Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Food”

A Typical Day Today


The easiest way to get through these difficult times, is to keep some sort of routine.  We all have different needs and circumstances for sure.  But as I have often explained before, from personal experience, my chemo battle, you can get through the toughest times of your life, if you take them one day at a time.  Concentrate your energies on that day only.  And if it works for you, make that your routine.  Because the next day, you can look back and say “this worked yesterday, I can make it work today.”  Some would call this “groundhog day thinking.”  Maybe so, but it works.

Knowing I am high risk, I have kept to myself to not only protect myself from my vulnerabilities, but also so that I do not have any impact on anyone else, especially any health care workers.  Their work load is heavy enough without me being another patient for them.

My days are static, routine, not really any fluctuation other than longevity of each activity.

After my morning walk, I spend my time with “to do’s”.  I had been talking about writing a book based on my experience as a cancer patient and survivor, much like I do here on the blog.  The good news, this crisis has finally convinced me that I had the time.  And I am fifteen chapters into this “survival guide” I am nicknaming it.  A couple notable things while doing this project, which I have no idea that I will even finish it, but can I even get it printed.  My goal is just to finish it.  The first thing that has my attention, the details that are still in my mind, fresh as the day that they happened over thirty years ago.  I remember everything, including conversations, word for word.  The second thing, I have been alive to see actual progress in the diagnostics and treatments of Hodgkin’s Lymphoma.  With that came the disappointment and realization of the fact that very little was known about what my body was being put through as far as treatment when it came to long term survival.  I was a guinea pig.

Anyway, staying focused on this being a fun post.  Along with the book project, I am also always working on posts for “Paul’s Heart.”  Both of these I am doing on an old laptop.

Yep, my laptop is almost twenty years old.  A technical issue resulted in an upload upgrade to Windows 8.1, but the operating system is old.  But like everything else I have, I take really good care of my things.  Vinyl records… never a scratch.  Original Nintendo game cartridges, never had to “dust” off any contacts.  My laptop?  I protected it in its case, kept viruses at bay.  In fact, I sill have all the information stickers on the laptop.

One way that I have preserved it so long, is I go through it, looking for things that I can delete or consolidate.  I have not really made a lot of ground on either effort.  But what I have done, has been way more fun.

Do not underestimate the power and the value of reliving your past.  I literally have thousands of photos saved in my laptop.  Places I have been to, things that I have done.  More importantly, so very precious moments with my daughters.  Struggling with the daily repetitive grind of this crisis?  I simply go through album after album of these memories.  There are so many, and I know that I have not seen them all.

Besides a daily walk, with my health concerns with this virus, I do what I can to keep my lungs in the best condition that I can, in spite of their condition.  I could just use the spirometer daily, but as anyone who has ever had to use one, they hate it and using it is boring.  So, a more fun way to exercise my lungs, ask Alexia to play some music.  Because of the reduced capacity of my lungs, I no longer have the technique that I once did.  By the end of the song, I usually end up winded.  But I have accomplished what I wanted, expanding my lungs and keeping them flexible.

I have also been paying attention to what others have been “binging” on Netflix and Amazon.  While my back will not allow me to watch more than two episodes at a time, I have completed Ozark the 3rd season, Hunters, Upload, and of course, Tiger King.  Newsflash, there is going to be a 9th episode (the 8th episode was an after filming episode filmed via social distancing methods).

But the highlight of my day is in the evening.  Getting to talk with my daughters.

Initially reliant as communication between scheduled visits, as we wait for the time that it is safe not only for my daughters, but for me to travel with my health issues, Facetime, Zoom, and House Party allow me to still share our daily experiences.

And that for the most part is how I fill my day, day after day.

Like everyone, I am hoping that this crisis ends soon.  I do not know when it will end.  But in the meantime, I am doing my part not to spread or get infected.  I do not get involved with the whole “forced to do it” movement.  I do it because it is the right thing to do.

“Paul’s Heart” – 50,000 Views Strong!!!


Typically, people dread Mondays.  While I do not dread them, Mondays are not my favorite day of the week.  HOWEVER, today is a great Monday!  As the counter states, “Paul’s Heart” has had over 50,000 views officially this past weekend.  Among some of the other stats that I have completely not remembered, I have published 764 posts (765 including this one).  There are 252 more posts in draft form, and hundreds that are just prompts.  And then there are more than a dozen published stories and articles that I have share on this site.  So many readers have either commented or written me with questions, situations, seeking advice, or simply just to say, “yeah, I totally get that.”

Just some of the topics that I cover regularly:

  • cancer and survivorship
  • adoption
  • parenting
  • healthcare
  • discrimination
  • parental alienation
  • education
  • bullying

I am driven by the expression, “those who cannot do, teach.”  Because I am a cancer survivor, I cannot donate blood or organs.  Because of cancer treatments, I discovered the world of adoption.  I have taken on discrimination and won.  I do not tolerate bullying at all.

But my one goal with “Paul’s Heart” has not been met yet.  Actually writing a book.  I have begun the process many times, each with a different concept or approach.  The only conclusion that I can reach as to why, is that I have not experienced yet, that one key moment that will either be the beginning, the focus, or the conclusion of such an endeavor.

In the meantime, I will keep writing about things I cannot do, but can help.  I will continue to be a voice for those that do not have the ability or confidence.  I will research and find answers, point in directions where to find answers.

I will also keep looking for, and printing guest stories from you, the readers.

From the bottom of my most grateful heart, thank you to all of you who have read, shared, and appreciated “Paul’s Heart” over the years.

Paul

Hurricane Irma – One Year Later


At this time last year, I was as secure as I possible could be.  Because of the uncertainty of the path of this storm, which was not determined literally until 24-36 hours before, which was too late for the expensive evacuation process, I had made the decision to secure myself behind storm shutters and ride out the storm.  It was not a decision that I made lightly, but as I said, the uncertainty of the path, and the expense of evacuation were both deterrents in me leaving my home.  All I could do was prepare as best as all of us who remained, were instructed to do.  As I write this, at 12:30pm, three hours later from that time, as previously warned, the eye of Hurricane Irma would pass directly over my city.

You could hear the storm grow in severity as it approached with the winds rattling the storm shutters harder and harder.  Unsecured objects being lifted from their sedentary spots and hurled harder than cannonballs into buildings and shutters.  Of course, being enclosed, there was no way to witness the destruction that was occurring outside.  I could just hear it getting worse, louder and louder.

A calm would come eventually, as the eye passed overhead.  Nothing near the beauty as shown in movies, but it was definitely much more calm than just minutes before.  Against warnings, as the broadcasters knew many would do, I ventured outside to experience this eerie calmness.  It was still raining, and the winds had died down from the 140mph, to at my guess, 20 to 30mph.  And within minutes, the winds instantly returned to the triple digit speed the storm arrived with.

A couple of hours later, Irma was gone except for some remnant bands.

Under normal circumstance, September 11th, would be a day that I remember what happened to our country.  And really, given the charged political atmosphere had become, especially here in Florida, Irma had become a much needed distraction from two sides of people with different ideas and opinions.  For after this storm, we were all one people, trying to recover from one of the worst storms in history.

My building is in the process of finally being repaired, its roof still not completed on this anniversary.  We are in the middle of rainy season, and there is another two potential hurricanes heading to Florida while the Carolina’s brace for Hurricane Florence this week.

Right now however, we have recovered for the most part, at least as far as our lives go.  There are still probably 25% of people that still have repairs that need to be done.

Sadly, the American people of Puerto Rico, were hit with a storm right after Irma, Maria.  And to this day, the island is still in horrible shape.  Over 3,000 people died in Puerto Rico as a result of Maria.  And repairs are still necessary for so many.  They need help.

I have gone through seven hurricanes in my life, this the first one going through the eye of the hurricane.  From moment one following the storm, we learned what it was like to live without power, without running water, without the ability to cook.  The list goes on.  As I said though, neighbors and friends got through this together, not divided.  No matter what our differences, we did prove that we can get along and help each other.

As the expression goes on, literally,  “you don’t know what you’ve got til it’s gone.”

 

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