Paul's Heart

Life As A Dad, And A Survivor

Archive for the month “May, 2020”

Being Cautious


In the beginning of March, I reached out to the doctor that deals with my long term cancer issues.  I explained to him, that I was concerned about the Coronavirus outbreak, but my heart was set on travelling to see my daughters, one who was about to celebrate her birthday.

I knew I was high risk because of the different factors I have been exposed to over my life, but I also knew how to protect myself around contagions as that was once a job I had in my past.

Of course I had concerns for my children as this outbreak commenced.  Initial reports were that the virus did not have much of an impact on kids, other than at worst a “mild” reaction.  The bigger risk would be that they could be a carrier of the virus, which would of course put me at risk as well if they were unaware if they had Covid19 or not.

I was confident of what I needed to do.  But I still asked my doctor what else could I possibly do to keep myself safe on this trip.  Of course I got the usual “wash hands frequently”, wear a mask, avoid contact as much as possible.  It was the last thing on his list that caught me off guard.  “Make sure you wash your clothes first chance you can.”

Of course, that made sense.  Because the virus could spread with coughs and sneezes, and was able to live on surfaces for up to two days, that would mean the germs could live on any clothing exposed.

Think about it, how many times have you gotten sick, and wondered how?  You did all the proper hygiene stuff like washing hands or hand sanitizer, cough into the crook of your elbow, and avoided contact or sharing things.  But you still got sick.  Because when you got home, you did not get out of the clothing that you were wearing, which probably had been sneezed on or coughed on by someone, and you had not realized it.  And throughout the rest of the evening at home, you thought nothing of it.   You went about your business, which includes touching your face up to twenty times and hour with the hands that have touched your clothes probably just as often.

My doctor’s advice was perfect.  And honestly, for all the viruses every year, I have managed to avoid all of them.  And that is my plan.

Of course now, with businesses in the process of resuming operations again, a thought occurred to me.  We will all assume that restaurants will do their part to keep their facilities and staff as free from the virus as they can.  But what about other businesses?  Car part stores.  Book stores.  Clothing Stores.  The list goes on.  It is up to the business to make sure that everything is kept sanitized and that customers abide by recommendations.

But here is one thought to leave you with.  Male or female, if you go shopping for clothing, do you try clothing on at the store?  We have been told that the bacteria can last for days, so how do you know if the clothing you are trying on, or buying, has not been worn by someone asymptomatic for the virus?  Thereby exposing yourself to the virus.  Or, for the business owner, what do you do with clothing that has been tried on, not knowing if the customer had the virus?

This is all new territory for all of us and we are all learning as we go along.  I am not saying you should stay home, but there are things you need to think about, and most importantly, be cautious about.

Guest Author And Fellow Long Term Survivor – Lynn


A few weeks ago, I had put out a challenge to friends of mine to honor medical personnel who are making the sacrifices, too many, the ultimate sacrifice, by putting into words, by example, of just how extraordinary these people are, whether you know them personally or not.  The fact is, they exist.  And they are making a difference.

Lynn, pictured in between two other fellow long term Hodgkin’s survivors, is a long term cancer survivor such as myself, her late term issues, some different, and some similar to mine.  The following is her story that she wished to share on “Paul’s Heart,” in her own words.

Thanks to Two Great Doctors

A FaceBook friend, from one of The Hodgkin’s Lymphoma Survivors’ groups, asked us to post about favorite doctors and/or nurses. There are two doctors in particular I will never forget.

While my husband, who was a 2nd Lieutenant in the Air Force, and I were living at George AF Base, California, I discovered a swollen area near my left clavicle while packing to move to a new base. I showed it to him, and we decided we could wait till we arrived at Moody AF Base in Georgia. Apparently, Scott was more worried than I realized, because he told a Flight Surgeon at Luke AF Base in Phoenix, while traveling to Georgia. We had stopped in Sun City, AZ to visit Scott’s Mom and sister, Karen, for Christmas before moving. Scott had bronchitis and went to be checked. The Flight Surgeon told Scott to bring me out the next day. Testing was done, and nothing could be decided until I had a biopsy. So, it was decided the biopsy would be done at the base in Georgia. Before we left the Flight Surgeon’s office, I asked him what he thought was wrong with me. He said it could be Cat Scratch fever, Hodgkin’s Disease, or something else. The biopsy would tell.

We traveled across the U.S. sometimes silent, and sometimes talking about what was going to happen. I was also pregnant with my first child. We were both very excited about having a baby, but concerned what was wrong with me. We arrived at Moody AFB in early January. I went to the Base Hospital as soon as possible to the obstetrics department. It was decided, because I was pregnant, not to do the biopsy right away. Finally, on March 9th I had the biopsy.

A few days later, I was called to Dr. Jerome Cohen.’s office. He was a young internist, probably in his late 20s. He was a very caring person. I knew what he was going to tell me, so I sat and wrote my questions out to take with Scott and I. Dr. Cohen. had a difficult time getting the words out. I finally said, I have Hodgkin’s Disease, don’t I? Through tears, he said, “yes”. I asked him my questions, “Would my baby be ok?, What would I have to go through? Would I die?” were just some of the questions. I was told through tears that I would have my son at Moody and then be sent to Biloxi, Mississippi at Keesler AFB, because it was a bigger facility.

All went well with the birth of our son. He was very healthy. We named him Ryan Scott. I was able to stay home till the end of April when Scott drove me to Biloxi. His sister, Karen, came to watch Ryan. When I arrived, I was given a Staging laparotomy (all your major organs are biopsied, appendix and spleen removed). A doctor told me I had Hodgkin’s, Stage II A. I had a few days of care on the surgical ward and went home for a few weeks. It was great to have some time home with my baby and husband. In June, I went back to Keesler AFB to begin radiation treatment. That was the treatment decided upon by a Board of Doctors. This time back is when I met Dr. Rand Altemos.

He was only a few years older than me, not very tall, with brown hair. Dr. Altemos was friendly and caring. I soon found out that most of the patients called him, “Sugar Bear” like the bear on the cereal commercials. Dr. Altemos checked on me everyday at rounds. Several times, he came in, sat on the end of my bed, and looked at baby pictures I had just received in the mail. I think I was extremely fortunate to have someone like Dr. Altemos as my oncologist. I was 25, had a new baby over 300 miles from me, had cancer and didn’t know if I was going to live or die. Dr. Altemos was there comforting me and reassuring me.

In October I went home to our base housing at Moody AF Base. Scott and I were so happy.  We could finally try to be a normal family and try to put the past behind us. The day after Thanksgiving, Ryan and I drove to Decatur near Atlanta, GA to visit Scott’s father and step-mother. Scott was leaving the next day for peace-time war maneuvers at Nellis AF Base near Las Vegas. Scott called me over the weekend from the Atlanta airport to tell me he had been delayed. He also told me how much he loved me and our son. He kept saying he needed me to know how much he loved me! I think now it was a premonition. Scott was the navigator in an F-4 and the pilot’s name was Rick. They were killed in the F-4 doing peace time war maneuvers.

That first week was a haze. My parents came, Scott’s parents and sister came, and Scott’s grandparents came from Florida. My parents were watching Ryan while my father-in-law, Dick, and my stepmother-in-law took me out to get a dress to wear to the funeral we hoped we could hold on Saturday. That’s when Scott’s grandparents showed up at our Base house. My Mom handed Ryan to his great-grandmother. Very soon, she yelled for my Mom to take back Ryan, clutched her chest, and began to fall.

My parents caught her. The ambulance was called, she was taken to the A. F. Base Hospital about a mile away, and my sweet Dr. Cohen became her doctor. As soon as we were told when we came home, we went to the hospital. Dr. Cohen met us and told us time would tell. We stayed for awhile until Dr. Jerome told us to go get rest, and he would call if anything happened. About 1 am my phone rang, and it was Dr. Cohen telling me to come quickly because Scott’s Grandmother Jane wasn’t going to be with us long. I got dressed and rushed over. Dr. Cohen came out to meet me. He shook his head and said he couldn’t believe all I had been through. I went into her room, held her hand, and told her I loved her. Dick and Lou had not arrived yet. A sheriff’s deputy had to go get them, because there was no room phone and no cell phones back in the 1970s. Eventually, they arrived, and I left so they had time to say goodbye.

Dr. Jerome was another caring doctor who went the extra mile for his patients. I always hoped that I could someday see Dr. Jerome Cohen and Dr. Rand Altemos to thank them personally.

They were doctors I have never forgotten.

It Is What It Is


The numbers of Covid19 cases and deaths are shocking.  We having some falsely compare Covid19 to the flu, to now national tragedies such as 9/11 and the Vietnam War.  Eventually, more events will get combined into those descriptions such as the Oklahoma City bombing and the Korean War.  Numbers of deceased from all of our 20th century historical events combined to be compared to this virus is not only tragic, but an embarrassment.

Nobody gets any pleasure dealing with negative statistics.  But it does absolutely no good, to “bury your head in the sand,” pretending that something is not happening, in spite of the overwhelming numbers that we are facing.

What does not help, is the relentless attack that is perceived by some on certain political leaders.  While not to blame for the virus itself, decisions made, or not made, do get tied directly to the politician who decides them, good or bad.  And there will be plenty of time for arm-chair quarterbacking who should have done what and when once, ONCE this is actually under control.  And there will have to be answers.

The biggest distraction or shiny object however, seems to be wanting to “lessen the blow” of the actual virus and death counts, so that it does not seem so bad.  What has not helped thus far, besides the many trolls putting out false information, is the lack of information in the beginning when action needed to be taken, but now, and mistakes in actual documentation of the virus.  Of course mistakes happen.  But now those mistakes are seen as an opportunity to present, approve, and convince misinformation.  How else better can you get than to make the numbers lower to prove something not as bad is it may be.

In the state of Pennsyvlania, it was reported a 200 person count difference in recordings of Covid19 deaths.  No detailed explanation was given, and it most certainly did not take away the fact that hundreds at the time did in fact die from the virus.  But the problem of whatever that error caused, has understandably given right to question the accuracy.

But in Florida, a different situation has occurred.  As local governments have taken action to restore activities in their communities, it has been discovered things are not as they seem to be.  According to CDC guidelines, and phased opening recommendations by the President Of The United States, certain criteria needs to be met in order to restore business eventually to “as usual.”  What happens if you do not meet that criteria, but are facing all kinds of pressure to “re open” anyway at any cost?

It seems that the Tampa Bay Times have discovered at least one answer to that. question.

Early in April, the TBT had tried to obtain information on cases of Covid19 in regard to staff and residents living in long-term care facilities, of course one of the higher risks concerns.  The information is normally submitted by the agency themselves, to the Agency of Health of Florida.  At the critical object of this information, the ability of loved ones to be able to tell if their family member was in a facility facing a Covid19 outrbreak.  The state refused to produce the names of any facility citing privacy concerns.  No names of residents are staff were being exposed, so what was the privacy concern?  That information could have been used by families to remove their loved one before exposure.

In any case, the state was sued on the grounds of violating the 1st Amendment in regard to freedom of the press and free speech, and the names of the facilities and the numbers were released.  That should have been the end of this kind of behavior.  The state got caught suppressing information.  And then something else happened.

During a press conference later on, April 13th, Florida Surgeon General Scott Rivkees was abruptly removed from Governor Ron DeSantis’ cabinet meeting after making the comment that social distancing, one of the main pillars of the CDC guidelines to prevent the spread of Covid19, would be necessary until a vaccine was created.  Hardly what a tourist-driven state wants to hear.  Clearly an effort of silencing, and minimizing what was happening in Florida was underway so as to help make it possible to appear ready to return back to normal.  An impossible task if it still looks like Covid19 is still on the rise.

The reality is, Covid19 is still on the rise in Florida.  The problem is now, we cannot prove it.  It can be proven that the information cannot be obtained.  The Tampa Bay Times has just reported on this issue.

Florida has stopped releasing statistics from the medical coroners which include Covid19 death information.  Numbers have not been released in over a week.  Sure, we have all seen the numbers rise in Florida.  It is documented.  But it does not include the numbers released by the coroner’s offices.  This means that the death toll in Florida has the potential of being 10% higher than is being reported by the Florida Department of Health.  The information states where the deceased is from, diagnosis of death and some other information, but not the name.  So, for officials to claim it is a privacy issue after decades of the coroner’s offices operating this way, suddenly no longer doing so because of the Covid19 crisis, is bullshit.

At issue it is believed, a distinction between residency.  In other words, well known for an inflated “snow bird” population, seniors who spend long periods of time over the winter months in the sunshine state, should not be included in the death toll if they die from the virus, because, technically, they are not Florida residents.  Therefore, their death should not count for Florida.

Think about that for a moment.  The whole purpose of a count like a death count, or virus caseload, is to be able to tell how severe an area is dealing with an outbreak.  But Florida wants to only publish the deaths of residents only which of course from a public relations standpoint, makes Florida much healthier and safer than it really is.

But is an estimated death count 10% higher than stated, a couple of hundred deaths that big of a deal?  Absolutely.  If deaths are still climbing at a rate higher than recommended by the CDC, then the state should not proceed with restoring activities and businesses, something the governments of Florida are anxious to do.

As the saying goes, “if a tree falls in the woods, does it make a sound?”

I relate two stories to help understand how stupid, foolish, flawed, and dangerous the thinking of Florida is.

The first, a hypothetical.  A hotel on the Island of Gibip, property of another country, has 70 Americans staying in it, the rest of the occupancy, all locals.  A tragic fire engulfs the hotel, killing all of the Americans who did not get out of the building.  The headlines in the local paper state a miracle, no deaths at the hotel.  In spite of the truth that 70 people did die, but because they were not local, that fact was not stated so as not to hurt the tourist industry of that island.

Okay, that was an absurd example.  Though not really a stretch.  People died, their deaths not counted because they were not citizens.  Let me give you a real example, because it did happen.

I worked on an industrialized plant site.  My department had four buildings.  We all had our home building, but were eligible to work overtime in all buildings.  One particular evening, I was working in another building, and I was injured, pretty bad too.  An investigation would follow, as well as treatment for the injury.  OSHA would be involved since there would be lost time involved.

When I got the injury report, and was told, TOLD to sign it, I noticed a huge error.  The location of the accident was listed as my “home” building, not where the injury had occurred.  I stated the error needed to be corrected, as it was an official document, and was told “no”.  In rare unity, even my supervisor had agreed, that the injury took place in the other building, that is what needed to be recorded.  Of course, my supervisor did not want an injury ding on his record.  More importantly, legally, it should have stated where the injury took place.

Now the problem and the motive.  The building that I was working in, was steamrolling toward an impressive injury-free record, and was soon to be presented a nice reward for their effort.  Truth be told, there were likely other injuries that did not get reported.  But my injury definitely would have taken away this recognition.  They needed my injury reported in another building.  Regardless that the equipment involved did not even exist in my building.

Of course there was scorn by my fellow workers from the other building for daring to screw with their record and reward.  It was my fault for getting hurt, not theirs.  In the end, I lost.  The injury was falsely recorded in my “home” building where it did not occur.  And thirty employees got a recognition for their injury-free record.  That is what mattered.

That was a true story.  And it definitely emphasizes the importance of recording information and why it matters.  No one wants this pandemic over more than me.  But hiding and ignoring facts does not make the virus go away.  Only truth and actions.  And our country has been making a difference.  Okay, not fast enough for some, but it has been working.

Florida decided to restore some activities, and soon others will follow.  In spite of our numbers climbing, and numbers being hidden.  The truth will come out eventually, either by lawsuit, or by history.  But by then it may be too late.

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