Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Cancer”

Comic Relief Just When It Is Needed


November 2010 - 37

“The human race has one really effective weapon, and that is laughter.”  Mark Twain.

With that, I want to introduce you to one of the most “powerful weapons” in the human race, my youngest daughter, Emmalie.

Typically, a biologically born child will have inherited characteristics of either parent.  But with Emmalie (and my oldest daughter Madison) being adopted, any traits that either daughter share with me, are purely coincidence.  Yes, there is what they have learned from me as they have grown.  Prior to the divorce we spent a lot of time together, doing homework, playing games, and my favorite, holding them in my arms when they were younger.  But their personalities were determined long before I had even met either one.

Through the adoption process, one of the things that I had to supply, was an autobiography about myself.  This would cover everything from my hobbies, employment, family history, and such.  Once all of the personal and legal information had been gathered and organized, the paperwork was then sent to the country of China’s Adoption Affairs office where the adoption process would continue through their end.

My dossier would go into a department those of us in the adoption world know as the “matching room.”   Where by some magic, dossiers are compared with profiles of at least ten children, most of them toddlers and babies.  At this point, a child is “matched” up with their parent.  The result is pure magic.

Both of my daughters share many of the characteristics and interests that I possess.  Only one characteristic either daughter have that I do not, but their adoptive mother does have, and that it artistic hands.

But Emmalie possesses one of the most important traits that I have, a sense of humor.  This child is notorious for causing an outburst of laughter at just the right moment.  She is a goofy and quirky little girl.  The smile that follows resembles the young child dinosaur in the 1980’s television show who regularly blurts out “gotta love me.”

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I had taken the girls to see Shrek 3 (all three movies were great and entertaining).  At one point during movie #3, spoiler alert, Fiona’s father dies.  However, prior to his demise, he had been turned into a frog.  And of course the punch-line that followed… here it comes… “he croaked.”  Well of course, everyone the theater had sat in silence at the king’s passing, in spite of the symbolic comment.  Everyone except for Emmalie, who immediately burst out laughing at the joke itself.

But that is who Emmalie is.

It should come as no surprise that during one of the more difficult times in all our lives, that once again, she would provide her patented comic relief.  During one of our recent nightly conversations, her spontaneous humor knocked me off my “chair.”

Emmalie routinely asks me questions that have nothing to do with nothing, and though she claims there was no motivation behind her next question, I actually do believe her to a degree.  The divorce has been difficult for all of us, but my estranged wife and I are doing what we are able to keep the impact on the girls to as minimal as possible.  And though I believe Emmalie felt she was just throwing out one of her zinger questions as me, there is a part of me that knows in my heart, perhaps there was more to her question than she was letting on.

“Daddy.  I have a question.  Are you going to get married?”

Besides the legally obvious situation, that my divorce is yet to be final, marriage is the last thing on my mind, if ever again.  This was my second marriage to have failed, and clearly, the process has left me with no desire to ever share that commitment ever again.

But I am in a relationship again, and so is my estranged wife.  All four of us, seem happy in these new relationships.  So I could not help but wonder, if perhaps my youngest had overheard conversation from my ex and her boyfriend about getting married.  I know I have never brought up marriage.

“No… Emmalie, Daddy is not going to get married.  Why do you ask that?  Is mommy talking about me getting married or is she thinking about it”

“I was just wondering Daddy.  It seems like you are really happy.  And it would only make sense that if you were happy, then you would get married again.”

December 2009 - 35

If only it were that simple my precious little angel.  But as I thought about her question, I realized that there was more to it than just Emmalie seeing her daddy happy with someone else, or her mother happy with someone else.  Emmalie is more wise than what she realizes, and for those who receive the gift of her wisdom, we are truly blessed.

It has been so long since Emmalie or Madison have seen either of their parents smile.  And now our daughters are seeing bother their father and mother smiling again.  Emmalie has let me know that she is glad to see me smile again.  But the smiles do not have as much to do with what it happen currently, but rather what we were dealing with in recent years, and the effect it had on our girls.

I love you both so much Madison and Emmalie.

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Finding Something Good Out Of Something So Tragic, Offers Small Consolation


Michael 1

I first wrote about Michael Scheidemann’s story back in September (see “Meet Michael” in the post archives or “Michael” in the pages section).  It is a tragedy that I will always believe could have been prevented.  I am usually objective and professional about my comments.  But with my experience as a long term cancer survivor, and the knowledge of side effects from treatments, and the technology available to monitor and detect issues related to those side effects, yes, I believe without a shadow of a doubt that his death, could have been prevented.

Michael 7

The picture above is when I met Michael about a month after he finished his treatment for the same cancer that I had, Hodgkin’s Lymphoma.  Michael and I shared a lot of similarities.  Our birthdays were just a day apart.  I was the same age as Michael when he was diagnosed.  And then, what should have been for the better, and one would assume due to the advances of medicine in the decades since I had been treated, Michael was treated  with a standard treatment that exposed Michael to half of the chemotherapy drugs that I was given, and did not have to go through any radiation therapy.  He sailed through his treatments without one complaint, and with only one visible side effect, lost his hair.

From this picture on, things were supposed to be in one direction, survival, living his life in remission of one of the more curable forms of cancer.  That is not what happened.

Soon after this picture was taken, it was discovered that one of the drugs that both Michael and I were given, had caused irreparable damage to his heart.  At the time, all the family could do is move forward, fix what had been failing, not look back at what had been done.  Extraordinary measures were made to save his life.  But on January 6, 2014, his body could not handle any more trauma and he passed away at the young age of 24.

Michael 2

For the purposes of this post, I will discuss my comments about what went wrong on another post.  Because as I promised the Scheidemann family, I believe, and have confirmed that a simple test could have been performed, and should have been performed since a drug with known possible cardiac side effects, could have determined the damage that had begun as soon as the first or second dose of the drug.  With the discovery of any damage, and clearly there was, a different treatment regimen could have, and should have been used.  And if I can do anything for this family, I will help them prove this so that Michael’s death will not be in vain.

It is an unwritten expectation in life, that it is only children, who are supposed to bury their parents, not the other way around.  I have never experienced the loss of a child, nor do I ever hope to.  And I am certain that the loss of a parent pales in comparison.  As a parent, we feel we must protect our children and do everything we can, and that in death of a child, somehow a parent feels as if more could have been done.  Regardless of how many times I have spoken with Michael’s mother and father, they will always carry this burden, in spite of me reminding them of all the things they did do for him.  But you see, there is no “prior experience” with having cancer.  Once you are thrown into the fight, you must be focused to get done what needs to be done, not think about all the other scenarios.  Everything that happens during this battle, is nothing more than cause and reaction.  We do what we have to, and hope that is good enough.  It has to.

Following Michael’s passing, his family did something extraordinary in Michael’s memory.  Michael was a student at Florida Gulf Coast University, needing just six courses to graduate with a degree in political science.  He had actually registered for classes that he had delayed to undergo his chemo treatment, and was ready to begin again, before everything went horribly wrong.  The family put two plans of action into play in Michael’s memory, one for Michael, and the other “from Michael.”

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Earlier this year, FGCU had notified the Scheidemann family that Michael would be given his degree posthumously.  His older sister Alyssa, also and FGCU alumni, accepted his degree, in his memory.

In the meantime, the family was hard at work, establishing a memorial scholarship fund, in Michael’s memory.  The scholarship was set up to assist students who faced similar challenges as Michael.  Through determination of the family, and the dedication of those who knew of Michael and his family, the Michael E. Scheidemann Inspirational Scholarship Endowed Fund was established, which will now award money to a deserving student at FGCU, to assist with college expenses.

A very special luncheon was held yesterday, to gather recipients of the school’s scholarships, and the sponsors who made the scholarships possible.  Yesterday, the Scheidemanns got to meet the young student, who is the benefactor of the first Michael E. Scheidemann Inspirational Scholarship Endowed Fund.

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Make no mistake, while the rest of us are truly touched by this gift presented, it by no means takes away the pain that this family feels every day, without their son and brother, Michael.  But they are extremely happy, that they have been able to help a young man, afford his education.  Michael would have wanted it this way.

If you would like to make a contribution to this scholarship, especially with those interested in making donations before the end of the year, please consider the Michael E. Scheidemann Inspirational Scholarship Endowed Fund.  Here is the information:

send to the attention of:
Christopher Simoneau

VP Advancement & Executive Director
Florida Gulf Coast University Foundation

10501 FGCU Boulevard South
Fort Myers, FL    33965

Write Michael E. Scheidemann Inspirational Scholarship Endowed Fund in the Memo Section of your check.

 

The Effects Of Divorce On Children


January 2009 - 29

I would NEVER, EVER, do anything to harm my daughters.

I realize that judgment will always reign over understanding when it comes to dealing with a decision on filing for divorce.  Especially when children are involved.  And although the ages of any child of a divorcing family may vary in their response, the hurt the child experiences is the same.

One of the first things I was taught in church was the 10 Commandments, one of which, “love mother and father.”  And the great thing that is supposed to happen, regardless of a commandment, is receiving a child’s never-ending love, whether it is a single parent situation, two parent situation, or multiple parents.

But there are two instances of comments that upset me, one which shows ignorance, and the other, selfishness.

The first comment, “haven’t they been through enough already?”  This question is usually directed at the fact that my daughters are adopted.  Regardless of domestic or international adoption, adopted children definitely have had to experience the loss of their parents, or perhaps the break up of their family.  That is true.  And only time will tell in their future, if their mother and I provide them with enough as they grow older, to understand their lives.  Of course, add in all the other drama that has existed in our household with all the Emergency Room visits I have had, and the children have witnessed, our daughters have been through a lot.  But one thing is certain, in spite of the divorce situation, I love them.  Their mother loves them.  And both daughters love us unconditionally.  Therefore, it is going to be how my estranged wife and I deal with the divorce, and the expectations, that will determine if that love continues to be unconditional or not.

The second comment, “you should have tried harder.”  We kept the problems of our marriage inside our home.  And inside our home, were only the four of us.  But as the problems grew, so did the tension, the alienation, unfavorable reactions, and eventually resentment.  The environment that was developing would have been awful enough for a childless marriage to endure, but to have two small children witness the daily struggles and tension between their parents, was unfair enough to subject them to.  But to stay together with a spouse, just because a friend just “can’t imagine” us getting divorced made no sense, and definitely was not in the best interest of the children.

We tried counseling on at least two occasions, fairly long term.  But the counseling was not enough just dealing with healing us as a couple, but unable to deal with personal baggage and compounding issues as well.  We would confide in family and a couple of mutual friends, but no one would seem to have a solution.  But the tension became more of an issue when I was confronted one evening by my oldest daughter, following a berating by their mother, “Daddy, why does Mommy yell at you so much?,” that then I realized just how bad the environment was affecting our daughters.

Please understand, we had more than relationship issues.  Those were only an effect of the root cause, and number one reason why couples get divorced, money.  But the last year of our “marriage”, and hard for me to believe, was the most difficult struggle we faced to endure, and over the prior seven years, we had been through a lot.  There just did not seem any chance to get ourselves to do what was necessary to correct our issues.

That environment was hard enough on our children to be exposed to.  And we did our best to protect them from the issues we faced.  But we both knew it was not enough.

Over the next ten months following my filing for divorce, we both followed our attorneys’ advice, to remain inside the home, so that neither of us could accuse the other parent of abandoning their children.  Seems like a silly thing for either of us to accuse each other as we clearly love our daughters, just not each other any more.  Yet the seed of distrust had been planted, and so, just as in the movie “War Of The Roses,” we remained living in the house with each other.  I made recommendations to my estranged wife as to alternatives, that would not increase our expenses, and in spite of giving my word not to pursue abandonment, we both dug our heals in, and were going to stay in the house together, until the divorce was resolved.

Now for those who say, “we should have tried harder,” that time period would have been great to attempt that.  But instead, what happened only made things worse.  Interference by those outside the home were making it impossible for any reconciliation by the constant harassment and threats, all under the guise of “free speech.”  But clearly the intent was to make sure we did not save our marriage.  Inside the house, that behavior only made things more difficult.  Alienation is one thing, but isolation is another.  For nearly ten months, I slept in a spare room, actually, I stayed there, when I was not at work, or out and about on business.  I showered at work, and I rarely ate in the home.  I allowed their mother to roam freely around the house without any interference or confrontation, while I remained confined in this room.  This is what the children saw day after day.  There was no improvement in the relationship between she and I.  It only got worse.

You tell me, how much harder should we have tried?  How much more should the children have endured?

Today, we are both dating.  I cannot speak for my estranged wife, but I know that I have no intention of ever getting married again.  But the important thing, is that our children like both individuals we are now involved with.  And this is very important.  Because they are witnessing their parents being happy again.  This is something that they have not seen in a long time.  Sure, we are not happy with each other, but around our children, we are happy again.

There is an expression, “husbands and wives get divorced, not children from parents.”  And I have always emphasized that no matter what happens between a husband and a wife, they will forever have the responsibility of co-parenting their children, forever.  And for many, it is easier said than done.  And I have seen some of the biggest parental rivalries co-exist in some of the most dire circumstances that give me hope that some day, some how, common sense and  reason will allow and nurture the co-parenting roles.

There are still some very difficult days ahead as the divorce process continues.  And each day, our daughters grow older, and more aware of what is happening.  But since the day that we have been officially separated, we have both been in control of ourselves for what our daughters see and hear about the divorce itself.  From my end, I have shown the girls that they still have both their Mother and Father.  I have shown them that they have a home with their Mother, and a home with me.  I have done what I can to build the same foundation with them, as when I adopted them.  They will never hear me speak ill of their Mother, no matter what comes from the other side at me.

Every day is a struggle to move forward, but I can no longer waste energy on whether the situation is “fair” or “tried harder.”  Both of us, as parents are trying to move forward.  For myself, that means continuing to find a way to support my children as soon as that opportunity arises.  I have promised my daughters, that I will make things better for them.  I know what it takes to get through a difficult situation having survived cancer, a near fatal heart episode, and two other near fatalities.  One thing is for certain, I do not give up.  I do not know how.

I love my daughters, and they love me, and no one, NO ONE can ever take that away from me.

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