Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Education”

The Power Of The Pet


I have always believed in the power of pets and healing, at least comforting, which is just as important.

This is one of only two photos I am aware of, from my Hodgkin’s Lymphoma days over 30 years ago.  Just prior to beginning my chemotherapy, I adopted a calico kitten and named her “Pebbles.”

There was just something so soothing about the purr, close to your ears, the feline vibrations soft enough to massage the physical stress away.  And though she spent lots of time doing “kitty things,” it was her behavior once I started chemotherapy that I will never forget.

On a regular basis, as I entered the door of my apartment, she always rushed to greet me.  But after my chemotherapy appointment, I “rudely” rushed by her, ignoring her, to get to the bathroom to deal with the nausea that as expected, was about to hit me.

She followed me to the bathroom, like many pets do.  Only, you could see, she was confused that I did not seem to be using the toilet like I normally would.  I was unable to pet her or give her attention.  And there she sat, just staring at me.  When I was done heaving, exhausted, it took every ounce of strength I still had left to get to my bedroom, and crawl into bed, shaking from the physical tension and muscle tightness all over.  Everywhere hurt.

As I lay in bed, Pebbles came up onto the bed, laying on my wife’s pillow (to be clear, 1st wife) until she came home from work, keeping watch over me.  This became the ritual for the next eleven treatments, every time.

Pebbles was not the first pet to have an impact in my treatment and recovery.  I had a golden retriever named Pollo.  Unbelievably loyal, Pollo went everywhere I went.  Except one time.  And that was in 2008 when I had to have open heart surgery to save my life from damage caused by treatments years earlier for my Hodgkin’s Lymphoma.

We were known to roughhouse with each other, battling over who would be “alpha.”  This made me nervous as I made the trip home from the hospital, after six days recovering, my breast bone, still precariously sore and obviously not healed.  I had no idea how to prepare for Pollo, because when I came home from work, he often jumped on me to greet me at the door.  This could not happen when I walked in the door.  But how would I control his excitement.  We had never been apart.

I could feel my heart race as I opened the door, and here he came, he was definitely happy to see me.  And then his pace slowed, soon approaching my side, and standing there, allowing me to have the opportunity to pet him calmly.  As I was assuring him that I was home, and I would be okay, it would be as if he was trying to let me know, he was there to take care of me.  No matter where I was sitting, he would lay at my feet.  If I was laying down, he was laying by my side.  I could always count on him being there for me.

It did not have to be my own dog either.  During one of my many trips to the hospital, I was often visited by fur friends who stopped in just to say “hi.”  You can immediately feel the weight lift off you when you are approached by one of these four-legged caregivers.

Yes, medicine plays a big part in your care.  So does faith, if that is what you believe.  Support from family members, and of course, your actual caregivers from nurses to doctors are important.  But just as important, in care and recovery, are our fur friends.

Really Not A Grinch, But…


I hate broccoli.  Allow me to expand on that.  I hate all vegetables, at least the green ones, also known as “the good ones for you.”

Reality TV… cannot stand it.  Well, except for the vocal competitions, as long as they do not waste my time with those just looking for fifteen minutes of fame.

Do not call lists.  We either have them and are on them until we take ourselves off due to some masochistic issue, or leave us the hell alone.

But there is one thing that really irritates me, like having sand in your swim trunks.  And yes, I know what that feels like.  I was really not smart at five years old.

To quote Jim Carrey’s “Grinch” character… “I looooooaaaathe” these things!  Reindeer antlers for cars.  The odd thing is, I have seen other decorations on cars that do not antagonize me the way these things do, even cars totally wrapped up in Christmas lights.  But these antlers!  AAAARRRGGGGHHHH!!!!

Now, I need to give a little bit of transparency.  I am not a big fan of the holiday season in general.  To me, November and December are the grim reaper of the calendar.  I have had to deal with so many crisis and tragedy during these months over my life.  That said, I do celebrate the holidays, and to levels that might surprise you.  And as the things that have caused me such grief in these months, two of the most important people in my life, keep me in the moment of recognizing how each year, this holiday is important to me.

Yes, because of my daughters, I embrace the Christmas holiday.  Just as they helped my father embrace the holidays also.

I fully embraced the holiday.  Look at the smiles on their faces.  I had to keep those smiles forever.  I was fully committed to the role.

Every year I dressed up in a Santa suit.  My fur friend Pollo, always knew it was me under the suit, but he needed to be influenced to stay silent.  Christmas Eve, photos and video were taken of me with Pollo, eating the cookies and drinking milk, even putting presents under the tree.  And then, to reinforce the belief in the big guy, I showed the proof beyond the half-eaten cookies and now warm leftover milk, photos.  And much clearer than the photos of Big Foot.  Unfortunately, this was the final year that I did this, because, I was lazy.  And lazy got me caught.  My older daughter, who can find an earring back in three inches of shag carpeting, something unusual about Santa.  “Why is ‘HoHo’ wearing your sneakers Daddy?”  The gig was up.  I got away with the initial explanation of him having dirty boots, he took them off, and my sneakers were by the fireplace so he put them on, not be rude walking barefoot in our house.

And I am not against decorations.  Quite the contrary.

Every year, the day before Thanksgiving, I was outside, working on the thousands of lights that I would put up.  The picture shown is incomplete, because I had lights along the roof, and over 12,000 lights strung in my huge holly tree.  And there were hand crafted wood ornaments I had not put out yet.  My point is, I am not anti decoration.

But there is something about these things, that I cannot let go.  I am not a hunter.  So it is not a primal urge to shoot at something resembling a deer.  I just cannot explain the feeling.  Making it worse, don’t let me see that stupid red nose on the front grill of the car.

You don’t think these things don’t belong on a car.  Let me prove you otherwise.  Besides the fact that I think they are stupid (I know many will not share that sentiment), they are actually dangerous.

WHAT?

That’s right.  Sure, they may look cute driving through streets looking at houses decorated for Christmas, where you are driving five miles an hour.  But they are not meant for higher speeds.  Allow me to explain, because I actually get joy out of this.

These antlers are not meant for high speeds, unlike Santa’s actual reindeer.  And if these antlers have bells attached for authentic reindeer sleigh bells, even worse.  So, while one Christmas season, driving to the Poconos via the Pennsylvania Turnpike, there arose such a clatter, against my driver side window as I drove on cruise control at 70mph.    That clatter got louder and faster, and then all of a sudden, there was silence.  At least from the driver side of the car.  The passenger side was still noisy, but not as loud with my distance from it.

When we got to our destination, it appears our “reindeer wannabe car” had a mishap.  It broke an antler.  Funny.  Hysterical at least to me, because I never liked it in the first place, nor did I like feeling emasculated driving a car adorned with this crap.  But for the other passengers in my car, including my daughters, they wanted to laugh, because they saw that I saw it was funny, and “daddy is always funny.”  But the other parent was not amused, in fact, actually accusing me intentionally of driving a speed that somehow I knew would cause injury to the antlers.  Right.  Because I obtained secret information from the factory warning of antler stress fractures due to high rates of speed of 70 mph or more.  It was a conspiracy.

Just like in Scooby Doo, I had been caught like Mr. Chaumers.  I was glad that antler broke off.  But now I wondered whatever happened to the flying projectile from my car.  Did it fly into the windshield of the car behind me, either cracking the windshield, or worse, causing the driver to panic, perhaps getting into a car accident?

I may have not been thinking it originally, as to why I did not like these things.  But I do know now why I don’t like car antlers.  They are dangerous.  May not seem like it, but they have the potential for harm.

At the least, once Christmas was over, then the f*@cking Easter Bunny ears, nose, and fluffy tail were purchased next.  And those met a similar fate.  But that is a different story and a different season.

 

Understanding Drug Interactions


I got an unusual phone call the other day.  It was from my pharmacist.  She wanted to make me aware of two medicines that I was having renewed, they could cause a potential problem.

Unfortunately, while typically I write about my experiences based on the world of cancer, there are literally millions of people, either currently or in the past, having dealt with Covid19, need to be aware of the medicines and potential interactions.

Up until around 2008, all I had really taken was a prescription for my thyroid, damaged from my radiation therapy for Hodgkin’s Lymphoma, something for my high cholesterol, and to help with my blood pressure.  In 2008, that all changed.  To date, I now take nine different medications, all related to the late effect issues that I deal with.  In twelve years, this is the first time I had heard from a pharmacist personally though.

I have a large number of doctors that I deal with, and I trust them with the medicines I need to take.  I trust them to be aware of any interactions between the medications, and to weigh the benefits and risks.

In 2019, I had to have yet another procedure, the second on my heart.  But unlike the open heart surgery I had in 2008, this procedure was going to involve a stent (ironically for an artery that they knew about in 2008 with the other surgery, just did not fix it).  Because of the stent, I would need to take more than the baby aspirin I took from my open heart surgery.  I was prescribed an actual blood thinner.

Later in the year, I saw a different cardiologist, who noted on my record, the list of medications that I took, and noticed a medicine I take for gastrointestinal issues.  He was concerned.  As he stated, there is a likelihood that that medicine and the blood thinner interaction could actually negate the benefit of the blood thinner.  I would need to change the medicine I took for my stomach.

There was only one problem with that.  No other medicines are able to handle the issue I deal with for my stomach.  We are talking quality of life at this point.  Not to mention the fact, not being able to take this medicine would also increase risks of complications with my GI system, and likely lead to aspiration pneumonia (I have written other posts on this).

Then the suggestion, was to try a newer blood thinner.  The problem with that, the cost was enormous and unaffordable.

As a consensus made among all of my doctors, 95% of us, including me, agreed that I would continue on the path that I had been for the last year.  And that was the last I had heard of it, until the phone call from the pharmacist.

I want to be clear.  I completely am so appreciative for a pharmacist who does so much more than just fills prescriptions.  This is the first time in my life, I have ever had a pharmacist even tell me of a potential conflict.  Up until then, if you wanted to find out about conflicts, you went to the web site drugs.com for the potential issues.

Now, with Covid19, and the treatments for it, things get really complicated for me, but not necessarily a cakewalk for someone who has never had cancer.  You still need to have that awareness.

One of the early popular drugs thought to be helpful, now disproven, when combined with an antibiotic, could cause cardiac issues.  The use of steroids?  Not when you have a known heart condition.  Treating someone like me who has a history of a drug called Bleomycin (for my chemo) with oxygen, a huge no-no.  I have spent decades being aware of the medicines I need to stay alive, or save it.  Even foods you eat can impact a medicine you need such as grapefruit.  Certain statin drugs (for cholesterol) actually have their effects reduced by grapefruit.  If you take a medicine for your thyroid, they tell you not to take any other medicines with it, because the drug will affect the absorption of any other medications.  I have learned way more than I have ever wanted to about medicine and prescriptions.

It would be just so much easier not to have to take any of them.

Post Navigation