Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Adoption”

Family After Cancer – Never Give Up


March 14th is always an easy day for me to remember.  It is my late grandfather’s birthday.  Also, the birthday of my niece.  But it is also one of two important dates in my life, the first of two times I became a father.

I will not speak for other cancer patients or survivors, but for me, I had three concerns once I was diagnosed.  The first and most important, I did not want to die.  Second, I did not want to lose my hair.  And finally, I did not want to lose my ability to have children.

Speaking now as a Hodgkin’s Lymphoma survivor, back as late as the early 1990’s, mustragen was a popular component in a chemotherapy cocktail to give remission to Hodgkin’s patients.  Along with it being a deadly poison used by monsters such as Sadaam Hussein to kill his people, it was also very effective against Hodgkin’s.  Along with its toxicity, it was known to cause sterility in men.  In fact, just as I completed my 8th cycle, a study had been released stating that sterility was likely after the 6th cycle.  Dammit.  This study came out 3 months too late for me.

Hodgkin’s is a blood cancer, though considered rare, effects two groups of people more often than others, younger ages, and older ages.  Middle aged people can develop Hodgkin’s but it is more likely to be diagnosed in the other two groups.  And for the younger group, fertility is a real concern.  And for many women, the concern is even more dire, as some are often diagnosed when they are pregnant.  And just with any other cancer, decisions need to be made in the best interest of not just the patient, but the baby.

As I said, for me, pre-testing before I began my chemo, it was determined that any ability I had to get someone pregnant, was slim, most likely caused by the stress I was under, so I did not take the option of storing sperm before I began treatment.  And of course, once treatment was done, so were my chances of having a biological child.

I have written about my decisions since that discovery in past posts, and if you have any questions and do not wish to go through the archives, please feel free to ask or comment.  But the truth is, decades later, there are new opportunities to more accurately determine and often reverse sterility.

But in my case, adoption was the best option for me.  And as far as adoption was concerned, it was a matter of deciding open or closed, domestic or international.  In my case, and with my health history, international, China in particular, actually offered me the best opportunity of becoming a father.  China would not discriminate against me, as many agencies in the United States had done.

I completed all the paperwork.  I went through all the processes required by both China and the US.  And thirteen years ago, on this date, my oldest daughter was placed in my arms.  I will celebrate another anniversary for my younger daughter in a couple of months.

There is plenty of help out there to answer and guide cancer patients in all areas of care, during treatment and post treatment.  It is the hope of “Paul’s Heart”, that this blog is one of the tools that will inspire and inform that there is not only life after cancer, but a whole lot more.  Perhaps not the way we dreamed about, but it is still a good thing.

What Do I Want For Christmas?


I am fairly certain, as a child, I made a Christmas wish list.  I do know it never went to “Santa”, though up until I turned eight years old, I received presents from the fat man in red.  The next year, I discovered who Santa really was, and that ended the gifts from him.

I still really had no aversion to Christmas, though clearly I never really celebrated it with all the glitz and commercialism.  I most certainly never celebrated the day for what it was supposed to matter to me as a Lutheran.  But in 1988, when I got diagnosed with Hodgkin’s Lymphoma, I certainly seemed to know where to direct my anger.  In 1988, I never wanted to hear the word Christmas ever again.

Things were different for me in 1989, though I was still in the middle of my chemotherapy.  The anger was gone.  And scans had shown the chemotherapy was working.  And then I said it, “all I want for Christmas is for this to be over with.”  This is truly the first thing that I can remember ever asking for, for Christmas.

For the next decade and a half, I would never ask for anything for Christmas again.  I would participate in Christmas activities, such as attending parties, going to Christmas Eve church service (one of the two times a year I would attend Church), and even decorate, quite extravagantly.  Some say I aspired to be Clark Griswald with some of my outdoor displays.

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While I did not particularly care for Christmas any longer, I did not want to ruin it for anyone else.  That would change with the arrival of my daughters.

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I still did not ask for anything for Christmas, but at least I felt my heart get back into the spirit of Christmas.  And I found myself once again, getting involved with the religious part of the holiday by once again attending the Christmas Eve service with my daughters.

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And seeing how much Santa meant to my children, I did everything I could to protect their enjoyment of the holiday, dreading the day that they too would discover that Santa was nothing more than a “belief”, or spirit.

Every year since my daughters were adopted, I would put on a Santa suit, and video and pictures would be taken of me placing gifts under the tree, eating the cookies and drinking the room temperature milk, just to have something to actually show Santa had come.  I even played with Pollo, our golden retriever.

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And that is where the cover was almost blown.  As both of my daughters were excited to see Santa had come, and what he had done, my oldest daughter at age 3 could not help but notice one glaring concern with Santa.  No, not that Santa forgot the belt, but “look Daddy, HoHo’s wearing your sneakers!”  I would make sure to put the black overlays on from that year on.

But while I always encouraged my daughters to write a Christmas wish list to Santa, their requests were always modest, nothing outlandish.  And this they did on their own.  Neither daughter had been raised to be materialistic.  And neither daughter has ever asked, “is that all there is” following the conclusion of opening gifts.  And I continued to not ask for anything for Christmas.

Well, as usual, the question has been asked of me again, by so many, “what do you want for Christmas?”  This year, I actually have one thing I would like.  Last year, during the Christmas break, my children visited me.

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That to me was the best gift they could have ever given to me.  And so, that is what I have asked for again this year.

The funny thing is, in conversation with my daughters the other night, my youngest had mentioned that she wanted to buy me something for Christmas.  But my oldest was very quick to chime in, “our going to visit Dad is his Christmas gift.”  I am so proud of my daughters as it is, but my oldest hit the nail right on the head.  She knows me well enough, to be with them once again, is all I want for Christmas.

See you soon.

Merry Christmas everyone.  Happy Chanukah.  And Happy New Year.

 

Defining “Me”


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There is an expression that is common among cancer patients and survivors.  “I don’t want cancer to define who I am.”  I have heard this stated many times over my survivorship of over 26 years.  And my initial thoughts pretty much echoed those sentiments.  Many simply want to move on with their life as if cancer never happened.  And certainly, none of us want to be referred to as “someone who had cancer.”  But lately, I have been wondering, is the expression perhaps being spoken incorrectly?  Is it possible that we simply do not want it to “control” who we are?  Perhaps we do not want it to “change” us.  So maybe it is not so much as “defining” us, as much as it is “forming” us.

I have decided that I am going to take the perspective of cancer, not necessarily defining me, but rather, reminding me who I am, what matters in life, and what people really need to think of, when they meet me, or see me.

Until my diagnosis back in 1988 (almost 28 years ago this month), to say I was under the radar with even my own self-recognition would be an understatement.  Nothing I was doing stood out, going to college, dated, listening to music.  There was nothing really to indicate that life was never anything more than just going day to day.

But the diagnosis of Hodgkin’s Lymphoma kind of changed me, it woke me up.  My only knowledge of cancer at that time, was that cancer killed.  I was going to have to dig deep, to a place inside that I was never aware that I had.  I was going to be challenged physically and emotionally not just for months, but for every waking moment of every day.  I was going to have to deal with daily side effects that were not only painful, stressful, but exhausting.  Just the mere thought of the “tasting” the chemo injection was enough to make me vomit.  This is called “anticipatory nauseas”.  I was able to “taste” this particular drug 24 hours before it was even given to me.

I did what I had to do to get through that time.  The simplest thing I did was to “minimize” the length of time.  Instead of 8 months of chemo, it was 16 injections of which only 8 made me nauseous for a total of 3 hours each time.  Therefore in my head, I was convinced I would only deal with these issues for 24 hours.  Sounds much shorter than 8 months.

As each month went by, it did get harder and harder.  But as I got through one cycle, I knew I could get through the next cycle.  And so forth until I was half way done, and then knowing I got half way through, I could get through the next half and then it became about how many more to go, after having gone through so many before.

A definition of me, pointed out by having cancer, was that I did have what it took to get through this horrible experience.  It showed that if something was so important for me to get through, no matter what I was put through, I was going to achieve it.  It proved I was never going to let anything be taken from me.

This mentality would benefit me many times in life after that.  I battled an employer for discriminating against me, just because I had cancer.  I fought for disability rights with another employer after it was discovered that I was dealing with late effects from the treatments that cured me of my cancer.  Accommodations needed to be made to make it possible for me to continue to work, and I knew that was my right.   I fought for that right.  And yes, just like the days  went through my treatments, there were bad days.  My boss would make things difficult for not only me, but as if to put pressure on me, he would often make it difficult on my co-workers who would then turn their frustrations on me, in hopes of them putting pressure on me to back down.

Well, just as with cancer, I did not back down.  And my remaining years with that employer were quite peaceful concerning my health issues.

And there are other examples in my life, post cancer, that I demonstrate this same mentality and determination.

So, if by having had cancer, if reminding me of what I always had inside of me to face any challenge in life, then yes, perhaps cancer has defined me.  And that is a good thing.

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