Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Food”

Post #300


I am never going to produce a major blockbuster movie like “300”. Nor will I ever have an opportunity to hit 300 homeruns. In fact the closest I have ever come to achieving 300 of anything would have been a perfect game in bowling back in my late 20’s. I threw strikes in the first nine frames, and then tapped a ten-pin, spared it, then completed the game with another strike in the 11th frame.

With my blog, I am finally achieving a 300, my 300th post on “Paul’s Heart.” My posts are at over 8000 views and the comments of support and appreciation are numerous. This is a big deal for me, but pales in comparison into the week ahead that I am going to have.

Next weekend, Father’s Day weekend, I will be memorializing my father who passed away three weeks ago. After discussing it with my siblings, we felt it was an appropriate tribute to our father. Just as many who have gone through such a personal loss, I am sure that you can understand the struggle to deal with “the first Father’s Day without my father.”

At the same time, it is Father’s Day weekend, something that I have always looked forward to since before I adopted my daughters. Besides the emotional toll of my father’s memorial to deal with, this will be the first Father’s Day for me with just my daughters. Due to the recent custody agreement I made with their mother, and my father’s passing, I have not been able to see them in a long time, the longest time apart.

I speak to my daughters every day, and on a couple of occasions I have been able to see my daughters courtesy of Facetime. I will get to spend the entire weekend with them, and I have a lot of activities planned with them. But next weekend will not be just about me. Every day I have thought about the hurt and confusion that my daughters must have. Which is why I will pull out all the stops to show them next weekend that the divorce does not change who their mother is, or who their father is. It is important to me to make sure that my children do not blame themselves for the divorce, that the divorce was an issue between just their mother and I.

The girls get to do a lot of fun things with their mother, and next weekend, I cannot wait to spend time with them.

My story is not unique, as there are probably thousands of other dads who have a similar story heading into next weekend. My parents divorced when I was young. So I have the perspective from both child and parent.

Next weekend is not about quantity, but rather the quality of the time that I get with my daughters.

Half Of My Life With Cancer


If you have followed “Paul’s Heart,” you notice a countdown box off to the right of the screen. It has a milestone, that to the majority of people, represent something once thought impossible, surviving 25 years from cancer. Yes, today I begin my 25th year of having survived Hodgkin’s Lymphoma. So the countdown should change from twelve months to go, to days left to go.

I am a 24 year survivor of cancer. I have lived half of my life in spite of a disease that kills millions and yet a cure for all seems so far away. Another year down, I know it is no small feat. But once again, as always, my heart is too heavy to celebrate yet another year gone by. I miss so many that I have had to say goodbye to, and this year gone by I include Kim, Karen, Peter, and Michael.

Last week, as I sat across from my father in his hospital room, a nurse asked my father who had been just told his cancer had returned, “what would you like?” To which my father responded, “to survive cancer like my son.”

Today I recognize, but not celebrate, my 24th completed year of remission for Hodgkin’s Lymphoma. It is a sad commentary that in the twenty-first century, we still have not found a cure for cancer for everyone. I am disappointed that follow-up guidelines are not more well known so that survivors are better followed-up for late developing side effects. I want to see better surveillance of patients for critical side effects for drugs that are known to have the possibility of causing side effects, some potentially fatal.

We are so close. Seriously, part of the survivor guilt I deal with, is why I have gotten to live, while so many do not. I am hoping that if anything at this point, is that I may see in my lifetime, a cure for cancer is found, patients are followed more closely during their treatments, and survivors are better followed-up. And as the days count down to one next year, I want to celebrate.

One Direction – Forward


For the last twenty-five years, my life has gone nothing as planned. From the day I was diagnosed with Hodgkin’s Lymphoma back in 1988, one thing I learned very quickly in my life, there was no such thing as being in control of my life. All I was able to do was recognize, accept, and move on, one direction…forward. One of my favorite expressions is ” if you spill grape juice on your white carpet are you going to stand there looking at it asking ‘why?’ Or are you going to clean it up before the stain gets too bad?”
2013 a lot of “grape juice” was spilled. I was rushed to the emergency room for the third time in less than a year. Some late side effects from my cancer days were requiring attention. My second and final campaign for our local school board fizzled into oblivion. My most loyal companion and furry friend Pollo was laid to rest just shy of his fifteenth birthday (not too shabby for a golden retriever). And the biggest event of 2013, the end of my second marriage.
As all of these things occurred, I was never in any control of their outcomes or consequences. I could only move in one direction…forward. My health is always going to have something pop up. But I can make better decisions that can help prevent many things from happening. Stress reduction has had major impact on me already. Confirmed by my doctors, certain vital signs and blood results have improved to the point that medications are being ceased. Even some of the permanent late side effects are less in severity without the large amount of stress.
Local politics was an interesting venture. For all the hype of the last presidential election it was only natural to think that while turnout would not match the levels of 2012, a local election that had major implications surely had to make a difference and could have come down to “one vote making a difference.” But instead voter apathy tumbled far below even two years prior, another off-year election.
I still miss Pollo so much. I have finally stopped automatically going for his feed bowl or the back door to let him out first thing in the morning. But I do still miss his faithful tail wag and inability to get mad for any reason. But the loss has been so painful.
As for the divorce, the end will come. But my attention now has to focus on my daughters. I will not discuss the circumstances of the divorce. But the effects are showing on my daughters. I know what it is like to be caught in the middle of a bitter custody situation and I am doing my best to make sure that they know that both of their parents are going to be a part of their lives not just for 2014, but for years after that. Both of us will have wonderful new changes for the girls providing them plenty of wonderful experiences, just not the misery and stress of watching us not getting along with each other. For everyone else in our lives, I do hope that in 2014 you realize that what led to our breakup was best kept between she and , and had nothing to do with anyone else.
I have lots of hopes for 2014 for the one direction I am making. But I will not forget those that will also be struggling with either their employment, finances, health, or their relationships.
I prefer to clean up the “grape juice.” Not ask why it spilled. To all of you reading this and “Paul’s Heart,” I wish you all a happy, healthy, prosperous new year.
Happy New Year everyone.

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