Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Education”

November – A Bittersweet Awareness


I have many things that I advocate.  And you have probably seen me write about all of them at least once, if not, at the beginning of the month, when everyone begins to announce that month’s “awareness” cause.  I used to have only one thing that I advocated in the month of November, until a couple of years ago.

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My father died a year and a half ago from lung cancer.  His diagnosis did not come as any surprise to anyone except for him.  The side effect of denial affects only the smoker, “it will never happen to me” or “I wish I would have known.”  He smoked tobacco products over 50 years, trying multiple times to quit, unfortunately being unable to fight off the addictive additives of the various tobacco products.

Over the years, I have done my best to protect my children from second hand smoke, even witnessing the act of smoking.  I am more than aware of the peer pressure that I have no control over, but one thing was certain, my children were not going to learn to start smoking by witnessing me smoking.  It was hard enough for my daughters to have witnessed the later stages of their grandfather’s life, and knowing what his fate was going to be, just because he smoked tobacco.

It was a shame really.  As his fate became more of a reality, the bargaining stage of his life had become apparent, begging for more time, wishing that he had never started.  It is too bad the tobacco companies did not care enough to create an antidote to reverse the addictiveness of their product.

But now, as my daughters are “tween” in age, they have become more aware than ever of their environment.  It may not have been enough for them to have witnessed their grandfather die of lung cancer, caused by decades of smoking.  I am certain that before they become adults, they will not only witness someone close to them smoking (or now, vaping).  My only hope is that they remember what happened to their grandfather died from, and that it was not good enough to just hope “I can quit any time I want”, because you cannot.

I realize that I am overstating the obvious that smoking does cause cancer, and not just lung cancer.  But to be fair, there are other circumstances that cause cancer, that really are no fault of our own.  Every day we breath in chemicals and pollution.  And if you are a cancer patient, especially a long term survivor like myself and many others, there is a pretty good chance, that due to either chemotherapy or radiation therapy, that we have an increased chance of developing lung cancer, having traded a cure for a cause.

That point I am trying to make, there are enough things that we have no control over in our lives, but smoking is one that we do control and the role it plays in developing lung cancer.

But as I said, November is a bittersweet month for me as far as advocacy.  One of the happier and more positive causes that I support is adoption.

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The process of adoption gave me the opportunity to fulfill a dream, to become a father.  Cancer took away my ability to have children biologically.  And though science provided some opportunities, it was not successful.  And in 2003, the process began to adopt the first of my two daughters.  There are pros and cons to domestic and international adoptions, closed (private) and open.  But China gave me the opportunity that could not be achieved through the United States due to financial and my health history.

I will never truly understand the feelings either of my daughters will have as to the absence of their origins, other than the country we know that they came from.   I have some information for them, about how and where they were found, who took care of them prior to their adoption, and of course, lots of photos during the visits to China to complete the process.

And although our family has gone through a major disruption, that many seem to say is “unfair” to children who have gone through so much in their lives already, nothing should really change.  Both their mother and I play major roles in their lives, and I have made it clear that the girls will have only one “mother” and only one “father.”  Our responsibilities to our children have not changed.  And it is “unfair” to the children, to make a blanket assumption that somehow the children would be better off under any other circumstances, especially when the complexities of the family have not been discussed publicly.

As they children get older, they will have to deal with the fact that they are adopted.  Our agency had given us material a long time ago to prepare us for the times that would come, dealing with identity, racism, bigotry, in a multi-racial family.  Of course, there is going to be the serious relationship issue as well to deal with.  Parenting will continue.  While the adoption circumstance is obvious, I have always treated my daughters, as my daughters.  And through the adoption process, my dream of becoming a father has been realized.  There is a lot to be done yet as I prepare them through their education and life experiences.

Adoption is a wonderful opportunity to build a family, under any circumstance.

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What Not To Say To A Doctor


It has been said to me by a few, that I really only began to “suffer” the way that  I do, when I discovered there were issues related to treatment therapies from my cancer decades ago.  I was “fine” until the first major health issue related to my cancer survival reared its ugly head needing that heart bypass thing.  But once doctors realized that there were other issues, that is when I caused other things to happen to my body by “willing it” and worrying about things, because I had become aware of them.

Funny, I had always thought that I was doing the right thing, by becoming aware of the unfortunately many circumstances that my original doctors decades ago clearly underestimated or never even thought of, because by being aware of them, I do not have to allow them to sneak up on me like the “widowmaker” I got dealt with my heart.

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I will admit, the number and severity of issues that I have been diagnosed with can be overwhelming, to me, but especially outsiders.  And there are those who refuse to even believe they exist, even some close to me.

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I do my best to protect everyone from the reality with a false shell that I project, the proverbial “book and cover”.  If all you see is the cover, that is all you get.  And for many who are blessed with perfectly healthy and happy lives, then you like my book cover.

But as I originally struggled with the plethora of new diagnosis and worsening symptoms, it did begin to take its toll on me.  I finally was getting answers to why I felt certain ways, even before my heart surgery, that my local doctors were baffled as to causes.

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One of the worse things I was dealing with, especially during the last ten years, was unexplained pain.  And without dealing with the pain, other things develop such as eating disorders and insomnia.  As illustrated above, pain has a major impact on a person’s day to day living experience.  Then you combine it with someone who is so stubborn and bullheaded, that they force themselves to grind their body well beyond what it is capable, perhaps even as a healthy individual, and emergencies are going to pop up.

As my pain level was hopefully reaching its plateau, or at least I was hoping it was, I sat across from my physiatrist, who was responsible for my lung issues and pain concerns, and I made a statement to Dr. S that even shocked his nurse assistant, and his response shocked me.

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“I don’t know anymore doc.  Maybe I deserve the pain that I am in.  It is the price I have to pay for having survived my cancer.”

Dr. S unleashed an angry barrage of frustration at me for even thinking my comments.  I have honestly never been yelled at by a doctor.  I have gotten attitude because of my stubbornness, but never have I been yelled at.

But his message came across loud and clear.  He cared about me.  He knows the lack of follow-up care I had received for all those years, but assured me was no longer going to be the case.  And for those of you reading this, and newly in remission, be thankful that you are now getting the follow-up care that you are.

He stressed to me, that we were finally going to get the pain under control.  My health issues will never be about cure, but rather management.  And if you can manage the issues, you can manage most of the other areas of your life.  But if you do not have a grip on the pain right from the beginning, other areas of your being are going to suffer.  The main issue for me as always been how hard I am on myself.  I have been told this by other survivors as well as my doctors.  I am tough on myself emotionally and physically.  I have never wanted my life to be defined by cancer, but I have since turned it around that my life will not be denied by cancer.   I have never wanted pity from anyone, but there is a huge difference between pity and empathy.  Most importantly, I have learned that if I am to survive, I have to accept that my body has not been what I thought for the first half of my life, but my body is still working.  I have limits, and it is when I forget that I have limits, or push my limits so as not to disappoint someone, that is when my body quickly reminds me, and sometimes quite harshly.

Over the decades, I have known so many survivors who have gotten through their lives, managing their issues, and still able to enjoy their lives.  And they all have reasons to feel like I expressed earlier, and they do.

The important thing is that if you feel this way, it is normal.  More importantly, you are not alone.

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The Innocence Of Children


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I was taking a walk yesterday along a local beach, when I noticed a young girl, about two years of age, approaching another girl, probably two years older.  From a distance, I could see that they had been playing separately in the sand.  But just as I continued to walk, I could see that both children were not only different in age, but ethnicity.  To be honest, I do not normally notice “differences,” other than for the point of this post.  I do know that the older child appeared Caucasian, while I am not sure what was the ethnicity of the younger child.  Nor does this matter, nor should it matter.

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As both parents looked on, the smaller child, seeing the older child playing in the sand as well, had picked up her sand bucket and wandered over to the older child.  The mother of the younger child got up from her beach blanket and followed her daughter.  The younger child stood there in front of the older child, and her grandfather as if waiting for the next step.  And then it happened, the mother asked the grandfather if their children could play with each other.

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I am caucasian technically with some Cherokee lineage.  I have two daughters of Chinese descent.  I grew up in a city where I was the “minority,” but somehow managed to get along with everyone.  I know racism exists, through honestly I had hoped that by the mid-century mark of my life, that progress would have been made toward at least reducing it.  And though I normally stay away from political topics on this blog, comments by a media mogul, and then echoed by a certain political party candidate for president, really bothered me.  Headlines still cannot be read without mentioning the color of either the antagonist or protagonist.  But now, even a potential leader of our country is feeding into this.  This is unacceptable.

And I could not help but be sad for these two little girls.  Right now, they did not know that their skin colors were different, or that in our country it makes a difference.  They have not be taught this yet.  But somehow, by the time they start paying attention to the media, the education will still be the same, using “color” to describe the severity of a story.  They will be taught something they were not born with, racism.

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