Paul's Heart

Life As A Dad, And A Survivor

Something We Can All Relate To


Our country, no, the entire world is in the grip of what is likely going to be the worst health crisis it has ever faced.  Information and misinformation make it difficult to figure out who is telling us the truth, and likely making it more dangerous in delaying protective steps necessary to protect us, and prevent the situation from getting worse.

The pictures I have shared above are emotionally provoking.  Some people see this photos and they see ignorant and selfish people risking not only their own health, but the health of all, including those on the front lines who may one day have to treat them because of their poor decision.

But for others, and this is going to shock some of my readers, but I can kind of empathize with them.  I am stressing kind of, because I believe without a doubt, they are fools and defiant as a three year old throwing a temper tantrum.  And this has nothing to do with their right to assemble and protest.  I believe in that right 100%, no matter what the cause, unlike those who have a selective criteria to be an acceptable protest.

Protesters want us to believe this is about freedom and liberties.  We are expected to think it is more important for an economy to thrive than for people to live.  But I want to argue something even further.  And here is where my empathy comes in.

What a great musician, what a great album.  The title of the album… definitely thought provoking.  The title track from the album started as follows:

“Well they took me to the hospital,
And I swore I would’t go.
My blood was running much to high
My heart was much to slow.
The doctor had some questions, somethings he had to know.
My baby shook her head and said, the boy’s got no control.”

I used to think the worst thing about dealing with cancer used to be the hair loss, the nausea, the fear that I was going to die.  Looking back, I could not have been more wrong.

I was recently interviewed for a podcast for my perspective as a long term cancer survivor.  And it was during this interview that I realized what was actually the worst part of fighting cancer.  Seeing the protests and seeing all of the social media posts, confirmed it.  The two situations, while the circumstances are different, the perspective is the same.  It is a matter of all of us recognizing it, and then being able to empathize with each other.  Perhaps that might be the door to open enough to allow us to support each other during this health crisis.

My story, like others, I was “livin’ life” to its fullest.  Parties.  Working.  Girlfriend.  No cares in the world.  Not even aware of anything in the world.  I was in control of my own life.

But with the diagnosis of my cancer, and actually every health crisis that I have face and continue to face, I lost all control.  I had no control.  I had to give up all control as if my life depended on it.  Because it did.

The difficult part is, that you do not realize that you have lost all of that control with your life, with your body.  You are too distracted by all of the other things going on with your diagnostic tests, treatments, relationships, and other aspects of your life that you could not put on hold.

With the diagnosis, and this goes for any serious illness or injury or trauma you face, it is the same situation every time, you lose all control.  You have to get to this appointment.  You have a schedule to keep for your treatments.  There are things you need to avoid so that as not to react or counteract the treatments.  Patients get told of things that cannot be done, temporarily or ever again.  And your plans for the future?  Those likely will never exist again as you had dreamed of.  This is what we in the cancer world often refer to as the “new normal” once we are done.

For a period of time, could be months, could be years, as cancer patients, or dealing with another serious issue, we no longer have control.  We have to listen to those that know how to get us through the particular situation that we are dealing with.  We have to trust them, because they are the ones with the experience.

And yes, by losing that control, we lose our freedom.  But it is temporary and we know that.  And that is why we accept that loss of control.  Because we know in the end, that temporary concession is what will help us to survive.

To those who are protesting, I respect your right to protest.  I may disagree with some of the motives, but one thing I definitely understand, are those protesting over what they feel is a loss of their freedom.  Like millions of others, I get that.  And that is why I can empathize with them on that fact.  Knowing this, why cannot we convey to those protesters then, and convince them, that this loss of control is temporary?  For the health?  For their lives, and possibly the lives of their loved ones?

Yes, I am naive.  It should not be that hard to understand.  Unfortunately our society is not only politically driven, but also politically split.  There will always be an opposition now to the party in charge, and that opposition will have zero trust.

I cannot imagine where I would be today, thirty years later, had I not trusted my doctors.  Did I like them all?  Absolutely not.  I have written many times of my aggressive behavior toward at least two of them.  But that never kept me from trusting them, surrendering the temporary control of my life, so that they could save my life.

Like I said, I am naive.  The only way that you can truly appreciate this type of thinking, is to go through some sort of trauma like this yourself.  Sadly, this crisis is that trauma.  But unless you have gone through something before this moment, you cannot relate what I am saying.

But just as my battle with cancer, with Covid19, we are being asked to take precautions.  One of those precautions we must take, is to protect us from others that we cannot rely on to also take those precautions.  The contagious period is only up to fourteen days.  In theory, with what was being asked of us, with 100% compliance, worst case, we could have been done with this no longer than three weeks, at worst a month wrapping things up.  Yes, to do that would have meant giving up control, or as the protesters call it, their freedom.

So now, as restrictions ease up, in spite of continually climbing numbers, which means it is still bad and getting worse, but it is going to return us to the reckless exposure and risks, and we will have even more gruesome numbers to deal with that have been bad enough to take in.  And instead of a short time loss of control, or freedom, we will be looking at an extended and sustained period of loss of control.

I get it.  It was a political point you were trying to make.  But in reality, it was about giving up control of your life.  Most if you are fortunate, have never had to do that.  As a cancer survivor, I did.  I knew what to expect during this crisis.  I went through so much worse than we were being asked to do during this crisis.  I lost financially big time.  I know what it is like.  I know what financial loss feels like when you cannot work.

What it boils down to is the comparison to the three year old spoiled and defiant child who will not be told what to do.  In the end, that child has no choice, one way or another.  Except in this case, one way is dealing with the crisis in an accepting and cooperative effort, the other way is living with a death count that is unacceptable.  And being one of the lucky ones not to succumb to Covid19 does not make you right in your decision and stance.

This is not about freedom.  This is about control.  And right now, the Coronavirus is in control.  Are you going to make it worse, or are you going to do your part, as the “United” States of America, so that we can get through this, recover, and rebuild?  That choice you do have control over.

Electric Light Orchestra – Discovery


So, like so many, I have been challenged to list my top 10 albums that have inspired me.  That is a tall task by itself given my love and knowledge of music, and very difficult to narrow down to just 10.  Having “Paul’s Heart” at my finger tips, I am going to meet this challenge a little differently.  Personally, while I do not mind being tagged in some of these challenges, I cannot do the same to others.  Also, I am very confident I am not revealing anything pertinent in my choices.

Electric Light Orchestra (ELO), the Discovery Album was the first album that I had ever purchased.  I had just discovered FM radio after years of AM radio.  The first radio station I listened to on the FM band was WZZO which played album oriented rock, not the bubble gum pop or oldies that I had been listening to for years, not that there was anything wrong with it.

The main hit off of the album, “Don’t Bring Me Down,” was a catchy song with a hard edge, but uniquely done with harmonies.  Having been interested in music through most of my early childhood, including harmony singing in various musical groups, I bought this album just on that one song alone.  I soon found myself playing this album over and over and over and over again.

“Shine A Little Love” was the other big hit off the album, but “Last Train To London” was also another great song.  “Diary Of Horace Wimp” was a quirky song that got stuck in my head.  “Confusion” was one of those ballads like “Telephone Line.”

ELO was a band with a unique style and approach to music.  Jeff Lynne, the lead singer and composer often found himself collaborating with many other artists over the years in other groups such as the Travelling Willburys and working with artists individually like the late Tom Petty and George Harrison.

I was thrilled to see ELO touring again, and even to see concert footage via streaming.  They sound just as good as they did back in the 1970’s and 1980’s.

Underestimating Your Children


By the time I had become a father, I had not seen my own childhood in nearly twenty-five years.  Growing up in a divorced environment, other than while visiting my friends homes, I never really got to see how a mom and dad worked together as a team to deal with the many things “try” to get away with.  I put “try” in quotes, because later in life, we would find out, we got away with nothing.

Prior to becoming a dad, I spent many years as a youth group leader.  It was a program that enveloped all ages of children from kindergarten to high school at our church.  This is one of the more proud things that I have done in my life, filled with so many rewards and so many memories.  It was also a quick reminder, that becoming a parent, I would personally have to deal with many of the issues that these kids were facing.

I am not going to get all sentimental here and go through all of the things that we did.  My point is, while I learned a lot, I also learned there is a huge difference not only between someone else’s kids and your own, but a huge difference between you as a child, and your own children.

This group of photos is from a video GIF that I had been personally sent.  A little girl, playing on her phone in bed, hears her parent come in, springs from the bed, turns off her light, and jumps back in to bed.  Her father walks in, tucks her in, and seems to walk out of the room, closing the door behind him.  The little girl jumps from the bed to turn her light back on, and is surprised to see her father standing in the corner of the door, and pretends to sleep walk, realizing she has been busted not going to sleep.

We parents have all experienced this one time or another.  Our children do not realize we can hear the noise, or better, see the glow of light under the door.  But the quick improvisation this child used just automatically shot me back to the many talents that both of my daughters possessed to get out of “gotcha” moments.

The first warning I had, involved a non-slip door knob cover similar to pictured above.  My older daughter’s hands were too small at the time to be able to grip the squeeze tabs on the side, which meant that in theory, this product would be successful in accomplishing what was desired, her staying in her room once she was out of her bed.  In just two years my daughter well established how determined she could be when she wanted something badly enough.  And so, she learned that by sliding her tiny thumb and finger inside of the hole, she could get enough of a grip on the actual door handle, and make her great escape.  Very much like Harry Houdini.

While funny, and at the same time, proud of her ingenuity, a problem did come up from this lesson.  The door lock was on her side of the door, and if she would accidentally turn that lock instead of the door knob, in an emergency, we would not be able to get into the room.  Problem solved, I flipped the door knob around so the lock was on the outside of the door.

There are plenty of incidents like this, from both of my daughters.  But now, as teenagers, they are more like chess players with their thoughts.  They have learned for every action there is a reaction, and therefore, not only will they trap every word that is said to them by me, but will make sure they are at least two steps ahead of any discussion, completely prepared for any push back.

At one time, we all laughed when we watched children feeding dogs from the table on television or movies, and how they were not caught.  In our youth, many of us had done things as extreme as sneaking out of the house from second story windows.

I am thankful to my friend for sending this video.  It was a much needed distraction that led me down so many paths of fun memories with both of my daughters and their many shenanigans.

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