Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Inspired By…”

Cancer Does Not Discriminate


Back in 1989, as I walked through the hallway of the 9th floor at St. Luke’s Hospital for the first time as a cancer patient, the first lesson I learned was that cancer does not discriminate. Whereas early in my childhood, and mainly because of stereotypes that cancer created, it seemed that only certain people were diagnosed, and died from cancer.

Within minutes, I would see the widest of ranges in age of patients, from as young as two, to patients in their eighties. I saw men and women, people of all ethnicities. I would be willing to be also, that it did not matter if you were a good person or a bad person. Short and tall, rich and poor. It did not matter.

It was after those first steps on the cancer floor, that I had it in my mind I was going to be my cancer, Hodgkin’s Lymphoma. But it also became a moment that would change my thought process. After seeing the various patients, and in their various states, from that moment on I no longer gave myself the opportunity to feel sorry for myself, to allow myself to feel or acknoledge any pain or discomfort, physical or emotional. Someone was always going to have it worse than me. My situation was going to be temporary. This was thinking was going to be an issue for the rest of my life, and it is, often in a horrible way.

You see, no matter what the pain or discomfort, it does not take away from the reality, that it is real. Your pain, my discomfort, someone else’s ail, they are all real, and all deserve the proper attention. Yet while for the most part, I appreciate being able to be referred to as a long term cancer survivor. But at the same time, my heart mourns for Jennifer (see Jennifer’s Story on this blog page), and now my heart completely mourns for Michael. My thoughts begin to be dominated by a three year old neighbor battling a cancer that just a few years ago, took my stepsister’s life with her second battle having survived the first time for more than 30 years. I worry about my dad who just turned 70 as he worries about his cancer surviving.

Cancer does not discriminate. And even if it did, I do not know if that would help to make sense as to the “why” it has to happen. All I know is that it hurts. Every time I must say goodbye who has come into my life, it hurts. That is why I participate in fundraisers like the Relay For Life, Light The Night, breast cancer walks. Money cannot be the reason that we continue to lose someone. We need to find the cures, for all cancers, and then prevention.

For Michael


As many of you are aware, I lost someone very special to me recently, a good friend, and also a cancer survivor. I am working on a special tribute for him right now. But in the meantime, I would like to share with you a tribute written by author Stephen Kaufman:

For Michael
Stephen Kaufman
Author of “Into My Life Unexpected…A Journey To Me”

How to make sense
Of the senseless
How to speak
When we are speechless

How to grieve
When we cannot comprehend
How to move forward
When we are numb

There is a plan
Not for us to question
There is a method
In the midst of the madness

So we will accept
And we will remember
That the joy of his life
Will forever remain

In the hearts of all
Whose life he touched
And the tears we shed
Shall be his testament

Michael was only 24 years old. He fought cancer, Hodgkin’s Lymphoma as brave as anyone I had ever known. Unfortunately, following that battle, he faced side effects from the treatment that would eventually be too much for his young body to handle. And so, we lost Michael too soon. And as many often do, we find ourselves struggling with “why”. But Stephen’s words provide some comfort, especially if you can believe them to be true as I do.

Michael was just a few credits away from graduating from Florida Gulf Coast University when he had to deal with his Hodgkin’s, and had plans on finally returning before this latest round of events. It had been announced at Michael’s funeral, that the university was going to give Michael his degree posthumously.

Michael’s family has set up a scholarship in his memory. Please consider making any amount of donation, none too large or small, to:

Michael Scheidemann Scholarship at FGCU
Attn: Christopher Simoneau, VP, Advancement and Executive Director
Florida Gulf Coast University
10501 FGCU Boulevard South
Fort Myers, FL 33965

Make the check out to Florida Gulf Coast University Foundation, and write “Michael Scheidemann Scholarship” in the memo section.

I am always saddened to hear of anyone passing, but am adversely impacted when it is someone who has battled cancer, the same cancer as me, and someone so young.

I miss you Michael.

Three Years In A Row


I am so psyched to announce that for the third year in a row, a story I have written has been selected to be printed in the 2014 Visible Ink Anthology written by cancer patients and survivors, published by Memorial Sloan Kettering Cancer Center.

I am not going to give my submission away until the book is actually printed, but it is titled “What’s Your Sign? Mine Is Cancer.”

If you would like to see my previous two submissions, look under “pages”. My first submission was called “CABG – Not Just A Green Leafy Vegetable” and the second was called “Life On A Class Five”.

The neat thing about this writing project is not that it is a completely personal account by patients and survivors, but along with the printing, several of the pieces are selected to be performed by professional actors and musicians on a special night for the writers, their families, and the sponsors who help to produce this extremely moving book. I am honored that another submission has been selected. I must admit, I am 0 for 3 however in getting my submission performed.

There is always 2015.

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