Paul's Heart

Life As A Dad, And A Survivor

Archive for the month “November, 2014”

And So It Happens


I believe the best relationships, and friendships for that matter, occur when you do not even try to find them.  As the saying goes, “when you least expect it…”.  And so it happened for me.

Now as one friend likes to tell the story, Josephine and I “met” on Facebook.  I am not going to make fun of anyone who has met and developed a relationship on Facebook, Match.com, Plenty of Fish, or whatever internet dating site.  As I mentioned yesterday, I am not interested in any kind of internet dating, blind dating.  I would prefer to meet someone, or develop a relationship with a natural progression, let it just happen.  Let someone come into my life, and find out about the many issues, and baggage that I deal with on a daily basis.  If I present myself in a way, that lets someone know that I am not going to draw them into my drama, which is different than being supportive of someone during their drama, then at the very least, I will have found and made a very good friend.  And if anything were to develop beyond that, at least it was something that was allowed to develop naturally.  That is just me.  That is how I want a relationship.

And that is the way things have worked so far for Josephine and I.

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Josephine is going to be a familiar name on “Paul’s Heart” because I first actually introduced her with the story, “Meet Michael”.  That story is posted in the archives in September as well as a page on this site.  I met Josephine through her son, Michael.

Michael had just been diagnosed with Hodgkin’s Lymphoma, at the age of 23.  Just one of several coincidences that he and I shared.  Another, our birthdays are just one day apart.  As many cancer patients are prone to do upon the diagnosis of cancer, he reached out to the internet for support and information about the road that he was going to be travelling down.  A friend of his family was aware of a Lymphoma Facebook page.  Michael was drawn to the number of posts of information that I was contributing.

Eventually, Michael would “friend” me as would his mother for more personal support with his own diagnosis and treatment.  They would ask questions about testing, ask for help to interpret results, and more importantly, how to react to side effects whether they were minor or major.  In 24 years, I have only witnessed such strong familial support rarely.  And just as rare, the courage and strength of someone to get through such a life threatening battle.

Over time, Michael would learn a lot about my history as well, and soon, he would make comments that he too “was a survivor” even before he finished his last treatment.  It was during his last two treatments, that through technology, Facetime, he would invite me along to his final chemo treatments.  It was during this time, unbeknownst to me, that invitation would end up preparing me for the day I would set foot inside of a chemotherapy suite for the first time in 25 years as I cared for my father.  But through that screen, as I had seen him in his home, more than a thousand miles away, I would see him in his chemo chair, eating pizza, seeing the bright and decorative background behind him, and his mother and father by his side.  This was definitely not the way I remembered my days in the chemo suite.

In the meantime, I had been looking to take “Paul’s Heart” to the next level, in book form.  I have been doing public speaking as a cancer advocate for as long as I have been a survivor and with my 25th anniversary coming up in two years, I wanted to lay the ground work for a national speaking tour, combined with publishing the book on my survival.

Josephine knew that I was interested in pursuing this direction, and offered to help me.  It was her gratitude for supporting Michael and their family.  The area where they live would be an excellent area to network and possibly find financial support for my two projects.  Coincidently, there was going to be a breast cancer fundraiser there that would be a great starting point to develop this support.  But this would end up being more than just a networking opportunity.  I had arranged with Josephine, to meet her son who was as much an inspiration to me for his courage during his battle, as I was to him for longevity since my diagnosis.

I spent the weekend getting to know Michael and his family.

But shortly after that visit, things went horribly wrong for Michael.  His treatment had caused a terminal condition with his young heart.

Again, I would be leaned on for support, emotionally and technically.  Admittedly this would go beyond anything I had ever witnessed as a patient or survivor.  But all of them, mother, father, sister, extended family, and friends, all needed help and hope for Michael.

All the while, I was going through my own issues at home.  I was in the middle of my divorce.  My dog’s health was failing.  And my father’s health was also ailing.  But one of my biggest flaws is that I always put the needs of others before myself, no matter what.  And this was no exception.

Michael passed away just after the new year, just shortly after turning 24 years old.  My father passed away this past May.

There were other circumstances that contributed to the one of the biggest decisions in my life at that point.  But as I often make my decisions based on familiarity, as well as support, I made a decision to relocate.  And it was that natural progression, that has led to something more than just a friendship.  We do not necessarily have an official name for it, because we both have been clear that we are not interested in getting married, ever again, both of us having dealt with difficult divorces.

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But in Josephine, I have found more than just a friend.  And it has happened naturally.  As I wrote yesterday, if I were actively pursuing a relationship, at what point would I have the discussion that I had cancer, and all of the other medical issues I have to live with?  And after all this time, and in spite of the circumstances, knowing everything about me health wise, and experiencing what her son went through, we have gone beyond being friends.

In each other, we have found unwavering support, as she and her former husband deal with the daily struggles with the loss of their son.  Josephine gives me daily encouragement as I begin to rebuild my life, a better life that I want to build for my daughters.  In spite of the fears from her son’s death, she courageously supports and encourages a healthy living for me, through diet and exercise, that in spite of all the health issues I deal with, I am going to live a long life if she has anything to say about it.

What is happening between Josephine and I is a lot more complicated that just having “met on Facebook.”  But however you want to say it, what we have between each other has happened part in fate, but also because neither of us were looking for anything or anyone.  Where ever we end up though, I owe the most thanks to the one person I cannot do so anymore, and that is her son, Michael.

Josephine is not only a beautiful woman, but has a beautiful heart, a kind heart.  She is a friend to every one she meets, no matter age, no matter any difference.

My children got to meet Josephine this past summer when they came to visit me, and they adore her.  Josephine adores them as well.

My ex has rekindled an old relationship and is happy as well, and the girls have met him also, and like him.

And so you have it, it happens.  People get divorced, and move on  to hopefully better times which is best for all involved.

 

 

From The Beginning… Again


There comes a time in every cancer survivor’s life (and perhaps even during a cancer patient’s life – though admittedly they probably have more important things on their minds), if they happen to be single or not married, when a decision is made to start dating.

Dating is hard enough, with pressures of personalities, interests, social circles, and everything else just to come to a conclusion if there is going to be any chemistry between the two, or possibly any future.  As if things were not hard enough, imagine being in the position of having to tell someone you are interested in, that you had cancer.

We often make light of just how fast a relationship develops into the physical aspect, and of course the emotional aspect, but just when is the right time to tell someone you had cancer?  Or in many cases, even more serious issues.

Dating certainly has changed over the decades since I was last “single”.  My two marriages were back to back.  There was no “Match.com” and I detested blind dates.  For me it was simple, I would get up the courage to ask someone out who I was already familiar with.  Of course, my first marriage, I was diagnosed with my cancer before we got married, so ex #1 had to deal with the cancer issue directly.  But as my first marriage ended, I began dating ex #2, who had already known that I had a cancer history, so there was no need to discuss it.  She had known me long enough to know that the only thing that would be an issue from my cancer, was that chemo had left me infertile, unable to bear biological children.

But unlike past relationships that had ended, I was in no hurry to develop any new relationship.  If I am being honest, I have no intentions of ever getting married again after the way my second marriage is ending.  This is unusual for me, because historically, it has always been my nature to start dating right away, and developing a serious relationship.  I had gone further with ex #2 than anyone in my life with feelings, development of family, and support during the toughest of times.  But the acts of betrayal that we both perceive in the failure of our marriage have hardened my heart from every wanting to unite in marriage with anyone ever again.  If I was ever to get serious with someone ever again, I will only allow our relationship to be simple enough, that if it ends, the collateral damage is reduced to near minimal.

So here I am, single, not necessarily looking to date, just looking to build my life socially which had been destroyed through the dissolution of my marriage.  To rebuild my friendships, and build new ones, it would mean that I would once again, have to explain my story, my health story in particular.  As you can read anywhere on “Paul’s Heart”, it is quite complicated, and can be quite demanding.  To accept me into a life, is not an easy decision.  For those who only want to see “positive” messages from me, I can do that.  But the reality is, there unfortunately is going to be a lot of “negative” as well.  But it is my hope that there is hope taken from the “negative” messages.

Dating was going to be another story, now that I felt I was ready to try again.  In all the romantic movies, relationships grow smoothly and according to scripts.  And they all have scenes of each other staring into each others eyes, mushy and silly conversations over dinner.  But when do you drop a bomb on a perspective date, “I had cancer.  But not only that, the treatments I went through are slowly destroying my body.  I have had heart surgery, have lung issues, spine issues, muscle issues, immunity issues, GI issues, oh, and yes, emotionally I have an issue with surviving all of them.”  Reading that last sentence, you would agree, I am quite a catch.  But not in a good way.

The complicated thing is though, I do not have to tell anyone this.  If you look at me, and without knowing anything about me, no one would ever know the train wreck that is my body.

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I can date, and date, and date, and no one would ever have to know.  Of course, if things progressed, I would certainly have a lot of explaining to do.  I have two six inch scars on my chest and abdomen, clear evidence that I had been through something traumatic.  And needless to say, once my shirt was removed, the conversation would ensue, and that would be it for the mood, and probably any future because I had not brought it up sooner.

Just as life often goes, things often happen to you when you least expect them to, a job, a house, friends, or even someone special.  You are always going to be your most comfortable, in your own environment, and amongst the people that you already know.  And they will know you well enough.

But for the first time in my life, being truly single, and with no intentions of ever wanting to be married again, I met someone who at least has opened my heart again.  Neither of us have any intention of getting married ever again, and that is actually a good thing.  Because it is going to allow us to be who we are, without having to change or concede who we are.  And this is going to be a new beginning… again.

To be continued… next post.

Just Give Me Five Minutes. Please.


All I am asking for is just five minutes of your time with this post.  Please.  Why just five minutes?  Because every five minutes, is all that it takes for another person to be diagnosed with lung cancer.  Each year, well over 200,000 people are newly diagnosed with lung cancer.  Lung cancer is the number one killer of all cancers and more than breast, colon, and prostate cancer combined.

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I first learned of the dangers of smoking back in elementary school.  But back in the seventies, the concern of smoking was always directed towards emphasema.  Today you rarely even hear that diagnosis anymore because of the prevalence of lung cancer.  There is no doubt that smoking leads to lung cancer, not a question of “if”, but “when.”  To make matters worse, you do not even have to be a smoker to develop lung cancer.  Studies show that “second hand smoke” (the smoke from the lit cigarette not being inhaled as well as the exhaled smoke) is known to cause lung cancer.

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And it does not matter what tobacco product is smoked, or how.  Sure, smokers will justify that cigar and pipe smoking is not as bad as cigarette smoking because those products are not inhaled as much or smoked as often as cigarettes.  That theory makes about as much sense as being hit by a moving vehicle.  Someone who gets hit by a Prius is not going to have as much damage done to them as someone hit by a tractor trailer.  And though it is way too early to tell, I am willing to bet that e-cigarettes or vapor cigarettes will be proven just as dangerous.  Seriously think about this, you are inhaling a product, vapor no less, into your lungs.  Oxygen is really the only thing supposed to go into your lungs.  Yes, this theory can be applied to all things bad for us.  But for the purpose of this post, I am concentrating on smoking.

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In schools, children are “shocked” as to the dangers of smoking with graphic pictures of what smoking can cause.  But where the disconnect comes in, is learning how to deal with the immortal thought process, “it won’t happen to me.”

Funny, that is exactly what my father said.  My dad smoked everything from cigarettes to cigars and pipes for over fifty-five years.  Though he had already begun smoking long before I ever came into his life, because that was the cool thing to do in the 1950’s, early in the 1970’s as a student, I began to bring my warnings of smoking from school to home.  And the response was always the same, “it won’t happen to me.”

My father seemed shocked to hear the news in February of 2012 that he had lung cancer.  He even went as far as to ask the doctor, what the doctor thought might have caused the cancer.  I could not hold back the “guffaw” laugh which of course caught my dad’s attention.  The diagnosis was somewhat encouraging because the doctors believed that they had caught it early enough that it could be treated with just surgery.  That was the good news.  The bad news, a diagnosis of lung cancer was not enough to get my father to quit smoking.

My dad had tried many times, many methods, all without success.  The tobacco companies have done everything they can to make sure that once a person starts smoking, that they are unable to stop.  This is the sickest and cruelest of addictions, and because tobacco fuels our economy, our society allows the senseless murders of people from smoking.  And that is exactly what it is, murder.  Because tobacco companies know that their product kills people.

Getting back to my dad, he underwent surgery, which was deemed successful.  But it was decided that my father should undergo preventative treatment to make sure the cancer stayed in remission.  I cautiously agreed with the decision, and my dad underwent chemotherapy.  The good news was that he tolerated his treatments, and there was no sign of any more cancer or stray cancer cells.  The bad news, he was still smoking.  Though at this point, he had gotten to the point he now needed to “sneak” the cigarettes in because everyone’s eyes were on him, and just how serious his health had become.

The doctors felt for better success, that my dad should undergo radiation treatment also, just for the exclamation point of his treatment plan.  To make sure the cancer never came back.  I was not sure about this thinking and shared it with my dad.  I was concerned about other issues, being exposed to radiation, and the benefits to a 70 year old man.  But he decided to undergo the treatment anyway.  And yes, he still smoked.

But half way through those treatments, something went horribly wrong.  It was now doubted the cancer had gone into remission completely, but in fact had morphed into a more aggressive form of lung cancer, and his condition had been changed to “terminal.”  He spent several weeks in out and out of hospitals.  Eventually he would be put into a nursing home, with hospice, where he would spend the rest of his days until he passed, with his wife by his side.  It was a painful death for him physically and emotionally.  His thinking became compromised as the cancer spread to his brain, and many times he would not even be aware of where he was, or why.  He often would not understand things that were happening, and would often cause issues with staff because of his confusion.

As a member of his family, we all watched this very humble man, who dedicated his life to taking care of his wife, who had been hit by a car leaving her needing assisted care the rest of her life, now unable to do so.  This crushed him as we all promised him that we would make sure that she would be taken care of after he was gone.  We cried as we watched my dad struggle, heard him cry, scared by all the confusion now in his thoughts.

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These pictures were taken before his diagnosis.  This is how I would like to remember him.  This is how I would like my daughters to remember him.  But we cannot.  The loss has been so painful.  I lost my dad to lung cancer.  My daughters lost their grandfather because of smoking.  My stepmother lost her caregiver because of something that was more powerful to deal with than the love he had for her.

I have always done, and will always do whatever I can to make sure that my daughters never forget what my dad went through so that they never start smoking.  My ex-wife and I always made it a point to never have the girls exposed to smoking, not even to see it.  This was a problem back when we first adopted our oldest, because my ex  was smoking once again, after having quit.  In meeting with our accountant, obviously having a personal connection to the dangers of smoking, told her “how can you look into the eyes of that beautiful child, and have her face the possibility of losing her mother to lung cancer.”  Eventually she would quit again, but in recent times, has begun smoking again.  And the frustrating thing for me, as the non-custodial parent, I cannot protect them from this.  And because of people now in their lives, I have already heard about cigar smoking from them, from a parental friend, that “cigar smoking is not as bad for you.”

This is what the tobacco companies want and need.  They need smokers to have no control over their addictions, and to justify them, and blow them off as no big deal (sorry, no pun intended).  People can quit any time.

No, you can’t.  And the tobacco companies do not want you to quit either.  Up until the time my father was placed into the nursing home, my brother discovered my father’s hidden stash of cigarettes.

I asked you for five minutes to tell you my dad’s story, because I do not ever want anyone to experience a loss which is 100% preventable.  Lung cancer does not need to be the number one killer.

I miss my dad.  I miss my friend.

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