Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Bullying”

30,000 And Counting


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I woke up to a surprise this morning.  It should not have caught me off guard as I knew it was coming.  But there is something surreal about actually having achieved this number.

Paul’s Heart hit over 30,000 views last night following the last post, “When A Door Opens…”.

I sit here humbled.

I started Paul’s Heart with the goal of trying to reach cancer survivors to supply information and advocate for care.  Eventually I included issues concerning my life as a survivor and the many issues I face including health, financial, and relationship.  I discussed the many challenges of parenthood from a survivor’s perspective.  And now, I must also include facing divorce for the second time.

But here are the numbers since I started Paul’s Heart:

5 publications in Memorial Sloan Kettering Cancer Center annual Anthology

1 live performance from the above mentioned anthology

several newsletter articles published for Memorial Sloan Kettering Cancer Center

too many cancer survivor speeches to count

565 posts on Paul’s Heart with another 300 drafts started

40 pages (most popular posts saved as a page for convenience)

2 books in the beginning stages

But perhaps the biggest and most important numbers are as follows:

26 years cancer free of Hodgkin’s Lymphoma

2 beautiful adopted little girls that at one time I thought parenthood was impossible

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To all of my readers and followers, I am far from finished.  Thank you for reading.  Thank you for your encouragement.  Thank you for your support.

Paul

What You See Is Not What You Get


The very first day following my release from the hospital, following open heart surgery for a double bypass, as ordered by my doctor, I took my first of three walks around the block of my neighborhood for rehabilitation.  It was not to be any big deal, as I was taking several walks around the my floor of the hospital following the surgery.

But evidently, this was a big deal, to a co-worker of mine.  This co-worker of mine happened to be driving by me on their way to work, and felt the need to report to my employer that I “looked great”, and “there was no reason why” I should not be back at work.  Now, it was not to say that my co-worker did not believe that I actually had heart surgery, but my appearance gave him the impression, that in spite of losing 80% of my strength in less than a week, a very stressed cardiac system, and oh yes, a healing surgically repaired breast bone that would need months to recover, their opinion (not that it was any of their business) was that I was able to work.

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I know, it sounds totally ludicrous to expect someone to have a complete recovery from double bypass surgery in just days, and expect full participation in daily activities.  And yet, by one jerk actually stirring this pot, put me into a position of having to defend myself to various levels at my employer.

Over the last few weeks, I have had three friends be accused of “faking” their cancers.  Yes, “faking” their cancers.   My heart surgery situation was not the first time I ran into this ignorant behavior, as when I faced my battle with cancer, I had to deal with this behavior.  But as I read the stories posted by my friends, who have endured so much, being forced to publish personal information publicly, just to prove to one asshole, that their cancer was real.  It was not bad enough for me to see this happen to one friend, but it happened to another and another.

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Well, my friends really do have cancer.  In fact, at one point, one of them was given no hope.  Now I am just one of a dozen million cancer survivors, but just to protect people who cannot handle even hearing the word cancer, I put on a façade so that I do not make someone feel sad.  But it is up to that person to not make an assumption about my wellbeing.  I will try to look normal.  I will try to act normal.  Because, in spite of that not necessarily being in my best interest, that is what matters to certain people.

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I am not sure what drives a person to be so mean, as to question the health of another person.  Why, what business does someone even have worrying about another person’s health, unless they have been confided in?  But many in our society are just plain nosy, and when someone does not understand something, it gets completely dismissed as not being real.

Now, I am not naïve, there is at least some cause to this behavior, because at one point or another, we have witnessed someone actually faking a serious illness, or even just a sinus infection, just to get out of work or school.

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There are people who actually do “fake” an illness.  And there can be any reason that drives people to do this.  And dealing with Munchausen or hypochondria is a real issue as well.  There are also people who are just plain lazy and do anything to get out of working.

But for those who are legitimately battling a serious illness or injury, to treat them poorly or make accusations as to the validity of their health, which should only be of the patient’s concern, is unfair.  And to those who have faced this type of discrimination or harassment, you are not alone.  Sadly, this behavior of individuals treating those of us with disabilities is all to common, whether their reasons be ignorance or just plain malicious.  Though I know there will be a need to prove them wrong, no matter what the length (and I have done it several times), you do not need to prove anything.  For every jerk out there who says you are faking an illness, there are hundreds out there that not only believe you, but support you as well.

The Innocence Of Children


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I was taking a walk yesterday along a local beach, when I noticed a young girl, about two years of age, approaching another girl, probably two years older.  From a distance, I could see that they had been playing separately in the sand.  But just as I continued to walk, I could see that both children were not only different in age, but ethnicity.  To be honest, I do not normally notice “differences,” other than for the point of this post.  I do know that the older child appeared Caucasian, while I am not sure what was the ethnicity of the younger child.  Nor does this matter, nor should it matter.

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As both parents looked on, the smaller child, seeing the older child playing in the sand as well, had picked up her sand bucket and wandered over to the older child.  The mother of the younger child got up from her beach blanket and followed her daughter.  The younger child stood there in front of the older child, and her grandfather as if waiting for the next step.  And then it happened, the mother asked the grandfather if their children could play with each other.

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I am caucasian technically with some Cherokee lineage.  I have two daughters of Chinese descent.  I grew up in a city where I was the “minority,” but somehow managed to get along with everyone.  I know racism exists, through honestly I had hoped that by the mid-century mark of my life, that progress would have been made toward at least reducing it.  And though I normally stay away from political topics on this blog, comments by a media mogul, and then echoed by a certain political party candidate for president, really bothered me.  Headlines still cannot be read without mentioning the color of either the antagonist or protagonist.  But now, even a potential leader of our country is feeding into this.  This is unacceptable.

And I could not help but be sad for these two little girls.  Right now, they did not know that their skin colors were different, or that in our country it makes a difference.  They have not be taught this yet.  But somehow, by the time they start paying attention to the media, the education will still be the same, using “color” to describe the severity of a story.  They will be taught something they were not born with, racism.

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