Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Family and Friends”

What Did I Just Hear?


My daughters and I have been enjoying our Summer visit with each other.  Just as I have done their whole lives, I try to work with them educationally, with outreach, and of course fun.  They get a little of each.  Yesterday was one of the “fun” days, or at least it was supposed to be.

I decided to take my daughters to a pottery studio to let them try something new.  Of course, my rule is, do not expect them to do something that I am not willing to do so also.  But with fair warning, when it comes to art, I have difficulties even drawing a stick person.  My hopes would be, that the pieces my daughters were working on, would make anyone not pay any attention to the monstrosity that I was working on.

It was a typical sunny day, with no school, so my idea was not unique as there were other families there as well.  There were two sets of fathers with his kids, and a mother with her kids.  About an hour in, a father walked in with four young girls, one his own daughter, probably around ten years old.  He set everyone up at a table with paints, and pieces, and then informed them, that he would be back in a while.  Apparently, he is a multi-tasker as he told them that he was going to “work out” while they are painting and will return.

Well, he did return.  And it soon became obvious that the only work out he got was an arm curl lifting some form of drink.  He wreaked of alcohol and cigarettes, and his demeanor had changed from when he dropped the girls off.  Paying him no mind after the smelly cloud evaporated from our table, I went back to my “project” and my daughters continued with theirs.

Not hearing how the conversation started, the father stood up, with one of the children’s pieces and yelled out, “what, is everything made in China?”

I imagine this is how incidents start that are now becoming a regular occurrence on Facetime and YouTube.  His voice caught my attention, but unsure exactly what he said, or prompted it, I put my brush down, and looked up.  He was approaching a table that had a woman and older son at it.  So I figured he was just some obnoxious ass showing off for someone he may have known.  But he walked by her and continued toward the shelves of unpainted ceramic items and began to lift each piece looking underneath for identification where they were made.

I now realize, this father is a racist bigot, and came back from his “workout” with some liquid courage in him.  My attention squarely focused on him, and for what may come out of his mouth next, or worse, any actions, I hear a softer voice of concern speak out, “Daddy, STOP IT!”  The man’s daughter had obviously seen this play out before, and clearly been affected by it.

I was not the only one to notice this jerk, as other parents had stopped what they were doing as well.  But I was the only one with Asian children.  I could feel my adrenaline pick up.  My daughters are of Asian descent, and my eyes give off the appearance of being Asian as well, though unfortunately I am not.  I am now focused on this father, and what his next words or actions might be.  Then I feel a sharp pain in my left shin.  My daughter, also very aware it seems of the situation, had noticed my protective glare, and had kicked me under the table to snap out of the zone I was in.

And I know why she did it too.  My daughters are very proud of their heritage, although if you do not point it out, they are just my daughters.  But if you do point it out, then it best be complimentary in nature.

Many years ago, I believe my oldest daughter was in second grade, a boy on her bus made the unwise choice to make a stupid comment about China, and without thinking about it, she reacted with a backhand that not only surprised everyone around her, but gave the little racist-in-training a bloody nose and a lesson.  Though I was proud of my daughter for sticking up for herself, more importantly did not provoke anyone, had she been a bit older, she may have responded a bit more tactfully.  Aside from that, I had been running for school board at the time, and one of my platforms was dealing with bullying.  This was going to be a situation I was going to need to deal with.

Back when my daughters were adopted, I was given a book, on learning how to deal with situations concerning mixed ethnicity families.  I read it, but never really gave it any thought in the 21st century, that I was going to have to be dealing with these issues anymore, especially given the racially mixed area that we lived.  Today, where I live, I know that racism exists yet.  I also know that because of a certain section of our society, and with the support of social media platforms, that racist bigotry is in fact becoming mainstream, more prevalent than ever.

So many things went through my mind yesterday, and to be honest, in 2018, there is absolutely no reason, that an asshole, probably twenty years my junior, should have any racial hatred.  Yet here we were.  Protect my daughters from this monster, whether from his words or actions.  Trying to figure the balance so as not to be tolerant or complicit, because that is what enables bigotry to escalate, and I did not want to escalate the situation, I removed my glare in his direction and continued what we were doing.

There will be some who will protest my inaction, and to be fair, there is a part of me that feels it would have been better for my daughters to witness how I would shut out and shut down this racist.  And perhaps if I were alone, I might have reacted differently.  But my priority was protecting my daughters from any more of his hatred.

We all finished our projects shortly after, and went for lunch.  And as we often do, we talked about what had happened.  I got the kick under the table not because I was prepared to defend my daughters, but my daughter, felt sorry for his daughter, who was clearly embarrassed by her father’s bigotry.  We talked about the erroneous ways people think about others with different ethnicities and why.  It was just supposed to be some painting fun.  It turned out to be so much more.

Married Or Divorced – The Title And Responsibilities Of Dad Do Not Change


Since they came into my life, I have tried to raise my daughters with three different directions in life:  education, humility, and of course, fun.  During the years of separation and divorce, those directions have never changed.  My daughters know that they can count on my consistency through the years.  I have not changed.

My custody time with my daughters vary, and that often determines the kinds of things we do.  If it is a short period, it is more likely to be of the fun variety such as a movie or park, or perhaps visiting a friend.  But during the extended periods of time, that is when more time can be spent, while money is not, learning about life, what is ahead of them, and what I hope for them.

No matter what, my daughters have been able to count on having to do homework with me.  Whether during the school year, of summer break, this has never changed.  What has changed are the methods.  With schools now requiring summer reading, I no longer supply the “transitional” workbooks to prepare them for the next grades.  And what is even more special, watching them help each other.  Which actually becomes critical once Algebra and Calculus comes into play.

But this summer, something was new.  My oldest had informed me that she wanted to get a job.  Another step up the ladder of life (I assume driver’s license will be next), I helped her fill out a few applications, and even took her for her first interview.  Now while she did not get the job, what she got was a huge lesson in her first interview – questions that are asked, get over the nervousness, etc. .

But there are so many activities and opportunities to learn, and you can check your communities, because I am certain that you have them too, and they are usually free.  My daughters love to cook.  A teen class was provided at our library and they learned to prepare and cook a chicken, bake a cake, and make pancakes.  Needless to say, they were anxious to put their skills to the test, and who was I to stop them?

And there are plenty of other things that I try to teach them, opportunities that are not often available, some times about history so that they learn the importance of not repeating certain events, and of course, humility.  That one day, they may not have everything that they once did, or that there are those that have never had.

Years ago, I took my daughters to our Holocaust Museum.  It was a modest sized building, but filled with such tragic history.  They had already been learning about Nazi Germany, so they were able to grasp the severity and horrific events that took place.  The above picture shows a restored boxcar used to transport families to the gas chambers.  While at the cooking class, the boxcar was currently positioned at the library.  There is information inside telling of the history of the Holocaust though clearly not in such detail as the museum, but to actually be able to stand inside, imagine the doors closed, only being able to look through a foot-high window of the box car, not knowing your fate, it was quite chilling.  Later this week, my daughters will actually meet a Holocaust survivor, who was a child back then.  He is giving a lecture on his experience during the Holocaust.

But another thing that we have always enjoyed doing with each other… outreach, helping others.  Whether walking the streets of Philadelphia and seeing a homeless person, or perhaps rescuing a stray pet, my daughters appreciate that there are always going to be others who do not “have” and that it is just a degree of how much or how little.  My daughters and I participated in the second stage of an event here that raises money for food who have difficulty affording food.  The first stage, bowls are molded.  The second stage, the bowls are painted, the stage we participated in.  After they are “fired” the bowls are filled with soup, made by local chefs, and at an event in January, open to the public in one of our parks, people may buy the bowl, filled with soup, and the proceeds go to help the hungry.  The only sad thing is, our bowls look nothing like the finished produce until the are fired, and we really will have no way of finding our bowls.

Around all this, we are having fun doing all of these things, learning, helping, caring.  Watching movies, walks on the beach, playing games, my daughters know one thing, the dad that they had when they were four, is the same dad they have now, only so much more.  And so are they.

Maybe If You Hear It From Others – You Can Start To Understand


Today is a very difficult day for me.  For the second time in two days, I have been informed of yet another long term survivor of Hodgkin’s Lymphoma that I personally knew, has passed away.  The fact that this news happens is not the shocker, because most of us who are aware of our health issues, late effects caused by treatments that saved our lives, either do not make them self known, or if known and treated, and when we think we are good to go, either another issue pops up, or worse.  And no matter who we try to explain our fears, that we cannot just get over it, that our bodies are indeed challenged, and confirmed by medicine, even those close to us, still do not often get it.

But do not take my word for it.  I have a guest today, fellow survivor Danny.  I have known Danny for almost a decade, having met him in Manhattan when I was there for follow ups for my health issues.  Danny was also a patient there at Sloan Kettering as a survivor.  Danny developed his Hodgkin’s while serving in the military for our country.  And as his words will show, living a long life after Hodgkin’s, is not easy.  Just because you cannot “see” with your own eyes, does not make it not real for us.

“Being a Long Term Cancer Survivor is hard. I was diagnosed when I was 20. Yes I am thankful for the life saving treatment that kept me around this long, but at the same time I despise it.

Why?

Turns out the longer you survive the cancer, the more damage the treatment does to your body. So, while I was able to get an education and have a career and achieve some of my dreams, by the time I was 40 my doctor told me I needed to retire or I was going to die!

I have a decent retirement income and complete health care coverage, but many of my fellow Survivors do not. I worked hard as long as my body allowed me to and I was rewarded for it. Many Survivors are relatively young and would like to work, but their bodies will no longer allow them to. This makes life hard on them.

The type of cancer treatment many of us received as late as the 1990’s was very harsh on the body. Recent studies show we have a 30% reduced life expectancy in relation to the general population. I have personally known many who have passed away in their 40’s, 50’s, and 60’s… all caused from complications from cancer treatment they had when they were younger!

The life of a Cancer Survivor is hard. While our peers are out enjoying the fruits of their labor and raising their children or playing with their grandchildren, we are going to the doctor and the funerals of our friends.

Here’s to hope for the future, a cure, better treatment methods and Medicare for All.”

Danny and I share a lot in common besides our Hodgkin’s.  We both share some of the same late effects.  And I want to tell you, I know that it was hard for Danny to write what he did.  He is one of the most optimistic people I know, and he has a very good sense of humor.  And as you can see, he loves the outdoors (I love Washington State by the way).  Which is really what challenges him and how he deals with his late effects.  He is also a parent, which is another reason why we cannot “just get over it.”  We have to be our own advocate because all too often, we end up dealing with a doctor who has no idea what it means to have been dealt with some of the most barbaric treatments for cancer and live to tell about it (our life expectancy was average 5 years – and many of us are 3, 4, 5 , and 6 decades out, which means we lived long enough to develop side effects, something that was not studied beyond those 5 years.  We are the guinea pigs for better and safer treatments, and there is a long way to go.

But we survivors cannot be forgotten either.  We need help.

My tribute to my fellow survivor who passed away will follow.

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