Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Family and Friends”

“You Talkin’ To Me?”


I am going to use several movie references for this post.

In the movie “Taxi Driver,” actor Robert DeNiro is rehearsing some sort of dialogue he intends to have during a pending conflict. I am paraphrasing the lines, as he is looking in a mirror, repeating, “you talkin’ to me? You talkin’ to me? (He looks around himself) I don’t see nobody else here, so you must be talkin’ to me. I’m standing here. You talkin’ to me?”

One of my favorite comedy movies, with clearly the greatest one-liners, is Airplane. Throughout the entire movie, an air traffic controller played by the late great Lloyd Bridges, states the many vices he had given up, but during the crisis currently involved in, has relapsed with all of them from smoking to “sniffing glue.” The meme I have posted is my own, and will explain shortly.

As it turns out, my grandmother had actually prepared me for this particular day, more than forty-five years later. A smaller than average kid, I was an easy target for bigger kids looking to make an image or reputation known, for being tough, a bully. Not only was I small, but I was also shy, and then the worst of it, clothing I wore, bought by my grandmother, definitely was not cool or trendy. I had all the trademarks of an easy mark.

My grandmother had an interesting way to deal with the various efforts of bullying and taunting. “Just turn the other cheek, and walk away.” While clearly my size was against me, this strategy failed miserably, as I just got attacked from behind.

As an adult, I understand why she said what she did. It clearly did not help the situation though. In conversations with my daughters I have used my own philosophy, “a fire will only burn if you keep putting wood on the fire.”

Indeed, very “Mr. Miagi”-sounding, of course referencing the original “Karate Kid.” Yes, Gen Z-ers and millenials, there was a movie series prior to Cobra Kai. Focus Paul-son.

Getting back to my meme with Bridges, and the Coke reference, I found myself referencing all three movies the other night. And while I am sure I will hear from fellow cancer survivors and friends, all with their recommendations of the many other uses for Coca-Cola besides ingestion, none the less, that is what has triggered this post.

I walked into the convenience store, not like the Sac-O-Suds in “My Cousin Vinny”, though I have to wonder, was it much different given the mentality of the store clerk I was dealing with?

I needed to purchase some gas for my Camry, not a 1964 Buick Skylark, and while doing so, grabbed a bottle of Coke. I really should not be drinking it for several reasons, and have quit many times before, but at this point, was off the wagon.

Between me and the clerk, were sheets of plexiglass suspended over the counter, the purposes of protecting both clerk and customer during the Covid19 pandemic. In full disclosure, my hearing is often questioned, whether selective or actually failing. But in this particular moment, I am pretty sure my hearing was spot on.

I put my bottle of Coke on the counter and explained that I would like to put $20 of gas into my car. That was it. No other small talk, clearly neither of us were interested in that.

How is this for a reference? From “Dude, Where’s My Car?”… “and then?”

“Bah-ah-ah-ah-ah-ah”

And odd thing for the clerk to utter, and honestly, I thought like many other clerks, who work with ear buds in the ears, he was likely listening to something and simply reciting along with it. But as I said, with my hearing, I was not sure what I was hearing, though it sounded like a sheep sound. And then he did it again.

“Bah-ah-ah-ah-ah-ah”

Now, I could probably post a snapshot from the movie Clerks for this, but that movie was funny. What was happening right at this moment, was not.

As I looked around me, like DeNiro in “Taxi Driver”, there were four other people in the store besides the clerk and I. They all shared one thing in common, and different from me.

I was wearing a mask. They were not. I was 95% certain, this clerk was trying to provoke me. I was not sure what I had heard the first time, I was 100% certain after the second sound. And then… as if more confirmation was needed, Floriduh man behind the counter started putting words together, the first word I heard being “Covid.”

At that point, I knew what was happening, and unlike the lesson my grandmother had taught me, which never worked, I replied very DeNiro-like, “excuse me?” At that point, the clerk now looked up, had stopped mumbling his crap. I repeated myself, “are you talking to me?”, making him clearly aware that I had heard his provocation.

This jackass was making a reference that I was a “sheep” or “sheeple”, because I was wearing a mask, recommended in helping to prevent getting infected by Covid19, and from spreading it to others. Clearly, he was one that did not believe in wearing a mask, and the fact that the remainder of people in the store did not have masks, made him more brave to take a shot at me.

In fairness, this dope had no idea that I wear a mask, as one of the more vulnerable people to Covid19, having a compromised immune system, as well as other co-morbidities related to my cancer survivorship. And that is none of his business, just as my decision to wear a mask or not, just as it is none of my business whether he wore one or not.

He did not respond to me after I called him out. I grabbed my soda, and went out of the door to pump my gas. And then I steamed. I did exactly as my grandmother once taught me. As I child, I never understood the benefit to walking away other than I was not going to get my ass kicked. But, as an adult, I was getting more mad. I do not like leaving things unresolved. I was provoked. I wanted closure.

This situation is different than just a conversation between two people sitting in a bar, or passing by on the street. The was during a business transaction between customer and employee. And while I understand that employees can have cranky days, and end up reflecting that on the customers, this was not the situation.

Representing his employer, this putz decided to exercise his free speech, and acknowledge the division in our country over whether the wearing a mask is appropriate or control. I have long given up on this debate, especially after two years. After two years, we are where we are because of the decisions both sides have made, and hopefully not worse. But it is unlikely that any large percentage of people will change their minds as to their stance. If science is correct, which I believe in science, like the other viruses I have faced in my life during my survivorship, I will get through the pandemic. Sadly, too many still will not, yet to come. And then… for those who made the claim that Covid19 was “just like the flu,” will finally be able to make that claim, because like the flu, Covid19 will not be going anywhere. One major difference, is the number of people Covid19 has killed, and did not have to be that way.

We are divided, there is no doubt. And an employee like this does not help. And while I risk a “Karen” reference, which will not be allowed because I am only using movie references in this post, I did speak to the owner, who agreed that he did not want this issue having an impact on his business.

And with that, my final movie reference.

Wear a mask, don’t wear a mask. We know the difference masks make. We know the political inference by those opposed to wearing them. We are who we are. And just like Mr. Vernon in “The Breakfast Club” had to do, we have to just accept we are who were are in the world of Covid19.

What’s In A Number?


This is a boring meme that showed up across social media in recent weeks. I do not usually reply to these things, especially the ones that pretty much end up being password related. But admittedly, this one did kind of have me curious.

I am recognizing a birthday today. I do not celebrate them anymore, I just let them happen. I prefer no fanfare. The truth is, I consider myself lucky to still be here considering everything that my body has been through, due to the treatments that saved my life from Hodgkin’s Lymphoma over 32 years ago.

But I decided to give this one a go, just as a lighter post. Of course, when the meme came out, as I was at the age of 55, flipping the numbers did nothing. I remained 55 years old. Boring. And now I am heading into the upper half of my fifties. To be honest, nothing would thrill me more than to be on the lower half of this decade of my life, to get another crack during those times. I thought it would be interesting to reflect back on those younger decades.

I will skip my 5th year of birth, as I know there was nothing remarkable about my first year in school as a kindergartener, except that I was small, and some remark “oh how cute!”. Apparently, I was also a blonde.

At 15, I switched high schools. While it was somewhat intimidating, the opportunities given to me at my new school, allowed my life to take much different paths than what I had been going previously and I definitely do not think things would have turned out better. I will always remember the new friends that came into my life, as I am still friends with them today, more than forty years later.

At 25, I was beginning my life as a cancer survivor. That year was filled with constant fears of my cancer coming back. Wanting to move forward with my life, I got married to my fiance who had stood by me during my battle with what was called back then, Hodgkin’s Disease. I had resumed working. I was ready to get back to some sort of normalcy.

Age 35 was a transition year for me. My first marriage had ended, devastating as I had so much wanted to have a family, and this would likely reduce the chances of that happening. (spoiler alert – a second marriage not in my “five” years, I would end up blessed with two amazing daughters)

I experienced my first and so far, my only kidney stone at age 45. I had been put on a calcium supplement to deal with one of the late side effects from my cancer treatments, for a diagnosis of osteopenia and facet joint arthritis in my lower back. This was discovered during a medical work up for long term cancer survivor health issues, discovered in 2008, when I had to have emergency open heart surgery (see “CABG – Not Just A Green Leafy Vegetable). And yes, the pain of that large kidney stone, was worse pain than that of my open heart surgery.

55 is an interesting year as it has been somewhat uneventful, well, perhaps better described as par for the course as I dealt with two more issues related to my treatments. But, as usual, I have gotten through both.

Aside from that, 55 has a much darker cloud looming over it. On my father’s side of the family, longevity is not in our genes. Of my father and his four siblings, only he and his one brother lived past 55, both making it to 70. Ironically, as my father lay dying from lung cancer, he actually said, “all I want to do is make it to 70,” and he did, just like his brother. But the other siblings, and his mother passed away in their late 40’s and early 50’s. This alone rents enough space in my head as I have hit this milestone of 55, and then, factor in all the trauma my body has gone through health wise since 2008, a lot. I do not have good longevity odds.

So yes, I recognize my birthday each year. It is hard to celebrate, when I know the odds of a next birthday get harder and harder.

As I turn 56, let’s flip that number. I would be 65. Why is this number significant to me, besides approaching retirement age? Besides being only the third in the last three generations to reach this age, there is a bigger plan. And it is this plan that drives me. I want to get to age 65.

My doctors who care for the multiple health issues from my treatments concede that they cannot reverse what is happening to my body, and they cannot stop them. There are some issues that can be slowed down, and some that can be repaired, albeit temporarily (needing to be fixed again later on). But knowing about these issues, is half the battle. Dealing with them is the other half of the plan. And that plan is this. I want to see my daughters grow into adulthood. I want to attend my daughters high school graduations. If my daughters choose to go to college, I want to witness their graduations. If my daughters choose to get married, I want to walk my daughters down the aisles. And my final wish, would be to hear the name “grandpa” or whatever my daughters would have their children refer to me as. This promise had been made to me over 13 years ago, and I now have one daughter graduating from high school this year, and the other next year. If I have my way, and keep my attitude, my 65th year will be my greatest.

In all honestly, I do not expect to see 75 or 85, definitely not 95, whether genetics or cancer survivorship issues. But I seriously want to get to 65. It is not going to be easy as I know I will see at the least, several more surgeries, and likely additional diagnosis. I am okay with that as I am living each day, the best that I can, no regrets.

This was a hell of a writing prompt my writing coach would have been proud of. I miss having her weekly prompts. This was fun.

What Do You Want For Christmas?


“What do you want for Christmas?”, or since my birthday falls a week before the big day, “what would you like for your birthday?” In my childhood days, I had no problem rattling off things that I would like to have for both occasions. In my adulthood however, nearly all of it, my answer has always been simple to me, frustrating to others, time.

I love this quote from John Lennon. Asked what he wanted to be when he grew up, Lennon answered simply, “happy.” When I get asked what gifts I would like for either a holiday or my birthday, I answer “time.” Happiness was important to Lennon. Time is important to me.

I stopped longing for material things at the age of 22, when I was diagnosed with Hodgkin’s Lymphoma. Things no longer mattered to me. All I wanted was simple, more time. All I knew about cancer, was that people died from it. As I reached remission, my feelings never changed. Survivorship became about making a magical “5 year survival mark” as if any time after that did not matter, because it rarely got discussed.

But as my survivorship term increased, now by the decades, there is also a reality, and only reaffirms the only thing I want for these special occasions. Treatments that I went through to put my cancer into remission, over time, have caused, and continue to cause cumulative damage. I have had three heart surgeries, a surgery to repair my carotid artery, and two episodes of aspiration pneumonia that went septic. That makes six, SIX other events in my life, besides my cancer that have put my life at risk.

Since my cancer days, these six events put me in a position, that I was not prepared for, nor thought I had the ability, or the fortune, to survive. The reality, is there will be likely more of these events.

Over my years of survivorship as a peer to peer counselor (I counsel fellow cancer patients and survivors), there have been many survivors whose bodies had gone through so much trauma, their bodies could take no more. They had run out of time. As I write this post, I mourn yet another one of those survivors, a special one to me, as she was one of the first I met, way before Facebook, and on the other side of the country. I will share my tribute with her as her own post, as she deserves. She, like so many others, were also younger than me. Time. I wish she, they, could have had more. There was so much more for them to experience.

So yes, when I get asked, “what do you want for Christmas?” or “what do you want for your birthday?”, I respond, “time, more of it.” If there is one thing I have learned about cancer and its survivorship, I have no control over what happens, and I live each day with the purpose of enjoying it. But as my daughters prepare to enter the next stage of their lives, adulthood, I want to see more. And that means, that I need more time. Everything else will take care of itself.

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