Paul's Heart

Life As A Dad, And A Survivor

Archive for the month “May, 2019”

Are We Ever Going To Try?


Two headlines today.  One in a town of Pennsylvania.  The other occurred just miles away from the site of another massacre, decades ago.  The difference for me with this post, is one of these headlines affects me personally.  And really, it should not matter which headline it is, neither should have occurred.  But they did.  And as of this post, the Colorado shooting has now left one teenager dead, with 7 wounded.

Like many parents, I got the phone call this afternoon from the school district, announcing that the school that my daughters attend, had been in “lock down.”  Most of us have no idea what is involved in this condition because we do not get to see it, that is, unless you have seen the movie “8th Grade,” or seen it explained during a news telecast.

The recording came with details, that a student clearly between the grades of 7 through 9, was on security camera moving a BB gun into their locker.  Security, unable to determine the type of the weapon, acted swiftly, instituted the lock down, and notified the local police.  The student was apprehended, all students were declared safe, and the lock down was lifted.  It was later discovered that additional weapons had been found during search.  But the bottom line, a major crisis was averted, and even though the weapons may have been of the caliber of a BB gun, the fear and panic that could have resulted, could have resulted in tragedy itself.

In Colorado, the assailants entered the school, deep into the school, eerily it seems similar to Columbine, wounding several, now officially killing one teenager.

This post is NOT about gun control.  We all know that neither side of the argument is not going to go anywhere with that discussion.  The slaughter of children at Sandy Hook we all swore would finally bring us to the point that we had to do something.  And our country failed.  Again and again and again.

I have some experience behind the scenes with the school district that my daughters attend.  I know the efforts that are taken to secure the safety of students.

I campaigned as a school board candidate the year of the Sandy Hook massacre.  That tragedy was actually one issue that all candidates agreed on, that needed to be dealt with, at all costs.  In fact, later that year, the district held a forum to inform the community and families of the efforts the district took to makes sure students were safe.

Personally, at the time, my daughters were in elementary school themselves.  Of several things that I learned while campaigning, attending school board meetings, and attending “safe school” committee meetings, I learned of the evacuation plans, mustering plans, but also something else, that needed to be dealt with immediately, the access to the building at the main entrance.

Many schools today, hopefully all, have electronic entrances, you need to be “buzzed” in once identified, while all other doors remain secured.  The problem with my daughters elementary school at the time, the monitor used to view the person entering, was of such poor quality and small size, the person would have to be admitted pretty much on an honor system.  And by then, our school would have been at a similar risk for tragedy.  This was one of the first things addressed and corrected.  The fact is, the district has taken many more steps to secure our schools and keep the children safe.

The technology worked.  The trained staff acted accordingly with swift response.  Local authorities responded within minutes.  The suspect was apprehended.  Everything worked exactly as it should have, and without tragedy.

Yet even with everything we, as adults know, about the efforts to keep our schools safe, there are still certain students, in spite of methods to intercept weapons, still attempt to bring them into the schools.  And yes, with a BB gun, fatalities may not have been likely, but definitely harm could have been done.  And because our district has done all it can to prevent, plan, and respond, that means the rest falls on one other entity, the parent.

In my years of campaigning for school board, and since, the one thing I hear no conversations about, are what can parents do to prevent events like this.  There is always ridicule about the parents on Facebook or news stories and what they should have done, followed by defenders of those same parents snapping back that we do not know what their home life is like.  And there it is.  The only one who knows what is going on in the home, is the parent.  The parent is the one who needs to be aware if their child is emotionally hurting.  The parent is the one who needs to know about weapons that their child may have access to.  And this final thing should not be that hard to do, the parent needs to explain, on a regular basis, that it is wrong to bring any weapon, toy or real, to school.  The parent needs to explain the consequences for making such a horrible decision.

Yes, parental accountability.  It is the one thing that has not been discussed even 10% as much as gun control is raised with each school shooting.  The districts do what they can to keep our children safe.  Local law enforcement trains to respond to active shooters at schools.  But the only ones having no part in this conversation, are the parents themselves.

And I would encourage every parent to attend a school board meeting, and raise this issue.  As the deputy sheriff in Colorado stated basically that the area and school is low crime, a good place, also known as “won’t happen here town”, it can happen anywhere.  And while my children, along with their classmates followed orders during this lock down, not knowing if it was a life or death situation, I should not have to keep having these “after it happens” conversations just because parents do not want to talk to their kids before it happens.

I am relieved that today was resolved without anyone being hurt.  But my heart aches, for yet another school shooting that did result in injuries and death.  Time for the parents to be a part of the safety plan.

Why I Celebrate Nurses Week


My first personal experience with a nurse was not a pleasant one.  I was six years old, in the hospital having tumors removed from my lower gums.  She was mean, meaner than nurse Ratchett.  I experienced my first injection (to my memory) from this scorpion of a nurse, just stabbing me in the leg, scolding me as as I screamed out in pain.

In my later youth, I have different memories of nurses that I dealt with.  There was Verna, who assisted my 2nd family practitioner, very compassionate.  And to this day, as she still works with my current family doctor, a nurse that I have dealt with for more than two decades, a very serious nurse, but one that I know and trust to convey messages accurately to my doctor, as well as be the extra kick-in-the-pants I may occasionally need.

There was my oncology nurse, who got me through eight months of hell, also known as chemotherapy.  Her name was Brenda.  I know that she had a son my age (at the time when I was going through treatments).  I was not treated like a a patient, but with the care that a mother who happened to be a nurse could only give.

There was Heather and Jackie, my two cardiology nurses who followed me during my entire stay of my open heart bypass surgery.  From the cath lab, to the operating room, to the intensive care unit, to my private room, both followed me through the hospital, checking on my recovery.  They did not have to, especially as it was on their own time.

There was another nurse named Heather, who dealt with me during a bout with septic pneumonia.  I had several nurses during the days of my recovery, but Heather was the one who visited with me often overnight during her shift, listening and learning of my experiences as a long term cancer survivor of Hodgkin’s Lymphoma.

Roseann was the nurse to begin explaining all of the issues that I now deal with from my treatments for Hodgkin’s Lymphoma thirty years ago.

Yes, my doctors also play a major role in my survivorship.  My current family doctor of thirty years, and my long term survivor doctor for the last eleven years, and my current cardiologist all play a major role.  I trust them.  They know me and they know how to talk to me, and reach me.

But their nurses are the ones that carry everything out, deal with the initial interactions to get the issues as clear and straightened out so that any issue can be dealt with.  And also, they are the ones who comfort us, when we are in the most scary of situations.

And for each an every nurse that has been a part of my life, I thank you.  And to my friends who are nurses, I am blessed to be friends with those who offer comfort and care, not because they have to, but because they want to, and they are good at it.

Happy Nurses Week.  You all deserve it.

When Your Body Does Not Tell The Truth


Tuberculosis.  It is a very contagious disease that fortunately, when diagnosed properly, is treatable and containable.  Of course if you are full blown TB, the signs are obvious.  But if the disease is latent or has not advanced, it is important to be tested, especially if you work in the medical field, schools, or even zoos with primates.  A TB outbreak can be quite serious, if not catastrophic.

TB is not much of a concern here in the United States, but as a free country, we have those who travel around the world.  One such example of that travel, is to internationally adopt.

Both of my daughters are adopted internationally, and as part of their care prior to the adoption, was receiving a vaccine called “BCG”, specifically administered to prevent TB.  Sounds like a good thing, prevention, and it is.  But there is an unintended side effect.

Prior to both of my daughters arriving home in the US, my daughters went through physicals at the consulate clinic.  Of course, both were healthy, happily.  But upon returning home, we had our own well-baby visit to attend to.  And a requirement by the adoption agency, our daughters needed to be TB  tested.

Now, the issue that comes up from TB testing a child who has received the BCG vaccine, is something called “a false positive.”

And you can get these “false positive” reactions for any number of reasons.  I get a seasonal oil based steroid shot for my allergies that produces a false positive.  And in the case of my older daughter, and a clear majority of children vaccinated with BCG, she showed a false positive as well.  Now there are immediate issues as well as long term issues that need to be dealt with.  And as my daughters get older, now in their teen years, approaching adulthood, it is important that they understand their health, as limited as our knowledge is because of adoption.

At the time, with my older giving that “false positive”, and with others who have this result, a chest x-ray is done.  And the only purpose of this chest x-ray, is to determine if you actually have TB.  If the x-ray is clear, then it is assumed you do not have TB.  Which is not completely true.  The disease could be latent, or dormant, or as in the case of my daughter, just a “false positive” caused by the vaccine.

Depending on the protocols of your pediatrician, some may actually decide to treat your child as if they were infected with TB, even if no signs, just as a precaution.  There are a number of drugs used, and the length of the treatments can last from weeks to several months.  Side effects can range from minor to severe, mimicking flu like symptoms or even affecting the liver.  I had heard nightmare stories about the treatments and their effects on their infants and toddlers, and it was decided that we would refuse treatment and look for a different pediatrician.

As for our younger daughter, we were ordered by the adoption agency to have her undergo the same test, but given what happened with our older daughter, we refused.  For me, it was simple, once the x-ray ruled out TB, I was not exposing my daughters to any side effects from treatments that were precautionary.  Dealing with side effects from my cancer treatments are harsh enough, and I had to go through those.

So, here is where it becomes important for my daughters, and others to realize how their bodies work, having received the BCG shot.  There is a gold standard blood test that diagnoses TB, called Quantiferon.  And this test leaves no doubt of a diagnosis, but also prevents the “false positive.”  For someone exposed to the BCG vaccine, and as long as your medical professional knows this exposure, you should automatically pursue this testing if required for school or employment.  Bottom line, this is where it will end up anyway, and, needless to say, the delays and worries you will face with having a “false positive” hanging over your head.

As I mentioned, that allergy shot I got, was always given around the time I had my annual health surveillance at work.  I would hold out as long as I could so I could get the TB test done, but it never failed, I ended up with the allergy shot first.  And then the threat would come from my employer, I would be prevented from working until I could be cleared, going through the Quantiferon testing.  That would mean, no paycheck.  For college or other schools, you could be prevented from participating in programs that involve health while you wait for official results.

“Paul’s Heart” is about awareness, not alarming.  Know what you are dealing with, before you have a situation that has to be dealt with.  I do not anticipate any problems for my daughters because of this BCG vaccine, but it is important that they know how to be tested when necessary.

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