Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Adoption”

Double Nickels – What A Ride!


Thirty-two years ago, I was told I had Hodgkin’s Disease (now called Hodgkin’s Lymphoma so it is not as scary sounding), cancer.  I was twenty-two, just turning twenty-three.  When it came to any conversation about surviving cancer, it happened with a time frame, five years.  Statistics on cancer survivorship were based on a magical five year mark.  What happened after that five year mark, we never asked.  And if you were a cancer survivor, we just assumed the risk.  That is, until the internet came along.

Over the decades, I have met so many survivors of not just Hodgkin’s, but other cancers as well.  I have seen the barbaric testing methods now gather dust, and newer and safer treatments being used to treat the cancer I once had.  All the while this is happening, another year of survivorship sneaks up on me.  And another, and another.

Longevity does not run very high on my father’s side of the family, so adding cancer survivorship, thought for sure that would drive my odds down.  Yet, I hit that milestone 50th birthday, and this past March, I recognized my 30th year in remission of Hodgkin’s Lymphoma.

But my most important blessings, and there are two of them, are the daughters I never thought I would ever have in my life, from beginning to today, to tomorrow.  The last decade and a half has been difficult for me with my health, with all kinds of challenges related to side effects from my treatments.  But my daughters keep me focused.  My shell makes it difficult for anyone to understand what my body is going through, not realize the limits and the conditions that I deal with because you cannot see below the shell, that only doctors, images, and I know are there.  That is why I do not try to concentrate too much on numbers.  But milestones are kind of hard to ignore.

The inside joke with my daughters, is that I do not admit my age, rather “color it”, referring to a mathematical equation that will total my actual age.  But this year, there is a funny reference to this age, “double nickels” referring to two 5’s.  This birthday is unavoidable to not recognize the actual age.

I have had a few rough weeks, with the passings of several of very close, fellow survivors, either my age, even younger.  No one appreciates or recognizes their mortality, more than I do.  But, I am doing all I can, my doctors are doing all they can, my loved ones are doing all they can, to make sure that I continue on, get to see many more birthdays, and more importantly, these milestones…

pay attention trolls, this message is for you…

I will see my daughters graduate from high school.  I will see my daughters receive some form of continuing education and have a bright future of their own.  If my daughters choose to get married, I will be there to walk them down the aisle.  And if I am blessed even further, with grandchildren, like many of my other survivors, I will be there to hold them.  And a bonus, though I do not have it set on the calendar on “Paul’s Heart,” I do plan on making 50 years cancer free.

I may not be able to drive 55, but I can admit that I am glad I made it to 55.

Last Christmas, Or The Next Stage?


It was inevitable really.  This memory came up for me today.

2013 was a difficult year emotionally for many reasons.  My father had been recently diagnosed with cancer.  My health had been struggling for the last year and a half, more so than prior years.  I had also initiated my second divorce.

This would be the last “Santa” photo taken of my daughters, an annual tradition.  My older daughter, the trooper since discovering that I was Santa Claus, still went along with these photos anyway.  But this was also the year that my younger daughter began to have her doubts about the man in red.

And that is when it started, the need to “cling on” as hard as I could.  You could see how much it meant to her to have that one thing that while so impossible to believe was real, still wanting to give all she could, to believe in the impossible, that maybe things that had been going on around her, though seemingly impossible, might be possible.

Although a baptized Christian, I do enjoy the Santa Claus lore.  I like the meaning.  And as I had one daughter who no longer believed, and another wanting to, I felt it was time to change, to adapt what the story of Santa Claus was really about, giving.  And so, I instilled in both of them, that Santa Claus while in the presence sense may not be real, his spirit definitely is, and it is something we all possess.  My daughters learned the importance of the season of giving at that moment.  Santa Claus would live on.

Like many households dealing with divorce, another change would come with observing Christmas.  The goal still to be as enjoyable for the children.  Clearly different than what they had experienced previously when they were younger.  For some, it is part of the day with one parent, part of the day with the other.  Then there are those who actually split the Christmas holiday week between parents.

But hold on.  Then the children turn eighteen, graduate high school, and move away to college, perhaps find a significant other.  Another change.  And in the world of divorce, time already split to a minimum with either parent, the holidays morph into yet another stage, perhaps not even making it home for the holidays, while your child, the one you have spent every holiday with, informs you that they are going to meet the family of their heart’s interest.  This is the stage that I am preparing for next.  One daughter near that age, another not far behind.

And peering into my Norman Rockwell crystal ball, eventually, I will be the one making the annual holiday trips to not only see my daughters, but their own families as well.

And who knows, maybe I met get to dust of the red suit once again.

Another Year Of “Paul’s Heart” On The Way


I just received notification that my domain name has come up for its annual renewal.  Though technically, “Paul’s Heart” shows as only having started January 6th, 2013, it actually began the year before, as a technical glitch, forced me to begin all over, transferring all of my stories over.  Fortunately at that point, it was only a few dozen.

Although my first post, was just a “Welcome To Paul’s Heart” message, and what my blog was going to be about, life as a cancer survivor and as a dad to two wonderful daughters, the first official post was called, “What Happens When You Outlive Statistics.”  That was written eight years ago.  My health had already turned from my late side effects from Hodgkin’s Lymphoma back twelve years earlier.  And now, I am a survivor of cancer of more than thirty years.

The thing that keeps me going, is I have goals.  Goals with my daughters, and things I still want to complete.  The Covid19 pandemic has given me the best start of writing my first book, written solely by me.  In fact, not even completed, I have ideas for three more after that one.

Then there are the things I have written here.  I have published 922 posts so far, and I have 254 prompts started.  So I am not running out of material any time soon.

But what has meant the most to me, are the comments that I have received over the years, either encouragement or appreciation because of knowledge gained from my experiences.  Honestly, I have a lot longer to go.

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