being forever.

I am still young to be thinking about forever. But I have been in remission of Hodgkin’s Lymphoma for over 25 years. And that, is a beautiful thing.

I got the phone call while sitting at my desk at work. It was kind of ironic because although I had hoped to share the news that I was anticipating with my family, it was my employer who first heard that I was diagnosed with cancer, and he would be the first to find out, that I was in remission. I recognized the telephone number in the caller ID as my oncologist. And although I was expecting the call, and was quite excited to get great news, I actually froze at first, thinking about the what-ifs. And then I answered the phone, and I heard, “you are in remission Paul.” Beautiful. Again I found myself in a frozen state with my left arm whose hand was holding phone, slowly falling from my ear. I did it. I should be doing backflips. This was great news. And then the wave of emotions crashed over me. I did do it. I beat cancer. It took everything I had, but I did it!

Just then, right on cue, my boss came out of his office, not that he was eavesdropping, but seeing the reaction on my face, he knew right then and there, the phone call that I got, and that it was good news. And I thanked him for being there from the beginning to the end of this process.

Since then, I have enjoyed nothing less than the beauty of surviving cancer.

I have the beauty of celebrating a new birthday every year. While my birth certificate states my birthday as being December 19, 196… in reality, I recognize my new birthday as March 3, 1990 which meant that I just turned 25 years old.

I want to tell you about the beauty of progress in the world of cancer. Yes, we still have a long way to go, but in just 25 years, which nearly everyone present has been alive in their lifetime, diagnostics, treatments, follow up care, and survival rates have improved. Think about all the people before us who witnessed the discovery of the lightbulb, the toaster, and a cure for polio, in our lifetime, you have been witness to progress in the battle against cancer. In just 25 years, most of the methods used to diagnose my Hodgkin’s Lymphoma are no longer used. In just 25 years, the toxic and horrific treatments I was subjected are no longer used. And twenty five years later, I am still here to see even newer progress being made. And that is beautiful.

The beauty of cancer survivorship is getting to experience so many things that at one time, cancer patients would have never had the opportunity to experience.

There has been the beauty of parenthood. I was told that I could never become a parent because the chemotherapy treatments that I had, left me unable to have biological children. But just as all good things come to those who wait, I became a father not once, but twice, to two beautiful little girls, that only half-way through my survivorship, I was able to adopt my daughters and become the father I had always wanted to be.

I had a wonderful fur friend for nearly fifteen years of my survivorship, a golden retriever named Pollo, or as many knew him, as the “happy Golden” because of a smile that never left his face, and his tail that would just not stop wagging.

I made it a point that I was finally going to make sure that life counted. If I wanted something, or wanted to do something, or go somewhere, I was going to make it happen. It may not have been easy, but neither was fighting cancer. But I did that. I have gotten travel to beautiful places, and I currently live in a place nicknamed “Paradise”, Naples.

Another beauty of survivorship is meeting other survivors. And over my last 25 years, I have met hundreds and hundreds of other survivors. But as the Relay Survivor Committee has stated, a cancer patient is a survivor from the moment they are diagnosed. And as I wrote this speech, I thought about that concept. Because to be a survivor of anything, I feel “surviving” implies that you took on a fight. And while the circumstances may be different from what we refer to as a “surviving” event such as a natural disaster or travel accident, surviving a deadly disease is not any different. From the moment it occurs, we want to survive.

I have two examples that have made me a believer in the committee’s statement. The first, is a young man, who proclaimed to his mother and I, even before his treatments were finished, “I am going to be a cancer survivor”. Second, when told of his terminal prognosis, the doctors asked my father if there was anything that they could do for him, my father responded, “I just want to be a survivor like my son”. He still wanted to fight. Though their circumstances did not end as we would typically describe being a survivor, Michael, and Dad, both of you were survivors clearly not only in my eyes, but in others as well.

Then finally, there is the beauty of being a part of the state of Florida’s largest Relay For Life. Over twenty-five years, I have participated in many Relays, as well as spoken at many more. And I must admit, there is both beauty and excitement to be a part of something so special. And over twenty-five years to see how far we have come, and to hear encouraging news of just how close we have come to finding even more cures for cancer, that, is the beauty of cancer survivorship.

I will wrap up with a quote that I use frequently through various support web sites that I am involved with:

“As I drive on the road of remission, I will keep looking in my rear view mirror to make sure that you are still following me. And if for some reason, you are not on that road yet, hurry up and get on that highway. It’s a great ride once you hit the road.”

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