Paul's Heart

Life As A Dad, And A Survivor

Archive for the month “December, 2020”

Make This Difference In 2021


I feel odd trying to write an inspirational message, using the television serial killer Dexter as an example.  But here goes.  First, to be fair, Dexter’s status as a serial killer is complicated in that he is really a good guy.  One of his major flaws (besides the ease of killing criminals released by the judicial system often on technicalities), is he is emotionally barren, for at least half of the series, before his “feelings” begin to mature.  I am trying to be respectful in not “spoiling” anything.

You get it though, Dexter does not show, or pretty much, have any emotions, or feelings.  His sister Deb, with a mouth more colorful than a truckdriver or sailor (or whatever metaphor you want to use), has emotions, but has not control of them, often leading her to make decisions that involve regret.  She often tells Dexter she loves him, but he is unable to respond in kind to his sister.  This is not the only time that Dexter has been in this position, through no fault of his own.  It is just who he is.

Anyway, as the series draws to a conclusion, Dexter is moving away, far, far, away.  Deb’s only request, a hug before he leaves, something I do not recall seeing in any of the episodes.  I will leave it there.

There are no second chances.  I wrote just a couple of days ago about my father’s situation with my stepmother, an argument, never being able to be resolved.

That had not been the first time, that I had experienced that guilt, of a lost opportunity.  Growing up, though different circumstances, I did not deal with emotions well either, in fact, not at all.  But early in my adulthood, when my grandmother had been diagnosed with cancer, and the mere thought of losing her, I found out, that I did have feelings, and they mattered.  And for the first time, I began to show my emotions.

On a daily basis, I made sure that I told my grandmother that I loved her.  When I visited her, I always gave her a hug.  Except for one time, and it was the last time that I saw her alive.

She was about to begin her second fight against cancer, beginning chemo the Monday after the weekend.  I stopped by to visit with her Saturday morning as I had a full day planned on Sunday with my church’s youth group that I ran.  I had discovered that she had cut her her short, to prepare for the hair loss that would accompany her chemotherapy.  But then I noticed something odd.  Her booklets on her chemo information had still not been touched.  I just attributed that to my grandmother’s nature of just accepting things, and doing what she had to.  That is how she rolled.

As I sat across from her in her living room, she had a distant look on her face.  There was a lot on her mind, clearly with the chemo beginning in just days.  I would soon find out, she had a lot more on her mind than she let on.  I asked her what was wrong.  She just responded that she “just want to get this over with.”  She definitely was not her normal “brave” self with me.

When I went to leave, she did not get up from the couch as I approached the door.  I told her, “ok grandma, I am going to get going.  I will give you a call tomorrow, then come see you on Monday.”  My hopes of thinking she would take that as her cue to come over and hug me goodbye, nope.

The next day, she had passed away.  The one time I did not hug my grandmother or tell her I loved her, because I was distracted by her “distance” and distraction, is how we parted.

You see the pattern here.  Three examples, all three, “coulda, woulda, shoulda.”

My daughters never got to meet my grandmother.  They never knew what happened to my stepmother and the impact it had on my Dad.  What I do not know, is if among all the other stuff they have watched, if they ever watched Dexter.

But one thing is for sure, from the moment they were placed in my arms, they have always been told “I love you” by me.  They get as many hugs as I can give them.  There is no “given” that just because I am their father, they have to love me or that I love them.  No, for the first time in my life, my daughters made me feel that way, and I made, no, make sure that they know every day how much I love them.  There will be no regrets with not having said the most important words to my daughters.

We never know when the inevitable is going to happen.  And 2020 has been extremely cruel with Covid19 devastating so many families permanently.  And now, faced with recommendations, proven to be at least helpful in reducing risks, we are asked to make sacrifices, which could very well be the last time, we see a loved one or friend.  Nobody gets that more than me.

Whether you believe in the severity of Covid19 or not, and whether you have been personally affected by Covid19 or not, does not change the fact, that you only get one last chance with someone, and we do not know when that moment will be.  But Covid19 has made a huge impact on hundreds of thousands of lives, permanently.

2020 has been extremely cruel, and likely filled with a lot of regret, of things left unsaid.  Regardless of what you believe about Covid19, or any other situation that at one moment can change your life forever, you can make one huge difference in 2021, every day.

Good Riddance 2020


So the question across my news feed this morning, was “name something good that happened for you in 2020.”

For the majority of us, this is likely to limit responses to just January, February, maybe March.  There are two notable things that I consider good during this time. 

Being a non-custodial parent, there are many things that I am not included in.  But this moment was something for me to always cherish.  I got to take my daughters shopping for dresses for a school semi-formal.  Though not a big shopper myself, this was one trip I am so glad I got to make.

This was a huge thing that occurred in 2020, just before the Covid19 shit hit the fan.  Each milestone that I hit, I find myself amazed that I am still here.  Back then, we were only encouraged to think about some magical 5-year mark.

But even through the rest of the year, I did manage to have some good things happen.  My cooking improved for one.  I am an okay cook, but not having an option to go out an sit down, and for the most part opting not to do take out, the pressure was on if I wanted to eat.

Most importantly, in spite of Covid19 and the risks, I still managed to see my daughters.  Besides the law supporting the needs of children to see their non-custodial parents, as long as protections and recommendations were followed, visits were going to happen.

Likely, no one is going to say they would like to just reset and redo the 2020 calendar year.  2020 in fact, is probably going to go down as the worst number to avoid than a 13th floor in a hotel.

With hopefully the recovery from Covid19 going in that direction to start 2021, I have things that I am looking forward to, one major milestone, an effort thought I would never finish, and of course getting to spend more time with my daughters again.

My heart goes out to all who have lost someone this year, not just Covid19.  My wish is for all who are reading this, to find peace, good health, and comfort in 2021.

What’s In A Name?


I do not remember much from my days in English Literature in high school decades ago.  But the one thing I do remember, is a line from William Shakespeare’s “Romeo And Juliet,” “a rose by any other name”.

My duck analogy is one that I prefer to use.  More current.

So, this morning, I was reading my newsfeed, when an interesting topic came across.  The writer questioned about doctors now using a term NED as opposed to telling a patient that they were in remission.  I questioned that I had no idea what NED had meant, though I took a shot, asking “does NED stand for No Evidence Of Disease?”

When I finished treatments for the second time, my oncologist said to me, “I don’t like to use the word ‘cure’, I just say ‘remission.'”  I thought that was an odd thing to say, because I remember participating in medical research fundraisers to “find a cure for cancer.”  Wasn’t that the goal?  To be cured of cancer?  Being in “remission” did not sound convincing enough.  Almost like, do you mean it could come back?

Imagine, I am now over thirty years passed my final treatment, and I am not supposed to use the word “cured?”

Then I thought, what if it came back, “perhaps he just did not want the liability, ‘hey, you said I was cured’ and then he would respond, ‘no, I said you were in remission.'”  It really has not meant that much to me either way.  Although, because of my health issues from my treatments, I have found myself stop referring to myself as “cured.”  I have been saying “remission” for years now.

But when I heard “NED” and possibly thinking “no evidence of disease,” I began to think, “wow, that is really a step backwards in the confidence of treating Hodgkin’s Lymphoma,” a cancer with a notorious high success rate with treatment.

Now I find myself taking an even bigger step backwards.  While no one can appreciate the progress in diagnosing and treating Hodgkin’s Lymphoma over the last many decades more than me, because of the post mentioned above, I find myself nitpicking “Hodgkin’s Lymphoma.”

I am not known for my political correctness, though admittedly, there are some things that will strike a nerve with me personally, and I try to deal with it on my own, without taking any form of pleasure from a person’s attempt at humor or satire.  But damnit, in 1988, I was diagnosed with Hodgkin’s Disease, not Hodgkin’s Lymphoma.  I tried to rationalize why this bothered me so much, and even, why was there a need to re-label what did not need renaming.  After all, the cancer is still the same cancer.  It has not changed.

Hodgkin’s Disease was named for Dr. Thomas Hodgkins, who discovered it back in 1832.

Ok.  His name.  He discovered several people with this illness of the lymph system.  But it was named a disease.  I have not researched thoroughly for when the actual word “cancer” was first used, but the concept of cancer can be traced back as far as many years B.C.  As far as the mainstream use of the word, I have no idea when it became prevalent.  Admittedly, I do not care.  I had Hodgkin’s Disease, a form of blood cancer.

But wait, that is another issue that some like to argue.  “Blood cancers are not real cancers.”  Yes, I have actually heard that stupid comment more than my share.  It seems some have a hard time accepting the fact that you do not have to have physical tumors to have something a cancer diagnosis.  Leukemia in its many forms, and various types of lymphomas, are cancers, cancer involving the blood.

Putting the train back on the track, I missed the moment that Hodgkin’s Disease was changed to Hodgkin’s Lymphoma, literally everywhere, even in the books.  It is still the same cancer.  Somewhere around the turn of the century, and I have not been able to see any reason as to why, but Hodgkin’s Disease was informally changed to Hodgkin’s Lymphoma.  Admittedly, lymphoma sounds less nasty than the word “disease.”  “Disease” would also imply contagious.  It was bad enough through most of history, people actually believed that cancer was contagious.

Maybe it being called lymphoma not a bad thing after all.  But I worked too hard to just be told “no evidence of disease.”  I earned the right to be told I am in remission.

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