Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Cancer”

National Hodgkin’s Lymphoma Awareness Month


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September is National Hodgkin’s Lymphoma Awareness Month.  Actually, it is Lymphoma Awareness.  Actually, it is Blood Cancer Awareness Month of which includes both lymphoma and leukemia.

I am a 25 year survivor of Hodgkin’s Lymphoma.  The diagnostics and treatments that I was exposed to decades ago are rarely if ever used because of progress.  There is still much more to do in finding a 100% cure, and a safer cure as well.

Last September, I challenged myself to write 30 posts in the 30 days of September, pertaining to Hodgkin’s Lymphoma.  I have included stories of other patients and survivors besides myself, such as Stephanie and Jeff.  I wrote inspirational stories of profound loss for Michael and Jennifer.

This month, I would like to do the same challenge again.  And this time, I would like to include even more stories of other survivors.  If you would like to share your story on “Paul’s Heart,” please email me at pedelmanjr@yahoo.com .  Personal stories on this blog average 700 views and for those who want to help make a difference in this fight, your story is one way to do it.

“As I continue down the road of remission, I will keep looking in my rear view mirror to make sure that you are still following me.  And if you are not on that road just yet, hurry up.  Once you get on that highway, it’s a great ride.”

Thanks for reading.

Paul

Someone Else I Look Up To


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Meet Lara.  Nice picture yes?  Lara like so many others, is a long term cancer survivor.  But to me, she is more than that.  Like many whose paths I have crossed, she is not just a long term survivor of Hodgkin’s Lymphoma like me, she is a “longer” term survivor than me.  Though the record of survivorship I am aware of is a gentleman who uses the name “Stillkickin” is over 60 years of survivorship for Hodgkin’s, Lara is 16 years ahead of me in survivorship at 41 years!

Now, before I go any further, I always feel the need to state for the newer cancer patients who read my blog, when you hear stories of survivorship and some of the late side effects we deal with, you need to keep in mind, we were treated with stuff no longer used, because medicine found better and safer ways to treat cancer.  No, it still is not perfect, but as you have read in my situation, and others, and as you will see in Lara’s case, way back when, treatments were far worse.

Another similarity that I have with Lara, is that she too is a writer.  She has her own blog called, “Damn These Scars.”

I Am a Childhood Cancer Survivor Forty Years. It is Never “Over.”

It was this post that she made a little over a week ago that caught my attention.

Once again, look at the picture of Lara.  And when you read her story, try to figure how the outer shell of a human being can hide so much pain, illness, and struggle, and the amount of effort that goes into protecting the outside world from seeing our reality and what we as long term cancer survivors deal with on a daily basis, along with the daily grind.

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“My Dad Was Just Like Me” – The Video Performance


Last March, I wrote a short story called “My Dad Was Just Like Me”, a tribute to my late father.  It was published by Memorial Sloan Kettering Cancer Center, and then performed by professional actors in a staged reading format.  I had written these stories before and they had been published before, but this was the first piece that had been selected to be performed.

To view the video, please go to the link, and then find my name, Paul Edelman, and click on the video.  Of course, you can view all of the videos that are available, including from past years.  All these stories are written by cancer patients and survivors of MSKCC and published in an annual anthology called Visible Ink, available for purchase through the MSKCC Visible Ink website.

Enjoy the performance, and feel free to share it.

https://www.mskcc.org/experience/patient-support/activities/writing-visible-ink

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