Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Family and Friends”

Back To Paul’s Heart


I cannot believe it has been since June that I have written anything here. But then again, yes I can. I have just spent a glorious Summer with my two daughters. It was time needed, and time well spent.

My daughters are back home now with their mother for the school year, with more visits from me, and a nice Christmas break from them planned.

So, I have been starting more writing prompts and topics all the while, and am now ready to start blogging again. Thank you for understanding.

Paul

Morris The Cat Meets Mikey


My eating habits often were compared to two television commercial icons decades ago because, well, the comparisons of my picky eating habits just could not be denied. Morris the Cat was an orange tabby who only ate “Nine Lives” cat food, turning his nose up at any other brand. While I have never tried cat food, I have had to smell it once the can was opened, and they all smelled the same, and looked just as awful. But somehow we were to believe that this housecat knew the difference between one brand and another. According to the commercial, the cat could do just that. Then there was the little kid in the high chair at the breakfast table with his siblings. His name was Mikey, and he did not like anything. Mom obviously did not buy sugar-loaded cereal and the siblings had the bright idea that the best way to deal with the situation, and not eat the cereal their mother bought for them was to “give it Mikey”. Which to their surprise, “he liked it, Mikey liked it”, Life cereal.

Yes, two finicky icons. Those two had nothing on me. My diet was simple… meat and potatoes. I would occasionally sneak in some corn and carrots, apples, bananas, oranges, and watermelon. No seafood. I was easy to cook for. Meat and potatoes. I did not even have to try the food to know that I did not like it. If it was green, I was not even going to spell the name of the food being served to me. Seafood? I did not “see food” go onto my plate if it did not walk on dry land.

This presented a unique challenge because having two small children, I knew that my diet was not a healthy one, and I definitely did not want my children to learn to eat like I did. And that is just it, my food lifestyle was a learned habit. The problem is, it was a forty year education of “no, I don’t want that.” I am fortunate that both daughters ate well right from the beginning. If there was any food that garnered a response “I don’t want that” or “I don’t like that” especially not having tried that, it was met with a “please take a ‘no thank you’ bite.” With that, my oldest daughter eats everything green except for the lawn, but I suspect given the opportunity, and a good recipe, she would find a way. With my youngest daughter, she alone could be responsible for the extinction of the lobster.

So what happens when my daughters diet clashes with my diet especially when my daughters know my health issues and know that I should be eating better? Guilt, lots of guilt and pressure to eat what they place on my plate. The funny thing is, I did whatever I could to change the flavor and the consistency of the food I would rather have turned my nose up. Which usually meant that I smothered everything in ketchup. Even garlic could not alter the food enough for me to eat it. But ketchup? Yep, did the trick. The only thing was, I eventually began to hate ketchup because I was eating so much of it. So it was easier for me to go back to my finicky ways.

Strangely, not until I filed for my divorce, I made another attempt to eat right, eat smart, eat healthy. I have no intention of ever going vegetarian (and I am by no means ridiculing anyone who chooses to eat vegetarian) I love meat way too much. But I am eating smarter. I am working with a dietician who is trying to undo 40 years of bad habits as well as to educate me on “why” I need to eat better, and how.

In between my visits, I would actually take pictures of my plates with all the different colors and email them to her. She could not believe with her own eyes and actually wanted video of me eating the food. I gave her one video, but from there on, she just gave me encouragement. And because I was getting a lot of emotional support from friends in the form of meals, the peer pressure I felt from friends trying to do something nice, I stopped turning my nose up at foods. I am now eating greens, other fruits, and even seafood. I still have the occasional red meat. But I do feel a lot better about how I am eating. And when my daughters visit me, I know that they will be pleased that they can sit down with me for a meal, and not see me drown my food in ketchup.

Of course, this only happens when there are eyes on me. I need to get to the next level to actually order or buy the food when I am on my own. One step at a time.

Understanding The Long Term Cancer Survivor


These are facts. A diagnosis of cancer is no longer an automatic death sentence in most cases. Cancer patients who reach remission, often live longer than five years (a survivor mark established by medicine and hoped for by patients). Treatments used long ago were never fully researched for long term side effects for patients who lived longer than those five years. Once these late effects were discovered, medicine still did not educate doctors, current and future, about late effects leaving millions of cancer survivors to struggle to receive care for mysterious ailments that did not coincide with their age or circumstance.

This is opinion. Once a cancer survivor is recognized with having to deal with late side effects, it is often difficult to convince family members that the effects are real, and irreversible. Employers often look at survivors who complain about their discomforts as simply trying to get out of work. Worse yet, those employers with their own disability management department often argue that an absence, due to those late effects cannot possibly be proven that the two are related in an attempt to reprimand the employee.

These are just a few of the circumstances that I have come across where people just do not get, what it means to be a cancer survivor and have to deal with the treatment side effects that cured us, now hinder, cripple, or kill us. But just when I thought I had dealt with all areas of my life with this issue, another hit came from another direction.

Earlier this week, I had a hearing pertaining to my divorce in regards to support. I am not going into the details of the hearing other than to express yet another example of how society is not yet ready or able to recognize those of us who have been fortunate to beat cancer, and live a long productive life.

During the hearing, the Master (taking the role of the judge for this hearing) was questioning my current absence from work and instead turned it around into why I was leaving my job. There are several circumstances with this issue. For the last many years, I have had several restrictions placed to protect my health in the workplace. And with the backing of the American With Disabilities Act, my employer not only had to, but was willing to meet and honor those restrictions because there was a job assignment that I was able to complete on a daily basis. And I have been doing that job for many years without any issue.

This year however, as many corporations are known to do, my employer decided to close the building that I work in. As this process takes place, work inside my building has dwindled leading to the elimination of the job I have been doing. Instead now, I am placed into a general work assignment pool, where my restrictions now affect my position, leaving me basically unable to do more than 90% of the work. This is not my choice and I had to convince the jurist of this, along with the fact that my medical issues of survival are not only very real, but also severe in nature, and not reversible. My attorney then handed the jurist about ten pages of my medical history as evidence of my health issues. I am not sure how well that will go since many medical practitioners do not understand the health of a long term cancer survivor, how will a jurist? But that is exactly who will decide my fate.

Post Navigation