Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Recreation”

Here I Am, A Man Against The World


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I want to offer a bit of a disclaimer with this post, because the title makes it look like this is going to be a super negative and depressing post.  Quite the contrary, it is going to be a post that is truly inspirational.  So please, read this post for what it is truly meant to represent… determination, hope, perseverance, survival.

I am a musician by nature, and most of my internal strength I draw comes from every note that I sing, every tune that I hear, every beat that I feel.  I listen to most kinds of music depending on the kind of mood I am in, or the mood I need to be put in.

When it comes to inspirational songs, many find strength through church hymns, and there are plenty.  Contemporary songs have such inspirational lyrics by the likes of Josh Groban, Bette Middler, and the late Whitney Houston.  But for me, no song sums up my life, no song lifts me up higher, than a song that never really got any kind of airplay, and was pretty much hidden in the Karate Kid 2 soundtrack.  But being a true fan of music, I listen to a lot of music that does not make mainstream radio.

I came across this song ironically, during the days when I was diagnosed with cancer.  But nearly 25 years later, I still find myself facing struggle after struggle, never giving up.  And while I do have loved ones close to me who stand by me, and friends who support me, ultimately, it still falls upon me, to get through my trials.  It is a beautiful and powerful song written and recorded by the late Jimi Jamison of Survivor, and recorded by the band of the same name.  It is called “A Man Against The World.”  You can listen to the song, and view the powerful video at this link:

The music is beautiful.  The words… well… read on, and you be the judge if it sums me up and you will see, why I will never give up.  It is not in me.

“A Man Against The World”

Survivor

“Have you ever walked alone at night like a man against the world.  No one takes your side, a boat against the tide.”

A small child, I was an easy target of bullies.  Not just one-on-one, but more often than not, gangs of bullies.  People who I thought were friends, stood by and only watched the daily beatings I took.  My days in school were not spent learning, but studying how to evade those waiting in ambush for me on school property, and beyond, on my way home.  No father around to teach me to defend myself.  My family telling me to turn the other cheek or worse, calling the school to report the incidents which I soon learned to no longer speak of them.  And of course, school officials telling me to “start standing up for myself.”

“When your faith is shaken you start to break, and you heart can’t find the words, tossed upon the sand I give you a man against the world.”

The first Edelman to graduate from high school, I enrolled in a local college.  While studying, I held a full time job and a part time job.  A management opportunity was offered to me, leading to me withdrawing from college with less than a semester to go.  But it was a career move that was expected to set me up for life.  It did not.

“All the people cheer ’til the end is near and the hero takes a fall.  Then they’ll drag you through the mud, you’re only flesh and blood.”

I would now officially begin my life simply surviving working in the “working world” with college no longer a consideration.  But my work skills instead of being seen as a benefit by my employers, were seen as threats by my co-workers.  There were never intentions of replacing anyone’s position by me, but my work ethics were always seen as “getting in their way” or “showing them up.”  My reputation became more about my “inability to get along with others.”

“I have walked the path from dark to light and they’ve yet to come to terms.  Alone I take my stand, I’m only a man against the world.”

And just when I finally seem to get my world to be what everyone else wants it to be, and all should be good and perfect, I am diagnosed with Hodgkin’s Lymphoma, cancer.

“And love, like a distant reminder it tugs at my shoulder, it calls me home.  I shout, can a single voice carry, will I find sanctuary within your arms?”

Following a failed marriage, based on false hopes of a family, I move on to another relationship.  Get married.  Adopt two beautiful girls.  Again, life going great, and another major health issue strikes.  Only now it appears far worse news, because it became apparent that the treatments used to save my life, now almost resulted in costing me my life, and from that point on, would discover many other health challenges that I would face.

“Someday when the answer’s clearer, someday when I even the score.  You’ll reach and you’ll find me near you, right beside you, forevermore.”

I would much rather forget the last twelve months.  Having filed for my second divorce.  Having to put my best fur friend Pollo to sleep, after his fourteen years of a healthy and fun life, left him unable to see, hear, and smell, most importantly the loss of his never-ending wagging tail.  The loss of a close friend from the same cancer that I had, coincidently at the same age as I was when I dealt with it.  The loss of my father after battling lung cancer as defiantly as he possibly could.  The loss of my job after 17 years due to corporate downsizing and complications of my health.  And because of the violent reactions of certain family members through my marriage, I relocated a great distance away from my daughters, just so that they would not be a witness to the aggression and harassment from those family members towards their father.

“But for now I’ll walk the night alone like a man against the world.  A brand new day will shine through the avalanche of time.”

Now in the process of my second divorce, facing all kinds of consequences as a result of domestic court, still searching for employment, and most importantly, anticipating the next time I will ever see my daughters if these situations are not resolved, I am still fighting.  I am not giving up.

“Now the road’s grown long, but the spirit’s strong, and the fire within still burns.  Alone I take my stand, I give you a man against the world.”

I have the strongest support of my friends both far and near, in physical presence or on-line.  I have the love of my family, and my daughters to give me strength.  And I have the love of one of the strongest women I will ever know to keep pushing me forward, looking forward to the day that this will all be behind me.

I am typing this, because I truly believe that day will finally come.  If I did not believe that, I would have given up a long time ago.  Some may see me as an “angry” person.  Though really, could you blame me given everything I have been through (there is actually a lot more than I have written, but what I did write is bad enough by itself)?  But I have never given up.  I fight not because I like to, but because I have to.  When I have finally dealt with everything, and corrected everything, and the way that does not sacrifice who I am, those who have stood by me, and most importantly, my daughters will know that I stood tall and survived.

I give you, a man against the world.

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And So It Happens


I believe the best relationships, and friendships for that matter, occur when you do not even try to find them.  As the saying goes, “when you least expect it…”.  And so it happened for me.

Now as one friend likes to tell the story, Josephine and I “met” on Facebook.  I am not going to make fun of anyone who has met and developed a relationship on Facebook, Match.com, Plenty of Fish, or whatever internet dating site.  As I mentioned yesterday, I am not interested in any kind of internet dating, blind dating.  I would prefer to meet someone, or develop a relationship with a natural progression, let it just happen.  Let someone come into my life, and find out about the many issues, and baggage that I deal with on a daily basis.  If I present myself in a way, that lets someone know that I am not going to draw them into my drama, which is different than being supportive of someone during their drama, then at the very least, I will have found and made a very good friend.  And if anything were to develop beyond that, at least it was something that was allowed to develop naturally.  That is just me.  That is how I want a relationship.

And that is the way things have worked so far for Josephine and I.

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Josephine is going to be a familiar name on “Paul’s Heart” because I first actually introduced her with the story, “Meet Michael”.  That story is posted in the archives in September as well as a page on this site.  I met Josephine through her son, Michael.

Michael had just been diagnosed with Hodgkin’s Lymphoma, at the age of 23.  Just one of several coincidences that he and I shared.  Another, our birthdays are just one day apart.  As many cancer patients are prone to do upon the diagnosis of cancer, he reached out to the internet for support and information about the road that he was going to be travelling down.  A friend of his family was aware of a Lymphoma Facebook page.  Michael was drawn to the number of posts of information that I was contributing.

Eventually, Michael would “friend” me as would his mother for more personal support with his own diagnosis and treatment.  They would ask questions about testing, ask for help to interpret results, and more importantly, how to react to side effects whether they were minor or major.  In 24 years, I have only witnessed such strong familial support rarely.  And just as rare, the courage and strength of someone to get through such a life threatening battle.

Over time, Michael would learn a lot about my history as well, and soon, he would make comments that he too “was a survivor” even before he finished his last treatment.  It was during his last two treatments, that through technology, Facetime, he would invite me along to his final chemo treatments.  It was during this time, unbeknownst to me, that invitation would end up preparing me for the day I would set foot inside of a chemotherapy suite for the first time in 25 years as I cared for my father.  But through that screen, as I had seen him in his home, more than a thousand miles away, I would see him in his chemo chair, eating pizza, seeing the bright and decorative background behind him, and his mother and father by his side.  This was definitely not the way I remembered my days in the chemo suite.

In the meantime, I had been looking to take “Paul’s Heart” to the next level, in book form.  I have been doing public speaking as a cancer advocate for as long as I have been a survivor and with my 25th anniversary coming up in two years, I wanted to lay the ground work for a national speaking tour, combined with publishing the book on my survival.

Josephine knew that I was interested in pursuing this direction, and offered to help me.  It was her gratitude for supporting Michael and their family.  The area where they live would be an excellent area to network and possibly find financial support for my two projects.  Coincidently, there was going to be a breast cancer fundraiser there that would be a great starting point to develop this support.  But this would end up being more than just a networking opportunity.  I had arranged with Josephine, to meet her son who was as much an inspiration to me for his courage during his battle, as I was to him for longevity since my diagnosis.

I spent the weekend getting to know Michael and his family.

But shortly after that visit, things went horribly wrong for Michael.  His treatment had caused a terminal condition with his young heart.

Again, I would be leaned on for support, emotionally and technically.  Admittedly this would go beyond anything I had ever witnessed as a patient or survivor.  But all of them, mother, father, sister, extended family, and friends, all needed help and hope for Michael.

All the while, I was going through my own issues at home.  I was in the middle of my divorce.  My dog’s health was failing.  And my father’s health was also ailing.  But one of my biggest flaws is that I always put the needs of others before myself, no matter what.  And this was no exception.

Michael passed away just after the new year, just shortly after turning 24 years old.  My father passed away this past May.

There were other circumstances that contributed to the one of the biggest decisions in my life at that point.  But as I often make my decisions based on familiarity, as well as support, I made a decision to relocate.  And it was that natural progression, that has led to something more than just a friendship.  We do not necessarily have an official name for it, because we both have been clear that we are not interested in getting married, ever again, both of us having dealt with difficult divorces.

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But in Josephine, I have found more than just a friend.  And it has happened naturally.  As I wrote yesterday, if I were actively pursuing a relationship, at what point would I have the discussion that I had cancer, and all of the other medical issues I have to live with?  And after all this time, and in spite of the circumstances, knowing everything about me health wise, and experiencing what her son went through, we have gone beyond being friends.

In each other, we have found unwavering support, as she and her former husband deal with the daily struggles with the loss of their son.  Josephine gives me daily encouragement as I begin to rebuild my life, a better life that I want to build for my daughters.  In spite of the fears from her son’s death, she courageously supports and encourages a healthy living for me, through diet and exercise, that in spite of all the health issues I deal with, I am going to live a long life if she has anything to say about it.

What is happening between Josephine and I is a lot more complicated that just having “met on Facebook.”  But however you want to say it, what we have between each other has happened part in fate, but also because neither of us were looking for anything or anyone.  Where ever we end up though, I owe the most thanks to the one person I cannot do so anymore, and that is her son, Michael.

Josephine is not only a beautiful woman, but has a beautiful heart, a kind heart.  She is a friend to every one she meets, no matter age, no matter any difference.

My children got to meet Josephine this past summer when they came to visit me, and they adore her.  Josephine adores them as well.

My ex has rekindled an old relationship and is happy as well, and the girls have met him also, and like him.

And so you have it, it happens.  People get divorced, and move on  to hopefully better times which is best for all involved.

 

 

From The Beginning… Again


There comes a time in every cancer survivor’s life (and perhaps even during a cancer patient’s life – though admittedly they probably have more important things on their minds), if they happen to be single or not married, when a decision is made to start dating.

Dating is hard enough, with pressures of personalities, interests, social circles, and everything else just to come to a conclusion if there is going to be any chemistry between the two, or possibly any future.  As if things were not hard enough, imagine being in the position of having to tell someone you are interested in, that you had cancer.

We often make light of just how fast a relationship develops into the physical aspect, and of course the emotional aspect, but just when is the right time to tell someone you had cancer?  Or in many cases, even more serious issues.

Dating certainly has changed over the decades since I was last “single”.  My two marriages were back to back.  There was no “Match.com” and I detested blind dates.  For me it was simple, I would get up the courage to ask someone out who I was already familiar with.  Of course, my first marriage, I was diagnosed with my cancer before we got married, so ex #1 had to deal with the cancer issue directly.  But as my first marriage ended, I began dating ex #2, who had already known that I had a cancer history, so there was no need to discuss it.  She had known me long enough to know that the only thing that would be an issue from my cancer, was that chemo had left me infertile, unable to bear biological children.

But unlike past relationships that had ended, I was in no hurry to develop any new relationship.  If I am being honest, I have no intentions of ever getting married again after the way my second marriage is ending.  This is unusual for me, because historically, it has always been my nature to start dating right away, and developing a serious relationship.  I had gone further with ex #2 than anyone in my life with feelings, development of family, and support during the toughest of times.  But the acts of betrayal that we both perceive in the failure of our marriage have hardened my heart from every wanting to unite in marriage with anyone ever again.  If I was ever to get serious with someone ever again, I will only allow our relationship to be simple enough, that if it ends, the collateral damage is reduced to near minimal.

So here I am, single, not necessarily looking to date, just looking to build my life socially which had been destroyed through the dissolution of my marriage.  To rebuild my friendships, and build new ones, it would mean that I would once again, have to explain my story, my health story in particular.  As you can read anywhere on “Paul’s Heart”, it is quite complicated, and can be quite demanding.  To accept me into a life, is not an easy decision.  For those who only want to see “positive” messages from me, I can do that.  But the reality is, there unfortunately is going to be a lot of “negative” as well.  But it is my hope that there is hope taken from the “negative” messages.

Dating was going to be another story, now that I felt I was ready to try again.  In all the romantic movies, relationships grow smoothly and according to scripts.  And they all have scenes of each other staring into each others eyes, mushy and silly conversations over dinner.  But when do you drop a bomb on a perspective date, “I had cancer.  But not only that, the treatments I went through are slowly destroying my body.  I have had heart surgery, have lung issues, spine issues, muscle issues, immunity issues, GI issues, oh, and yes, emotionally I have an issue with surviving all of them.”  Reading that last sentence, you would agree, I am quite a catch.  But not in a good way.

The complicated thing is though, I do not have to tell anyone this.  If you look at me, and without knowing anything about me, no one would ever know the train wreck that is my body.

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I can date, and date, and date, and no one would ever have to know.  Of course, if things progressed, I would certainly have a lot of explaining to do.  I have two six inch scars on my chest and abdomen, clear evidence that I had been through something traumatic.  And needless to say, once my shirt was removed, the conversation would ensue, and that would be it for the mood, and probably any future because I had not brought it up sooner.

Just as life often goes, things often happen to you when you least expect them to, a job, a house, friends, or even someone special.  You are always going to be your most comfortable, in your own environment, and amongst the people that you already know.  And they will know you well enough.

But for the first time in my life, being truly single, and with no intentions of ever wanting to be married again, I met someone who at least has opened my heart again.  Neither of us have any intention of getting married ever again, and that is actually a good thing.  Because it is going to allow us to be who we are, without having to change or concede who we are.  And this is going to be a new beginning… again.

To be continued… next post.

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