Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Side Effects”

What You See Is Not What You Get


The very first day following my release from the hospital, following open heart surgery for a double bypass, as ordered by my doctor, I took my first of three walks around the block of my neighborhood for rehabilitation.  It was not to be any big deal, as I was taking several walks around the my floor of the hospital following the surgery.

But evidently, this was a big deal, to a co-worker of mine.  This co-worker of mine happened to be driving by me on their way to work, and felt the need to report to my employer that I “looked great”, and “there was no reason why” I should not be back at work.  Now, it was not to say that my co-worker did not believe that I actually had heart surgery, but my appearance gave him the impression, that in spite of losing 80% of my strength in less than a week, a very stressed cardiac system, and oh yes, a healing surgically repaired breast bone that would need months to recover, their opinion (not that it was any of their business) was that I was able to work.

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I know, it sounds totally ludicrous to expect someone to have a complete recovery from double bypass surgery in just days, and expect full participation in daily activities.  And yet, by one jerk actually stirring this pot, put me into a position of having to defend myself to various levels at my employer.

Over the last few weeks, I have had three friends be accused of “faking” their cancers.  Yes, “faking” their cancers.   My heart surgery situation was not the first time I ran into this ignorant behavior, as when I faced my battle with cancer, I had to deal with this behavior.  But as I read the stories posted by my friends, who have endured so much, being forced to publish personal information publicly, just to prove to one asshole, that their cancer was real.  It was not bad enough for me to see this happen to one friend, but it happened to another and another.

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Well, my friends really do have cancer.  In fact, at one point, one of them was given no hope.  Now I am just one of a dozen million cancer survivors, but just to protect people who cannot handle even hearing the word cancer, I put on a façade so that I do not make someone feel sad.  But it is up to that person to not make an assumption about my wellbeing.  I will try to look normal.  I will try to act normal.  Because, in spite of that not necessarily being in my best interest, that is what matters to certain people.

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I am not sure what drives a person to be so mean, as to question the health of another person.  Why, what business does someone even have worrying about another person’s health, unless they have been confided in?  But many in our society are just plain nosy, and when someone does not understand something, it gets completely dismissed as not being real.

Now, I am not naïve, there is at least some cause to this behavior, because at one point or another, we have witnessed someone actually faking a serious illness, or even just a sinus infection, just to get out of work or school.

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There are people who actually do “fake” an illness.  And there can be any reason that drives people to do this.  And dealing with Munchausen or hypochondria is a real issue as well.  There are also people who are just plain lazy and do anything to get out of working.

But for those who are legitimately battling a serious illness or injury, to treat them poorly or make accusations as to the validity of their health, which should only be of the patient’s concern, is unfair.  And to those who have faced this type of discrimination or harassment, you are not alone.  Sadly, this behavior of individuals treating those of us with disabilities is all to common, whether their reasons be ignorance or just plain malicious.  Though I know there will be a need to prove them wrong, no matter what the length (and I have done it several times), you do not need to prove anything.  For every jerk out there who says you are faking an illness, there are hundreds out there that not only believe you, but support you as well.

Diagnosis And The Holidays


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Like millions of other people, the beginning of the holiday season, starting with Thanksgiving, is a difficult time of year.  And as the weeks continue, the season can be even more overwhelming.  I was diagnosed with Hodgkin’s Lymphoma over 27 years ago.  Thanksgiving was a week later, and the last thing I felt like being, was thankful for anything.

Years later, during marriage #1, my father-out-law, also the weekend before Thanksgiving, is misdiagnosed with having Alzheimers, leading to a 3-year medical imprisonment until the accurate diagnosis is made, and he actually recovered.

And two years ago, someone very close to me, unknowingly spent the last Thanksgiving with her son.  Having just recovered from a complication from cancer treatment, things suddenly changed, and instead the last memory she now has of her son, was the decoration of a tree that she otherwise would not have purchased that early.

And besides those who faced trials and tragedies at the holiday onset, there are so many who are facing the holidays for the first time without their loved ones.

And I find myself once again, heading towards another “anniversary” that is a reminder of a period in my life that I would rather not be facing.

Each and everyone of us mentioned above, would give anything to have the precious moments back that we no longer get to experience other than the memories.  But that does not mean, that this post should be perceived as sad, or negative.  In fact, quite the contrary, and I honestly believe that everyone that I am thinking about as I write this, deep down is quite thankful.  We are thankful for the support of everyone who helps us through our difficult times.  We are thankful for everyone who encourages us.  We are thankful for those in our lives who have the patience to allow us to reflect on our losses, offer a shoulder, and then hold our hands to lead us forward.

Please have a safe and Happy Thanksgiving.

Paul

November – A Bittersweet Awareness


I have many things that I advocate.  And you have probably seen me write about all of them at least once, if not, at the beginning of the month, when everyone begins to announce that month’s “awareness” cause.  I used to have only one thing that I advocated in the month of November, until a couple of years ago.

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My father died a year and a half ago from lung cancer.  His diagnosis did not come as any surprise to anyone except for him.  The side effect of denial affects only the smoker, “it will never happen to me” or “I wish I would have known.”  He smoked tobacco products over 50 years, trying multiple times to quit, unfortunately being unable to fight off the addictive additives of the various tobacco products.

Over the years, I have done my best to protect my children from second hand smoke, even witnessing the act of smoking.  I am more than aware of the peer pressure that I have no control over, but one thing was certain, my children were not going to learn to start smoking by witnessing me smoking.  It was hard enough for my daughters to have witnessed the later stages of their grandfather’s life, and knowing what his fate was going to be, just because he smoked tobacco.

It was a shame really.  As his fate became more of a reality, the bargaining stage of his life had become apparent, begging for more time, wishing that he had never started.  It is too bad the tobacco companies did not care enough to create an antidote to reverse the addictiveness of their product.

But now, as my daughters are “tween” in age, they have become more aware than ever of their environment.  It may not have been enough for them to have witnessed their grandfather die of lung cancer, caused by decades of smoking.  I am certain that before they become adults, they will not only witness someone close to them smoking (or now, vaping).  My only hope is that they remember what happened to their grandfather died from, and that it was not good enough to just hope “I can quit any time I want”, because you cannot.

I realize that I am overstating the obvious that smoking does cause cancer, and not just lung cancer.  But to be fair, there are other circumstances that cause cancer, that really are no fault of our own.  Every day we breath in chemicals and pollution.  And if you are a cancer patient, especially a long term survivor like myself and many others, there is a pretty good chance, that due to either chemotherapy or radiation therapy, that we have an increased chance of developing lung cancer, having traded a cure for a cause.

That point I am trying to make, there are enough things that we have no control over in our lives, but smoking is one that we do control and the role it plays in developing lung cancer.

But as I said, November is a bittersweet month for me as far as advocacy.  One of the happier and more positive causes that I support is adoption.

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The process of adoption gave me the opportunity to fulfill a dream, to become a father.  Cancer took away my ability to have children biologically.  And though science provided some opportunities, it was not successful.  And in 2003, the process began to adopt the first of my two daughters.  There are pros and cons to domestic and international adoptions, closed (private) and open.  But China gave me the opportunity that could not be achieved through the United States due to financial and my health history.

I will never truly understand the feelings either of my daughters will have as to the absence of their origins, other than the country we know that they came from.   I have some information for them, about how and where they were found, who took care of them prior to their adoption, and of course, lots of photos during the visits to China to complete the process.

And although our family has gone through a major disruption, that many seem to say is “unfair” to children who have gone through so much in their lives already, nothing should really change.  Both their mother and I play major roles in their lives, and I have made it clear that the girls will have only one “mother” and only one “father.”  Our responsibilities to our children have not changed.  And it is “unfair” to the children, to make a blanket assumption that somehow the children would be better off under any other circumstances, especially when the complexities of the family have not been discussed publicly.

As they children get older, they will have to deal with the fact that they are adopted.  Our agency had given us material a long time ago to prepare us for the times that would come, dealing with identity, racism, bigotry, in a multi-racial family.  Of course, there is going to be the serious relationship issue as well to deal with.  Parenting will continue.  While the adoption circumstance is obvious, I have always treated my daughters, as my daughters.  And through the adoption process, my dream of becoming a father has been realized.  There is a lot to be done yet as I prepare them through their education and life experiences.

Adoption is a wonderful opportunity to build a family, under any circumstance.

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