Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Adoption”

The Waiting


Christmas Eve = the longest night in the world for me as a child, waiting for Santa Claus to come.

The night before Easter = the second longest night for me as a child, same reason as above, just for the Easter Bunny with my basket of chocolate.

The first day of school… ever.

Getting a drivers license… forever.

The end of school… forever.

Freedom to do what I want to do, whenever I want to do it.  I am still waiting.

Having to wait around the doctor’s office, just to be told that you have cancer.

Waiting to hear the words, “Your cancer is in remission.”

Waiting to reach the one year anniversary of your remission of cancer, and second year, fifth year, tenth year, twentieth year.

Now I am waiting to reach twenty-five years cured of my cancer.

Waiting for the paint to dry and the pot to boil.

Waiting to be approved to be adoptive parents.

Waiting for the sixteen hour non-stop flight to be over.

We can hear the children down the hallway.  What is taking so long to bring them to the conference room to be placed in our arms.

Waiting for daughter’s first steps.

Waiting in a dazed state to go to surgery for my first ever open heart surgery.

I hate sitting at home doing nothing.  I want to go back to work.  I still need time to heal.

Waiting for the new season of Newsroom on HBO.

My DVR has a pause button.  I can make the television wait for me.

Phone calls.  Can you hold please?

I have to wait several months to see a specialist.  They know what is wrong and time is of importance for best chance of survival.  A three month wait.

Waiting in the waiting room.  Then I wait so more in the exam room.

Scans and scopes, scans and scopes, scans and scopes.  Results pending.  More waiting.

I do not mind waiting for my daughters to grow up, graduate, get married, have children.

Bravery


Bravery is defined in Merriam-Webster as courage.

I decided to look this up today.  A co-worker was having a conversation with me, coming to find out everything that I had been going through in just the last several weeks.  And his comment to me was, “You’re really brave.”  And I looked at him like I was almost hoping for a hint of sarcasm or even some foolery.  But for once, he meant it.  And then he repeated it, “You are brave.”

The first time I heard it, I was uneasy.  I was hoping the conversation would end, but when he said it the second time, I knew that I had to deal with it.

In my life, I am hard pressed to find even one instance in my life where I could be defined as brave.  I have never fought in any armed service.  I have never broke up an attempted bank robbery.

But when people find out that I have beaten cancer, had open heart surgery, two cases of pneumonia (one with sepsis and the other double pneumonia), kidney stones, all kinds of late issues from my treatments, I get, “You are brave.”

When I think of “bravery”, I think of men and women who run into a burning building, police officers who put themselves in harm’s way every day, an airline pilot flying a human missile loaded with hundreds of lives, a teacher shielding her students from a lunatic’s bullets.

No, I am not brave at all.  I simply did what I had to do.  I have two beautiful daughters who I know love me so much, it would devastate them to lose me.  I have no choice but endure if my body and mind are capable of doing so.  In the second half of my life, I have met so many people who have faced relapses of their cancer, multiple cancers, those who struggle with their survivorship from the treatments that saved their lives, and sadly, those who lost their battles.

I have always said that I would not go through anymore treatments if my Hodgkin’s Disease came back, that is, until my daughters came along.  One of my dearest friends has faced nearly 50 surgeries all having to do with her surviving her cancer treatments, this along with a battle with a secondary cancer.  With so many close calls, not just near death, or in some cases, flat lines, she continues to trudge on to this day, not only a proud mother, but the happiest grandmother, something that she never thought she would ever see.

I do not know how she would react if I told her that she was brave.  I know on occasions when I have talked with her on the telephone, I have told her that I was speechless for words to how I felt with her continued struggles and survival.  It would be easy for her to give up I think.  She has been through so much.  But the fact is, she has not given up.  It is with her example that I can never make that decision either.

And so, I am watched periodically, whether month to month, quarterly, or annually.  There are things that have been identified and can be dealt with.  I go to my appointments not afraid, but confident in my caregivers that things will be dealt with sooner than later.  That is not bravery, that is trust.  As for the all-of-a-sudden stuff like the pneumonias, the cardiac issue, some kidney activity… a little luck does not hurt either.

Another Anniversary – What A Way To Spend It


When I started this project, “Paul’s Heart,” I had two motives.  The first, I wanted to see if I had what it took to write a book, about what, I was not sure.  But I needed to see if I had the ability and the commitment.  And second, I wanted my voice to be able to help at least one person who is struggling with something.  By documenting the many struggles that I face and have faced, I hope that it gives hope and courage to get beyond the struggle.

I have been  very public with some personal stories.  I figure that once I made the commitment to “blogging”, transparency is what would make my blog successful.  Some of my stories may be difficult to read because they stir up old emotions or memories.  Admittedly, the stories can also be quite graphic, and I try to give fair warning when those stories reach that level.

Tomorrow, I will be meeting with yet another doctor to discuss a recurring symtom that was so difficult to deal with just a couple of years ago, as it appears it is returning.  I do not want it to return to the level that it had gotten to before.  I will be discussing the procedure of an endoscopy, which is basically going to be pictures and biopsies if needed down my throat into my stomach.  Care must be taken because of the overexposure to radiation during my treatment days.  The doctor will be looking for what is causing an increasing inability to swallow and frequent nausea (with no warning or apparent cause).  If possible, this will be done along with a colonoscopy, often referred to as a “man’s worst nightmare.”  I have resisted this procedure, in spite again of the radiation history as well as some other unusual symptoms.

But it is time, time to “man up.”  But instead of a night out with the guys, or watching a football game, I now have a new excuse for getting out of our anniversary dinner tomorrow, and Valentine’s Day as well.  Wendy could not possibly hold it against me that my doctors want to check me out for my own health, could she?

It will be eleven years tomorrow, and Wendy will have been dealing with all of these health issues with me for nearly half of those years.  She knew about my cancer history when we started dating, my inability to have children as a result of my treatments, but nothing could have prepared her for the statement, “your husband needs to have emergency bypass heart surgery.  We have him set up for first thing tomorrow.”  And with that, began a different direction than we had planned for our lives together.  But I could not, and I emphasize, would not have been able to do it without her.

So our anniversary tomorrow will not be the most romantic, if at all.  Depending on my arrival time home, we might be able to get a quick dinner.  As for Valentine’s Day, um… I am not sure what to expect as far as how my belly will be feeling after having cameras going in through each end.  While the endoscopy is not usual for the average healthy person, for someone with my health history and radiation exposure, it is common.  But a colonoscopy is common.  I have tried to avoid it.  I know the benefits of detecting colon cancer early.  So, for all my reasons in delay, I will dispell those myths following the procedure, after I “man up.”

Happy Anniversary Wen.

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