Paul's Heart

Life As A Dad, And A Survivor

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An Odd Observation


I was sitting in a restaurant recently finishing my meal, when another patron came up to me and said, “Well you don’t look too concerned about Ebola.”  Besides the fact that I am not very used to total strangers coming up to me and starting a discussion while I am eating, it was a very strange way to start a conversation.  Not to mention the fact, I am used to being the one who people watches.  Now I know I am being watched.

But getting back to the comment from the stranger.  I know that I would have much preferred to have been asked how I liked my meal, or perhaps if I knew where the restroom was.  But my concern about Ebola?

Long summary short, I have many health issues, very complicated, and one of those deals with my immunological deficiencies.  In other words, it is very easy for me to contract things such as the flu, pneumonia, and yes, I would have to assume Ebola.  I can also come down with Chicken Pox, SARS, bird flu, swine flu, strep throat, measles, mumps, and the list goes on, all from exposure to others.  As you can see though, I do not live in a plastic bubble afraid of what I might come down with (as opposed to those it is a life threatening situation and are required to live in that manner unfortunately).

I am also going to throw in my experience working with biohazards.

biohazard

I saw signs like this frequently during my career in medical research.  And in spite of my immunity issues, and against the advice from my doctors to avoid this kind of exposure, it was a job that I took great personal pride in doing, because ultimately, I believed I was taking part in finding cures for various and many serious diseases.  I was willing to do this job because I knew the precautions that I took to avoid contamination and exposure.  There was various personal protective equipment that had to be worn, and strict protocol for disinfecting equipment and myself prior to entering public thoroughfares.  You see, I was not just complying for the well being of everyone else, but for my own health, I needed to do it as well.  But if all protocols are followed, and the proper personal protection equipment is worn, then the risk of contamination is near zero.  So even in an environment that had very high risk for my health, I know that I was confident in the work that I performed.

So getting back to the odd introduction, I am more than aware of the word Ebola.  I am also aware of the “politics” of this awful disease as it is being hyped up by conservative and liberal news networks and the cartoonish fantasy network of Fox news.  Just like weather forecasters who strike fear into viewers with storms of the century and millennium, nowhere in my childhood and early adulthood (for the sake of math, the 1970’s, 1980’s and mid 1990’s) did I see the fear struck into viewers that caused mad rushes to grocery stores to empty shelves of food, and snow shovels and snow blowers from every hardware store.  The fact is, the media only cares about ratings, and the only way to get ratings is to shock and scare us.  It is up to us not to buy into these actions.  And the woman was right, I am not concerned about Ebola.

When I adopted my first daughter, my family had to deal with the deadly SARS virus.  In fact, that virus actually stopped the adoption process all together for China.  But as the illness was deemed under control, not eliminated, we were allowed to travel.  When we went to adopt our second daughter, we were then dealing with deadly “bird flu”.  There was no delay in the adoption process this time, nor any restrictions.  Then several years ago, we had to deal with deadly “swine flu.”  It was this particular deadly virus that forced my doctors to push harder than ever to get a vaccine that I did not want to get.

But the common flu kills more people every year, than Ebola has claimed victims.  Where is the outrage and fear to isolate patients and people exposed to the common flu?  How about parents who knowingly send kids to school already sick and contagious with whooping cough risking mass exposure to the school population?  Recently a PA courthouse was shut down for two days to deal with an infestation of bed bugs brought in by a dangerous mom hiding the critters in her stroller used for her child.  There are many other examples of people being irresponsible with risks to other people’s lives.  Where is the fear mongering by the opinions of news networks just trying to get ratings?

I am by no means making light of a deadly disease.  And it is deadly if contracted and not treated properly.  But it is not our president who is responsible for the spread of Ebola.  It is not our governors responsible for the spread of Ebola.  If it spreads, it is because of irresponsible workers or selfish people who do not want to inconvenience their leisure activities.  And even the same networks who fueled the fire of fear have representatives “eating their own” stating that the hyping of the spread of Ebola needs to stop (Fox’s Shepard Smith).

Over a decade ago, the biggest attack on our nation’s soil prompted many to question whether it would ever be safe to fly again.  And the majority of us never gave it a thought, regardless of the many opinionated newscasts who constantly urged us to be afraid, be very afraid.

So again, this time our country faces yet another attack, this time biological, and the media has successfully scared many into believing that they will contract Ebola.

I have enough on my plate to worry about.  I must travel on Monday and Tuesday inside a flying canister trapped with other passengers.  I am certain that I will hear at least one person cough.  It could even be me as the dry air has a tendency to cause this.  But I will not be wearing a “surgical mask” (for the record, this will never prevent you from catching something that is airborne because it does not seal completely around your mouth and nose – and for men with facial hair, you cannot even wear something that will work, a respirator, because it cannot seal over your facial hair.).

I am going to arrive and return, and without Ebola or having been exposed to it.  No, I am not concerned about Ebola.  Thank you for asking.

If You Are Sick… It Sucks To Be You.


GENERIC-master675

The headline in the New York Times for July 8, 2014 read:

“Rapid Price Increases for Some Generic Drugs Catch Users by Surprise”

The picture as shown above from that same article showed a patient meeting with her doctor.  She needs a drug called “Digoxin” for her heart.  It is the only pill that works for her.  And she is not alone.  There are hundreds of millions of people who need medicine to maintain their quality of life.  With Big Pharm taking full advantage of drugs they produce still on patent, basically charging whatever they want, without insurance, you simply cannot afford to be healthy anymore.

Generic drug availability was supposed to take care of that.  Obviously, with companies taking advantage of expired patents, drastically cheaper and affordable alternatives would finally offer patients a difference between affording life or choosing death.  But as new drugs come out to the market, once again on patent, two things happen.  Television commercials begin to appear telling patients the best new drug to do better than what a patient was already taking is available and needs to be discussed with their doctor.  This is followed by a lowered demand for the generic drug that many people rely on.  Then of course you factor in the costs to pharmacies, with surely the small “mom and pop” pharmacies not able to compete at all with the super chain pharmacies.  Even with insurance, you may no longer be able to take the drugs that have worked for you, simply because it is not convenient for Big Pharm.

Even though I am lucky to have insurance that includes prescriptions, my insurance still tries to dictate to me whether I will take the generic or the original name brand drug.  As a rule, I have always taken the name brand because a) I have always believed the name brand to be better than the generic, and b) I had the insurance to cover the cost.  Over the years however, my prescription plan tiered to make name brand more expensive to me, so of course eventually I adjusted to taking the cheaper generic drugs.

But as pointed out by potential presidential hopeful Bernie Sanders, Independent Senator from the state of Vermont, generic prices are soaring out of control.  If it is not health care costs going out of control for profit at the expense of a human life, health insurance also contributed to this skyrocketing cost, but as more patients turned away from the expensive alternatives to save and maintain their lives to cheaper costing generic drugs, Big Pharm did the only thing it could to solve its need for greed… jacking up generic costs.

This is disgusting for a couple of reasons.  Generics finally offered an alternative for people to take care of their health who otherwise could not.   But for those who are fortunate enough to have insurance that includes prescriptions, now those insurance companies are beginning to dictate what drugs they will cover, even though they are generic.  And the reaction, as should be expected, the less a drug is being prescribed, the more the price will go up as well, even if it is generic.  And that is what is happening.

Okay, so I addressed the issue skyrocketing generic drug prices.  People without any insurance covering generic prescriptions will no longer be able to afford medicines.  Those with insurance that provides coverage should be okay for now.  But what about the people in the middle?  What about those on Medicare and fixed income?  For a family I know, this has become a real issue.  They are covered under Medicare and also have AARP insurance.  But because of the level of retirement income received, their prescription coverage has maxed out, and we are only in the middle of October.  This means that the elderly couple cannot afford their medicines for the next two and a half months, medicines they need to keep them alive.  While some may argue that if they income level is too high for the benefits, then that is the couple’s problem.  No, it is not.  With the cost of living going up every year, rent, fuel, gas, food, GENERIC PRESCRIPTION DRUGS, but their fixed income remains the same, year after year, where exactly is their income level too high?  Their income stays the same while all of their expenses continue to rise.

I wish I had an answer to this dilemma, which is why I turn to you, the readers of “Paul’s Heart.”   I know this family is not the only one going through this issue.  But I am at a loss for anymore solutions to offer them, as I have tried even using common sense to help solve their needs, and nothing has helped.

So the question is this…

“For those who must deal with this “donut hole” for prescription medicine, how do you afford your medicine, or are you simply rolling the dice until the next year comes around?”

I need your help.  This family needs your help.  They are elderly, with one spouse dealing with both cancer and dementia combined, and at least for the next two and a half months cannot afford the medicine needed to deal with these two major health ailments, along with the other medicines taken.  Comments shared on this blog are kept confidential unless you specify otherwise.  And keep this in mind, your replies will not only help this family, but many others who read “Paul’s Heart.”

I Miss My Dad


I am sitting at my laptop, as I do often every night.  As I do, I am always listening to music.  A “supergroup” called Mike & The Mechanics featuring Paul Karrack and Mike Rutherford of Genesis recorded an awesome song which addressed a son’s unresolved issues before the loss of his father.  I am fortunate that I was able to have closure  with so many things with my father before he passed.  But the song reminded me of what could have happened had my dad and I not taken the opportunity.

Here are the lyrics to “The Living Years” recorded by Mike & The Mechanics.  Dad, I miss you.

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“The Living Years”
Every generation
Blames the one before
And all of their frustrations
Come beating on your door

I know that I’m a prisoner
To all my Father held so dear
I know that I’m a hostage
To all his hopes and fears
I just wish I could have told him in the living years

Crumpled bits of paper
Filled with imperfect thought
Stilted conversations
I’m afraid that’s all we’ve got

You say you just don’t see it
He says it’s perfect sense
You just can’t get agreement
In this present tense
We all talk a different language
Talking in defense

Say it loud, say it clear
You can listen as well as you hear
It’s too late when we die
To admit we don’t see eye to eye

So we open up a quarrel
Between the present and the past
We only sacrifice the future
It’s the bitterness that lasts

So don’t yield to the fortunes
You sometimes see as fate
It may have a new perspective
On a different date
And if you don’t give up, and don’t give in
You may just be O.K.

Say it loud, say it clear
You can listen as well as you hear
It’s too late when we die
To admit we don’t see eye to eye

I wasn’t there that morning
When my Father passed away
I didn’t get to tell him
All the things I had to say

I think I caught his spirit
Later that same year
I’m sure I heard his echo
In my baby’s new born tears
I just wish I could have told him in the living years

Say it loud, say it clear
You can listen as well as you hear
It’s too late when we die
To admit we don’t see eye to eye

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