Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Education”

A Theory Of Humanity


I do not usually do movie reviews, but not since “Brian’s Song,” has a movie/biopic moved me such as this film did.  I saw the movie, “The Theory Of Everything” starring Eddie Redmayne as Stephen Hawking, cosmologist, and also a patient dealing with ALS, also known as Lou Gerhrig’s Disease.

Eddie Redmayne

There is no spoiler alert with this post, because everyone knows that Hawking has defied the ALS survival rate by decades.  Originally given only two years to live in his college days, Hawking is now well into his seventies.  I am very well aware of Hawking’s credentials, but it is his life, living with ALS, that gripped me most while watching the film.

Over the summer, a craze went over the internet, called the “Ice Bucket Challenge,” meant to raise awareness as well as money to help find a cure for this awful motor neuron disease, where basically every muscle shuts down, except for one.  The brain remains functional and fully aware of what is happening to the body it is inside but no longer able to act or communicate.  I did not need the challenge to make me aware of ALS.

For the second time in as many years, I was dealing with someone close to me, fighting ALS.  And both would die from it, just a few years from their diagnosis.

December 2009 - 82

My brother-in-law Mike, pictured here with my daughters, was just diagnosed a few months earlier.  While the progression of the disease is cruel no matter how it occurs, it more often occurs in physical evidence like it did with Hawking, then progressing to the throat and mouth muscles.  It is at this point, when dealing with ALS is more critical, because once you are no longer able to swallow, the ability to receive nourishment is critical.  In my brother-in-law’s case, his ALS first became recognized by a simple slur in his speech.  Thinking perhaps it was from enjoying a favorite vice of his, Jack Daniels, it was not soon before we all realized, it was not.

Mike’s deterioration would accelerate over the next couple of years, much in the way the film depicted Hawking’s struggles.  It became difficult for Mike to grasp, walk, hold his head up, communicate, swallow, and the list goes on.  But throughout his battle, he did his best to continue on, working, taking care of his family, and riding his Harley.  But the disease continued to take everything away from Mike as he lost his physical abilities.  Finally, two years ago, ironically the day following a fundraiser in his honor, my brother-in-law lost his life.

The only other time that I had even heard of ALS before Mike and my co-worker (who passed the year before my brother-in-law) was decades ago, watching a black and white movie, called “Pride Of The Yankees” starting Gary Cooper as Lou Gehrig.

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The most touching part of the movie, after the disease, which would eventually be named after him, came when Gehrig announced his retirement, calling himself, the “luckiest man on the face of the Earth,” in the following speech (quoted from Wikipedia):

“Fans, for the past two weeks you have been reading about a bad break. Yet today I consider myself the luckiest man on the face of the Earth. I have been in ballparks for seventeen years and have never received anything but kindness and encouragement from you fans.

“Look at these grand men. Which of you wouldn’t consider it the highlight of his career just to associate with them for even one day? Sure, I’m lucky. Who wouldn’t consider it an honor to have known Jacob Ruppert? Also, the builder of baseball’s greatest empire, Ed Barrow? To have spent six years with that wonderful little fellow, Miller Huggins? Then to have spent the next nine years with that outstanding leader, that smart student of psychology, the best manager in baseball today, Joe McCarthy? Sure, I’m lucky.

“When the New York Giants, a team you would give your right arm to beat, and vice versa, sends you a gift – that’s something. When everybody down to the groundskeepers and those boys in white coats remember you with trophies — that’s something. When you have a wonderful mother-in-law who takes sides with you in squabbles with her own daughter — that’s something. When you have a father and a mother who work all their lives so you can have an education and build your body — it’s a blessing. When you have a wife who has been a tower of strength and shown more courage than you dreamed existed – that’s the finest I know.

“So I close in saying that I might have been given a bad break, but I’ve got an awful lot to live for.”

Hawking

In the movie, “The Theory of Everything,” Hawking pretty much carried the same attitude as Gerhig, and my brother-in-law, he was not going to let anything stand in his way of proving “Time.”

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Near the conclusion of the movie, Redmayne quotes as Hawking, during a discussion about “giving up” takes place, says, “as long as there is life, there is hope.”

There were many of us in the theatre who probably took that ice bucket challenge, and many may have had no idea just how cruel the disease was except for a few of us.  But after watching this movie, there is no doubt that humanity now understands this rare, cruel, and fatal disease.  Hawking has defied the odds somehow, and is a true inspiration.

I anticipate many Oscars for this movie.

Comic Relief Just When It Is Needed


November 2010 - 37

“The human race has one really effective weapon, and that is laughter.”  Mark Twain.

With that, I want to introduce you to one of the most “powerful weapons” in the human race, my youngest daughter, Emmalie.

Typically, a biologically born child will have inherited characteristics of either parent.  But with Emmalie (and my oldest daughter Madison) being adopted, any traits that either daughter share with me, are purely coincidence.  Yes, there is what they have learned from me as they have grown.  Prior to the divorce we spent a lot of time together, doing homework, playing games, and my favorite, holding them in my arms when they were younger.  But their personalities were determined long before I had even met either one.

Through the adoption process, one of the things that I had to supply, was an autobiography about myself.  This would cover everything from my hobbies, employment, family history, and such.  Once all of the personal and legal information had been gathered and organized, the paperwork was then sent to the country of China’s Adoption Affairs office where the adoption process would continue through their end.

My dossier would go into a department those of us in the adoption world know as the “matching room.”   Where by some magic, dossiers are compared with profiles of at least ten children, most of them toddlers and babies.  At this point, a child is “matched” up with their parent.  The result is pure magic.

Both of my daughters share many of the characteristics and interests that I possess.  Only one characteristic either daughter have that I do not, but their adoptive mother does have, and that it artistic hands.

But Emmalie possesses one of the most important traits that I have, a sense of humor.  This child is notorious for causing an outburst of laughter at just the right moment.  She is a goofy and quirky little girl.  The smile that follows resembles the young child dinosaur in the 1980’s television show who regularly blurts out “gotta love me.”

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I had taken the girls to see Shrek 3 (all three movies were great and entertaining).  At one point during movie #3, spoiler alert, Fiona’s father dies.  However, prior to his demise, he had been turned into a frog.  And of course the punch-line that followed… here it comes… “he croaked.”  Well of course, everyone the theater had sat in silence at the king’s passing, in spite of the symbolic comment.  Everyone except for Emmalie, who immediately burst out laughing at the joke itself.

But that is who Emmalie is.

It should come as no surprise that during one of the more difficult times in all our lives, that once again, she would provide her patented comic relief.  During one of our recent nightly conversations, her spontaneous humor knocked me off my “chair.”

Emmalie routinely asks me questions that have nothing to do with nothing, and though she claims there was no motivation behind her next question, I actually do believe her to a degree.  The divorce has been difficult for all of us, but my estranged wife and I are doing what we are able to keep the impact on the girls to as minimal as possible.  And though I believe Emmalie felt she was just throwing out one of her zinger questions as me, there is a part of me that knows in my heart, perhaps there was more to her question than she was letting on.

“Daddy.  I have a question.  Are you going to get married?”

Besides the legally obvious situation, that my divorce is yet to be final, marriage is the last thing on my mind, if ever again.  This was my second marriage to have failed, and clearly, the process has left me with no desire to ever share that commitment ever again.

But I am in a relationship again, and so is my estranged wife.  All four of us, seem happy in these new relationships.  So I could not help but wonder, if perhaps my youngest had overheard conversation from my ex and her boyfriend about getting married.  I know I have never brought up marriage.

“No… Emmalie, Daddy is not going to get married.  Why do you ask that?  Is mommy talking about me getting married or is she thinking about it”

“I was just wondering Daddy.  It seems like you are really happy.  And it would only make sense that if you were happy, then you would get married again.”

December 2009 - 35

If only it were that simple my precious little angel.  But as I thought about her question, I realized that there was more to it than just Emmalie seeing her daddy happy with someone else, or her mother happy with someone else.  Emmalie is more wise than what she realizes, and for those who receive the gift of her wisdom, we are truly blessed.

It has been so long since Emmalie or Madison have seen either of their parents smile.  And now our daughters are seeing bother their father and mother smiling again.  Emmalie has let me know that she is glad to see me smile again.  But the smiles do not have as much to do with what it happen currently, but rather what we were dealing with in recent years, and the effect it had on our girls.

I love you both so much Madison and Emmalie.

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The Effects Of Divorce On Children


January 2009 - 29

I would NEVER, EVER, do anything to harm my daughters.

I realize that judgment will always reign over understanding when it comes to dealing with a decision on filing for divorce.  Especially when children are involved.  And although the ages of any child of a divorcing family may vary in their response, the hurt the child experiences is the same.

One of the first things I was taught in church was the 10 Commandments, one of which, “love mother and father.”  And the great thing that is supposed to happen, regardless of a commandment, is receiving a child’s never-ending love, whether it is a single parent situation, two parent situation, or multiple parents.

But there are two instances of comments that upset me, one which shows ignorance, and the other, selfishness.

The first comment, “haven’t they been through enough already?”  This question is usually directed at the fact that my daughters are adopted.  Regardless of domestic or international adoption, adopted children definitely have had to experience the loss of their parents, or perhaps the break up of their family.  That is true.  And only time will tell in their future, if their mother and I provide them with enough as they grow older, to understand their lives.  Of course, add in all the other drama that has existed in our household with all the Emergency Room visits I have had, and the children have witnessed, our daughters have been through a lot.  But one thing is certain, in spite of the divorce situation, I love them.  Their mother loves them.  And both daughters love us unconditionally.  Therefore, it is going to be how my estranged wife and I deal with the divorce, and the expectations, that will determine if that love continues to be unconditional or not.

The second comment, “you should have tried harder.”  We kept the problems of our marriage inside our home.  And inside our home, were only the four of us.  But as the problems grew, so did the tension, the alienation, unfavorable reactions, and eventually resentment.  The environment that was developing would have been awful enough for a childless marriage to endure, but to have two small children witness the daily struggles and tension between their parents, was unfair enough to subject them to.  But to stay together with a spouse, just because a friend just “can’t imagine” us getting divorced made no sense, and definitely was not in the best interest of the children.

We tried counseling on at least two occasions, fairly long term.  But the counseling was not enough just dealing with healing us as a couple, but unable to deal with personal baggage and compounding issues as well.  We would confide in family and a couple of mutual friends, but no one would seem to have a solution.  But the tension became more of an issue when I was confronted one evening by my oldest daughter, following a berating by their mother, “Daddy, why does Mommy yell at you so much?,” that then I realized just how bad the environment was affecting our daughters.

Please understand, we had more than relationship issues.  Those were only an effect of the root cause, and number one reason why couples get divorced, money.  But the last year of our “marriage”, and hard for me to believe, was the most difficult struggle we faced to endure, and over the prior seven years, we had been through a lot.  There just did not seem any chance to get ourselves to do what was necessary to correct our issues.

That environment was hard enough on our children to be exposed to.  And we did our best to protect them from the issues we faced.  But we both knew it was not enough.

Over the next ten months following my filing for divorce, we both followed our attorneys’ advice, to remain inside the home, so that neither of us could accuse the other parent of abandoning their children.  Seems like a silly thing for either of us to accuse each other as we clearly love our daughters, just not each other any more.  Yet the seed of distrust had been planted, and so, just as in the movie “War Of The Roses,” we remained living in the house with each other.  I made recommendations to my estranged wife as to alternatives, that would not increase our expenses, and in spite of giving my word not to pursue abandonment, we both dug our heals in, and were going to stay in the house together, until the divorce was resolved.

Now for those who say, “we should have tried harder,” that time period would have been great to attempt that.  But instead, what happened only made things worse.  Interference by those outside the home were making it impossible for any reconciliation by the constant harassment and threats, all under the guise of “free speech.”  But clearly the intent was to make sure we did not save our marriage.  Inside the house, that behavior only made things more difficult.  Alienation is one thing, but isolation is another.  For nearly ten months, I slept in a spare room, actually, I stayed there, when I was not at work, or out and about on business.  I showered at work, and I rarely ate in the home.  I allowed their mother to roam freely around the house without any interference or confrontation, while I remained confined in this room.  This is what the children saw day after day.  There was no improvement in the relationship between she and I.  It only got worse.

You tell me, how much harder should we have tried?  How much more should the children have endured?

Today, we are both dating.  I cannot speak for my estranged wife, but I know that I have no intention of ever getting married again.  But the important thing, is that our children like both individuals we are now involved with.  And this is very important.  Because they are witnessing their parents being happy again.  This is something that they have not seen in a long time.  Sure, we are not happy with each other, but around our children, we are happy again.

There is an expression, “husbands and wives get divorced, not children from parents.”  And I have always emphasized that no matter what happens between a husband and a wife, they will forever have the responsibility of co-parenting their children, forever.  And for many, it is easier said than done.  And I have seen some of the biggest parental rivalries co-exist in some of the most dire circumstances that give me hope that some day, some how, common sense and  reason will allow and nurture the co-parenting roles.

There are still some very difficult days ahead as the divorce process continues.  And each day, our daughters grow older, and more aware of what is happening.  But since the day that we have been officially separated, we have both been in control of ourselves for what our daughters see and hear about the divorce itself.  From my end, I have shown the girls that they still have both their Mother and Father.  I have shown them that they have a home with their Mother, and a home with me.  I have done what I can to build the same foundation with them, as when I adopted them.  They will never hear me speak ill of their Mother, no matter what comes from the other side at me.

Every day is a struggle to move forward, but I can no longer waste energy on whether the situation is “fair” or “tried harder.”  Both of us, as parents are trying to move forward.  For myself, that means continuing to find a way to support my children as soon as that opportunity arises.  I have promised my daughters, that I will make things better for them.  I know what it takes to get through a difficult situation having survived cancer, a near fatal heart episode, and two other near fatalities.  One thing is for certain, I do not give up.  I do not know how.

I love my daughters, and they love me, and no one, NO ONE can ever take that away from me.

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