Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Recreation”

The Rise Of Florida Dad


Florida Dad. I heard this the first time from my older daughter a few weeks ago as this is how I am referenced by her roommates at college. Initially, I cringed at the stigma of being confused with the moronic “Florida Man,” you know, the stupid that makes the news for doing dumb things. My daughter assured me, this was not the case. The title of Florida Dad was a good thing to be called by her friends.

I earned this title for the stories told by my daughter, from my longer kept hair, and the fact that I do not wear shoes, only flip flops, no matter what. I came off described as somewhat of a surfer dude, or surfer Dad.

Disclaimer, I have never even seen a surfboard. But I guess the rest of the stereotype fits. Like a sighting of Bigfoot, my reputation among my daughter’s roommates was solidified when they met me in person during a visit to campus last year, in October, in the cold, wearing flip flops, and hair flowing in the wind. Florida Dad was real. He does exist.

I need to preface this next part, when my daughter was younger, one of my ways to help make school events fun, I volunteered to disc jockey/emcee their events. She could not find a place anywhere to hide her discomfort, that her Dad was the DJ for her school functions. To be clear, at no time did I ever single her out, volunteer her during a group song, nothing. So, her evasion of me was really confusing. Her friends all thought that it was cool that her Dad was the DJ, but not my daughter.

Fast forward to college, and the “legend” of Florida Dad. That was my daughter’s word, not mine. I was cautiously curious as I was not sold on the whole “Florida Dad” title. I asked her, what upgraded me to “legendary status.” She had been talking amongst her friends, and it turns out, they believe I am capable of taking on, and overturning political decisions that are having an impact on them. Now while my daughter’s friends know nothing about me really, as far as I know, Madison is very well aware that many years ago, I ran for public office, school board, a decade ago. My intentions were clear, represent the entirety of the school district, taxpayers and students, protect the students and their educations, and so forth.

Honestly, I thought my daughter was too young to pay attention or even care about my campaigning. Sure, every now and then, she might mention that a friend would ask if the guy running for school board was her Dad, and occasionally a teacher would pass their support on to me, but other than that, I really did not think she paid attention. Well, she must have.

She and her friends had been talking recently about current events, and how decisions being made by politicians are affecting them, issues such as: being women, sexuality, and race. To be clear, these young adults have already voted at least once, so they recognize what needs to be done, to create change, and to protect their rights. My daughter must have thought more of what I had done, along with her knowing my personal feelings, and shared them with her friends, who clearly see me as an advocate and protector for the many issues affecting their lives: the right to women’s health care, LGBTQ+ rights, and protection from discrimination and bigotry, something clearly being pushed today by many politicians.

My daughter has evidently made it clear to her friends, that I am on their side. And I will vote to protect and support their rights. I do not believe the bullshit of a false fight of CRT, or pulling books from library shelves. I can see through all of this nonsense, as do others. But I also see, a whole new generation of voters, that also see these fights are false tropes. They are just looking for the right leaders to represent them.

My days in politics are long over. But I am proud to learn, my daughter evidently paid a lot more attention to the examples that I set for her and her sister. I am proud that my daughter will be an educated and informed voter. Evidently, so will her friends be as well.

As for me, I guess I will finally welcome my title, “Florida Dad,” because clearly, in this reference, it was a good thing.

Make Me Smile


To quote a couple of lyrics from the Chicago classic, “Make Me Smile,” “living life is just a game…” “I’m so happy.” It may be hard to think that after writing a post like I did recently, how could I possibly be thought of as someone who is happy, given all that I have gone through in my life. But the truth is, I am actually a very positive person. The key to this happiness is balance and being able to recognize the things we can control and those that we cannot control, all the while focusing on what is important in life. Just as there are game pieces, there are individual pieces in my life, that keep me in this game. And just like sitting at a table with friends or family playing a board game, the results do not always turn out like we would like. But you take the experiences, and you bring them with you the next time you sit at that table.

And in spite of the two major issues that I must face in my life, failing health and divorce, I really do have a lot in life that bring me enjoyment, smiles.

Two words, “my world.” No matter the struggles that I have faced, my daughters have been the driving force behind me getting through EVERY challenge that I have faced. From the days they were placed in my arms, through their entire childhood, and into their early adulthood, my entire mood skyrockets each time I get to talk with them, or even better, visit with them.

Over the years, we have taken turns giving each other reasons to laugh. Each personal achievement they have attained along the way, they have done so with a stubborn determination. And with each health crisis that I face, though I know it is out of my control, I still take up the fight, not to have their hearts broken.

My life as a cancer survivor of Hodgkin’s Lymphoma has been directed by a set of goals and milestones, and one by one I am meeting those goals and milestones. With one final high school graduation to go, two college graduations, and of course whatever follows in their young adulthood and as far as relationships (and secretly hoping for grandchildren), I am not focused on what I am up against, I am focused on what I have gotten to experience.

Music in all of its forms, is able to take me mentally to any refuge, any direction, to bring me back to the place in my mind, where I know, what I have, is good. My entire life has been filled with role models, exposure to different genres, ability to challenge myself to “read a second language” (music), and so many opportunities to compete, travel, perform, and feel accomplished.

I have always felt music an important part of my life. From singing in school, to the music I listened to in the chair while I got my chemotherapy, to special performances, music made things less scary, offered comfort, made people feel good. I am fairly confident that I have bestowed the same respect for the various genres of music with my daughters. I have several great moments that will always bring a smile to me, like when my oldest daughter sang “God Bless America” for her grandfather, or when my younger daughter played “Chasing Cars” on guitar with me singing on vocals. And then there was the time, leaving a movie theatre after watching “Rocket Man,” the rockumentary of Elton John, listening to my daughters singing “I’m Still Standing,” one of the many hits of Sir Elton.

I do not want to lose my place trying to confirm how long I have been doing this, but I have been writing “Paul’s Heart” now for over ten years, easily likely more than that. I have contributed to many writing projects such as newsletters and books, all the while still working on my own memoire on survivorship. I have given many speeches on survivorship and patient advocacy. There is a catharsis that I get from writing and speaking not only personally from me, but hoping that something I have written will make an impact or difference for someone, especially when facing a challenging situation.

When we face a challenge or confrontation, we need to be able to release the stress created, and for me, that is writing. It could be in the form of a text, an email, a post, or even the ancient form of writing a letter. Whether or not those thoughts ever see the light of day, the mere act of releasing them via my fingertips, provides a way of letting those stressors go. And if it happens to be a positive thought that has been written, perhaps the ideas may give a more defined direction, providing a better opportunity for success.

Friends. No definitions. No requirements. No expectations. Frequency of time together, never a factor. Never having met in person. Just knowing that person is there, and will be there, and that same assurance given back, in good times and bad, sharing memories and tears, lifting spirits and giving high fives.

I am not talking about relationships either. I am talking friends. And if you are lucky enough, to have a best friend, that one you know will always have your back, kick you in the ass when you need or deserve it, and give you the push you need to reach something thought out of reach. Whether one friend, or twenty friends, to be able to share, laugh, and experience life is truly a blessing to be a part of.

Pets, fur friends, family. It has been a long time since I said goodbye to my best friend, Pollo. He gave me so many years and so many memories. My daughters think I take so many photos of them. Had I had a smart phone when I first got Pollo, I undoubtedly would have my own Youtube or TikTok with him.

My daughters and I can be out walking, for exercise or recreation, and I will always, and I mean ALWAYS stop to pet someone furry. I cannot get enough of the TikToks of the dogs, cats, no matter the breeds or species, animals always have a way of bringing me happiness.

And lastly, but not least, “You.” I get enjoyment out of watching others have fun, experience success, grow. I love to hear success stories, not necessarily having come from a dark place, but just a success story. I enjoy watching people open gifts, participate in activities like skiing or parasailing, even though I can no longer do these things myself. If you are smiling, I am pretty sure not only will I be smiling, but so will others around us.

This was the challenge that I issued to myself, and can hopefully convince anyone who might think otherwise, I really am a happy and optimistic person. Sure, I have some crappy things that get thrown at me. But I never lose sight of my peace and my happiness. And all the things I mentioned above, are all pieces of that game of living life. I really am so happy.

Instead Of Resolutions


Before Mr. Big died of a heart attack while riding a Pelaton (a fictional situation for a very popular women’s television show, shocking viewers all over, and the reaction shocking Pelaton), there was another exercise machine that could have been a killer in real life for me. Yes, it was one of the two pictured above. I have used both in the past, and now, only one of those machines unless I am ordered to use the other.

Like many, the new year annually brought me to want to make a resolution to get/stay in shape. Crazy thing called life constantly interrupted that resolution, and it would be forgotten. In 2008, I made a promise to myself that “this is the year I am going to stick to it.” I had even bought a full year membership at the local gym. Surely I would not waste the money letting my membership sit idle.

And soon after the new year, I began my annual quest, the same as every year before it, gradually working my way up in repetitions, sets, and time. I really gave no thought to how I felt physically as I began each workout. But by the beginning of April, that’s right, I was now a full month longer than my exercise plan had lasted in previous years, I began to notice something nagging my body, a reminder that the last time something occurred during my workouts, I was diagnosed with Hodgkin’s Lymphoma. But this time, felt different, and it actually hurt.

I preferred the eliptical machine as it felt more of a workout than just going at it on a treadmill. I seemed to burn a lot more calories, and my endurance seemed to hold up pretty well. There was only one problem. As I grabbed the sensor paddles on the handles, and began to “step”, my heart rate registered on the screen. 80. 110. 135. 150. In less than 45 seconds, my heart rate had peaked at 152. I was out of breath, and had an extreme tightness in the left side of my chest. But as it was just tightness, and not pain, unimaginable pain (according to my later father who actually suffered an extreme heart attack), I was not panicking. I was just annoyed.

I slowed my pace down for a few seconds, my heartrate began to come down, and that tightness dissipated. And so I picked my pace back up, since I was comfortable again. Again, my heartrate also climbed back up above 150, where it remained for the remainder of my hour long routine. After that, it was over to the weights side of the gym for the strengthening.

Within two weeks, I would make a call to my family doctor, complaining about this daily situation with the chest tightness coming and going. Within 36 hours of that call, I was on a table having emergency bypass surgery. You can read the whole behind the scenes of that process, from beginning to end, on the page titled “CaBbaGE – Not Just A Green Leafy Vegetable.” But for this post, all you need to know is this. I had a 90% blockage of the main artery going to my heart. It had nothing to do with my age, or my diet (though many would like to say that did not help the situation). The treatments for my Hodgkin’s had progressively destroyed my body over the years, undetected, until I made that phone call. According to my cardiologist, and I quote, “it was not a question if you would die, but when.”

So, spoiler alert, I survived the surgery. The hardest part about the recovery, was that I expected my physical conditioning prior to the surgery, to have been a benefit in my recovery. Instead, in just a week since the surgery, no, less than two days in the hospital after the surgery, lying in the intensive care unit, I had lost all of my conditioning. But as time went on, and I would get cleared to begin cardiac therapy, and eventually physical therapy, I wanted to focus on getting back into shape.

Yep, that meant I went back to my annual resolutions, with the usual results. But now the interruptions were not just because of failure of commitment, but additional health issues that kept breaking up my routine. Plus, I really was not feeling well even as the years went on. There was still more damage to my heart that needed to be repaired.

My third and final heart surgery (final meaning for the time being as all the surgeries are likely going to need to be done again), an aortic valve replacement, occurred a little over a year ago. This surgery was completely different, as it was not invasive or as destructive as my original bypass surgery. The whole process of this surgery allowed for a quicker recovery as well. Of course, I went through cardiac rehab again, and as soon as I was cleared, I went back to strengthening.

If there was one thing that I credit to my survival of that original bypass surgery, was my conditioning at the time. I would not discover until years later, the risks, and the protocols that came with the surgery on a Hodgkin’s Lymphoma survivor. But I believe my body was able to handle the trauma of that surgery, giving me the chance to recover, and regain my fitness. And following this last surgery, having not lost any of my strength or stamina, I was ready to move forward. I know I needed to be smart about this. My heart has been operated on three times, and each time, becomes more of a risk.

January of 2021 was the perfect time for me to be cleared to exercise. No one can ever make an accusation of me ever becoming a bodybuilding champion, but I really wanted to be in a good condition. I know that there will come a time, when I need to have any or all of these surgeries again. If I am to have any chance of survival this time around, my body needs to be in the best condition I have ever had it in.

But unlike the other years, years in which my exercise regimens were driven under the guise of a “resolution,” I made this a lifestyle commitment. There has been only one obstacle to this commitment, Covid. Because we are at a point in this pandemic, people have their own ways of living with the pandemic, some with concern for others, some without, I knew that there were times that someone infected with Covid, chose to ignore the safety of others, using the gym. So, on multiple occasions I had to make the choice, to avoid the gym for a couple of weeks, assuming that these individuals were also of the mindset to not wipe down the equipment either. As I begin my second January of this continued routine, I do feel that my body is in a decent enough condition, should I face another major health challenge.

I would say that I have done all that I can. But those around me would argue that I should do the same with my diet, make that more healthy, which I have not been able to reconcile as being a benefit enough to make the commitment. Basically to do it now, would be nothing more than making a resolution. And I do not have decent track record with resolutions.

And while during cardiac rehab did “force” me to get back on the eliptical machine, the panic attacks, I was able to keep under control. But on my own, I do not have the intestinal fortitude to use that machine again, unsupervised. I won’t let that be my “Pelaton.”

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