Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Bullying”

Debunking Three Myths


Up until a couple of years ago, there was a popular game that teens played among each other, as my daughters often challenged me to the game. It was an interesting concept, though I disagree with the one premise, the game did provide something valuable, an opportunity to learn about an each other. It was called “two truths and a lie.” This game is considered an “ice breaker” or conversation starter, and found not only in schools, but also in media such as Parade Magazine, even the Ellen DeGeneres show. You simply state three things, but two of those must be the truth, and the third must be a lie.

As a parent, I thought I had a pretty good edge with my daughters in this game, clearly knowing more about them than they themselves. It turns out that they were pretty good at finding things to tell me that I might be unaware of, one of the favorite topics, food choices. My youngest daughter was real good at getting me on that one.

So with that explanation, these are two of my truths, and one of the myths (I prefer to use myth as opposed to a lie because this is not something I say or believe, but rather what others believe.

  1. I love to attract drama.
  2. I am a shy person.
  3. I am a private person.

Now if you have followed “Paul’s Heart” long enough, it might actually be difficult to tell. But the fact is, two of these things are actually true about me, while the third, is more of a manifestation or a means for someone to justify how they feel about me as a person.

This first one really baffles me.

I have been told by a few people, that I “love to attract drama.” While I have had my share of intense events in my life, I certainly have never gone looking for them. When I ask for examples of the drama they refer to, I hear crickets chirp. I guess they must be comparing their lives to mine as far as things going on. They must be fortunate not to have anything nipping at their heels constantly. And for that, they feel I must go looking for trouble. I don’t.

I will admit however, that I have an unusually calm demeanor in dealing with crisis after crisis. But do I go looking for drama? Absolutely not. This is just one misconception that some people have expressed to me. I can say for certain, that when I face a crisis, I have a defense mechanism that kicks in, removing all emotions, allowing me to think rationally, recognizing that any kind of escalation in my emotions would likely make the situation worse. And so, I do not make it worse. I simply give myself time to think things out clearly and with direction. Ironically, I am a horrible chess player, but in life, I am able to think several steps ahead. But I definitely do not need to add anything more to my schedule demanding more attention of me.

I really do consider myself a shy person. Merriam-Webster defines “shy” as “timid, tendency to avoid, hesitant, or reserved.” Though I express myself through writing, speaking, and other performances, it is the individual one-on-one conversations that I can struggle with.

Through my school days, I kept to myself, often intimidated by the friendships that others had amongst themselves. Constantly moving during my school days did not help me to establish new friendships, only to move again as soon as I would finally get comfortable. As a co-worker, after some time and effort, I found myself being able to interact with moderate comfort. But really? Anywhere that I had a boundary, physical or mental, between me and someone else, is when I felt my most confident and functional. That became obvious as a radio disc jockey in my younger days, in a closed soundproofed room, broadcasting on the radio, no one looking directly at me. Recently, I had a former classmate call me out on social media following a post response which I considered quite neutral and factual, them stating aggressively and actually quite meanly, that I was still the same as I was in high school, still a “&(%*%” (fill in with any derogatory remark). Before I blocked any further access to me from them, I did make sure that those on that particular page were aware, that while I recognized the name, I never knew this person. I literally basically “hung” with maybe a handful of close friends in school. This person and I had never crossed paths because I was so shy.

But my biggest challenge came when I decided to run for a public office, our local school board. I did not prepare myself mentally, that campaigning was more than just saying “I’m running for school board.” I knew that I would have to give speeches, which I was okay with, because there would be separation between me and the audience. My problem came, when my campaign wanted me to attend “meet and greets” (candidates get the chance to mingle among the voters individually), and I was petrified. As a slate of five candidates, running for the five open slots against the five incumbents, I felt invincible. I had others behind me able to bail me out of any situation that I was getting boxed into. Not being a “politician”, I was not prepared for stumbling blocks that could be thrown at me. While I am a big “eye contact” person when I talk to someone, I found this to be a big problem when the eye contact was not returned.

After all of the speeches I have given, articles and stories that I have written, and other performances, I know that I can handle myself in public situations, but I still consider myself a shy person. This is a major challenge for someone trying to promote a book.

I am actually a very private person. I can hear the “I call bullshit” on this one from many. But I really am a private person, or at least, I want to be. And up until my diagnosis of Hodgkin’s Lymphoma, I definitely can affirm that I was a private person. There is one thing that prevents me from that privacy that I make the choice to live by. 

When I finished my treatments, I promised myself that I wanted to give back for the gift of life that I had been given. But as many cancer survivors know, because of treatments, I do not have the option of some of the more popular things I could do, such as give blood or donate organs. I wanted to help. I wanted to inspire. I want to give hope. To do this, that means I have to “share” my experiences, and if you have followed “Paul’s Heart” long enough, I am really quite transparent, some times to my own detriment. This advocacy that flows through my blood, would branch out to other issues such as patient care, cancer survivorship, adoption, public education, and of course, divorce related issues in regard to children. If I were not in the position I am in today, I would definitely prefer to going back to being a private person.

I am going to throw in a bonus truth. In spite of all of the difficult things that I have faced in my life, and continue to deal with, I really am a positive person. Sure, my cancer history, my divorces, and several other things that I have faced, are quite the downers. But I persevere. I come through every time, because I believe I will. All too often, many have counted me out, actually, they depended on me tapping out and quitting. But I don’t. Yes, I have many health issues that consume my attention. Of course, I missed being with my daughters during the divorce period as much as I was prior to the divorce. There are many things that I deal with as an advocate, and yes, they are difficult. But that does not make me a negative person because I make a choice, to deal with everything head on and to support others. I truly believe that things work out the way that they are intended to work out. And as long as I wake up tomorrow to do it all again, that sounds pretty positive to me.

We Need To Find A Middle


I really did not expect to ever have another post about this subject ever again, but here I am. And why today? Because of all of the anniversaries that I have to recognize, even the bad ones, this one did not have to happen. The thing is, though it does personally affect me emotionally due to the circumstances, the peripheral effects do impact me. Because for the second year, my mother is tormented by the death of her daughter (my younger sister) to Covid-19. And as natural for any parent who has had to bury a child, no matter how old, she struggles not only with “why,” but what could she have done to save her daughter?

And each year, I have to tell her the same cold answer, nothing. Her daughter had been told by so many, too many, something that was not true, and to make sure that she believed it, attached politics to the argument so that my sister would believe. These were people who were not her doctor, let alone any doctor. None of these influencers knew anything of science. But to my sister, these people knew, that anything that could have protected her, was going to be worse than the infection itself. Imagine, a vaccine meant to give major protection against serious affects of the disease, including risk of death, was going to be worse, that dying from the actual disease itself. She believed these people because they backed up their “facts” with politics, because the politicians that she supported were also spewing this false information, though did not believe it was false. And then finally, her church stuck the final nail in the coffin, “just trust in God. He will take care of you, protect you from the virus, heal you from the virus.” I guess they also denied that their God had to have played a role in discovering a vaccine or treatment. So, now I know what is worse between getting the vaccine or dying from Covid-19. We all should. Chances are pretty good, with over a million people in the US dead from Covid-19, all of our lives have been touched at least once from death by Covid-19.

After four years however, we are no closer in how to handle Covid-19. We have the vaccine. We have the treatment. We have the awareness and the precautions we can take. Yet, we are accelerating into another wave of infections, more hospitalizations, and likely more deaths. Digging our heels in from either side of the argument has not brought any kind of solution or control of the revolving situation. So, why do we keep doing it? It is not working. Like I said, we have the vaccines and treatments. We know they work. If someone does not want it, for whatever reason, why force them to take it?

By the same token, just because someone is anti for any reason, whether it be because someone just believes conspiracy theories, or those who spread them, or wants to blame politics does not given them the right to overrule the opinion of a person’s personal physician who knows their patients health history and risks. For instance, if you cannot even have a discussion without using the name “Fauci” or “CDC is corrupt,” as one of your “anti” points, this is exactly what I am referring to. I am not saying a person is not entitled to their opinion or belief, whether it is factual based or conspiracy. But a person like this, does not have the right to do all they can to convince a person to go against what is best for them, backed up with facts known by their own doctors. And I want to be clear, I am not making any reference to anyone who has either had a reaction to the vaccine, or allergies to any of the elements in the vaccine.

This is why my mother is haunted each year, on her daughter’s birthday and anniversary of her death. She honestly cannot understand, what would make her daughter take the word of everyone else, than the one person she could have, and should have trusted the most. The fact that the surviving members of her daughter’s family also infected, continue to carry the “anti” torch. My mother just cannot grasp this. They all watched their wife, their mother, die from a virus at the time was treatable were it not for the falsehoods that made her value certain death over life.

But if we really want to stop making things worse, pitting us against each other, we need to find that middle of the road, and we have to be willing to recognize it is not up to us, to enforce or demand a decision on someone when we have no business or qualifications doing so. Accept that we have the right to believe in falsehoods and conspiracies, even if they are tied to politicians we support or even faith, but also accept that we have the right to believe in scientifically proven facts, and while there are risks with the vaccine and treatments, the ones who are best to determine what is best are the patient and their doctors who know them best. The two sides should not try to influence the others. The true information is out there. Take out the politics, the spin, the conspiracy, look at the facts, understand science is not perfect and is more about finding better, everyone should be capable of making decisions on their own.

As were are screaming yet toward another wave of Covid-19, and a different strain, the politics is ramping back up as well, threatening actions against precautions which are not even being discussed. But being presented as “don’t you get any ideas”, and people treating that is if it is on the doorstep now, and it is not, nor will it be. Florida’s governor has gone so far as to ban any attempts to prevent the spread of Covid and deaths, which is odd given the tally of Covid-19 cases and deaths, leading the US at the third worst state.

I am going about my business as I have done these four years. I protect myself, and putting up with those triggered by the mask I need to wear, and it does work and preventing Covid-19. But I also do not give a shit about anyone who is 100% in the opposite range of concern. Whatever happens to them, happens to them if they do not care to take any precautions. I have a lot to experience yet in my life, in spite of all the other health challenges I face. And I want to be here for them. So, I am doing all I want to in life. I am sacrificing nothing, and will not give up my life just for something I enjoy doing, making that an excuse.

Catharsis


I write for many reasons. It helps me to keep things organized in my life. Things that I write about help me to remember. I hope that many of the things that I share, inspire, provide hope, cause laughter, or provide comfort and familiarity. Writing is also cathartic.

The release that I get, from putting my thoughts down in a blog, in a diary, or as I have just finally completed, a book, is not only therapeutic, but more times than not, provided me relief when I needed it most. As I tell many, if you do not have a therapist, writing down your thoughts is just as good because it gives you the chance to process your thoughts again.

I am in a strange place right now in my mind, several things at the forefront, coming up in the next week or so. My younger daughter is about to start her freshman year of college, joining her sister now in her sophomore year, a time I never thought I would live to see. I am approaching bi-annual medical follow-ups for all of my health issues, with always the “what if’s” in the back of my mind. And having finished writing my first book, called “Paul’s Heart – Life As A Dad And A 35-Year Cancer Survivor,” as I edit the book, I am coming to a bigger realization, and more than just catharsis.

A therapist I saw back in the days that I was treated for Hodgkin’s Lymphoma often accused me of not recognizing the gravity or seriousness of what I was going through. I knew she was right, but I would still try to convince her that I was taking it seriously. But the truth was, for me to recognize how serious everything was, I would have to recognize and accept my mortality, which was in jeopardy. I felt my mind was in the right way of thinking, that I would get through my cancer. There was also the fact, that I knew that others had it way worse than I did. Some might not even survive. I was not planning on that fate. So no, I would not let myself take this episode in my life so seriously, because I expected to be fine.

Even as I wrote the book, chapter by chapter, as I recalled every detail, I still do not feel I saw how serious everything was that I went through. Sure, I knew all the dangers and crisis that I went through, and just as my therapist reminded me daily back then, it still did not hit me.

Now, with the book complete, I have read the whole thing in its entirety, although for the first time as an opportunity to do a final edit, several times. It has taken four decades, and being able to read through the entire manuscript, all the time periods and details, I can acknowledge just how difficult and dangerous many of the periods of my life really were.

For someone to pass by me on the street, without knowing me, would have no idea of the journey that I had taken over the last thirty-five years, the toxicity that I was exposed to with my treatments, and the health emergencies that I survived. But when you get the chance to read my book, soon I am hoping, I really did go through everything in the book. I may have made it look easy, I may have made myself “think” it was easy, but for the first time, I will say, it was far from easy.

My fight against cancer was hard, and not just my hard head fighting against me and the efforts to treat me. The unknown of what survivorship would bring, from discrimination to one health crisis after another, late developing side effects from my treatments, nearly as fatal as my fight against cancer, starting each day with uncertainty. The pressures of life and stress along with expectations and interference of others served as unnecessary and unwanted distractions. The fear of being the source of loss for the most important people in my life, knowing that my days of uncertainty and survivorship are not guaranteed.

I have no regrets about the decisions I made back in 1988 nor that I make today. Everything I do or write, are with the intentions of seeing another tomorrow, and are part of that plan.

I will continue to write here on “Paul’s Heart,” as I still have nearly 300 stories that I began to write and put to the side, and have many more to go. I will take a little time and then begin my second book. I am actually planning three more.

This is how I deal. Yes, some close to me cringe how open I am with my posts. But as I will never discover anything earth shattering or come up with a cure for something, if my words can make a difference to at least one, then this was all worth it.

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