Paul's Heart

Life As A Dad, And A Survivor

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My Bucket List


It was a star-studded movie in 2007, starring Morgan Freeman and Jack Nicholson, called “The Bucket List.” The movie was about two gentlemen, dying from cancer, who make a list of things that they want to do, before they die, and then proceed to do them.

I had never heard of this concept, a “bucket list”. I had heard it frequently following the movie, and still do today. When I hear those talking about their “bucket lists,” I hear of a lot of extravagant things that these people think are important to them to make them feel as if their life is complete. They are not necessarily dying, in fact, most likely, they are in great health. This fancy wish list is just stuff that they want to experience in their life, not just before they die.

I can admit, years ago, I had places that I wanted to visit, though I would not say that it would have to be as some sort of destiny pact. But, as a teenager, I had a school project to complete, about the stages of life. I had been given the stage of death. I needed to find someone to interview, and write about, their feelings of death. I ended up choosing the last person I ever wanted to even think about dying, my grandmother, hoping that she would assure me that she was not even thinking about her end. Well, it turned out, until that moment, having never heard her mention death before, it turned out, she had quite a bit of thoughts about it.

“I have had a great life. I had a good marriage to your grandfather. I was blessed with three children, all who grew up and got married. And I got to be a grandmother. I have gotten to travel and experience so much. But I miss your grandfather. And if today would be my last day, I am ready. I could not ask for anything more of my life.”

That paragraph is in quotes, because I remember the conversation from 1982 (I was a senior in high school). And while I loved my grandmother to the ends of the earth, and the last thing I would ever want to hear about, her passing, I found myself oddly comforted by her feelings. I know she was sincere in what she said. She passed a little over sixteen years later, and got to see her grandchildren get married, and even get to be a “great” grandmother to yet the next generation.

Back before my health went “kablooey” as a result of developing late effects from my cancer treatments for Hodgkin’s Lymphoma, I had lots of things that I had hoped to do. And it was clear that I had the ability and resources to do everything, as long as I stayed the course. My body had different ideas. Since my initial bombshell of a health event back in 2008, a “widow maker” heart blockage, and surviving that, I have had at least six more events that had the same severity and potential for fatality. And as many fellow survivors know, because of these health issues we have, our bodies are unable to deal with incidental events in expected fashion, because our health has been so badly compromised. Too often, I have seen a survivor get through an event, recover, to all of a sudden have a complication, and then succumb. The trauma, just too much for the compromised body to take.

So yes, some of us tend to have a hypersensitivity to our mortality. This by no means we think about dying. We don’t. But we do think about living, especially with the time we have left. And yes, that reminds me of, “The Bucket List.”

I need to preface my bucket list with the fact that, well, I know things. When it comes to the heart, I have had three surgeries since 2008. These are not permanent repairs, and as of right now, I would not be a candidate for a heart transplant because of all the other issues and risks I have. That means, I need to work with what I have, and make the best of it. But if all goes as planned, and there are no further major complications, I know how much time I am likely to have, before needing to be concerned again.

I have already approached the expected lifespan of my bypass, but the good news is, that currently, it is still holding up better than fifty percent. Needless to say, I am thrilled with that, because as the rate of the original blockage took eighteen years, I am still going to have another seven to ten years before this is likely to become an issue again. A stent I had placed in 2019, likely to last up to ten years, and the valve replaced late last year, is expected seven to ten years before it needs to be replaced.

For the average person, without my health issues, when the time would come, you would just have the surgeries to correct everything and that would be that. But with the long term damage from the radiation damage (still active after 32 years) and chemo damage, the risks from a second open heart surgery are not good for me. Bleeding out, infections, and death are at a much increased risk, and then even after those risks, the healing is difficult leading to other issues.

Now, while this may seem overwhelming, and as many close to me who still do not get me, I do not live my life thinking about my “end.” Quite the contrary, like “The Bucket List” or Tim McGraw’s song “Live Like You Were Dying” or Bon Jovi’s “Live Before You Die,” I actually do have my list of things that I want to accomplish or experience before I face that level of heart surgery again. And as you can see, compared with what my grandmother stated, I would, and already do, consider my life a good life.

With that said, and knowing that I have time to experience all of this, I believe this is all possible.

  • Having seen my daughters grow into young ladies, I want to see them graduate high school (this one is right around the corner).
  • I would like to see both my daughters go through some sort of continuing education.
  • After having DJed so many weddings in my life, and played dozens and dozens of Father/Bride songs, you guessed it, I want my turn walking my daughters down the wedding aisle (if they choose to get married that is).
  • I would like the experience of being a grandfather, though the “title” or reference has yet to be determined. Grandparents get to have so much fun and I remember how much I loved mine.
  • There is one thing I would like to do one final time, perform one more gig. I already have it in my mind, accompanied by two acoustic guitars and a conservative drum kit, an intimate gathering for one final performance by me vocally.
  • And finish writing my book, based on my blog, “Paul’s Heart.” For crying out loud, after two and half years during Covid, I am still only 2/3 of the way finished.

And that is my list. It is not expensive, well, except for the college part. But it is all doable, as long as my body cooperates. My fellow survivors understand the suddenness that our issues have and affect our bodies, so I do not take anything for granted. Though my diet is not ideal, I do everything else I can, exercise and keep stress to a minimum, that I will have my best shot at achieving all of the above things.

Because to me, a bucket list means nothing, if it cannot be remembered by everyone else. And if and when that time does come, hopefully not for a while, there will be a lot to remember and talk about.

Not Playing Favorites


When it comes to taking photos with my daughters, nearly all of the time, you will see one on each side of me. Much like a scale, to me, this particular pose, shows balance, equal. And that is the relationship that I want with my daughters. I do not favor one over the other.

Adopted roughly two years apart, that is the only advantage that one daughter has over the other, time. I pretty much nipped any kind of “competition” or sibling rivalry in the bud at the first sign when my older daughter asked following a karate demonstration, “who did it better?” referring to her sister’s execution versus hers.

Up until their high school years, I gave them constant reminders, anytime I heard any hint of one having an edge over the other in anything particular. That it was okay if something came easier for one than the other. That each would have their own methods to get from point A to point B, and both could be correct. But that did not mean that one way was better than the other.

In the theory of nature versus nurture, both daughters were raised to have the same values and virtues. That I expect of both of them. In that regard, they are both equal, and I could not be more proud.

But as they grew, they each developed their own interests and likes. They each got stronger in certain skills. Both have their own study habits. Both of my daughters have their own paths to get from point A to point B, and both, will get there.

As I mentioned, time is the only difference between the love I have shared equally with them. I have a year and a half more photos and memories. But that is all.

Now, as my daughters reach adulthood, there is a shift. I will have one daughter going off to college. And just like the song “Cats In The Cradle,” I expect difficulty in time to get to spend with her. And while my younger daughter graduates the following year, I will continue the frequency in visits with her, until she moves on as well. But time, is the only advantage one has over the other. That is not me favoring one over the other.

In their elementary and middle school years, it was a lot easier to maintain this balance. But in high school, as future goals and decisions needed to be made, I do my best to maintain that balance, making sure not to ignore one daughter over the other. Both of them have important things going on in their lives, again, just the timing of one year between them making the difference. They both need my attention. I love each of them the same.

What A Mom Really Wants


To be clear, I am not writing about what every mother wants, or even should want. I could not possibly know that, as I am not one. But I do know several mothers, in different situations and have watched Mother’s Day recognitions come and go. And admittedly, I can be very cynical when it comes to the commercialization of not just Mother’s Day, but many of these “personal” days. I am shocked that of all the Mother’s Day sales I have seen advertised, not one for a new mattress. I guess there are limits, no mattresses or Dyson vacuums for Mother’s Day gifts.

Of all who I know, I have seen many paths to having become parents, including the miraculous act of overcoming the impossible. While some may have had the “common” pathway of becoming a mother, others have had to go different ways, either through science or adoption. And no matter which direction was taken, there is not one mother I know who does not realize how the world changed the day that she became a mother.

And then, I have some in my life, that Mother’s Day has become a day of great sorrow. There are those who are mourning the loss of their mother for the first time on this day, or remembering the years gone by since. I also know, way too many, who, as a mother, mourn the unthinkable, the loss of a child. My mother, now in that situation, the first Mother’s Day for her, without her daughter, who passed away last Fall from Covid. My heart goes out to all of those mothers who have suffered this unimaginable loss.

Cards and flowers are an assumed tradition, as well as likely an inflated priced brunch. But just like many other holidays, commercialism has swallowed up the meaning of Mother’s Day, all for the sake of a profit. Does that mean a mom would not accept all kinds of gifts, or dare I say it, expect them? Of course not. But if you took a look at any mother who has lost a child, or a child that has lost their mother, what is one thing or things, that someone would give anything for one more opportunity, to be with their mother or child one more time?

On this Mother’s Day, cherish these things that you are able to still share, more than focusing on material things, because these are what mothers really want on Mother’s Day more than anything.

Call your mother if you cannot physically be with each other. Of course tell her “Happy Mother’s Day.” Ask her how she is doing. Tell her that you love her. Let her hear your voice. Better yet, if able, call via Facetime, Zoom, Skype, or whatever. Let her see you through video if you cannot be there in person.

In today’s world of social media, send your mom a special Mother’s Day TikTok or text, perhaps a meme, or an emoji, to put a smile on her face.

And if you are able to be with your mom, have a meal with each other. Ask how she is doing. Tell her how you are doing, because, even as an adult, she will always be worried about you, from your job to your health to your family.

No matter how you celebrate Mother’s Day with your mother, give her the one thing that no store or company can put a price tag on, your time. That will mean more to her than anything you could ever purchase for her.

This is my mother’s first year without her daughter. I know it will be hard for her. We live states apart from each other, but she will get a phone call from me, Facetime, and more. She will get calls from her granddaughters to wish her a Happy Mother’s Day. It is important to my mother to know, her work is not done, there is still so much for her to experience, and on this Mother’s Day, I want her to know that.

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