Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Cancer”

Valentine’s Day Is What You Make It


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Way back in elementary school, we were exposed for the first time, to the lack of effort and commitment to celebrating Valentine’s Day.  Of course, for many, this was also the first exposure to rejection.  For me, our art class time was dedicated every year to making homemade Valentine’s cards to be distributed to the “class” mailbox that had been created in our classroom for just this occasion.  Other years, we got even craftier, creating our own Valentine Mail Box out of a shoe box so that our classmates could watch each other distribute their cards to everyone, well almost everyone.  Needless to say, I did not care about Valentine’s Day in elementary school.

In my later school years, I have to admit, Valentine’s Day did mean a little bit more, as actual interacting with someone meant developing feelings, so there was this “feeling of love” that could be associated with celebrating Valentine’s Day.  For me this carried into adulthood.

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I do consider myself to be a bit of a romantic.  And I can admit that there are at least two that will disagree with that statement.  But if they dug deep down into memories through the relationships, they will find that at least for part of the relationships, there was romance.

Over time, I can admit that I have become a bit of a cynic, that Valentine’s Day has become nothing more than an overcommercialized event created by Hallmark.  My attitude has always been that to celebrate love, you should be in love.  And if you are in love, then it should be celebrated every day, not just on February 14th, so why single out a particular day?  Most people will celebrate an anniversary of their relationship whether it be by weeks, months, or years.  So again, why create another day, other than to profit off the smitten?

It is this cynicism that has provided countless television episodes dedicated to the simplicity that a lot of men have towards Cupid’s holiday.

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All that is often expected, and I am emphasizing expected, is that perhaps flowers and candy are remembered, maybe a romantic dinner, and of course… wink, wink… some romance.

But as I said, I believe myself to be a romantic.  I have never had any difficulty coming up with ways to woo anyone special in my life.  Three marriage proposals (only resulting in two marriages) all were orchestrated romantically from the actual act of asking the father to marry his daughter (even in her middle age I did it) to dressing up as a Disney character delivering balloons with one balloon asking to marry me (she had no idea I was in the costume).

Last Valentine’s Day was a day that I would rather forget, and not because of being in the process of my second divorce, but it was around that time that we discovered that my father’s cancer had become terminal, and I would spend the next many months by his side, acting as his medical proxy.

So following my father’s passing last May, and with the process of my divorce still continuing, and missing my children, I have not felt like celebrating holidays in the traditional sense.  Which kind of makes this year’s Valentine’s Day have a special meaning to me once again.

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Josephine and I have gone through a lot of tragedy and stress over the past year.  I lost both my best friend of 14 years in my Golden Retriever and my father who was not just a parent, but a friend and confidante.  Josephine had just lost her son, who successfully completed his treatments for the same cancer I once dealt with, only to pass away from complications of a side effect from one of the drugs used to put him into remission.  Needless to say, neither of us have really put any heart into celebrating anything.

But that is not to say that we did not recognize the holidays.  Because of other issues, celebrations have been kept quite humble.  Christmas Day and New Year’s Eve were not about gifts and late night partying, it was about spending time together, not just ourselves, but with others who were spending holidays alone, or also were looking for other ways to spend the holiday.

Valentine’s Day will once again be recognized by me after a one-year hiatus.  But unfortunately for Hallmark stockholders, it will not be their benefit.  No, this year, Valentine’s Day is all about spending time with someone who wants to spend time with me, and me with her.  We like each others company.  And we both comfort each other in dealing with our losses, and other pains that we are dealing with emotionally.  It is because we both know that things will get better for both of us, that this holiday will probably be one of my most memorable Valentine’s Days because it is truly about love and caring for those, not just in their happiest and most romantic of times, but even in the darkest days of struggles.

 

World Cancer Day 2015


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After 24, years, and 11 months, my website is on its day-to-day countdown to a very important day for me.  But today is a big day on its own.  Today is World Cancer Day.

Please, today, take a moment to think about someone you know, battling this awful disease.  Call them up on the telephone and just say “hi” and let them know that you are thinking about them.  If you are friends with someone on FB or some other social media site, send them a message or inspirational photo to give them a boost that might just be what is needed at that moment.

If you have lost someone to cancer, spend a silent moment, thought, or prayer for the one that you mourn.

Today is also a good day to start thinking about what you might be able to make a difference in the world of cancer.  The Relay For Life, Light The Night, Susan Komen breast cancer walk, and all of the other fundraisers are just some examples of how you can make a difference.

I am approaching my 25th anniversary of the completion of my treatment for Hodgkin’s Lymphoma.  There are so many out there still fighting, and I have lost too many.  But when I think about cancer, it is not just Hodgkin’s that has affected my life, but all cancers.

I cannot possibly name everyone that I am thinking about on this day.  But there is one person that I want to recognize.  And it is because of her attitude and belief that not only got her through her journey with cancer, but it is her fighting spirit that is going to get her through yet another major life challenge, recovering from a horrific car accident.  She has some major hurdles to overcome, but Kristi, if anyone can get through this, I know that you can.  You have such a strong family, strong faith, and strong spirit.  On this day Kristi, I am taking everything that I know about you, your battles with cancer and survival, and sending as many thought and prayers for nothing less than a 100% recovery.

Something I Will Not Apologize For


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I have developed a very bad habit lately, and it is a side-effect of my having filed for divorce.  There is no pun intended, but I have begun “snapping” at people trying to take my picture.  It should be a harmless enough act, just taking my photo, and for the recipient of my displeasure, you would have sworn I was Axle Rose going after a paparazzi.  Do not get me wrong, I have had plenty of photos taken in my time, and though the model has not always been the best subject to work with, I have normally never objected.  When it came to photos with the family, only when it came to my daughters, did I voluntarily venture to the other side of the lens.

Years ago, I suffered a left wrist injury that left me on a leave of absence from work for 9 months.  It was a silly situation really.  It was a work-related injury that my employer decided to deny.  I won my appeal, and my lost pay, in a sense ending up with a 9-months vacation instead of accommodating my health restriction, allowing me to complete work that I was more than capable of doing.  But that is not my point.

During the earlier part of my battle, I made the decision to give one more effort to convince my employer to give me one more chance and accommodate my restrictions before being sent home.  What I got in return taught me a huge lesson.  With the office door closed, the director of my department (3 levels up from my supervisor – I was not wasting time), was giving me a warning for my activities outside of work.  He made a direct implication about me playing softball for our work team.  “You know Paul.  If I were you, I would be careful about what you are seen doing outside of work and your home.”  I looked confused at him, because I was injured and was not doing anything to go beyond my “use only of one hand” restriction.  “You have been seen playing softball.”  I cut him off right there.  I knew that his secretary was listening through the closed door, and I replied with this:  “Excuse me, but I am not playing softball this year specifically because I was injured before the season even began.  Now I did play last year, and I know your secretary who is probably listening at the door right now, took pictures of us playing last year, but I want to warn you, I am 20 pounds lighter and my hair is much longer than what the picture would show.”  End of argument.

It reminded me of the old school days when we would call out sick from school.  You could not get caught out at the movies or down in the arcade if you did not go to school claiming to be sick.  And the same goes for employment.  Which is what made my next incident even more baffling.

I had just been released from the hospital in April of 2008, after having emergency double bypass for my heart.  My chest wall still raw from being cracked open for the procedure.  Clearly, I would not be returning to work any time soon until healed.  I still had weeks of cardiac therapy to go before it could even be considered.

But my orders were clear.  I needed to get at least some walking exercise in each day.  And so, with my children up early, I made my first walk, up my street, around the corner, walked halfway up that street, then turned around to head back home.  I soon became aware of the time of the morning, as a couple of cars that had passed me, recognized me, and honked their horns at me, I thought to say “Hey!  Glad you are okay!  Get well soon!”  What they did next was shocking… and disappointing.

At least one of my co-workers reported back to my employer that I looked “great”, I was walking “fine.”  There was no reason I should not be “back at work.”  Now, not everyone knew immediately the extent of the surgery I went through, but management knew, which is why what made their reaction more difficult for me to understand.  I began to receive pressure to return back to work, by being forced to submit extra documentation to prove that I needed to be out longer than what my surgeon had determined.  Imagine, my employer felt that I should be back to work sooner than the doctor who performed my heart surgery and made the determination of when.

I have never been one to play “hooky.”  I am a huge believer in Karma, so I do not like to tempt fate.  Do the right things, and you have nothing to worry about.  And I still believe that.

However, with today’s media, and let’s face it, I am really a social-driven person, I do not feel a need to be in control of my exposure, because I do not do anything should ever lead to any kind of questions.  I am not worried about being “set up” because I am not doing anything wrong.  But as prior experience has taught me, simply planting a thought in someone else’s mind, can cause enough bother to inflict damage to a reputation.

Both my estranged wife and I have moved on since my filing for divorce.  We cannot talk to each other, unless it has directly to do with the children.  One of us has a preconceived notion about the reason for the divorce, the other, knows the truth.  But just as in our later years of the marriage, we did not talk, we could not talk.  And with us living a great distance apart from each other, only more assumptions end up being made.

But like I said, I am an open book, a simple man, “what you see is what you get.”  I want only one thing at this point, and that is to be able to spend time with my daughters.  I want more pictures taken with them.

Earlier this year, I actually had to “unfriend” and “block” people from my Facebook page, because they were sharing what otherwise would have been considered harmless pictures.  But like the incidents mentioned above, those photos were only used to affect my character in a negative way, which I quickly addressed and proved otherwise.  And though my Facebook page is a little more controlled with those who have betrayed me banned, I know, that most likely, someone will take another photo out of context, leaving me have to explain myself yet again.

So to those who will be on the other side of the lens of the camera, I apologize in advance.  I mean no harm.  And I would love to have a real nice photo taken of me, but for the time being, even a photo of me tying my shoe would somehow be used against me if it was published on the internet.  I do not mean to “snap” at your for taking a simple and harmless picture where I might be smiling, those “proving that I have no concerns about my divorce”.  I simply do not want the hassles.

And I know, as I have been consoled several times, I am simply living.  I am not doing anything that pushes my body’s physical or physiological limits.  I am not doing anything wrong.  I am blessed to have a beautiful area to live that is relaxing to me at the end of the day as I try to gather my thoughts.  I enjoy being able to listen to music, and sing music again, and I get to do it because it is free.  As my friends try to encourage me, I have nothing to be ashamed and am doing nothing wrong.  Let me make one thing perfectly clear, my current lifestyle is not what I want because I miss my daughters terribly.  And the sooner I can get past all the nonsense, the sooner I will get to spend more time with them.  If only more time and effort would be put into moving forward, instead of fighting to prove what does not exist, closure for both of us would happen much sooner.

The sad thing is, because of all the nonsense, when the final decree is made, I honestly do not believe that the reason I filed for the divorce in the first place will even be addressed, by anyone.  It does not matter except to that one person.

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