Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Bullying”

Your Health And Corporate America


I ask for your apologies in advance of reading this post, but right now, I am so pissed off right now!  I do not recall having the anger and disgust in me, even as I faced a similar situation myself.  But after reading a Facebook post last night, the acid churned in my stomach resulting in a tumultuous and sleepless night.

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CORPORATE AMERICA… I HATE YOU AND EVERYTHING YOU STAND FOR!!!!

Okay… so here is what is causing this outburst.  If you have followed me on “Paul’s Heart” you know  I am 100% in the corner of patients and getting the medical care and support that is needed, NO MATTER WHAT!!!  I had been planning on writing a post about just how much corporate America cares, rather, does not care about the health of anyone.  So, where as most of my posts, which involve personal emotion, normally sit 24-48 hours just to make sure that I get my point across the responsible way I intend to do so.  However, so that you can actually feel my rage right now, this is an unedited, no holds barred post intended to get the attention of anyone in corporate America or our government to give a shit about the mistreatment of patients, especially those facing deadly diseases.

A writer posted on one of the Facebook pages that I follow for Lymphoma, that he was being turned down by his employer, for short term disability coverage.  The gentleman has Hodgkin’s Lymphoma, CANCER!!!  Now in case the morons that oversee the Human Resources department do not realize it, CANCER is a deadly disease!!!  And as a patient deals with cancer, both physically and emotionally, it may leave an employee unable to work.  I am not defending someone who simply wants to stay out of work for months for a simple headache, or a sore big toe.  This individual has CANCER!!!

Now you may be thinking, “wait a minute, if he has cancer, it is almost a guarantee that he will miss work because of his cancer.  That would be common sense.”  Except, that is not the case.  The individual was turned down for short term disability, to allow him to remain out of work while dealing with his cancer for the following reason… this patient decided that he was going to treat his cancer holistically, instead of by conventional means.  And his employer did not approve of this choice.  They want him to go through traditional treatments.

Corporate America decided that it did not approve of his decision of his treatment for CANCER, and therefore was going to deny his request for short term disability.  ARE YOU KIDDING ME?!?!  The employee will still have his cancer, which may or may not respond to his choice of treatment.  If it works, he will still experience all the physical and emotional side effects of a patient who undergoes traditional treatments.  And if his treatment does not work… well…he will need more than short term considerations.

But just who in the Hell is Corporate America to tell a patient what medical decision needs to be made?  It is bad enough that pen-pushers in insurance companies make patients jump through all kinds of hoops when time is most important, ignoring the pleas from doctors to speed up the treatment process to allow the best chance for success.

The decision has been made.  Corporate America has stuck a knife through “the heart” of a cancer patient, denying him the opportunity for rest, and recovery that is often needed during this process.

So what will happen?  What can be done for this patient?  Of course, the majority of responses are all pretty much the same, “get a lawyer and fight”.  Which of course is all well and good, if you are a normal and healthy person and have the stamina, and the time to take on such a fight.  But cancer patients, as well as others facing serious illnesses do not have this luxury.  And Corporate America knows this.  So with their heavy hand, you either work, or quit/get fired.  But Corporate America did not get where it has by being soft and humane.  They are willing to go to court and fight the patient, but their money is hoping that the patient does not.  So, even if only one patient out of perhaps five fights this situation, that means four did not, and they would be willing to accept that loss.  That is, if this patient chooses to fight.

Corporate America has no right to tell a patient, as a condition of employment what is appropriate as far as treatment!!!

As I mentioned earlier, I have seen this type of behavior before, though through the Worker’s Comp process.  I was injured on the job back in 2003, in such a way that could have only happened at work.  But because there was lost time from work involved, a supervisor got fancy with a pen to cover their behind, and I was denied.  I was adamant that this was not to go against my personal insurance, and got a lawyer to help me prove my case was indeed work related.  It took nine months, which I got back all of my pay in full.  But it took an independent medical evaluation ordered by my employer, who expected the doctor to side with them, but stated clearly, the injury to my wrist had no chance of ever being done at home.  I did not use a jackhammer at home.  I did not play hockey recreationally.  I did nothing at home that could have created the heavily torqued tear in my wrist.  But then again, this was a situation where Corporate America had been willing to roll the dice… deny three for Worker’s Comp, if one appeals and wins, at least they did not concede to the other two who chose not to fight for their right.

CORPORATE AMERICA DOES NOT CARE ABOUT THE HEALTH OF ANYONE!!!!

It is unfortunate that it has to be this way, but I do hope the patient referred to above, does fight for his absence to be covered under short term disability.  A Hodgkin’s survivor myself, I recall all too well what fighting the disease took out of me.  SHAME ON CORPORATE AMERICA!!!

What Is “Paul’s Heart” About?


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While I have always had an interest in writing, it has only been in recent years that I have really tried to direct that energy.  With the help of a volunteer peer writing program through Memorial Sloan Kettering, and with the help of a personal writing coach, my commitment to giving back or paying forward has reached world-wide opportunities.  I am approaching 20,000 views on this page alone, not including the “Paul’s Heart” Facebook page.  I have informed my writing coach that I still want to pursue writing a book based on “Paul’s Heart.”  So far, I have had 4 contributions to a book called “Visible Ink” (much like a “Chicken Soup for The Soul” books) written entirely by cancer patients and survivors.  I have been published in the MSKCC newsletter “Bridges” dealing with issues such as cancer survivor guilt and when is the right time to seek counseling to deal with cancer issues.  And I have given so many speeches about cancer and survival.  One of my biggest accomplishments so far is about to happen, and I will go more into detail in the coming weeks.  Believe me, it is very hard to keep this one secret because I am very proud of this project.

So as I begin the next quarter of my life, I want “Paul’s Heart” to grow even more, and reach more people.  “Paul’s Heart” covers a lot of topics with the main concentration on cancer and single parenting, but also so much more.

adoption

I have two daughters that I adopted from China.  I am a strong advocate for adoption, both domestic and internationally.  When I write about adoption issues, it is more than just about the process, but also issues related to “growing up” adopted, legislation, and how to come to the decision to adopt.

pets

I love animals.  I love taking care of them.  I love playing with everyone else’s pets.  I have owned pets my entire life with the exception of the past two years, as even now, I still struggle with the grief of the loss of my beloved Golden Retriever Pollo.  I often share fun stories of the pets I have had, or happen to see, as well as discussions about Puppy Mills, animal welfare and care, and of course, dealing with loss.

bullying

Having been a bully victim myself all through elementary and middle school, this is a topic that I take very seriously.  As a parent I joined a pilot effort aimed at preventing bullying in the schools.  I will share legislative efforts as well as other storied pertaining to bullying, and not just from the one being bullied, but also from the perspective of the bully as well (note – I have no experience in that role, other than what I have learned).

cancer

Cancer is what began “Paul’s Heart”.  I cover all topics from diagnosis to survival, physical and emotional needs, effects on family and friends, employment, discrimination, money, reproduction, side effects and more.  Cancer has devastated my family from not only my own diagnosis, but the loss of my father, sister, two grandmothers, and a grandfather.  But one thing I want to stress, I am not a doctor, so you will never see medical advice being offered.  I have been counseling cancer patients for 25 years and not once have I ever given medical advice.  I believe in the power of information, and the more information you can have at your fingertips, the better.

education

I have always been interested in education, and having two small children in school only made my commitment to education even stronger.  So much so, that I spent four years pursuing a position on our local school board where I learned so much more about the education process.

family and friends

This topic is pretty much self explanatory and can pretty much cross over to the other topics I cover.

food

I do not write often about food except to maybe occasionally mock myself for my finicky habits.  And given my many health issues you would think I would pay a little more attention to detail of healthy eating.  So just as my efforts on improving my eating habits continue, so do my efforts in publishing posts on this topic as well.

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Cardiac advocacy is something else I am very strong about.  While my cardiac issues are related to my cancer history, how to deal with cardiac issues does not discriminate why.  Again, I am not a doctor so I will not give any medical advice but I will give you as much information or at least guide you to where to find other information.

inspire

“Paul’s Heart” is about inspiration.  I like to share not only my experiences, but those of others who have faced such difficult times.  I do not want to mislead you with a panacea.  Many of the issues I write about on “Paul’s Heart” are quite serious, so many may come across as not being very positive, and I do not attempt to cover those up.  Last year, I shared the story of Stephanie and her extraordinary battle with Hodgkin’s Lymphoma.  I cannot wait to give you her current update of just how far she has come.  That will hopefully come very soon.  I also shared Jeff’s story and his efforts to give back and pay forward in his cancer battle.  In a bitter irony, Jeff has since relapsed.  And then there was Michael, a young man who beat cancer, just to succumb to the side effect of one of the drugs to treat him.

But there are other stories that I plan to share with you, not just about cancer.  There will be stories about all the topics that I write about from adoption to animals to family.  As a follower, you are always welcome to share “Paul’s Heart” posts if you feel it will benefit someone, but you may also submit your own story.  “Paul’s Heart” is meant to reach many, with information to inspire and guide.

politics

There are two subjects that I generally stay away from, religion and politics.  It is not because I do not believe in religion, quite the contrary, I have a very strong faith, and it is mine.  And I do not believe it is my responsibility to cram my religion down the throat of anyone else, nor do I want it crammed down my throat.  Bottom line, I respect everyone’s right to have religion, or to not have it.

Politics…well, I do not like politics in general.  But if come across a legislative issue or effort that potentially has an impact on the subjects that I write about, then I will share them with you.

recreation

I like to have fun.  I love watching others have fun.  And because I cover a lot of intense topics, every now and then I will throw in a lighter story dealing with just fun.

side effects

This topic is one that I spend a lot of time covering because late side effects from my treatments have led to nearly all of the medical issues I deal with my health today.  But I am also concerned with side effects from prescription drugs, and the lack of any firm protocol to follow up certain drugs known to have a critical impact on particular organs of the body such as the heart.  Again, no medical advice, just information given.

divorce

I am in the middle of my second divorce.  I will never mention either ex-wife by name, nor as a rule will I discuss most events, decisions, rulings about my particular divorces.  And this is for the protection of my children as well as myself.  When I write about issues concerning divorce, stories for the most part will come from other examples unless I specifically state otherwise, and any similarity to my divorces is purely coincidental.

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The final thing you will see me share, are my single parenting thoughts and experiences.  I will not write from the single parent perspective of a parent that was a single parent from the beginning, but rather, as the children who came into the world with both parents, now having to share time, visits between both of their parents, or have sadly had to deal with the death of a parent.

So that is what “Paul’s Heart” is about.  As always, if you would like to contribute to “Paul’s Heart” with either a topic or question, please feel free to do so by writing me at pedelmanjr@yahoo.com and put “Paul’s Heart” in the subject.  Like I said, “Paul’s Heart” is about reaching out to as many in need as it can.  For someone like me who struggles with “survivor guilt”, this is one of the reasons I believe that I have survived all these years, in spite of all the health issues I have dealt with.  I want to make a difference.  I want to inspire.

 

A Simple Thank You Is Just Not Enough


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Thank you so much for the overwhelming support and kind words to my 25th Anniversary post.  I look forward to bringing you new stories in the next chapter of my life.  And yes, I have reset my “counter” to my new goal.

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