Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Cancer”

David Versus Goliath


So what is a person to do, when you are positive that you are being wronged, but your pepetrator is not only not your size, but so large in numbers, have infinite resources, and counts on you not to resist?

Much like my days as a child, I faced bullies every day.  I say bullies, because no one ever took me on one by one.  It always had to be a gang.  To this day, I still do not understand why.  I was tiny, I never fought back, I was no challenge.  I was an easy mark for even girls to come after me because I was raised never to retaliate.  Though it was clearly a moral reason as to how I was raised, a clear example of why not to retaliate can be seen in sports.  It is never the first guy to throw the punch that has been witnessed, but the one who throws back is the one to get caught.

My nine years of elementary and junior high school gang beatings accomplished two things.  The first, I have a ridiculous tolerance to pain.  The second, and just as important an issue, I no longer pick my battles, I fight everything.  I surrender to nothing, no matter what.  Neither is necessarily a good characteristic to have.  This behavior often alienates me, misrepresents who I am, and on occasion has resulted in threats of litigative action.

But then again, that negative experience had also prepared me for one of the biggest fights in my life, a battle with Hodgkin’s Disease, cancer.  I did not let it take away my spirit, my fight, my life.

But as I said, I no longer pick battles.  If I even sense that someone is being anything more than courteous with me, anything stronger than a recommendation, I immediately become defensefive.  And with too much time to think about the situation, it is likely that I may feel that instead of working with me, you are working against me.  No matter the size of the issue, if I sense no respect coming from you, I react as if you were one of my school yard bullies.  And I do not mess around either.  Granted, I do not physical, but I will resort to any other tactic to get you to leave me alone.  Some examples…

Imagine, you are a telephone solicitor or even just someone conducting a survey, you have literally just a few seconds to reconsider contacting me before you realize you “dialed a wrong number.”  It may have been the number you saw, or the robot dialed, but it was definitely the wrong call to make.  Every phone call from anyone other than family or friend has an ulterior motive, a strategy, and prepared for my “no.”  And it is the refusal to accept my “no” that sends me back into the “bully defense” mode.  The call is ended shortly after that begins.

Wendy and I bought a dog at a pet store (something we will never do again because with so many dogs that need homes, the last thing I ever want to do is support puppy mills who sell their dogs to pet stores).  When Pollo got real sick as a puppy, as in no breath, tongue out, eyes rolled, and carried him into the vet, as he came back out of the exam room on his own power and tail wagging, I thought I could help the vet by finding out information on his mom and dad to see if there were any cardiac issues.  Their simple refusal to even answer that simple request resulted in my unleashing the PA Department of Agriculture, the USDA, countless news agencies, and even The Peoples Court on them.  There was a good thing that came out of it.  Sadly we found out Pollo came from a puppy mill, but at least now that one was shut down because of all of the investigation.

If you are a manufacturer or retailer that will not back up the product you sell?  You are a bully.

Try to negotiate a labor contract through the media by printing a teacher’s salary publicly (meant to enrage the public?)  You are a bully.  Hence what began my politcal run for the local school board two years ago.

Of course I am a firm believer that a bully in school grows up to be a bully in adulthood.  Instead of the school playground, the environment is the workplace.  But the atmosphere is still the same, bully versus victim, bystanders, and people who do not want to get involved at all.  So in my current job, I spent the first four years fighting against my supervisor who routinely tried to get to work in certain ways, short cuts if you will.  Because I would not, he made things personal with me.  Everyone knew it, but just as bystanders on a playground, no one wants to get involved.  Eventually you take the work home with you, and family and friends no longer want to spend time with you.  But just as I did with my cancer, I survive everything I face and he moved on.

And there are more examples of when I have seen bullying take place in the adult world, most noticeably by our school board over the last few years.  The chances are pretty good that their behavior will show up.  I seem to have taken after a Stephen King character from Storm Of The Century, as I repeatedly quote “give me what I want, and I’ll go away.”  It is that originally posturing that is taken that puts me on the alert, it’s going to be rough.

And now, just as the three rivers flowing into Pittsburgh, I have a similar event occurring right now, unfortunately not as beautiful to watch, but just as dangerous.  Time will tell by the end of the week if I have three more things to deal with, all major.

character from Storm of the Century

A Page From Job


I had finally turned my screwed up life around, when I finally proposed to my girlfriend.  Somehow, somewhere, I screwed things up because my world came crashing down the day that I was told that I had cancer.  I was happy, “was” healthy,  taking care of “man” urges, all things were good.  Because of my then fiancé, I had also been attending church again.  After all, if we were going to be married there, the minister wanted to see us there more than just our wedding day.  He got his wish.

I put a phone call into his office, that I needed to speak to him urgently.  This man of the cloth called me back.  “I’m really busy right now.  The Advent season has just started so my schedule really doesn’t have any room.  I can make some time for you after the new year.  So, I am diagnosed with cancer, the one place that I turn to, my church, can’t make time for me because they are getting ready for Christmas.  Yeah.  I’m sure that my cancer will stop screwing with my emotions for the Christmas holiday break.

I have a quirk in me, that is 100% certain to react when an initial need is not acknowledged and dealt with in an appropriate manner.  Without guidance, I will seek out on my own, and the very first thing to embrace me, is where I will turn.  I had lived a shitty life for that past seven years, but I had turned things around, things were good, now they were shit again.  So my minister did not want to be there for me, I turned to my own bible.  I had heard of a character named Job who basically lost everything and blamed God.  Of course it was some deal between the Devil and God, but Job threw the blame at God.

Job lost his character, his family, his house, and his health.  Job cursed the day he was born.  God tries to set Job straight, and Job continues that his complaints are not only just, but never ending.  He hated his life.  Job speaks again of his innocence and then prays for relief.  Eventually he is convinced that his life will turn around with his faith, and it does.  I do not recall the length of time to get to that point, but I was definitely feeling like Job.  Later through the book, God makes his presence  firm saying that he would never turn away from children .

But when I got that diagnosis, I could help that feeling.  In one fell swoop to have just everything ripped out from under my feet.  Of course I saw the error of my ways, and though still not an openly publicly religiously practicing man, I do still have strong faith.  Or at least at this point, I think I do.  In spite of having the ultimate gifts in my life, my daughters, I find myself at a crossroad once again.  For nearly five years, I have taken one “punch” after another beginning with my emergency heart surgery.  Little by little, the assault on my life has been relentless and merciless.  At moments, I have been able to calm things down, just to focus and steer actions in what was hopefully the right direction, only to get sideswiped by yet something else.  For every action, there are three reactions or “side effects” that come my way.

Currently, I am staring down the “barrel” of  three additional actions that are anticipated to occur within this week alone.  And perhaps knowing that they can and most likely will occur is more stressful than having them sprung on you.  But the only part in my favor, under “normal” circumstance, normal is in quotes because my definition of normal is so understated, I adapt to crisis very well.  When I can anticipate, I can plan and prepare.  I can do better when I am not caught off guard.

This effort will no doubtedly be my biggest to date.  I apologize for the lack of details, not that publishing them is going to change anything.  I believe they will still occur, but until they do, I want to control or at least do what I can to control the circumstances, and the consequences.

Keep you arms and legs inside the car at all times, and wait until the ride comes to a complete stop before exiting.  Hang on, this is going to be a rough ride.

 

Helping A Leopard Change Its Spots


I wrote a short while ago, about being a very picky eater.  At the time, the story was nothing more than just a bad habit that I had.  This is in spite of knowing so many people who have had to make lifestyle changes, or watching year after year of The Biggest Loser and Celebrity Fit Club.  Now, it is my time.  I do not have a choice.

I learned my bad dietary habit when I was young, like three years old young.  Prior to my parents divorce, I had been told that I would anything placed on my table.  But following that event, I then turned my nose up at just about everything.  I do remember from my earliest days, being strictly a meat and potatoes kind of kid.  It is not that I was into junk food either.  I just refused to eat vegetables.

In my teen years, my behavior only solidified,  but it was reinforced by situation.  Unfortunately, I found myself often fending for myself, and whatever my part-time after school job could afford, which basically was fast food.  And that behavior followed me into adulthood.  As I maintained a busy, on-the-road schedule, there was no time to sit down and eat, even think about what I was eating.

A battle with cancer, emergency life-saving open heart surgery, kidney stone, high cholesterol and blood pressure, by themselves would be reason enough to change my dietary direction.  But as I face yet more issues from late term side effects, these issues have a direct impact on the food I will eat for the rest of my life.  I have no choice at this point.

For the last several years, I have been experiencing a “swallowing” issue that results in a choking sensation when swallowing food.  Two years ago, it got to the point once it began to be too difficult to swallow even soft foods.  Desperate to get calories into me, instead of opting for nutritional drinks such as Boost or Ensure, I went for probably the worst caloric shot, Coke and melted Snicker Bars.  For at least two months, this is how I maintained my weight until the swallowing got worse and I adjusted to Cokes and milkshakes.  Then it happened, I could not even get them down without the choking sensation, even water was difficult.

An endoscope revealed some concerns, but nothing that was blatantly obvious.  It was recommended that I quit drinking soda, eat better, the works.  I am not sure what else was done while I was scoped, but my swallowing had been restored.  Late last year, it began to resurface.  More probing would reveal that I have now developed Barrett’s Esophagus and something called eosinophilis esophagitis.  In spite of being on PPI omeprazole, the acid content of my stomach was described by my doctors as “angry”.

So there are concerns with such a high acid content in the stomach, and the increased risks associated with having had radiation therapy, the biggest concern, esophageal cancer.  Barrett’s Esophagus can lead to esophageal cancer.  So now, everything is in my corner to have the best opportunity to at least attempt to prevent anything worse.  The doctors are hoping that the major change to my diet will correct and right things.

It may sound odd for a 40-ish year old man, to need to be told not only what to eat, but how.  but that is exactly what I will need.  I have to eliminate 95% of my diet, and substitute it with 100% of what I do not like to eat.  I cannot allow my weight to crash, or let malnourishment occur.  If I let this happen, as has happened on other occasions when I have pushed my body too far and too hard, I will crash.  In the past, I was able to do the quick boost of calories.  I appreciate the outpouring of suggestions to make the “horrible” food taste good to me.

Fortunately, my daughters have not picked up this habit.  They are both good eaters, and do what they can to get me to eat right, even resorting to the old “double dog dare”.  But for now, here is the current short list of things that will pass my tonsils (there is much more available, I just won’t eat it):

Bananas

Apples

Oranges

Watermelon

Pumpkin

Potatoes

Onion

Carrots

Sweet Potatoes

Lettuce

1-2% Milk

Egg Yolks

Chicken

Turkey

Tuna

Sea Salt

Cinnamon

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