Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Family and Friends”

Scanxiety


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If there is one feeling possibly worse than the possible diagnosis of cancer, it is the anticipation of a pending PET scan (the current standard for declaring a patient is in remission, or is still in remission).

I try not to publish two posts in one day, but a have several Facebook friends who are going through scans or receiving news about the results of their scans today through the upcoming weeks.  So, as one thing I have tried to justify my survivorship as a long term cancer survivor, I want to offer this hope.

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Many people reading “Paul’s Heart” are also members of on-line support groups as well as Facebook pages.  These support areas can be cancer specific, or cancer general.  And these can be a great tool from support to information.  But there has to be an awareness of balance if you subscribe to any of these groups.

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Here is the logic you need to understand.  If you did not have cancer, would you be on a support web list? Of course you would not.  If  you are dealing with cancer, would you be on a support list?  Most likely.  Unlike when I went through my treatments for Hodgkin’s Lymphoma, I never had the internet for support.  But then, what about the period of time, once you have heard, or expect to hear the word remission?  Would you still plan on participating on these support sites anymore?  There is a good likelihood not.  All we want as a cancer patient is to be done with it, once and for all.  Only the few, like me, stick around.  But for the most part, only people that need help, will seek help.

One of the biggest fears resulting from “scanxiety” is that a patient will not get to hear the word remission, or worse, hear the word relapse.  And these are real possibilities.  They do occur.  But if you participate in internet support groups, there are chances you will hear a lot more about relapses, than you will hear about long term cures.  And why would that be?  Someone who has been cured, like mentioned earlier, will most likely want to move on.  That patient has no need to be on an internet support group.  But the patient who is still dealing with cancer, or must deal with it again, will be on the internet.  So again, using logic, just because you cannot see all the long term cures, does not mean they are not there.  But in fact, they are there, in great numbers.  Over 12,000,000 of us.

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I do know how many of you are feeling right now.  In over 25 years, I have met thousands of cancer survivors, many of which I still hear from.  I know what each and every one of you feel, as you do the  mid-point scan, the post treatment scan, and all the other scans after that.  It does get easier.  You have to believe that what you have gone through is enough.  And here is where some tough love is going to come in… and if by some chance, you are still dealing with it… what are you going to do about it?  You are going to keep fighting because that is who you are.

If you have just completed scans recently, or will be getting them done soon, my thoughts are with each and every one of you.  I hope you all get to hear the word remission, or at least, the disease is decreasing.  From there, following the news of remission, will be the six month anniversary, the first anniversary, the fifth anniversary, the 10th, and then like me, the 25th!

Try not to be overwhelmed by what you see others going through.  They are going through their own battle.  You have one thing to do, get through that scan and get on that road of remission.  Speaking of which, a closing line I am known to use with people who reach remission…

“As I continue down the road of remission, I will keep looking in my rear view mirror to make sure that you are still following me.  And if you are not on that highway yet, hurry up.  Once you get on it, it’s a great ride!”

Happy Father’s Day


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I would like to wish all the dads reading “Paul’s Heart” a Happy Father’s Day.  And at the same time, I would like to wish all the moms having to fill both roles, a Happy Parent’s Day as well.

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Father’s Day has always been special to me.  From the first day that I held each daughter in my arms, I knew that I was blessed to have such beautiful, kind, and loving children.  They are constantly in my thoughts and in my dreams.  Half of their childhood has gone by already, and so quickly too.

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Together, we have experienced so much already.  You came to me with so much love from a land on the other side of the world.  You pulled me through emergencies that none of us had expected, but for certain, if it were not for you, I could have easily given up.  My doctor’s goal is a simple one, in spite of everything my body is dealing with, he plans on making sure that I see you graduate, get married (if you so choose), and to be a grandfather (I will hope).  So far, he has gotten me 1/3 of the way there.

I love both of you so much Madison and Emmalie.  And I always will.

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Daddy.

Just Inconsiderate? Or Child Abuse?


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If you are reading this post, I would certainly hope not.

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If you are reading this post, I would certainly hope this offends you.

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Only until the turn of the century has attention been paid to this issue.  Admittedly, some of us who are a little “long in the tooth”, recall days of riding in the backs of pick-up trucks, sitting in the old station wagon in the back seat which faced the rear of the car, and of course, riding in the front seat with no seat belt on.  There are many who would argue, “we turned out alright, right?”  Sure we did.  But times have changed in regard to traffic and relying on other people’s driving skills.

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But one thing that unfortunately still exists, and as I witnessed recently, is an adult smoking in a car with a child in it.  Now while the age of the child should not make a difference, admittedly I was more enraged because the child was a toddler.  Sure, back in the 1960’s and 1970’s my parents (all 4 of them – I had two step parents), smoked while I was in the car.  I did not like the smell of it, but I was just a kid.  My opinion did not matter.

But something happened once we entered into the new millennium.

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As it became more and more apparent as to the dangers of second hand smoke, finally the concern for children was being raised by some lawmakers, which was not coming from the parents by the way.  But think about it, and this is not a lecture for someone who wants to smoke, but we can all agree, smoking causes cancer and other awful end-of-life issues.  And those who smoke, chose to begin willingly.  As for being able to stop “any time they want”, well the tobacco companies and lobbyists have done their best to make sure that smokers do not stop.  And with the popularity of vaping increasing, even amongst “new” smokers who simply took up electronic cigarettes because they have been lied to that e-cigs are not as dangerous, again more lies.  But bottom line, adults make the choice.  And as an adult, I can make the choice if I want to stand in the direction of second hand smoke or not, or be in a vehicle when someone is smoking.  A child cannot.  A child is never given the chance to say, “no”.

A child in the back seat of a car has NEVER made the choice that it wants to be subjected to second hand smoke, or begin their first risk towards lung cancer and heart disease.  But the fact is, in spite of knowing everything we know about second hand smoke, and as much as a parent may claim to love their child, some love their cigarettes more.

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If someone spanked a child, society would be in an uproar yelling “child abuse”.  And not to take it lightly, under normal circumstances, a spanking might just leave a minor red mark on the buttocks.  But why is it that we do not charge a parent with child abuse for smoking within the vicinity of a child?

Because, whether a lifetime smoker, or someone who has just picked up the habit, the attitude is always the same, “won’t happen to me.”  My dad smoked with half of his lung removed for lung cancer, and through his chemo and radiation therapy until the day he died, still in denial, “I didn’t think it would happen to me.”  Parents have many rights with their children, but subjecting them to something so toxic, and deadly, is not one of them.  So unfortunately, we now have laws created to protect our children.  Of course that does not mean that they law will be enforced, or even prevent a parent from smoking in the car with a baby (of course the window was open to allow the smoke to exit the car – because there is no way that any smoke reached the back seat…right?).

I will not sugar coat it.  Smoking in front of a child, is two forms of child abuse.  Physical because the child is exposed to the second hand smoke which will put the child at risk for lung cancer in the future.  Emotional, because our children are taught that smoking kills.  My daughters know that their grandfather died directly from smoking.  Imagine how upset they are when they see even a stranger smoking a cigarette, a cigar, pipe, or vaping.  My daughters have seen first hand, that people die from smoking.  And I will not just limit it to the car either, because even if you are at an outdoor picnic, on a porch, anywhere you can smell a cigarette (or any other product), that means you are breathing it in.  Just because they are not in the direct stream of the smoke, does not mean that they are not being exposed to it.

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We should not need a law to protect children from smoking.  But we do need to protect our children who have no say when they are exposed to something so deadly and addictive.  Exposing children to second hand smoke is child abuse.

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