Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Side Effects”

How Much To Tell A Child


Besides the actual diagnosis, one of the hardest things to face for a parent going through cancer, is what to tell, and how much to tell a child.  And by that definition, I do not mean an adult child of a cancer patient, but rather a child, not necessarily even a teenager.  There is all kinds of literature out today with opinions on how to handle these situations.  Honestly, I have not read one yet.  I have my own perspective, and for me, my way has worked best.

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This photo was taken back in April of 2008, about a week after I came home from my open heart surgery.  I did not have children when I went through my cancer diagnosis, but I was going to have to deal with my children with this particular episode.

From the time that the emergency was discovered, I had very little time to get my affairs in order.  I was going to be facing life saving surgery, but surgery that came with huge risks.  My body is not like the average patient, even undergoing this type of surgery because of the late side effects that had developed with my body since the days I was treated for Hodgkin’s Lymphoma.  So there were going to be huge risks involved, and surviving the surgery was not necessarily a sure thing.

But was a sure thing, my own personal outlook.  I was going to get through this, just as I did my cancer battle.  I was not going to settle for anything less especially now, because I had two small children who were counting on me coming home from the hospital.  For he first time, my children would learn just how sick I once was, and was again.

My daughters always knew I had cancer, but unlike when I grew up, hearing about someone having cancer, meant that the person automatically died, they learned at a young age, the very first person they ever knew to have cancer, had beaten it.  And throughout their lives, they speak proudly of their “dad beating cancer.”  To be honest, I am glad I never had to deal with the side effects from the chemo in front of them.  But I do recall what it was like.  And I am certain, that I would have been able to maintain my “let kids be kids” attitude remain, and simply explain to them that “daddy does have cancer”, but in dealing with nausea and baldness and fatigue, I would explain to them that it was all a normal part of the process, and necessary for me to get better.

But the heart surgery was going to be different.  I have explained to their mother that under no circumstances did I want the girls to see me hooked up to all kinds of machines with tubes coming out of me al over the place.  I had no idea that I was going to be facing open heart surgery just two days after I told my daughters that I would just be spending the night at the hospital.  Again, I had no doubt that I was going to get through this for them.

Day four of the hospital stay, their mother brought them into the hospital.  Most of my tubes were all out now, and the girls wanted to see me very badly, and I wanted to see them.  Their mother prepared them that my chest was going to be very delicate until it healed and they were both fantastic with being careful with me.

Today, I still do not think they get just how serious it was for me back in 2008, but because I did not overburden them with “adult” facts, given them just enough child-level bits of info, they were better able to deal with my health crisis.

And that is why, to this day, I will always believe in letting my children be children.  I do not discuss any aspect of my divorces with my daughters.  They know my father died from lung cancer, and they got to see him a couple of times before he passed, but they do not know his gruesome final days.  They will not know the struggles that I am dealing with right now.  Because just as I handled my cancer, my heart surgery, this is just another time in my life, that I have a tough battle, that I need to get through and overcome.  I did not come this far in my life to give up now.

A Special Night For Survivors And Caregivers


A special event was held this evening by our local American Cancer Society recognizing cancer survivors and caregivers.  And a real nice thing that the ACS does, is recognize everyone from the minute of a diagnosis as a cancer survivor, not just done with treatments.

As a sort of pep rally, the local ACS held a “Harmony Of Hope” concert featuring three different groups of performers.  Of course, as I have stated, I love music, and I consider music one of the best forms of relaxation.  It was a simple evening really, although I am certain a ton of effort went into the planning and function of the event.

And then, came the recognitions and what were two very surreal moments for me.  I had made the assumption before even arriving, that the audience would be fairly split between survivors and supporters.  But when a host asked all the survivors to stand, probably close to seventy-five percent were standing.  And then the host stated, “for those survivors of 10 years, remain standing,” then it was fifteen, and more people began to sit.  Then twenty and most sat.

Then came 25.  And only two were left standing.  I was speechless that in this full room, only myself and one other person was still standing.  As it turns out, the other survivor was 47 years into her survival.  Even for a long termer like me, it was inspiring.

But then the host asked for caregivers to stand.  This has also been a role I have served, and really have never paid attention to just how long.  I have only really concentrated on surviving cancer, not how many people I have helped, or how long.  Tonight, I realized that I have been a caregiver of cancer patients, survivors, and their families and friends for twenty-five years also.

And I remember each and every person from Jennifer (see “Jennifer’s Story” on the pages section of “Paul’s Heart”) to my father.  I have worked with well over a hundred patients, survivors, caregivers, friends and families.

I have less than two weeks until I officially turn 25… again.  Maybe this is really a big deal after all.

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A Failure To Believe


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“Actually, we have misdefined hypocrisy.  Hypocrisy is not the failure to practice what you preach, but the failure to believe it.”   Peter Kreeft

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I may not have realized it yesterday, as I wrote yesterday’s post just how meaningful it would have been to me today, therapeutically.  Yes, I knew today was going to be one of those days that my stress level was going to be much higher than normal.  And so I took extra time last evening before going to sleep, or trying to sleep anyway, to relax.  I fell asleep with music plugged into my earbuds and I did double the amount of nightly breathing exercises I do.

I must have done something wrong.  Because instead of waking up refreshed, I felt like I had not slept in days.  Sure, my eyes were shut, and I do not recall being aware of anything throughout the night, but clearly I did not get into that deep and restful sleep that I was hoping to get to have.

The Carpenters sang “Rainy Days And Mondays Always Get Me Down” and the Boomtown Rats sang “I Don’t Like Mondays.”  I think we can all agree that if we had the choice, if we had to a have just one weekday, we would make it Friday.  But the fact is, Monday was here and I was ready for it.

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As I said yesterday, a little bit of stress can be good for you.  It can actually help you focus.  But if you are dealing with much more than that, the results can be… well… waking up like I did.  Over the last year, I am dealing with several major stressors:  unemployment, death of a loved one, health issues, divorce, financial, and well… I really miss my children.  So, as I turned in last night, feeling that I was completely focused on just one of my stressors this morning, I woke up like a mento in a bottle of Diet Coke.

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I prepared for my morning’s activity last night, and perhaps that was my problem in the first place.  Though I had laid everything out, that I needed to take care of, perhaps I may have been worried subconsciously what I might have missed.  Do you remember back in school, what it was like to over-cram studying for a test, thinking you were going to ace the test, only to fail miserably, or at best score and average grade.  I might have done that to myself without even realizing it.

In any case, I did make it through the morning’s activity, and exactly as I had planned.  I did not get the immediate result I had been hoping for, though once everything was explained to me in detail by the other party involved, all I could do is shrug my shoulders and prepare for the next step.  And that is how I reacted.  And as I moved that paperwork aside, there it was, the rest of my stressors I still have to deal with.

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But instead of hitting a panic button, it was what I shared with all of you yesterday, that helped me prepare for the aftermath of what laid ahead for me the rest of my day.  So in a way, I did practice what I preached in the overall scheme of things, and I am very focused on what else I need to accomplish today, and can do it with a calm and collected demeanor.  Things could have gone very badly this morning had I not been as prepared as I had been emotionally.

Now on to my next task.

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