Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Family and Friends”

The Homestretch


As a kid, I was very shy, so clearly not very popular.  I did not bother running or campaigning for any elected position like student government.  It is not because I was not interested in a leadership role, just not in the organized hierarchy position.    It was during my battle with Hodgkin’s Lymphoma that I soon realized what my personal definition of leadership would be, by setting example.

When I came to my current employment, my job would require me to join my first, last, and only union job.  Do not misunderstand me, I appreciate everything that my union has negotiated for me, such as group health and life insurance which prior to the Affordable Care Act, I would not qualify for the insurance because of prior conditions.

Being a fighter by nature, a defender for those unable to fend for themselves, I made a decision to run for shop steward in my department.  A shop steward is an elected co-worker, generally quite knowledgeable with the contract we work under, and various other workers rights laws.  Because personalities sometimes conflict, the shop steward also needs to be willing to represent a co-worker regardless of any ill feelings.  In my fourteen years in my current department, I ran thirteen times, and lost all thirteen.  I was the “Susan Lucci” of my department.

In 2009, I made a decision that in spite of not being able to earn forty to fifty votes needed to be a shop steward in my department, I was going to take a shot at campaigning for school board in the school district I live.  (That story is posted earlier this year).  The fact that I would need 100 times the votes to earn a school board position compared to the perennial losses that I suffered at work, I felt I could achieve victory.

I fell short in the election of 2011, as did two of my running mates.  But two other of my running mates did earn seats onto the school board.  And it was their encouragement that convinced me to take another run, this time for 2013.  I lost that election in 2011 by 196 votes.  Only 11,000 voted of the potential 50,000 voters.  But I recorded over 9000 votes.  I personally know maybe a couple dozen people locally, and definitely know less than one hundred people, period.

Besides the personality quirk that I have of not wanting to quit or concede, there is a rush that I get, and I am sure that others get during campaign season.  The schedule is exhausting, as now that we are in October, I am out of my house nearly seven days a week, and usually all weekend long attending fundraisers, public events, and going door to door, meeting potential voters.  There is a tremendous feeling I get, when I am responded to in a positive way.  I am congratulated for stepping up.  I am looked to for hope and help for those struggling.  I am being counted on to make things better.

During my first campaign, there are many memories that stand out in my mind.  And this campaign is no different.  This has been a marathon weekend for me.  So my movements are a bit robotic or automatic.  I was not prepared for one open door that I had today.  I will respect her privacy by not revealing her name.  But after dealing with a late heatwave in the middle of October, today was not one of my fun days, until 5:30 this evening.

I was greeted by a jester.  Well, it was actually a mother who was playing with her children who were also in costume, but the mother was wearing a jester’s outfit.  I could not help but chuckle as she proceeded to explain the circumstances to me, but it did not matter.  She broke the monotony that I had been feeling today.  I explained the platforms that myself and my running mates were campaigning on.  And then she told me what I wanted to hear, that she would support the four of us with her votes.  You see, besides being an outstanding mother to her children, she was also a teacher.  Just one of the many who for years has had to listen to constant unjustified criticisms and fabrications about an occupation that we all rely on for the sake of our futures.

It means a lot to be relied and counted on.  Today is just one of many that I will look back upon and remember vividly.  I hope someday that I get the chance to see that teacher again, only under the circumstances of her congratulating me on a  victory.  And all I ask for, is to be able to look at her and know, that she feels hope again.  Hope that the district’s leadership will be the one to set the example of restoring respect to the teaching profession.

I have never won a campaign.  I won my first election this year, finally of the position of shop steward.  I have not let my co-workers down.  I hope this is a sign of things to come next month.

Ichiro Suzuki, Pete Rose, Ty Cobb, and Paul Edelman


Ichiro Suzuki, Pete Rose, Ty Cobb, and Paul Edelman.  We all share something in common with each other.  Alright, we have to eliminate the obvious using the method used on standardized tests… which answer does not fit?  Paul Edelman.  The other three names are/were professional baseball players who hit for over 4000 career base hits.  Each time, the impossible became possible.  Ty Cobb hit for 4000 career hits, a record never thought to be broken.  Then Pete Rose achieved that mark, followed by Suzuki.

In 2012, there were eleven quarterbacks who threw for over 4000 yards breaking a record 10 quarterbacks in one season.  Future Hall Of Famers, Drew Brees, Tony Romo, Tom Brady, Peyton Manning and Aaron Rodgers just to name a few.

The late, great Wilt Chamberlain is the only pro basketball player to ever score 4000 points in one season.  The season being the years 1961-1962.

Sorry hockey fans… and I am disappointed as well there are no 4000 goals or points scored.  Goalie Devan Dubnyk of the Edmonton Oilers has stopped over 4000 shots as have Roberto Luongo, Henrik Lundqvist, and bizarre former Flyers goalie Ilya Bryzgalov.  I looked for any hockey player who might have racked up 4000 penalty minutes and the closest I could come was a player by the name of Tiger Williams (Toronto Mapleleafs) who retired just short of 4000 with 3966 minutes.

There has been no physical demand on my part to reach 4000 views on Paul’s Heart, just the will to put my thoughts down into written form.  I would like to think that there are more in my household who would be excited for me, especially my oldest daughter who is not really fond of reading.  You would think she would see that so many have read what her father has written and have that motivate her, but to my disappointment, nope.  Nonetheless, for the guy who’s college English professor once wrote while grading one of my papers that I “don’t have the intelligence to get past a comic strip page”, I think I can, and have done so.

I now set my sights on a new goal, 5000 views.  Thank you so much for encouraging me with your comments and support.  Darlene, thank you for suggesting this be my outlet for my thoughts in pursuit of that book I want to write.  And to everyone, I have over 100 more stories already started, not including the ideas that pop in my head daily.

As usual, I constantly run into new experiences that I want to share with you, in hopes that somehow, you will see, you are not alone.

Thank you everyone for reading Paul’s Heart.

 

Sometimes It’s Not Good To Look Ahead


One of the most important pieces of advice I can give any cancer patient, as an experienced patient and survivor is, “do not look at your calendar and an end date for your treatments.”

It is only natural once you are diagnosed with a cancer, and told how long you will be undergoing treatments, to look at the calendar and see just when it will all end.  An end goal is always a good thing, however, going through cancer treatments is such a struggle.  That is why we all dread going through it.  The stereotype alone is enough to cause us anxiety.

But imagine the following scenarios:

1)   you are a patient scheduled to undergo 12 cycles of a treatment plan.  This could mean 24 weeks or 12 months.  Watching the calendar could make it feel impossible that you will be able to reach that end.

2)  prior to starting your next treatment, your blood counts are off, and you are told you will not be able to undergo your next treatment, thus pushing your end date further than you had planned.  Or perhaps you get the flu or some other infection.  Delays of treatments are devastating.

My dad recently found out about this philosophy of mine, first hand.  As we arrived to meet the oncologist prior to his treatment, the oncologist notices a swelling and discoloration in the hand that had received the chemo injection.  It had become infected and needed to be treated before the next treatment could begin.  It is possible that had my dad noticed it sooner, it could have been treated when it actually started to develop, but obviously had not.  He got the news no cancer patient going through treatment wants to hear, “we will have to reschedule you for next week”.

So how do you prevent this thinking from happening?  It is simple.  Keep the task at hand as simple as you can, worry only about the treatment you are currently undergoing.  Take each treatment one day at a time.  It is really that easy.

I should know.  My last treatment was delayed because I got the flu.

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