Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Education”

My Fight For Education


A few years ago, I made one of the most illogical decisions in my life, to run for a public office.  I had no political experience, a fairly average voting record, and the only political interest I may have had, was occasionally flipping through the channels on the television and occasionally catching bits and pieces of a biased “news” channel.  But something changed in 2009.

A new phase in my parental status was expected to begin following the Labor Day holiday.  But a huge cloud was hanging overhead.  It was a looming teacher labor crisis, common in school districts all over the country.  The climate was mirroring a similar contract negotation within our school district, which resulted in a strike then.  All that mattered to Wendy and I though was that it was Madison’s first year in school, and we had no other daycare options available if the teachers would go on strike.

And then it happened.  The announcement was made that the teachers would go on strike.  A court order mandated that the strike had not been given proper notice and the teachers return to the classrooms.  But another walk out would occur incurring the wrath of many in the district, including myself.  All I knew was that teachers make enough and only work part of the year.  Now before I hear from anyone what a jerk I was, I know it.  Like I said, this was uncharted territory for me and I was pissed off not having a firm arrangement for Madison’s care.

The media concentration on the strike was typical.  The district presenting their opinions that the teachers were being unreasonable.  The union responded that they were frustrated by the lack of understanding and consideration by the district.  Back and forth, back and forth.  I cannot say what exactly it was that caused this emotion in me, but the school board did something I considered despicable, legal, but despicable.  The board authorized the publication of every teacher and guidance counselor’s salaries in a full page color advertisement in several local newspapers.  I was infuriated.  And just like that, my support flipped completely to the side of the teachers.

This bully tactic did exactly what it was meant to do, raise the ire of the taxpayers and parents.  It is common sense that there will be a difference in salaries for teachers with one year of service and those with thirty years.  I had no idea what a teacher’s salary was, and though a matter of public record, was no business of mine.  My only concern with a teacher was educating my children.  At that moment, I had no idea what direction I would go in, but I was going to support the efforts of teachers, learn what the teachers did and the commitments nearly all make in molding our community’s future.

I followed the negotiations very carefully, and then an opportunity knocked.  Following a recent school board election, a re-elected board member decided to resign (conveniently after defeating an opposing political party opponent).  A replacement would be chosen by the board after soliciting replacement candidates.  I made the decision to put my name in.  Miraculously, a replacment had been chosen.  None of the other applicants had been contacted about the interest or resumes, but the replacement also happened to be from the same political party as the resignee and dropped out of the race prior to the primary so as not to compete with an incumbant.  Amazing what happens even when it comes to local politics.

Denied.

That following January, another opportunity came.  An information meeting was held to teach how to run for a public office, in particular, school board.  It was attended by people representing both political parties and third parties.  A couple of weeks later, I made the decision to officially run for school board.  It was an exciting experience for me.  Four others made the decision to run with me as a full slate of candidates bent on removing the bullying incumbants and restore respect and dignity within our school district.

Two of our candidates had broken the glass ceiling in being elected.  The other three of us, including me fell short of votes by less than 200.  Our efforts fell short just because enough people did not feel their votes would count.  We ran a clean campaign, and for three of us, it was our first campaign.  We had nothing to be ashamed of.  It was less than a week later, the three of us made the decision to continue the fight.  So I will run again for school board in 2013.  A lot of people question the need to do this, especially with the many health issues I have to deal with, but it is simple.

I feel right now, my most important role of being a parent, is to make sure my daughters get the best education possible.  For my wife and I, we believe in public education.  We both graduated through the public school system.  We were both successful because of our education.  A free public education is a right of our children just as it was for myself and others, and the generations before.  It is our obligation for the strength of our community (and country) to provide a strong and quality education.

There are plenty of disagreements from teacher salaries to school choice.  I no longer just look at the actual dollar figure of the teacher’s salary.  I do believe in school choice.  We should be free, and in my school district, we are free to choose from private schools, Catholic schools, even other elementary schools within the district.  And in districts where education is suffering from quality and need, charter schools originally seemed to address those concerns.  But charter schools would come at an additional expense to the district, and trickle down to my home in the form of higher taxes.  But even more hurtful, limited by state mandate, expenses of adding a charter school could not be covered completely by an equal tax increase, which result in only one thing, cuts.  Approval of a charter school in our district will not only raise our taxes, but to make up the rest of the deficit of next year’s budget, our district will have to look at cutting curriculum, programs, and staff.  This will effect my daughters’ education in a dire way.  They are too young right now to know what their future will be, but they should be offered the opportunities that I had, that everyone had to be able to recognize their potential.  And that means offering everything that is possible.  If we as a taxpayer are willing to pay a charter school to teach the programs our district is willing to cut, why cannot we keep them in the first place?  If we as taxpayers are willing to provide a smaller class size (the main argument made to support a charter school), why is our district so unwilling to make that provision within our school system?

There are plenty of other issues.  These are difficult times for education as a whole.  Budgets are strained.  Expenses rise.  But respect, quality, and responsibiltiy cannot suffer for the ill decisions made in the past.

School board director is a volunteer position.  It is a lot of hassle, for no pay, a lot of criticism, but knowing that you are helping to mold the minds of the next inventor, the next discoverer of a cure for cancer, the next president.  I have made a commitment, and have volunteered the last three years attending most of the school board and sub committee meetings to make myself familiar with the goings on of our school district.  It is a monumental task and commitment.  But for my daughters, it is worth it.  And for my commitment, I believe that everyone else’s children will benefit as well.

Time Travel – Changing History


H.G. Wells did it.  Sam Beckett did it.  Bill and Ted did it.  Superman had to do it for Lois.  Even Bart Simpson has done it.  Time travel.  All had the desire to go back into time to either research or alter time.  Each had their own mode for making the journey – an actual time travel machine, Ziggy the computer, a phone booth, a cape, and as a parody of “Back To The Future,” a DeLorean complete with Christopher Lloyd.

The concept is simple.  Go back in time.  Fix what needs to be corrected.  Come back to the future.  Of all the time travelling media, Sam Beckett in Quantum Leap was my favorite.  You see, when you change the past, you change the present and the future.  Beckett had to be careful so that he only changed the history of the person he was sent to help.  And there were times when it was extremely personal for him, like saving his wife, or even stopping this project which he found out eventually was much bigger than the invention that he created.

There is a different way to change history though, without going back through time.  We do it as children, and we often live through it as adults.  We study history.  The idea of studying history in one aspect, is to not repeat it.  Wars.  Space Shuttle disasters.  Tough economical times.  Medical crisis.  We study the examples so that we learn from them, and do not repeat them.

When we are born, our path is set.  There is a natural progression to aging, infancy to toddler, toddler through child, child into puberty, then to adulthood, and senior status.  And there are things that we know, are likely to happen to our bodies as we get older and our bodies get tired.  But just as travelling back into history to “fix” something, for me personally, the cancer diagnosis being the time traveller, forever changed my present and future.  There are bad things that came of it, but there are also good things that came of it.

For example, when I went through the radiation treatments, there were some things that were known that could happen as a result (called a side effect), but there was so much that was unknown.  Of course I knew what could happen.  Mr. McGee could make me very angry and I would go through my wardrobe very quickly not to mention look like I belonged on a can of vegetables (Incredible Hulk reference for those that need it).  Well, I did get a lot of radiation, too much in fact.  At the time, it was what worked, that is all researchers knew.  In today’s treatments, doctors know that they can use much less and by that, I mean ALOT less and have just the same effect or better.

So as I said, I received too much radiation, amounting to four times the lifetime allowance of exposure.  There are many who work at nuclear power plants that are not exposed to what myself and others were exposed to.  The sad thing, I know plenty more people who were treated with much more radiation and different types, like Cobalt.  We have all been told as children that radiation is bad – “don’t stand too close to the TV”, “don’t stand in front of the microwave”, “cell phones cause brain cancer.”  Not only does it treat cancer, and cure cancer, but it can cause cancer.  That is why if you are smart and able, you put sunscreen on your body.

Well, just like on the outside, when you get sunburned, with radiation treatments like I received, the burns were on the inside as well.  To my knowledge, it is something that I will always have.  So the radiation and chemotherapy start doing damage to my body, inside and out, which gradually gets worse over the years.  To understand, if you drive a car that has one tire that is not inflated properly, do you think that will affect the other tires?  The overall performance of the car?

As it is, that I believe about my body.  With the first lymph node that was removed and biopsied, so my body had to adjust.  With the staging laparotomy, my spleen was removed leaving my body challenged forever against infections and contagions.  When my heart bypass surgery was complete, blood was flowing at the rate once done before, my body parts not used to.  The list goes on.  My body’s natural physiology was changed back in 1988.  As far as I am concerned, everything that is happening to me today, is because of the things that happened from that time on.  And so far, this has been confirmed.

So given the chance, would I go back in time?  Knowing what I know now, would I take the opportunity to change my mind to any of the procedures, or even to allow the doctors to treat me?  Given the two choices that I had, death or most likely cure, how would today be different for me today? 

Hodgkin’s Disease has been one of the more curable forms of cancer for decades.  Treatments have gotten better, safer.  But would I have had that much time to wait decades for a cure that would not have had the impact on my health today?    I have two very very good reasons to not even entertain that option. 

Mad and Em 12813

All I can do now, is make sure that any more decisions do not give me cause to want to go back in time to correct a regret.  Then again, what if I already had gone back in time?  What if…

Reality TV Bites! My Pitch To The Major Networks


Shows based on reality.  Oh, the humanity!
“You’re gonna lose your mind watchin’ TV” Oh, and “Fear Factor” I watched maybe a half hour after that, felt like I needed a long shower
Network execs with naked ambitions, “Next week on FOX, watch lions eat Christians”.  Leech-covered grub-eatin’ fools on “Survivor”
I love shows with or without a plot I’ll stare ’til my legs are numb, my eyes bloodshot
Because I only have got One brain to rot
I’m gonna spend my life watching television a lot

These lyrics are from Wierd Al Yankovic’s song parody “Couch Potato”.  I have intentionally only copied the references to reality television.  You can read the complete lyrics on any web page.  Late last year I attended a cancer survivor event.  One of the speakers was a head honcho at Memorial Sloan Kettering Cancer Center.  When he finally began speaking he mentioned the uncomfortable feeling he got referring to former cancer patients as “survivors”.  Survivor is often a term we associate with war, accidents, natural disasters.  I am paraphrasing, but that is the gist of what he said.  I believe he was attributing it to the duration of the event and the effects following it.  I would go one step further as far as using the word survivor, not just for cancer patients, but those who have survived war, disasters, and other tragic events.  I believe the word “survivor” has been cheapened by “reality TV”.

I will admit that I do watch an occasional reality show, but it is very rare.  The whole concept of someone volunteering to be put in precarious positions, be paid for it, and referring to the victor as a survivor is insulting and demeaning to those who have had no choice, who are not given a financial opportunity to recover (or in the TV world, profit from their effort or gain their fifteen minutes of fame).

Seriously, take a look around your waiting room.  In walks your doctor with a TV producer, and about a dozen people whom you do not recognize.  Since you do not know any of the visitors it is up to the doctor to introduce to you, what is about to happen.

“I have been approached by this major network about a new reality show about getting through a battle with cancer.  These people have all volunteered to be given the same cancer, and the same treatments.  There will be challenges where they will be given the opportunity for extra treatments, or denied treatments.  Competitions will determine what order people would receive their treatments.  Losing challenges would also carry consequences.  Every week, one contestant will be sent home by vote from the real patients who are not here for the TV show, where they will then have to find their own treatment plan.  The last one standing, or surviving, will be the winner of a million dollars.  As participants as observers, we will make sure that you get a year’s supply of TV guides to make sure you know just when the show is airing.  Sound good?”

Of course this scenario is prerposterous, and offensive.  But many times, when I watch shows like Survivor, Big Brother, Fear Factor, and now all these sub-class shows like Redneck Vacations and a show mocking an overweight child because her parents are too stupid to realize the damage they are causing, I do not want to be held in the same descriptive sense of the word survivor.  I have been through too much for my journey to be so understated just because it did not appear on some remote island.  My psychological battles are far worse than a group of spoiled egotistical jerks who believe the only way to get by is by being deceiptful, and disloyal.

We cancer patients are kind of funny with the labels that healthy people, and sometimes other cancer patients like to place on us.  Survivor.  Warrior.  And I am not going to rip on people who watch the reality shows.  But just once, I would like to see a major network produce a series and stick with it, about true survivors, not volunteers, we were forced into our situations.  We were not made into millionaires because of it, but there are literally millions of us, over twelve million.  Many of us have additional issues, and most do not know why.  Stand Up 2 Cancer is doing great by drawing attention to supporting research to find new cures and support, but we need something to show that people do live long lives in spite of their greatest challenge in life.  A walk around a track at your local Relay For Life is lined with luminairies with the names of people who have faced cancer and beaten it.  I would like to see a Nationally televised Relay For Life with at least half of the program dedicated to survivors and perhaps expanding the Stand Up 2 Cancer to include the various issues that survivors face after treatments from psychological to medical.  Just once, I would like to see a real reality show that is not based on backstabbing, lying, and degrading.  I would like to see true success and show people how success is really celebrated and appreciated.

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