Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Recreation”

The Homestretch


As a kid, I was very shy, so clearly not very popular.  I did not bother running or campaigning for any elected position like student government.  It is not because I was not interested in a leadership role, just not in the organized hierarchy position.    It was during my battle with Hodgkin’s Lymphoma that I soon realized what my personal definition of leadership would be, by setting example.

When I came to my current employment, my job would require me to join my first, last, and only union job.  Do not misunderstand me, I appreciate everything that my union has negotiated for me, such as group health and life insurance which prior to the Affordable Care Act, I would not qualify for the insurance because of prior conditions.

Being a fighter by nature, a defender for those unable to fend for themselves, I made a decision to run for shop steward in my department.  A shop steward is an elected co-worker, generally quite knowledgeable with the contract we work under, and various other workers rights laws.  Because personalities sometimes conflict, the shop steward also needs to be willing to represent a co-worker regardless of any ill feelings.  In my fourteen years in my current department, I ran thirteen times, and lost all thirteen.  I was the “Susan Lucci” of my department.

In 2009, I made a decision that in spite of not being able to earn forty to fifty votes needed to be a shop steward in my department, I was going to take a shot at campaigning for school board in the school district I live.  (That story is posted earlier this year).  The fact that I would need 100 times the votes to earn a school board position compared to the perennial losses that I suffered at work, I felt I could achieve victory.

I fell short in the election of 2011, as did two of my running mates.  But two other of my running mates did earn seats onto the school board.  And it was their encouragement that convinced me to take another run, this time for 2013.  I lost that election in 2011 by 196 votes.  Only 11,000 voted of the potential 50,000 voters.  But I recorded over 9000 votes.  I personally know maybe a couple dozen people locally, and definitely know less than one hundred people, period.

Besides the personality quirk that I have of not wanting to quit or concede, there is a rush that I get, and I am sure that others get during campaign season.  The schedule is exhausting, as now that we are in October, I am out of my house nearly seven days a week, and usually all weekend long attending fundraisers, public events, and going door to door, meeting potential voters.  There is a tremendous feeling I get, when I am responded to in a positive way.  I am congratulated for stepping up.  I am looked to for hope and help for those struggling.  I am being counted on to make things better.

During my first campaign, there are many memories that stand out in my mind.  And this campaign is no different.  This has been a marathon weekend for me.  So my movements are a bit robotic or automatic.  I was not prepared for one open door that I had today.  I will respect her privacy by not revealing her name.  But after dealing with a late heatwave in the middle of October, today was not one of my fun days, until 5:30 this evening.

I was greeted by a jester.  Well, it was actually a mother who was playing with her children who were also in costume, but the mother was wearing a jester’s outfit.  I could not help but chuckle as she proceeded to explain the circumstances to me, but it did not matter.  She broke the monotony that I had been feeling today.  I explained the platforms that myself and my running mates were campaigning on.  And then she told me what I wanted to hear, that she would support the four of us with her votes.  You see, besides being an outstanding mother to her children, she was also a teacher.  Just one of the many who for years has had to listen to constant unjustified criticisms and fabrications about an occupation that we all rely on for the sake of our futures.

It means a lot to be relied and counted on.  Today is just one of many that I will look back upon and remember vividly.  I hope someday that I get the chance to see that teacher again, only under the circumstances of her congratulating me on a  victory.  And all I ask for, is to be able to look at her and know, that she feels hope again.  Hope that the district’s leadership will be the one to set the example of restoring respect to the teaching profession.

I have never won a campaign.  I won my first election this year, finally of the position of shop steward.  I have not let my co-workers down.  I hope this is a sign of things to come next month.

Ichiro Suzuki, Pete Rose, Ty Cobb, and Paul Edelman


Ichiro Suzuki, Pete Rose, Ty Cobb, and Paul Edelman.  We all share something in common with each other.  Alright, we have to eliminate the obvious using the method used on standardized tests… which answer does not fit?  Paul Edelman.  The other three names are/were professional baseball players who hit for over 4000 career base hits.  Each time, the impossible became possible.  Ty Cobb hit for 4000 career hits, a record never thought to be broken.  Then Pete Rose achieved that mark, followed by Suzuki.

In 2012, there were eleven quarterbacks who threw for over 4000 yards breaking a record 10 quarterbacks in one season.  Future Hall Of Famers, Drew Brees, Tony Romo, Tom Brady, Peyton Manning and Aaron Rodgers just to name a few.

The late, great Wilt Chamberlain is the only pro basketball player to ever score 4000 points in one season.  The season being the years 1961-1962.

Sorry hockey fans… and I am disappointed as well there are no 4000 goals or points scored.  Goalie Devan Dubnyk of the Edmonton Oilers has stopped over 4000 shots as have Roberto Luongo, Henrik Lundqvist, and bizarre former Flyers goalie Ilya Bryzgalov.  I looked for any hockey player who might have racked up 4000 penalty minutes and the closest I could come was a player by the name of Tiger Williams (Toronto Mapleleafs) who retired just short of 4000 with 3966 minutes.

There has been no physical demand on my part to reach 4000 views on Paul’s Heart, just the will to put my thoughts down into written form.  I would like to think that there are more in my household who would be excited for me, especially my oldest daughter who is not really fond of reading.  You would think she would see that so many have read what her father has written and have that motivate her, but to my disappointment, nope.  Nonetheless, for the guy who’s college English professor once wrote while grading one of my papers that I “don’t have the intelligence to get past a comic strip page”, I think I can, and have done so.

I now set my sights on a new goal, 5000 views.  Thank you so much for encouraging me with your comments and support.  Darlene, thank you for suggesting this be my outlet for my thoughts in pursuit of that book I want to write.  And to everyone, I have over 100 more stories already started, not including the ideas that pop in my head daily.

As usual, I constantly run into new experiences that I want to share with you, in hopes that somehow, you will see, you are not alone.

Thank you everyone for reading Paul’s Heart.

 

Then And Now – Final Day Of Treatment


Today’s post is dedicated to a young man in Southern Florida.  I am not using his name to protect his privacy.  I have never met this “kid” in person (at age 23 he is just a kid), only through the internet.  He was diagnosed with Hodgkin’s Lymphoma, just as I, at around the same age as I.  I learned of him as he was completing his second or third treatment.  Tomorrow, he will receive his last treatment.  I will be anxious to hear of his every moment from the impressive milestone.

The day had finally arrived.  It was a week late because the prior week, my blood counts were too low.  The option was to modify the chemo for that week, or delay the treatment a week and see how I feel, or just cancel the treatment all together.  The doctors decided that it was best for me to delay my treatment for one week.  I had done so well up to this point, had gone through 7 1/2 cycles.  I needed this one last set of infusions, and I would have solidified my chances of surviving Hodgkin’s Lymphoma.

That Friday, March 3, 1990 began just like the other Fridays of treatment.  I would go into the oncology office, by myself.  My name would be called twice.  The first time was to do bloodwork and confirm that I could handle going through the final treatment.  I had been cleared.

The second time that my name had been called, it was to walk back to the chemotherapy suite.  As usual, my oncology nurse Brenda was busy setting up all of the syringes.  I sat down in the chair and began to roll up my sleeves.  I was not sure which arm would be used.  I just know that my veins had been destroyed by all of the chemicals that had been used to save my life.

Brenda turned around, looked at me and asked, “you ready?  You have finally gotten here, the end.  This could not have been easy for you.  These are such hard drugs to use.”  I gave her an agreeing nod, and like that, she had already stuck the needle into my arm.  Half of the cycle resulted me dealing with nausea, the second half, did not give me any problems.

And so over the next hour, I received my final treatment.

After the last drip, Brenda began the process of removing the catheter from my arm.  “Now Paul, when you get up from this chair, you have to imagine that there is a marching band playing for you, in triumph.”  My eyes lit up and all of a sudden, I could “hear” the band as I walked down that long hall from the chemo suite, for what I was determined to be the last time.

With the internet today, over 23 years later, internet support groups now make a daily post announcing those who are completing their treatments.  And today, there are pictures of these milestone.  Someone is either holding a sign announcing the date and the event, or many hospitals have a huge bell that is rung each time a patient completes their treatment.  Even more impressive, is that every day, people join the millions of cancer survivors, MILLIONS!  Unlike 23 years ago, I know many of these survivors.

Tomorrow, my friend will complete his treatment, twelve cycles, countless injections.  This is no easy fete for anyone to accomplish.  The physical toll is nothing compared to what the mental toll can take through the whole experience.  From the fear of death, to the frustrations of having ups and downs, and no way to control them, the emotional toll can be brutal.  He was blessed during this journey with having the strongest support than I can ever recall.  As I went through my battle, I remember often the times that I said “I wish I was younger so that my parents could have made the decisions about this cancer for me”.  His mother has been by his side from the first moment.  As a parent myself, I cannot imagine having either of my children have to face such a disease.

But Dude, you have done it!  You have gotten to your final treatment.  You have done it with courage, strength, and determination.  The support of your mother, sister, grandparents clearly played a roll in beating this cancer.  Tomorrow is your day.  Congratulations and this is for you…

“As I continue down the road of remission, I will keep looking in my rear view mirror to make sure that you are still following me.”  This is a quote that I often write to many who recognize such milestone days in their battles with cancer.

It is over 23 years for me.  I wish you the same lengthy and healthy longevity that I have experienced.  Good luck tomorrow.

Your friend, Paul

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