Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Politics”

Tweens And Elections


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Though my daughters were old enough to remember my two local school board campaigns, they were too young to really care what that all would mean, or politics in general.  They knew that I was away a lot, talking to a lot of people about how I wanted to represent students and the residents of our school district.  And that was all that mattered.  They were shielded from nearly all of the negative stuff that comes out during election season.  And since those elections, politics have not been brought up.

Until Monday night.  A phone call from my youngest daughter mentioned that a robo-call had come from the school district, but that she was unaware what the message was about.  I told her that it was most likely because on Tuesday, Pennsylvania was holding its primary election, and since the district decided as usual to make up a snow day (kids always celebrate getting the day off for snow, not really understanding they will make the day up later – it does not matter to them), the district was probably calling to explain to parents the special procedures in place to make sure the children were safe, while adults would enter the school to cast their votes.  I had always been against this, but the district assured that everything would be alright, sectioning off the gym, allowing voters access to the building through one door going straight to the gym.

Of course, the children are inconvenienced during their school day, access to the gym, entrance and exit procedures different, and, even though elementary age, having to deal with conversations about candidates.

And so with that, I had my first official political conversation with my daughters, at their request.  There are certain things as they have grown up, that I have insisted upon, things that I have encouraged, and things that I have left up to them to decide.  I made sure that they learned good eating habits.  I taught them that respect, honesty, and loyalty are three of the most important values they can have and give.

But when the conversation turned to individual candidates, my preferences, and the chatter among their friends, though they are way to young to vote yet, I want them to know just how important the process will be to them in the future, and as they learn about our election system, to pay attention.

I know how I am perceived, and wrongly so.  I do not believe in the whole “you are either a conservative or a liberal” thing.  I want to vote for someone who will represent the things that I consider important.  I want to vote for someone that is not going to try and cram their ideals and morals down my throat.  There are some things that I accept from both major parties, but there are a lot I detest in both parties as well.  This election cycle is going to go down in history as one of the most bizarre and embarrassing elections.  And it was difficult to explain to my children that what they were witnessing in politics is something none of us have ever seen before, and then explain all the efforts do not follow the will of the majority of voters.

First we talked about the primary process itself.  In Pennsylvania, it is very confusing as it is, because only those committed to the two major parties are allowed to vote, ignoring anyone registered as “independent.”  I was asked why they cannot vote.  And of course the follow up, “then why don’t they just sign up for one of the two parties?”

But it is more complicated today.  Because they have heard about the front runner of one party, and how the political party is doing everything they can to prevent that candidate from being the nominee, including bully tactics as seen on playgrounds (ganging up).  And the other party is no different with the popularity of one candidate simply being ignored, and a delegate system being advertised repeatedly to discourage voting for a particular candidate.  And then finally, to explain to my daughters, that even after the primary elections are over, the two parties are prepared to ignore the will of the voters.

Thought we did talk about some of the issues of each candidate that they asked about, I did not discuss who I will vote for with my daughters.  And when they are old enough to vote, I will not ask them who they will vote for.  Along with eating right, behaving properly, they have to make the decision on the candidate that will best represent what they expect from a government.  And unlike our leaders, if they grow up more left or right, or even meet in the middle, I will at least respect them for wanting to be informed, and getting out to vote.

30,000 And Counting


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I woke up to a surprise this morning.  It should not have caught me off guard as I knew it was coming.  But there is something surreal about actually having achieved this number.

Paul’s Heart hit over 30,000 views last night following the last post, “When A Door Opens…”.

I sit here humbled.

I started Paul’s Heart with the goal of trying to reach cancer survivors to supply information and advocate for care.  Eventually I included issues concerning my life as a survivor and the many issues I face including health, financial, and relationship.  I discussed the many challenges of parenthood from a survivor’s perspective.  And now, I must also include facing divorce for the second time.

But here are the numbers since I started Paul’s Heart:

5 publications in Memorial Sloan Kettering Cancer Center annual Anthology

1 live performance from the above mentioned anthology

several newsletter articles published for Memorial Sloan Kettering Cancer Center

too many cancer survivor speeches to count

565 posts on Paul’s Heart with another 300 drafts started

40 pages (most popular posts saved as a page for convenience)

2 books in the beginning stages

But perhaps the biggest and most important numbers are as follows:

26 years cancer free of Hodgkin’s Lymphoma

2 beautiful adopted little girls that at one time I thought parenthood was impossible

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To all of my readers and followers, I am far from finished.  Thank you for reading.  Thank you for your encouragement.  Thank you for your support.

Paul

Call It Like It Is – That Is All I Ask


I am a little bit frustrated today by a couple of things.  The day actually started out pretty good, just wanting a trim for my ever-growing long hair.  You see, I decided to let it grow, because one of the only things that I can donate since my body is “damaged” from chemotherapy and radiation therapy, is my hair.  While there many my age who would even love to have 1/4 the coverage that I currently have at our age, I am even more thrilled that it is less than 5% gray, my natural color.  So, I had no doubt, there would be much interest in my hair.

Now after carefully considering organizations to donate my hair through, because there are some that either do not donate all the hair donated, or worse, charge cancer patients who need the wigs that are made, I visited a salon who was connected to the organization that I had selected.

Then I received the news.  My hair, which is currently at its longest length prior to my cancer days, was not near long enough.  Now I know, it is natural to think a woman’s desire in length would require a longer donation, but I would have thought my length, which is now past my shoulders would have been more than enough for a young child or man.  Another five inches of length is required.

While some may consider my hair length “rock star” length, or “cousin It”, I have enjoyed the length in the back because it covers permanent damage from radiation therapy.  Alas, even I do not think I can last another five inches of length at this point.  So while I am waiting to get my hair “trimmed” a couple of inches to a more manageable length, I read an article across my Facebook feed from back in my home state of Pennsylvania, leading to my second frustration of the day.

The web site “Thedailychronic.net” headline read, “Pennsylvania Medical Marijuana Blocked by Rep. Matt Baker”.  Of course, my blood immediately begins to boil, because I am a huge supporter of medicinal marijuana for patients.  There was a push for approval in Florida last year that just fell short, and the push has begun again this year.  There is hopes that a compassionate bill to help chronically and terminally ill patients find relief from the pains and discomforts they face every day.

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Senate Bill #3 passed the PA house overwhelmingly 149-43 making the medicinal use of marijuana legal in the state of Pennsylvania.  It was not happen if one Representative Matt Baker had his way threatening to not allow his committee to take up the Senate’s bill, EVER!  The PA Senate previously approved the bill 40-7.  And polling among Pennsylvanians showed well over 85% support of this tightly written proposal, Baker was simply against it.

Looking at Baker’s campaign contributions, you will see many, a lot, numerous, several, too many contributions from Big Pharm.  The same companies that make the expensive, addictive, and sometimes lethal painkillers and anxiety medicines which many patients cannot even afford.

Call it like it is.  Big Pharm loses out big time on profits if medicinal marijuana is approved because it will be less costly.  It certainly is not addictive and to my knowledge, has never killed anyone.  Not like the many opioids and antidepressants (you know, the ones that tell you flat out in their disclaimers with side effects “may cause thoughts of suicide” to name just one) that have resulted in the deaths of so many.

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According to Thedailychronic.net, Baker received over $37,000 in campaign contributions from Big Pharm manufacturers, pharmacies, and drug wholesalers.  You cannot tell me that those contributions will not carry more power than the compassionate concerns of the people.

Fortunately, it looks like this bill will finally get to Governor Tom Wolf for his promised signature.  Finally patients in the state of Pennsylvania will finally have another method of relief from chronic and terminal illnesses such as Cancer, HIV/AIDS, ALS, Parkinson’s, MS, epilepsy, Hungtington’s, Chrone’s, PTSD, seizures, sickle cell, autism, and of course chronic and severe pain.  Pennsylvania will hopefully be the next state to join others in making compassion a priority to its residents.

And Mr. Baker, if you wish change my opinion to convince me otherwise that you care about what patients go through, perhaps in your photo gallery, you might post other photos besides opportunities with a whole bunch of suits.  Try showing you care by being photographed with a constituent you want to deny relief to.  But all I see is the money you would be concerned about not getting for your re-election because your contributors are more concerned about losing profits.

Florida, you are up next.

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