Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Cancer”

A Farewell To Fran


I never want to write these tributes.  Rather, I would rather not have to write these tributes.  A cancer survivor endures so much over their “second” lifetime, they should be the ones that get to tell all the beautiful and inspirational things that they have done, since cancer.

Though my friend Fran and I never met in person, we knew each other quite well.  We were what I refer to as “crossovers.”  We met each other on a long term cancer survivor list serve before each of us made the leap to Facebook.  Fran had already had her issues with her late effects, but I had just begun my journey following my heart surgery caused by my radiation and chemotherapy treatments.

It was on Facebook however, that Fran reached so many more people.  Just like the rest of my fellow survivors, we only want to find support, understanding, answers to the many things that still stump the average doctor.  And we find that in those who have gone through similar treatment experiences decades ago.

But when we were not dealing with one of our health issues, we were able to share stories about things we were able to do to enjoy life, and sadly things that we were no longer able to do.  While Fran would mention her former love of karate, she did not dwell on it.  Rather she loved to talk about her daughter.  Over time, she also made decisions to reach out to other survivors, and more importantly seek out medical care professionals who either knew what we deal with, or at least had an open mind to help find answers.

And like so many other survivors who have passed on, Fran was another who often offered support to others, sacrificing her own emotions.  And that is really what makes the “society” of people I know, or as some refer to as “the tribe” special.  It is not often to be able to say “I know what you are going through” or “I know what you are feeling.”  And that is what makes my fellow survivors so special.  Because they get it. And while they may not always find the support they need from those closest, they know that they can find it in our group.

And that was Fran.

The stories and remembrances are posting now, and it is wonderful to see all the others lives that she touched.  And it is also inspirational to hear the many things that she had done, and hoped to do.  Most importantly being able to see her daughter graduate from college.

Though she had hoped to make it through this last struggle, it clearly was too much.  She suffers no more.

Fran, thank you for the words of encouragement that you always gave to me and others.

Summer Vacation – A Learning Experience


As a kid, who did not love Summer vacation?  But as an adult, I love it so much more.  I have always been the type of person who enjoys watching others’ happiness, more than my own.  And now that I get to witness things as a father, through my daughters’ eyes, yes, I love every chance I get to spend with my daughters.

My daughters love the reality television show, Big Brother.  By default, that means when they visit me during the Summer, I am stuck watching the show with them.  It is unavoidable because I live in a one-room apartment.  A similar situation if you will to the living arrangements on Big Brother, more than a dozen people, trapped in a contained studio house, for over 90 days, with someone being kicked out of the house every week.  Every move is watched.  Every word is heard.  Trapped.

Ok, so our situation is not identical per se, but, the three of us are staying in the same room, for 49 days, but no one is being evicted.  Ok, we get to leave the apartment and do things.  Ok, there is no backstabbing and lying to get favors.  But there is one thing that our situations do have in common, learning about each other.

I have spent most of my cancer survivorship, proving to everyone, that I will be fine.  At the same time, I have spent all of my time, convincing everyone that the many issues I face as a result of my treatments thirty years ago, are very real.  They are not once and done episodes, but a progression of situations, monitored, waiting to have no choice but to be dealt with some day, hopefully before it is too late (read “CABG – Not Just A Green Leafy Vegetable and you will see what I mean).

My daughters were 3 and 5 when my body let me know, that while I may have beaten cancer, it came at a price.  And there would be several more episodes in the upcoming years.  But I have always been of the mindset, to let my kids be kids, let them deal with childish things.  And as I realized how much happier off they were just to know “Daddy was okay,” I used this mentality when it came to family, friends, and co-workers.  By doing so, I did myself a disservice, as well as perhaps other cancer survivors as well.  I figured, if I could keep all the issues hidden that I have to deal with, then I would not have to worry about anyone worrying about me.  The unrealistic part of that is, anytime a crisis would come up, there would be worry.  But then that would be followed up with “get over it already, you are better”, or worse, “just faking it.”

It is ten years now since my daughters saw me hooked up to all kinds of machines, recovering from open heart surgery, and having witnessed many of the other events.  Already during this visit, questions are beginning to come up.  Because of the warmer climate here, many of my scars are exposed, and these lead to questions.  Both daughters were never there when I went through my cancer, though are very proud of me for having made it all these years.  But as they grasp that the fact that many of the things that I deal with health-wise are because of my treatments, they now understand, my body will never get better, only worse.

They know that I have good days, and they have certainly seen my bad days.  They know the issues that I deal with are very real.  But that is not what are visits are about.  Yes, they are learning about me, and I am learning about them.  And I have so much more to teach them.  I take them to visit preserves, complete computer courses that may benefit them in their future, and another first, helped my oldest apply for her first job.  And we still do workbook exercises to prepare them for the new school year, though I have now pared the work down to a specific course that either may have struggled with in school (they each had one).

But there is still so much more for us to do together.  And I cherish every moment I have with them.  And I know that they are enjoying the time with me.  I know that they care about me.  They want to do what they can to keep me around a lot longer, whether it be a better diet, or exercise (we have a nightly walk routine after just 3 days).

They know that in just a few years, our roles may change with each other as I will have to give them responsibilities, as far as things they definitely need to know, and perhaps, prepare for.  They will become my legal guardians and our roles will switch.  If I am faced with the difficult situation of being incapacitated as I have with past events, they will be the ones that will need to carry out my wishes should decisions need to be made.

In the meantime, like I said, I want to let my kids, be kids.  But at least they know, just because I do not show it, does not mean that I am not dealing with some serious health issues.

And just as my children are learning, just because you see this, but do not see something obvious with the person getting out of the vehicle, does not mean that they do not have a health issue that they are dealing with.  But if you feel that you are justified in criticizing anyone anyway?  Feel right on free to trade places with us.

Happy National Cancer Survivors Day 2018


Today marks my 28th National Cancer Survivors Day.  As you can see on the counter on the home page, I am approaching another huge milestone in a little less than two years.

Never in my wildest dreams did I ever think I would have cancer, let alone survive it, especially this long.  Back when I was diagnosed, I knew no one who had ever survived cancer except for my stepsister, everyone else had died.  But cancer would become a major part of my life, as others that I knew, would face their own battles, and look to me for support and encouragement.

Today, I am in touch with thousands of other cancer survivors.   Some newly in remission, some, decades, as many as 40, 50, and 60 years in remission.  They do exist.

One year, I am actually going to include the names of every cancer survivor in a post, but for now, I would be to afraid I would forget someone’s name.  So, just know this…

Today is your day, our day.  And if you know someone who has taken on cancer and is celebrating today, give them an extra special hug.  No matter the cancer, it was not easy getting to this point.

Congratulations everyone reading this.

Thank you for your continued readership and support.

Paul

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