Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Education”

Too Candid Of A Camera?


SurgicalSuite

You want to talk about tearing a wall down.

It was discussed on many news networks of a patient being awarded $500,000 because of a recording of the medical personnel involved in his care revealed that they were less than flattering about himself and the procedure he was undergoing.  To be honest, I am shaking my head at this one.  In fact, I am not really sure where to start.  So, I guess I will just give the summary.

The patient, who is never identified in the lawsuit, decided to use his smartphone to record post-op conversations for his release and any other needs.  What he got, quite honestly was more than his colon could take.

Anyone, myself included, who has ever had to undergo a colonoscopy, or any procedure that requires sedation or deeper anesthesia, expects there to be some cognitive issues, whether it be thinking or memory, as you come out of the fog.  And that is why it is normally required that you have some sort of guardian, a responsible party, to sign your release following the procedure.  Normally, that person is a family member, because if there is any “positive” news (the kind of thing that is actually negative to hear), that person is also there for support.  But when that option is not available, you have simply an “acquaintance”, who simply gets notified that you have recovered well enough to be released to someone who is not three sheets to the wind recovering from “la la land.”

Many times, it happens that the doctor will come by to the recovery area, and even though the patient is awake, will begin to discuss the preliminary results or finding even though the likelihood is that the patient will have no recollection.  So what is a patient to do?

Well, one patient had the idea to use his smartphone to record the conversation in just such a case.  In many cases, the patient actually puts their belongings inside of a plastic bag, which will actually accompany the patient to the procedural room.  But instead of hitting the record button during recovery, the patient actually hit “record” prior to heading for the colonoscopy.

We have all seen the television shows from M*A*S*H to ER, Emergency to Grey’s Anatomy.  We all expect there to be conversation inside of the surgery suite.  Topics ranged from entertainment to social status, to perhaps even actual conversation about the procedure itself.  I remember going in for my heart surgery, and the surgeon was actually listening to hard rock music before I was even anesthetized.

Intentional or not, this patient received more than an earful, for pressing “record” before he was expecting to.  Of course for that, he is $500,000 richer, and I am certain that those of us who regularly have procedures that we are anesthetized for, will be under scrutiny, and now having to answer to the question (have your turned your cell phone off) prior to the procedure.

Though my feelings are mixed about this lawsuit, my feelings are mixed about the situation itself.

It turns out the patient was actually humiliated verbally by the anesthesiologist and other personnel, prior to, and during the actual procedure.  The anesthesiologist expressed annoyance with the patient during sedation, enough to harass the sedated patient by saying to the sedated patient that he wanted to punch the patient in the face for the discussion during pre-op.  Comments were made about the way the patient had fears about the procedure, and then of course countless inappropriate insults.  Of course this behavior did not belong in this situation.  And had the patient not recorded the procedure, he… we would have been none the wiser.

I am sure that an incident like this does not happen often.  But seriously, as a patient myself, who has to plead, for the benefit of the person who has to try and put an IV into my chemotherapy destroyed veins, I do not expect to be ridiculed for being a baby for getting stressed out after the 7th or 8th attempt of getting the needle into my vein.  Or perhaps for making sure that doctors and nurses respect my knowledge of the delicate issues that revolve around my cancer survivorship, my life depends on it.  Because of my complicated immune system, if preventative antibiotics are not considered, my risk of not surviving even the most routine of a procedure are high.  There are certain things that can never be done to me because of chemo and radiation damage such as giving me pure oxygen.  I would be mortified knowing that my reward for trying to make sure that those involved in my care, took all the steps necessary, was to end up being mocked.

Should this incident have happened?  Absolutely not.  In fact, I even question the smartphone recording prior to the procedure.  After all, nearly everyone these days of Youtube and Instagram want 15 minutes of fame.  Was it worthy of a $500,000 award?  No.  Should those involved have been punished?  Absolutely.

Will it affect me, my confidence, as my annual testing for my long term cancer survivor issues will be coming around shortly?  I want to say not.  In fact, I cannot afford to think otherwise.  I have a lot of serious issues.  I need to have the confidence in my team that is treating me.  But if I am being honest, it will be at least a blip on my radar.

Adding A New Tool To Math


I have a unique situation with my children.  We live more than a thousand miles apart.  But from the day that their mother and I officially separated, I knew communication would be an important factor to maintaining the father/daughter relationship as they grow.

Unlike my childhood, when my parents split up, my father lived fairly local.  But there were choices that he made, and long story short, his visits eventually became less frequent, phone calls eventually faded, holidays and birthdays no longer mattered.  Again, this was a choice that he made.  And this was in spite of him living locally.

But here in the 21st century, technology has enabled our society with a tremendous tool to communicate back and forth, more valuable than the telephone, because video images, in real time, allow us to now have conversations face to face with each other, no matter where we are.  Programs like Skype, Tango, Oovoo, and the popular Facetime, allow us to talk, see smiles, share tears, experience sincerity and other emotions.  Having experienced the communications issue with my father growing up, I knew this would be a critical component when it came to a custody agreement.

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So on a daily basis, on occasion more than once a day, I speak, and see, both my daughters in between the times they visit with me.  I say more than once a day, because besides the nightly “miss you” and “love you”, we have found another way to keep our relationship in tact, and my value as their father.  Just as I did when I was in the home before the separation, I was the parent that helped with homework and studying.  And with Facetime, I am able to continue this, along with using internet tools provided by the schools.  Just as I did when I was in the home before the separation, I am, continue to be, and will always be involved in my daughters’ educations.

But technology has provided to be even more valuable than that.  Recently, one of my daughters has been having an issue with one of her subjects.  And in spite of my help, still seems to struggle.  I have been reaching out repeatedly to their teachers and guidance counselor for help, tutors, anyone who could help my daughter.  Unfortunately, the school district no longer refers tutors as procedures do not allow.  I am guessing it has something to do with a litigious reason, somebody complained, sued, and now no student can get help.

Enter my world of Hodgkin’s Lymphoma, and the internet, a fellow survivor that I am frequently in contact with, was aware of my plight with my daughter’s math situation.  She spoke with her daughter who is in a grade several years further, and offered to tutor my daughter, from 2/3 of the way across the country, via Facetime.  And so, having access to the math program, the lessons for the week, and a planned quiz, the first tutor session resulted in a 95% score on that quiz.  In what can be equated to a digital penpal, my daughter is showing hope again for a course that she knew she was struggling with, and would have to face even more difficulties next year.

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It is one thing to not be able to provide help locally, but totally amazing that from one of my personal worlds, I have been able to find help in dealing with another.  Because of a friend, who I had only known through a support group for long term survivors of the same cancer I have survived, and only recently physically meant, my daughter’s education is now going to take a huge turn in a positive direction.

And I am fairly certain, my friend’s daughter, along with her other children are good kids.  And I would not doubt it, given the nature of both my daughters, and my friend’s children, that thanks to Facetime, more than just an educational relationship will develop.  Like I said, in the day of technology, this is the new version of being a “penpal.”

I am thankful to my friend for allowing this to happen.  We have both been through our individual experiences with our cancer survivorship, and other physical issues not related.  But with her kindness and thoughtfulness, it enabled me to provide another level of assistance in my daughter’s education.

Thank you.

SAVE THIS INFORMATION!!! SHARE THIS INFORMATION!!!


There has been a lot of conversation on several of my Lymphoma pages and web sites, as well as my personal pages of people battling the flu and other ailments right now.  But before I lose anyone, I want to stress that this post is not just for cancer patients.  I also urge you to save this information, share the information, and feel free to print the picture posted below:

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I am just one of those that happens to pay a lot of attention to illness rates and the medical care received.  I have to.  As a long term survivor of Hodgkin’s Lymphoma, and having lost my spleen during the diagnostic and staging process, and also living with heart issues (courtesy of my Lymphoma treatments), this card has saved my life at least twice.

You do not have had to battle cancer to have lost your spleen.  Many over time have lost their spleen due to accidents such as automobile or falls.  But what was once thought of as a “useless” organ, medicine in recent years has learned that it makes a huge difference in the battles against infection.  And because of that, precautions must be taken.  Many of us are aware of our fragile situations, many are not.

So it is simple.  If you have had Lymphoma, splenectomy (asplenic), have any immune deficiency (like Vitamin D) or compromised immune system (such as those with Lupus and Rheumatoid Arthritis), or cardiac issues, please pay close attention to the information on this card.  My card specifically lists me as “asplenic”, no spleen.  You can make up your own card, shrink it, and laminate it.  But make sure that you keep it with you at all times.

This card was given to me by my doctor, one of the top doctors in the country for Hodgkin’s Lymphoma and late effects at Memorial Sloan Kettering Cancer Center.  The information is crucial.  And it will make a huge difference if dealt with in time.

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