Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Adoption”

30,000 And Counting


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I woke up to a surprise this morning.  It should not have caught me off guard as I knew it was coming.  But there is something surreal about actually having achieved this number.

Paul’s Heart hit over 30,000 views last night following the last post, “When A Door Opens…”.

I sit here humbled.

I started Paul’s Heart with the goal of trying to reach cancer survivors to supply information and advocate for care.  Eventually I included issues concerning my life as a survivor and the many issues I face including health, financial, and relationship.  I discussed the many challenges of parenthood from a survivor’s perspective.  And now, I must also include facing divorce for the second time.

But here are the numbers since I started Paul’s Heart:

5 publications in Memorial Sloan Kettering Cancer Center annual Anthology

1 live performance from the above mentioned anthology

several newsletter articles published for Memorial Sloan Kettering Cancer Center

too many cancer survivor speeches to count

565 posts on Paul’s Heart with another 300 drafts started

40 pages (most popular posts saved as a page for convenience)

2 books in the beginning stages

But perhaps the biggest and most important numbers are as follows:

26 years cancer free of Hodgkin’s Lymphoma

2 beautiful adopted little girls that at one time I thought parenthood was impossible

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To all of my readers and followers, I am far from finished.  Thank you for reading.  Thank you for your encouragement.  Thank you for your support.

Paul

Once Upon A Time


Each year, I write a chapter that gets published in an annual anthology, called “Visible Ink”.  This book is published through the volunteer writing program of the same name, through Memorial Sloan Kettering Cancer Center.  This is my fifth submission.  I hope you enjoy it.

 

I believe in miracles. In my life, I have been blessed with survival of some of the most grave illnesses from cancer, to cardiac disease, and sepsis. And yet, I would still consider the fact that I have two beautiful daughters in my life the biggest miracle of all. You see, I never expected to see this day once I had received the news that I was diagnosed with Hodgkin’s Lymphoma.

One of the first things I told my fiancé when I had been diagnosed back in 1988 was, “I will understand if you want out of the marriage. It is safe to say that we won’t have the fairy tale marriage you grew up hoping to have.”

Boy, did I really underestimate that comment. When I said that, I was thinking only of all the medical appointments, the treatments, and even the possibility that I might not survive, and she would become a widow as quickly as a bride.

One of the reasons that we were getting married was to have a family. But it was not until after my treatments concluded that “family” had even become a thought. I was only concerned with beating the “beast”. By then, it had become too late, or so I had thought.

I underwent “sperm testing” prior to beginning my treatments that had determined I did not have enough viable sperm to make “storing” worth the money involved. It could have been all the stress that I was under that presented that low count, or any other reason. But the fact that I was to start treatments soon, because when it came to treating Hodgkin’s, timing was important. I could not wait for better results. I was crushed.

A year following my treatment, television had begun a strange course. Several shows were seeming to focus on creating a family, unable to conceive, turning to alternative methods. Unfortunately, my wife (now ex #1), had decided that “family” was not going to be in our plans any longer.

Wife #2, knowing my fertility issues, had known in advance, that if we were going to have a family, we would have to seek science to assist us. But it seemed that too, she was having fertility issues as well. There was also a financial risk to consider.

I had accepted my fertility issue more than a decade earlier. This was a new situation for my wife. Simply put, as I posed the question to her to consider, “do you want to have the experience of giving birth, or do you want to be a mother?” With the resources we had left, we could only have one round of in vitro, and if that failed, be left with no other opportunities. But, with adoption, a child coming into our family was almost a guarantee, well, sort of. There was my health history that had to be dealt with, because our society loves to discriminate against cancer survivors.

We attended an informational meeting on adoption, and fell in love with a little girl named “Lily”, who had just come home to the US from China. Financially, it would be one third the cost of a domestic adoption, and all the country of China wanted to know from my doctor, was if I was expected to live a normal expected lifetime. Which my doctor believed without doubt.

On March 14th, 2004, I adopted my oldest daughter. And less than five minutes of her being placed in our arms, we decided to adopt another daughter, also from China. Our youngest daughter was placed in our arms on February 6, 2006. And there was the “fairy tale” dream that I had, of becoming a father after all.

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But my fairy tale is not ending there. Nor has my life post-cancer. As a long term survivor, I deal with a lot of issues from late developing side effects, which one of those, almost cost me my life. But that event brought to the front, the need for care for me, that I was unaware of as necessary, and had been ignored for so long.

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That care brought me to Memorial Sloan Kettering where the most caring, most experienced team of professionals was put together by me, to give me balanced post-cancer care, to… as Dr. Oeffinger put it, “to make sure that I see becoming a grandfather.”

Not even since that original diagnosis, had I even thought that I would be here in the new millennium, let alone being a father, but having thoughts of becoming a grandfather. And with my daughters only being age 12 and 10, I am hoping they wait a long time. But the life we have ahead of us right now, I am glad to have that chance. And that, is a miracle.

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Celebrating Someone Else’s Milestone


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It is funny, having a conversation with my “tweenage” daughter just a few days ago, and then confirming it yesterday, turning 13 years of age, there was no magical transformation.  She was still going to be my “Ting Ting”, a nickname along with a few others that I call her at times.  She was not going to possess any super powers other than the charm she already possesses.  There were not going to be any new special privileges given to her.  So after wishing happy birthday to her, I asked her if she felt any different officially being a teenager.  She said, “no.”

But what Madison fails to realize, is that her turning 13 years old is really a big deal.  She may not realize it, but as her father, I certainly do.  She may be turning her attention to her next milestone, allowing her to be eligible to drive, but as she looks to the future, I am looking at the past.  Madison turning 13 is really a big deal.  It is certainly a big deal to me.

Unable to have biological children due to my treatments for Hodgkin’s Lympoma, it was an opportunity by the country of China to allow what no one else was willing to give a cancer survivor, a chance at adoption.  My cancer survivorship was no issue for Madison or her sister, who was adopted a couple of years later.

But my daughter’s birthday is also reminding me of another issue concerning my health.  In 2008, I officially became a cancer survivor dealing with a lot of serious, permanent, and progressive health problems.  And as my health was turned over to one of the top hospitals in the country for cancer and survivorship, I met the doctor who would spearhead my survival with one goal in mind.  And I quote the words I will never forget from Dr. O.,

“I can’t stop the things that are happening to your body.  I can’t reverse the damage that has been done.  But what I can do, is slow the process down.  I want to make sure that you not only see your daughters graduate high school, but college, maybe if they get married.  But I want to help you see your grandchildren.”

It seemed like an odd conversation at the time.  After all, my oldest was only around 5 years old.  But I had just survived a near fatal heart episode, and with awareness, and surveillance, and history not on a survivor’s side when they do not receive the proper medical attention, I knew that Dr. O. meant what he said.  He wants to make sure that I see my daughters grow well into adulthood.

I am not worried that my oldest turning 13, means that a clock is running out for me.  Quite the contrary, Dr. O. is in fact doing everything he can to make sure that my health stays solid enough to see the ultimate milestone for me.  But in the eight years since, while it has not been easy getting to see Madison’s special birthday, I know that I am doing all that I can, and Dr. O. is doing all he can as well as everyone else involved in my care to make sure that I continue to see more birthdays ahead for both of my daughters.

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