Last evening, I had received news, that a fellow long term Hodgkin’s Lymphoma survivor had unexpectedly passed. If you have followed my blog, I have written about the many health issues that we face, that for normal healthy people to overcome is not as risky, but because of our complicated exposure to extreme levels of toxicity of treatments decades ago, there are times when the body just cannot take anymore.
I have been blessed over my survivorship to have met so many others in similar situations like me, whether it be in person, or on-line. Some I connect with more often than others, a lot of that having to do with similarities of symptoms and diagnosis.
Besides our similarities of Hodgkin’s and long term health issues, she also resided near where I used to live. This served as a common “ice breaker” to open conversation about any health struggle we were having. MaryAnn was a loving parent and grandparent, something I am half-way through my journey currently (and am hoping to wait on the second part for a bit longer). As a friend on social media, I saw all the wonderful doting on her grandchildren. She was a very proud and happy grandmother.
She loved to travel. And if there was a second most favorite topic for her after her children and grandchildren, according to her social pages, it was animals. MaryAnn loved animals, a lot.
But as long term survivors, we deal with a lot of serious moments at times. And we all have our own defense mechanisms to get us through each of those situations. And honestly, that is what I am going to remember most about MaryAnn.
She very rarely posted her actual photo as a profile picture. But seemingly every day, she would post some sort of characature, often reminding me of claymation, of doll-appearing characters, in various display. Some would be comical, serious, and honestly, some a bit twisted. But I often looked forward to the frequent notification of the profile picture change. It was always entertaining.
As I said, this was not something that was expected to happen, yet is something that survivors have learned to expect. And when one of our survivors passes in this manner, it is a stark reminder to us, to make sure that we take advantage of every day that we have. Her mother had just passed away less than two weeks ago, and prior to that, she was experiencing some common symptoms (to survivors anyway), that would be addressed. There had been no indication that she was in dire trouble with her health. Only in the past few days did it appear it was going to be much more serious.
MaryAnn will be missed in our “family” of survivors. And I will miss the anticipation of the “profile picture of the day” from her. She will me missed.
We were in the single digits of cases of Covid19, when I began mentally preparing for what was likely ahead. That was January of 2020. Being immuno-compromised, it is in my best interest to know about outbreaks that can impact me, and the best way to prevent contracting a virus or at least protect myself as best possible.
It has been over a year and a half, twenty months, that I began precautions and planning. Soon after, as the recommendations came, to wear a mask, keep a certain distance from others, and for the life of me, I will never figure why we needed to be reminded of this, but to wash our hands.
Just as the express lane of a highway gets you to the same destination as the other lanes being travelled, I got my information from a medical “highway” of knowledge, my doctors, a.k.a the express lanes, and the rest of the information from reputable sources. And most times, like the both lanes of the highway, both of my sources got me to the same place, occasionally there were some detours, and when that occurred, I stayed in the express lane with my doctors.
What I am going to state now, is not fact, well at least not to you, reading this, it is purely anectdotal, a story, unless you personally know me that you can confirm this, it is not science, so other than my words, there are no facts. But I can tell you, this is the truth. Twenty months, wearing a mask, distancing, washing hands, staying away from indoor activities as best as I can, I have not contracted Covid19 (as I quickly run to knock on wood). In other words, I took the advice, that my doctors and others recommended, and used it, and it has been successful to this point.
Hence, the first equation, 1 + 1 = 2. It is something that can pretty much be agreed on. And as simple as this equation is, it should have been this simple in dealing with Covid19, just as we had with SARS, swine flu, MERS, and others. Instead, a different kind of math occurred, resulting in an argument equivalent as saying 1 + 1 = 3. While the calculation is clearly wrong, it is close enough to have a strong debate, or a hot argument. Sides soon emerge, agreeing with fact, that the correct answer is 2, while others cling to not just the possibility of the answer being 3, but willing to make it work.
This kind of argument was troubling, because it would lead to where we are today. What would have otherwise just been another virus that we would have had things in place to deal with, politics was introduced into a health crisis, where it had no business being put. The fuse lighting that stick of TNT? A president only liked by half of the citizens, rushing in quick defense of the president before the first attack from any opposition. Realizing this was going to be more serious than anticipated, and this is on video footage forever, the president downplayed the seriousness from beginning on, even as cases climbed and people died. I do not want to get lost in weeds here, because this stage is not my point. My point was, just as the erroneous middle equation, things were close enough to make the argument, and keep it going, and sometimes, quite angrily.
But here we are, twenty months later, and like an Abbot And Costello routine, a different type of argument has emerged, and now it is a matter of, is this the type of argument you want to keep having, because just as absurd as 1 + 1 = 5 is, so is where we are at in August of 2020, and there seems to be no end, although we have the methods and the means to do so.
The problem with the Abbot and Costello routine, is that Lou Costello actually made it work, three different ways. The video is much more compelling than me explaining it and showing pictures, but he could divide 7 into 28 thirteen times, multiply 13 times 7 to get 28, and add 13 seven times and get 28. And this was before “new math” came along.
But this is where we are today with Covid19. There are people making a similar argument style to Covid19 as Abbot and Costello did with math. Just like that, likely to make you want to pull your hair out.
Science is not perfect. Science is not the truth, it is about finding the truth, and that means that there will be mistakes along the way. I know way too many people who did not take the precautions that I did and came down with Covid19, and too many who died from it. I also know some who did follow the precautions, and whether fatigue or letting their guard down, came down with Covid19 as well. And even fellow Hodgkin’s survivors with issues similar to mine, came down with Covid19, amazingly, hardly any casualties that I am aware of anyway. And that I will attribute to the way we survivors are more concerned about our health given all we have gone through.
I am truly disgusted at the efforts at this point, which now have our situation heading way worse than last year. Seriously, referring to a mask as a muzzle? Do those making that argument even know what a muzzle is and what it is used for? Not even close. Arguing that freedom and liberty are lost? Get out of here. I am as free today as the day I was born 55 years ago. The dichotomy between arguing over public health and liberty/freedom is ridiculous, as liberty and freedom have nothing to do with surviving Covid19.
But like I said, after arguing for twenty months that 1 + 1 does not = 3, I neither have the patience or the will to argue with anyone trying to make sense that 1 + 1 = 5.
The only correct answer to the equation of 1 + 1 = 2. If we are to get through Covid19 once and for all, wear the damn mask. Get the damn vaccine. Stop spreading the virus, keeping distance and washing hands. We were once at the point just a month ago of 11,000 cases a day after being over 200,000 a day back in the Winter. We are now back over 130,000 and skyrocketing. 1 + 1 = 2 damnit!
The dentist, a meeting with the boss, even going through my cancer treatments, I have never tried to prevent something so much, rather accept, what I am facing this year. My daughters are growing up, um… grown up, one now eighteen, the other in her late teens. As I go through the department store with either, and we pass the early childhood wardrobes and footwear, I am reminded of a time, seemingly long ago. I want to go back. I cannot. But that does not mean that I cannot dig my heels in as deep as I can, holding on to the very last second, that I have to let go.
Of course, time deals with my resistance. As I said, I have one daughter now eighteen, which means no longer covered by the custody order between her mother and I, she now decides on the time that we get to spend together. Not that she does not want to, but, she does have other things in her life to deal with, whether it be a school activity, hanging with friends, a date, or even work.
The “W” word, work, came up some time ago, actually a couple of years ago. Though I had been resistant to the idea, in spite of the fact that I myself worked as young as the age of fourteen, my only hesitation was the impact that working would have on their school work. As a student, I was a slacker. I was good at just taking tests, not applying myself with homework and studying, so, working did not impact my grades. While my grades were good, needless to say, had I applied myself better to my schoolwork, by not working, sure, my grades would have been better.
As a parent, I have a different outlook. The one request I made of my older daughter, that any hours that she worked, would not interfere not just with her schoolwork, but any activities related to school, especially when it came to the potential of earning any kind of college scholarships.
Earlier this year, she did enter the work force. It is not interfering with school, nor family time.
Now, my younger daughter wanted to get into the act. And again, I found myself in the position of saying, “it must not impact your school work.” Complicating things for her, she is still under the custody agreement, meaning that she is visiting me during the Summers yet, the best time for a teenager to earn some scratch.
Controversy aside from the so-called “worker shortage,” and being somewhat difficult that she would be considered a “seasonal” worker, I began to look at opportunities for her while she would visit with me. I did explain to her, that I would not allow her into the food industry as of right now, for two reasons, low wages and hours that would likely take advantage of her. I know this, I worked in the food industry a long time ago and have friends working in it now. It has not changed. I attempted retail for her, but they all wanted her of adult age. Then it hit me.
We have a seasonal water park, and they were looking for help. Perfect! I will skip the whole process of getting hired, but she was in fact hired, and is looking forward to her first paycheck. But long before that first dollar comes to her, I noticed something.
One of my first jobs as a teenager was also as an employee of an amusement park.
I actually worked there twice, once operating games, and in this photo, after graduating, operating rides. But it gave me a great experience. And I recently found out, after asking how my daughter’s first day went, that job also gave me a new perspective about employment, just as it did for her.
Sure, she is excited about earning money to save for college and other things. But she is also learning, just as I did, there is more than meets the eye when it comes to a business. We only see the board of menu items, order our food, pay for it, and eat it. We try on clothes in the fitting room, and leave the articles of clothing in a heap for some poor schlub to hang the clothing back up if we do not purchase it. And this one really bugs me, the poor person having to gather shopping carts located all over a parking lot just because someone is too lazy to return them or at least place them in a holding area for shopping carts (Publix has them located all over the parking lot).
My daughter had experienced this park before, but as a guest. She was now getting to see what happens behind the ticket window, what employees have to deal with, not just let someone through a gate or put on a ride. She has gotten to see patrons with legitimate issues to deal with, and some that were just being a pain in the ass. She watched small children have meltdowns at the prospect of having to go home. And my personal favorite, having experienced it plenty as a ride operator, dealing with a guest who “lost his lunch.”
Yes, we go to an amusement park, we have a great time, bitch about the things that did not please us, and hopefully we had a great time. To the worker, sure the paycheck is nice, but the wall has been torn down. As an employee, we hope that we have never acted the way that our customers treated us.
It is a short stint for her, as it being seasonal and the kids go back to school soon, but it was a great opportunity and experience for her. As an adult, a happy environment is not always likely as the pressures of life and habits of adulthood become an added complication of the work environment, making it feel more like “work” or working to enjoy work.
Admittedly, it has been fun sharing stories of each of our experiences working at an amusement park, even if they were decades apart.
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American Cancer On-Line Resources
Internet support from peers, caregivers, survivors, and professionals in several hundred types of cancers and related issues