Paul's Heart

Life As A Dad, And A Survivor

Copays


Up until the Affordable Care Act became law (and it is the law), we were lucky if we heard the word “copay”, as in, your portion of the bill to pay for seeing your doctor. And for a good many of us, our copay, what we pay before the insurance picks up the rest of the tab, or at least the majority of the bill, the copay is fairly reasonable considering the service rendered, usually ranging between $10 and $35 for a simple primary care visit, perhaps a little more for a specialist.

For the average working citizen, this copay may be a bit trivial in the amount. $10 can buy a movie ticket, a super-sized value meal at a fast food restaurant, or two lottery scratch tickets. But for the patient on a fixed income, the copay amount is not trivial at all. Sometimes it is the difference of being able to be seen by a doctor, or delaying the visit.

For either patient though, and for the sake of this post, I am not arguing against the copay itself, but rather when it is implemented. Sure, I will not argue that a copay should be paid for an initial office visit with the doctor (most copays are often only paid when you see an actual doctor, not a nurse or practitioner). But what about the repeat or follow up visits, required by the doctor, for the same ailment?

Example one. You have a severe sinus infection which requires antibiotics. You go into to see your doctor, get charged a co-pay. The doctor prescribes you some medicine and wants to see you again in a couple of weeks to see how you are feeling. Of course, when the two weeks comes around, you are feeling fine. Should you just call the doctor and say that you are feeling fine? Should you go ahead and follow up with the doctor, which of course means you will most likely have to pay another co-pay even though it was the doctor that requested your presence, not the other way around.

Example two. A patient is diagnosed with cancer after paying the copay. A couple more appointments with the doctor, required by the doctor, also including a couple more copays, and treatment begins. There are some follow-ups to be seen by the doctor during the treatment regimen. Even though the patient is followed up by bloodwork and possibly other tests, the doctor wants to see the patient, but that also means collecting another copay.

There are plenty of other examples where a patient is required to return back to a doctor, by the doctor, and have to pay another copay. I do not know, but if you pay the copay once, the entire service should be covered regardless of the number of times that you are seen for that one illness. For a working person, this may not seem like that big a deal, but for someone on a fixed income, such as someone who is retired or on disability, a thirty-five dollar copay to see the oncologist for one particular patient cost the patient close to two hundred dollars before the first chemotherapy drug went into his veins just in consultation visits.

A Most Sincere Thank You


First, I want to thank everyone who “liked”, “commented”, and “shared” my photo and story. I am really overwhelmed by the outpouring response. Never in my wildest dreams as much as I want to help people deal with cancer and surviving it, did I think it would have this big of an impact.

To those who are just entering the world of cancer or going through treatment, you can get through this. I have met hundreds of other patients who have come after me. The treatments are better, safer. And some day I hope you enjoy the longevity that I have.

And for those that have approached my longevity and gone well beyond, I am inspired by you. I never had the opportunity to know anyone who had even beaten cancer let alone long term. After seeing your responses it is clear I will have a lot more time to come.

In closing, an expressions I like to say at the end of many of my posts, “as I cruise down the road of remission, I will keep looking in my rear view mirror to make sure that you are still following me. And if you aren’t on that highway, hurry up, I’ll wait for you.”

Paul

Half Of My Life With Cancer


If you have followed “Paul’s Heart,” you notice a countdown box off to the right of the screen. It has a milestone, that to the majority of people, represent something once thought impossible, surviving 25 years from cancer. Yes, today I begin my 25th year of having survived Hodgkin’s Lymphoma. So the countdown should change from twelve months to go, to days left to go.

I am a 24 year survivor of cancer. I have lived half of my life in spite of a disease that kills millions and yet a cure for all seems so far away. Another year down, I know it is no small feat. But once again, as always, my heart is too heavy to celebrate yet another year gone by. I miss so many that I have had to say goodbye to, and this year gone by I include Kim, Karen, Peter, and Michael.

Last week, as I sat across from my father in his hospital room, a nurse asked my father who had been just told his cancer had returned, “what would you like?” To which my father responded, “to survive cancer like my son.”

Today I recognize, but not celebrate, my 24th completed year of remission for Hodgkin’s Lymphoma. It is a sad commentary that in the twenty-first century, we still have not found a cure for cancer for everyone. I am disappointed that follow-up guidelines are not more well known so that survivors are better followed-up for late developing side effects. I want to see better surveillance of patients for critical side effects for drugs that are known to have the possibility of causing side effects, some potentially fatal.

We are so close. Seriously, part of the survivor guilt I deal with, is why I have gotten to live, while so many do not. I am hoping that if anything at this point, is that I may see in my lifetime, a cure for cancer is found, patients are followed more closely during their treatments, and survivors are better followed-up. And as the days count down to one next year, I want to celebrate.

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