Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Food”

Happy Thanksgiving From Paul’s Heart


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Happy Thanksgiving to everyone following “Paul’s Heart.”  I am thankful for so many things in my life, and this blog is something I am not only proud of for the number of people I have reached, but am so thankful for all the support that has ever been offered.

This officially begins one of the busiest, expensive, stressful, and memorable times of the year.  For some, it is one of the most difficult times of the year to endure.  Many families are struggling financially or have suffered personal loss, and for some, this may be the first year that they are going through this holiday season under those conditions.

Others may be in situations that just seem outright sad, going through holiday struggles year after year.  “Paul’s Heart” had its origin twenty-six years ago when I was diagnosed with Hodgkin’s Lymphoma.  I have not had a “typical” Winter holiday season since, ever.  There has always been some sort of crisis, tragedy, or struggle to endure.  But that is what I do, I get through it.  I have to.  I have two beautiful little girls who depend on me, and enjoy the holidays.  They do not know why I have such difficulties with the holiday season.

I am not alone.  Many of my friends here are in a similar situation as me.  They are away from family and celebrating Thanksgiving with friends.  And no matter what the meal will consist of today, we will all make the most of our holiday today, and we are thankful for that.

There are actually meaningful football games to day, unlike years past, where a team just shows up to play on Thanksgiving.  At least four teams playing have playoff implications.  I know where my eyes will be glued tonight.

 

PART_1417100861070_Image1417100860969   GO SEAHAWKS!!!!

And then, in the wee hours of the morning, another new Thanksgiving weekend experience for me.

5 - On Our Way To China

I will be on an early morning flight to be reunited with my daughters.  This will be our second Thanksgiving since the divorce was filed, but this is the first one that I have been away from them so long.  My mother has made this trip possible for me, and for that I am very thankful.

As we approach the Winter holidays, all I want is for my daughters to know how much I love them, how much I miss them.  And just as my past visits with them, that is all they will be told.  I am keeping everything about the divorce from our conversations.  I know this is not easy for them.  And it would be even worse for them, if they knew how one parent treated the other.  The children love both of us and this season is going to be critical to the children if that love is to survive.  And just like every other holiday season, I do plan to get through it, and hope the next year will finally be the time I get to say “Happy Thanksgiving” without following the phrase with “but…”

Happy Thanksgiving to everyone.  Girls, Daddy cannot wait to see you tomorrow.  I love you.

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From The Beginning… Again


There comes a time in every cancer survivor’s life (and perhaps even during a cancer patient’s life – though admittedly they probably have more important things on their minds), if they happen to be single or not married, when a decision is made to start dating.

Dating is hard enough, with pressures of personalities, interests, social circles, and everything else just to come to a conclusion if there is going to be any chemistry between the two, or possibly any future.  As if things were not hard enough, imagine being in the position of having to tell someone you are interested in, that you had cancer.

We often make light of just how fast a relationship develops into the physical aspect, and of course the emotional aspect, but just when is the right time to tell someone you had cancer?  Or in many cases, even more serious issues.

Dating certainly has changed over the decades since I was last “single”.  My two marriages were back to back.  There was no “Match.com” and I detested blind dates.  For me it was simple, I would get up the courage to ask someone out who I was already familiar with.  Of course, my first marriage, I was diagnosed with my cancer before we got married, so ex #1 had to deal with the cancer issue directly.  But as my first marriage ended, I began dating ex #2, who had already known that I had a cancer history, so there was no need to discuss it.  She had known me long enough to know that the only thing that would be an issue from my cancer, was that chemo had left me infertile, unable to bear biological children.

But unlike past relationships that had ended, I was in no hurry to develop any new relationship.  If I am being honest, I have no intentions of ever getting married again after the way my second marriage is ending.  This is unusual for me, because historically, it has always been my nature to start dating right away, and developing a serious relationship.  I had gone further with ex #2 than anyone in my life with feelings, development of family, and support during the toughest of times.  But the acts of betrayal that we both perceive in the failure of our marriage have hardened my heart from every wanting to unite in marriage with anyone ever again.  If I was ever to get serious with someone ever again, I will only allow our relationship to be simple enough, that if it ends, the collateral damage is reduced to near minimal.

So here I am, single, not necessarily looking to date, just looking to build my life socially which had been destroyed through the dissolution of my marriage.  To rebuild my friendships, and build new ones, it would mean that I would once again, have to explain my story, my health story in particular.  As you can read anywhere on “Paul’s Heart”, it is quite complicated, and can be quite demanding.  To accept me into a life, is not an easy decision.  For those who only want to see “positive” messages from me, I can do that.  But the reality is, there unfortunately is going to be a lot of “negative” as well.  But it is my hope that there is hope taken from the “negative” messages.

Dating was going to be another story, now that I felt I was ready to try again.  In all the romantic movies, relationships grow smoothly and according to scripts.  And they all have scenes of each other staring into each others eyes, mushy and silly conversations over dinner.  But when do you drop a bomb on a perspective date, “I had cancer.  But not only that, the treatments I went through are slowly destroying my body.  I have had heart surgery, have lung issues, spine issues, muscle issues, immunity issues, GI issues, oh, and yes, emotionally I have an issue with surviving all of them.”  Reading that last sentence, you would agree, I am quite a catch.  But not in a good way.

The complicated thing is though, I do not have to tell anyone this.  If you look at me, and without knowing anything about me, no one would ever know the train wreck that is my body.

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I can date, and date, and date, and no one would ever have to know.  Of course, if things progressed, I would certainly have a lot of explaining to do.  I have two six inch scars on my chest and abdomen, clear evidence that I had been through something traumatic.  And needless to say, once my shirt was removed, the conversation would ensue, and that would be it for the mood, and probably any future because I had not brought it up sooner.

Just as life often goes, things often happen to you when you least expect them to, a job, a house, friends, or even someone special.  You are always going to be your most comfortable, in your own environment, and amongst the people that you already know.  And they will know you well enough.

But for the first time in my life, being truly single, and with no intentions of ever wanting to be married again, I met someone who at least has opened my heart again.  Neither of us have any intention of getting married ever again, and that is actually a good thing.  Because it is going to allow us to be who we are, without having to change or concede who we are.  And this is going to be a new beginning… again.

To be continued… next post.

“I’m Not Fat, I’m Big Boned!”


Cartman

“I’m not fat, I’m big boned!”, quoted by Eric Cartman from the Comedy Network cartoon show “South Park”.  It is a crude cartoon, sophomoric and satirical.  But with my sense of humor, I did enjoy the show for the brief time that I watched it.  But his quote was one of the first infamous lines, when his little friend called him “fat”, Cartman barked back, “I’m not fat, I’m big boned!”

Long before the television show, I actually tried to use that excuse while visiting my family physician.  One of the undesirable long term effects that I have struggled the most with, is a weight gain during and following my cancer treatment.  Most people when going through chemotherapy often lose weight.  But because I was taking high doses of prednisone for the eight months of treatments, prednisone – a steroid, increased my appetite, which of course resulted in a weight gain.  This was complicated with the destruction of my thyroid from radiation treatments that I had prior to the chemo.  The thyroid is responsible for regulating your metabolism, which of course, controls your weight.  With a thyroid not working properly, it is only common sense, you would have weight issues.

In 1997, as part of an employment hiring, I was required to get a company physical.  I sailed through everything.  And then oddly, something I had never had done in any physical ever, they did some sort of bone density exam on me.  And the result was that I had “a large frame”.  Okay, I stand only five foot seven.  And I was still under the 200 pound mark, so I would never have considered myself “large frame”.  But having discussed my weight concerns with my family doctor in the past, I now had a new theory.

Large frame body = big bones = big bones weigh more

Yep.  That was my logic, and I was sticking to it.  And so, on my next visit to my doctor, I actually tried to use this reasoning on her.  Now keep in mind, any reference I have ever made about my family physician, I have always been appreciative, admirable, and respectful of her.  She also has a great sense of humor too as I soon found out after I actually asked her about the possibility that the reason I was overweight was because I was big boned.  I just found out I was a “large frame” which meant my bones had to be heavier, which would mean I would weigh more.

Officially, she gave me a response, “are you serious?” and we immediately followed a different direction.  She was not going to entertain that theory any further, and honestly, it was a reach.  After all, my bones had always been “large framed” my whole life, and at one point in my life, I was quite a lot of pounds lighter before my Hodgkin’s Lymphoma.

But I am really at a loss.  More than seventeen years later, weight is still an issue for me.  I take thyroid medication, but still not weight loss.  I cannot exercise strenuously because of other cancer treatment side effects that I deal with for my heart, lungs, spine, and muscles.  But I do at least some light exercising nearly every day in the form of walking.  I have wonderful support to help me with controlling my diet, both portion size and actual content.  I have a professional dietician working with me, who encourages me not to be discouraged by the numbers, that it is about how I feel, and how my clothing fits (called a moral victory).

Because of other long term side effects I deal with, I have had several gastroenterology tests performed over the years, and while not great news for other issues, they did not reveal anything per se as far as the issue with my weight.

My struggles as a long term cancer survivor, cardiac, pulmonary, muscular, spinal, immunological, endocrine, psychological, gastro, and more, my weight seems more of just an inconvenience given everything else I deal with in terms of survivorship.

I will keep exercising.  I will keep watching what I eat.  I also am prepared to accept that I just might not be able to help my weight any more than I am.  Maybe I am really just “big boned.”

 

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