Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Family and Friends”

He Said, She Said


“Those who tell the truth have nothing to remember.”  Mark Twain

It is the most common type of argument between siblings, co-workers and their supervisors, sales representatives and clients.  One side claims to have said something or done something, and the other side says “no, you didn’t.”  In the world of “he said, she said” it often becomes a battle of wills, reputations, accusations, and hurt feelings by at least one of those sides.

When this type of issue arises in the younger part of our lives, the incident serves no other purpose really, other than teaching us who we can rely on.  But in the adult world, situations like this can have a major impact on our daily lives, on our futures.

The first job I applied for post-cancer, was for an insurance company rep position.  I was a sure thing as my step-father worked for the same company and had a great reputation.  It was a position that required licensing, so that meant studying and taking tests.  Of course, I went through all the other steps, application, interview, and had been doing quite well on all aspects of the hiring process.  Then they had me undergo a health physical.  It had been several months since my chemo ended, and I had been doing well rehabbing at the gym.  I had lost nearly half of the weight that I gained (yes, I gained weight during my chemo), and I had really built up a lot of stamina.  I was in probably the best condition I had been in for a long time.

About a week later, I got a telephone call.  “We wanted to know that although you have done very well with all the testing and preparations, after discussing your cancer situation with our home office, they would just feel better if you were in remission a bit longer.”  And there it was, my first taste of discrimination courtesy of a “nation wide” insurance company.  As hard as I worked to get back into shape, this is what my life was going to be like?

After speaking with my social worker, he made the recommendation that I file a complaint with the Pennsylvania Labor Board.  I have never been a person controlled or motivated by money.  This would be no different.  The biggest issue was the fact that there was a good chance I would never get hired anywhere, simply because I had cancer.  There would be no attorneys supporting me and my complaint, just my social worker.  Off we went to Harrisburg.

Neither of us knowing what to expect, we all met in a large conference room, and I was given the first opportunity to speak my case and I basically recited everything that I mentioned at the beginning of this story.  Then it was their turn.  Just when I thought it could not get any worse for me…

“Mr. Edelman withdrew his application.”  And just like that, my case was over.  Or so I thought.  After all, there was only a telephone call between myself and the district manager for this company.  It was my word against his… he said, he said.  Of course I objected.  I know what I said and what he said.  All that I had to do was prove it.  It was that simple.  Unfortunately, life does not work that way.

But it was not all bad news.  As I mentioned, I live life with principles being my main objective.  I was about to win at least part of my complaint, perhaps not for me, but for someone else.

There was a new law that had recently passed, that definitely many major companies were not prepared for, called the American With Disabilities Act.  The part of the act that this company was introduced to, and was required to make immediate sweeping changes to its hiring practices all across the country, was that an employer could no longer require a physical until after the job applicant was being considered for the job.  Seriously, how hard was it going to be to sell life insurance?  Companies are not allowed to even ask you anything about your health history until after they have made the decision to hire you.  Yes, that is a loophole, but at least you can get in the door a lot easier now.

This behavior by companies of all sizes, the old “he said, she said” trick is still widely used.  Unfortunately we are a mostly trusting society.  We epxect people to be honorable and keep their word, do the right thing.  But how do you protect yourself from not only being denied what you are legally entitled to do, but physically able to do as well?  Print.

Put everything down in writing.  In today’s media world, everything lasts forever courtesy of the internet.  Years ago it was convincing enough to mail something registered mail, and then faxing.  But still, when push came to shove, how could you prove what was inside the envelope or what was faxed.  Companies are much too smart for that today.  But one tool that is pretty much impossible to beat, is email.  Your email is mainly your personal access, your words, your time and date stamp, your proof of what you said.  Once “sent”, it is out there forever.

Here is how that situation back in 1990 would have been handled by me today.

I would have originally asked for an email address for contact purposes.  I would still send every correspondence the way the other party would request, whether it be fax or snail-mail.  But today, I would scan any forms and letters into my computer, then attach the document to the email and hit “send”.  I am sure that there will come a time, when companies will get around the time and date stamp placed by email, but for now, if someone wants that fight, I am willing to take that step.  It is not satisfactory enough to tell me I need to follow up with the submission.  If I do what is expected, then I have fulfilled my obligation.  That is how I solve “he said, she said.”

Excuse Me, I Asked For Mine “Medium”


At one point or another, most of us have called the waiter over, and made a comment about food served to us, that it was not made as we requested.  And we are more than aware of the Youtube videos and television news shows that show what happens behind the scenes of wait staff and chefs who get agitated when a customer complains about the food.

Yet when it comes to the care of a loved one by someone in the medical field, we hush up, like they might do something to us.  What that “something” is, I do not know.  When it comes to food, I have heard stories ranging from sinuses being emptied onto the plate, food dropped on the floor and put back on the plate… it does not matter, as long as the food is cooked the way that we want.

But the example I would like to use, is the medical environment.  I do want to say, that nurses are so overworked, and so understaffed.  This is what I see a major problem.  They are entrusted to care for the patients, but can be bouncing from room to room like a pinball.  A family member who visits regularly, will often encourage their loved one to speak up when it comes to discomfort or pain, but will usually do nothing.  Just like the orange call button will not get used.

I am going to take this to a further extreme.  What happens when the care of the individual requires the extra effort by the caregiver?  And the caregiver refuses just out of convenience?  The situation is a patient that needs assistance in and out of bed (actually all care), asks for help to go to the bathroom in the overnight hours.  But the hired caregiver refuses.  Now the patient instead wets herself, saturated.  Family members are concerned that if a complaint is raised, it will result in the caregiver treating the patient even worse.

What would you do in a case like this?

You make an immediate phone call to the agency and tell them this will never happen again.  The agency will get the message loud and clear.  They do not want any further issue either as it will only turn out bad publicly for them.  But to do nothing is the wrong thing to do.  You must not let the fear of retaliation by the caregiver (should the caregiver’s actions go unpunished to prevent them from happening again).  Just think of the possibilities of not only what they have done to your loved one, but what about others under their care?

If you have no problem asking for your steak to be a little more cooked, or your french fries to be without so much salt (a trick to get fresh french fries by the way), you should have no problem getting your loved one’s needs taken care of.

Visits With Dad


This upcoming Father’s Day is a special one to say the least, given the events of the last month.  And today, it is exactly one month since my father’s health took a dramatic turn for the worse.  But I am happy to say, that after last night’s visit with him, he is doing great on the road to recovery from not just the original issue of lung cancer surgery, but as a result of or during, or following that surgery, two strokes, and a heart rhythmn issue.

I describe the relationship with my father in two stages basically, basically the two halves of my life.  The first half was based on the results of a bitter divorce, the second half was a matter of circumstance and reconciliation.  Both of us will undoubtedly agree we have made the most of the second half.  In a prior post, I mentioned my admiration for my father.  But in recent weeks, I have learned just how strong a man that he is.

Several months ago, my father had been diagnosed with lung cancer.  After smoking for nearly 85% of his life, fifty-seven years worth to be exact, it came as no surprise when he asked the doctor, what was most likely the cause of his cancer, and then told without a doubt, “smoking.”

The best option for him was to have the cancer surgically removed, meaning he would lose half of his lung, if not all of it because of where the tumor had been located.  There would be risks with the surgery, but my dad was confident what needed to be done.  There had been some slight concerns during recovery, but otherwise, he had tolerated the procedure well.

Within the next twenty-four hours, my brother and I realized something was wrong.  And it would be another twenty-four hours before and it was confirmed.  My dad had suffered two strokes.  But because he was recovering from surgery, it was difficult to determine what damage my dad would be dealing with.

In the days that followed, he would be transferred to a rehab facility, and work very hard with various forms of therapies from speech, occupational, and physical.  Each day, his goals became very clear.  He wanted to go home.  He wanted to be independent.  He wanted to go home to his wife.  There was some confusion on his part that stood in his way, but then the day came.

I picked my father up from the rehab hospital, and stopped by the store for some flowers for my dad to give my stepmother.  Just seconds through the door, he gave the flowers to her, and then sat down at the table next to her, grabbed a deck of playing cards, and together, they did what they often did as if time had never stopped for them, played cards with each other.

He continues to improve, and much to his objections, still has some caregiving to help make sure he that any emergencies are able to be dealt with.  But some day, we all hope that he gets that 100% independence that he had before he had the surgery.  Knowing my dad he will get there.  He is so close.

Happy Father’s Day Dad!

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