Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Education”

What The Rocky 4 Soundtrack Meant To Me


When Rocky IV came out in 1985, we still had major tensions with the Soviet Union.  And this movie, the fourth in the sequel of too many, gave Americans not only something to cheer about, but to be inspired by.  Unlike the first Rocky, this one was definitely cheesy and predictable.  That is as far as I will go as far as spoiling.

But the movie did produce a great album, and this is now my third album of ten that had made a difference to me in my life.

Of course, the whole concept of the Rocky franchise simply is just overcoming adversity.  My life has been filled with adversity.  But in the first major challenge of my life, this music made a difference.

I have finally gotten around to writing the book that I have always wanted to write, courtesy of Covid19.  Of the other times I have begun the process, this being the sixth, I am now currently on Chapter 21.  So far so good.

In what I have written already, I mention that I listened to my Walkman during my treatments.  For those not old enough to know what a Walkman is, it was a device to listen to CD’s… oh hell, too much to explain progress.

I placed strategic music on this Walkman.  I was fighting cancer.  And I knew that going through chemo was for the fight of my life.  And after all, in the end, Rocky always won, literally or metaphorically.  So, with my eyes closed, I would listen to music that would have enough energy and inspiration to get me through my eight round fight.

The soundtrack is not without its flaws, but with technology, I only needed to “burn” to a CD certain songs from the album.

The 80’s pop band Survivor actually had three songs for the movie, “Burning Heart” and of course repeating “Eye Of The Tiger” used also in Rocky III.  But Survivor’s third song ended up cut from the movie and the soundtrack.  Not really sure where it would have fit, which is why it was cut, but it was a great song nonetheless.  It was called “A Man Against The World.”  Definitely written for Rocky, it is a constantly played song in my playlist.

The other hit from the movie was James Brown’s “Living In America.”  It was a rejuvenation of Brown’s popularity, but the song overall was as cheesy as the movie.

But there were two songs that did not attract as much attention, but to me were inspiring in their lyrics, and the music just lit the spark I needed to push harder, just as it did in the movie.  Robert Tepper’s “No Easy Way Out” was played during a time that Rocky was now questioning everything he had done, whether it was worth it, because of the ultimate price paid.  The other, John Cafferty of the Beaver Brown Band sang “Hearts On Fire” during the cliche training montage.  The song is heart pounding and sounds victorious.

And as usual, there are instrumentals that inspire me to turn the volume as high as it can go.  And just like Bill Conti’s “Gonna Fly Now” in the very first movie, Vince DiCola’s “War” and “Training Montage” ended my chemotherapy appointments.

But my appreciation for this odd choice did not stop in 1990 and my remission.  Every time I have had to deal with a health issue resulting from the late effects of my treatments, requiring rehabilitation or starting over, it is this same music that I turn to.

“Yo Adrien… I did it!”

When The Time Comes To Vaccinate Against Covid19


I want to state very clearly, I am not an anti-vaxxer.  Do I support every vaccine?  No.  Do I believe there is any kind of intent or negligence in their development or usage?  No.  Are there potential immediate side effects that are known?  Absolutely.  Are there potential late effects from vaccines that are unknown?  Of course.  Is there some sort of conspiracy to “implant” any “chip” for surveillance through the injection?  Well, though not likely, but thanks to science fiction and the movie “Fantastick Voyage” (I wrote about that recently), it cannot be denied.

As we try to contain and eradicate one of the worst viruses our world has ever seen, we are going to face the decision some day, the day a vaccine is created.

I received all my vaccines as a child for measles, small pox, polio, etc.  My children were also hit with all of their vaccines as recommended and/or required to attend school.

I recently documented my struggles with my immunity, and the need for booster vaccines against pneumonia and meningitis, both of which are considered mandatory for my survival.  And though strongly recommended, I routinely refuse, against my doctors advice, the flu vaccine.  My children do get them.

My children have both gotten the HPV vaccine, supposedly proven to prevent at least one type of ovarian cancer, the general type of cancer that took my grandmother’s life.  I should have been glad to have my daughters vaccinated for that, yet I objected to it.  My reason was simple.  I knew the vaccine was pushed through the approval process quickly, and that there could not have been sufficient studies done for late effects and they had not been studied.

If you follow my blog, you know this is a huge red flag for me.  Late developing side effects, and the lack of studies on them are whey I deal with what I do today.  I was a guinea pig with my cancer treatments.  Yes, the treatments were successful, but have come at a cost.

In 2010, we were dealing with the swine flu, H1N1.  This was the only year that my doctors were not giving me any kind of option as far as a vaccine was concerned.  H1N1 was not as contagious or lethal as Covid19, but it was still bad.  I was ordered to get the vaccine, newly created, as well as the seasonal flu vaccine, and was scheduled to get one of my pneumonia boosters as well.  I ended up getting all three that week.

But as I am sure will happen once a vaccine is discovered for Covid19, when the vaccine came out for swine flu, there were restrictions who could get the vaccine initially because of supply issues.  Just as Covid19 vaccines will likely be, vaccines were restricted for H1N1 to children, pregnant mothers, high risk conditions, and the elderly.

The stares I got in line from all of the mothers, pregnant or not, and the elderly paled in comparison to the pressure felt between Victor Drago and Adonis Creed.  Because you cannot see my vulnerabilities, the average person just assumes there are none.  And of course, my vulnerabilities are no one’s concerns.  But I definitely felt the icy glares from all around me, wondering how much balls it took for a “healthy looking” young man to take away a vaccine opportunity from someone who really needed it.  And if that was not bad enough, the result of getting all three of those vaccines in one week, was too much for my body to have been challenged, and I felt probably as bad as if I had gotten the virus.

And undoubtedly, this pandemic will leave me with the difficult choice again, between to vaccinate or not.  One factor that takes it out of my hands, whether the vaccine will be live attenuated or inactivated (dead).  Simply understood, one vaccine is made from the live virus, the other, from dead virus.  And there is a difference, as the inactivated vaccines are not as strong, and my take multiple boosters to build up the immunity needed.

Many of my fellow long term survivors face this horrible virus, shingles, a cousin of chicken pox.  Of course, most of us have either had chicken pox or were vaccinated.  But our susceptibility to shingles, multiple cases in fact, is due to our history and treatments for Hodgkin’s Lymphoma.  Of course, those who have not had Hodgkin’s can acquire shingles, but to prevent it, you can get the vaccine, unless, at least until recently, as long as you had your spleen.  You see, the shingles vaccine, Zostavax, is a live virus vaccine.  So we, as long term survivors can only suffer through this malady.  Until recently, a new vaccine, an inactivated one, called Shingrix came out, offering hope to millions without spleens against this painful virus.

And so, as the race is on to find both a cure and vaccine for Covid19, once again, we Hodgkin’s survivors and asplenic patients will be waiting to see which is developed first as far as vaccines, live attenuated or dead inactivated.  So far the news has been leaning to two vaccines, one in England, but both are live attenuated.  And the hopes are high enough that production has begun, with the hopes this is the vaccine.  A high cost risk if it is not.  But clearly a dead or inactivated vaccine will be long away.

And once that vaccine is actually found for those of us who are compromised, we then face another difficult decision.  Do we take the risk?  Sure, they will tell us about the short term possible side effects.  But what about the long term side effects?  There will have been no studies done.  Just like there were no long term studies done on the treatments used on me, and millions of others who lived long enough to develop them.  Do I really want to be a guinea pig again?

Something We Can All Relate To


Our country, no, the entire world is in the grip of what is likely going to be the worst health crisis it has ever faced.  Information and misinformation make it difficult to figure out who is telling us the truth, and likely making it more dangerous in delaying protective steps necessary to protect us, and prevent the situation from getting worse.

The pictures I have shared above are emotionally provoking.  Some people see this photos and they see ignorant and selfish people risking not only their own health, but the health of all, including those on the front lines who may one day have to treat them because of their poor decision.

But for others, and this is going to shock some of my readers, but I can kind of empathize with them.  I am stressing kind of, because I believe without a doubt, they are fools and defiant as a three year old throwing a temper tantrum.  And this has nothing to do with their right to assemble and protest.  I believe in that right 100%, no matter what the cause, unlike those who have a selective criteria to be an acceptable protest.

Protesters want us to believe this is about freedom and liberties.  We are expected to think it is more important for an economy to thrive than for people to live.  But I want to argue something even further.  And here is where my empathy comes in.

What a great musician, what a great album.  The title of the album… definitely thought provoking.  The title track from the album started as follows:

“Well they took me to the hospital,
And I swore I would’t go.
My blood was running much to high
My heart was much to slow.
The doctor had some questions, somethings he had to know.
My baby shook her head and said, the boy’s got no control.”

I used to think the worst thing about dealing with cancer used to be the hair loss, the nausea, the fear that I was going to die.  Looking back, I could not have been more wrong.

I was recently interviewed for a podcast for my perspective as a long term cancer survivor.  And it was during this interview that I realized what was actually the worst part of fighting cancer.  Seeing the protests and seeing all of the social media posts, confirmed it.  The two situations, while the circumstances are different, the perspective is the same.  It is a matter of all of us recognizing it, and then being able to empathize with each other.  Perhaps that might be the door to open enough to allow us to support each other during this health crisis.

My story, like others, I was “livin’ life” to its fullest.  Parties.  Working.  Girlfriend.  No cares in the world.  Not even aware of anything in the world.  I was in control of my own life.

But with the diagnosis of my cancer, and actually every health crisis that I have face and continue to face, I lost all control.  I had no control.  I had to give up all control as if my life depended on it.  Because it did.

The difficult part is, that you do not realize that you have lost all of that control with your life, with your body.  You are too distracted by all of the other things going on with your diagnostic tests, treatments, relationships, and other aspects of your life that you could not put on hold.

With the diagnosis, and this goes for any serious illness or injury or trauma you face, it is the same situation every time, you lose all control.  You have to get to this appointment.  You have a schedule to keep for your treatments.  There are things you need to avoid so that as not to react or counteract the treatments.  Patients get told of things that cannot be done, temporarily or ever again.  And your plans for the future?  Those likely will never exist again as you had dreamed of.  This is what we in the cancer world often refer to as the “new normal” once we are done.

For a period of time, could be months, could be years, as cancer patients, or dealing with another serious issue, we no longer have control.  We have to listen to those that know how to get us through the particular situation that we are dealing with.  We have to trust them, because they are the ones with the experience.

And yes, by losing that control, we lose our freedom.  But it is temporary and we know that.  And that is why we accept that loss of control.  Because we know in the end, that temporary concession is what will help us to survive.

To those who are protesting, I respect your right to protest.  I may disagree with some of the motives, but one thing I definitely understand, are those protesting over what they feel is a loss of their freedom.  Like millions of others, I get that.  And that is why I can empathize with them on that fact.  Knowing this, why cannot we convey to those protesters then, and convince them, that this loss of control is temporary?  For the health?  For their lives, and possibly the lives of their loved ones?

Yes, I am naive.  It should not be that hard to understand.  Unfortunately our society is not only politically driven, but also politically split.  There will always be an opposition now to the party in charge, and that opposition will have zero trust.

I cannot imagine where I would be today, thirty years later, had I not trusted my doctors.  Did I like them all?  Absolutely not.  I have written many times of my aggressive behavior toward at least two of them.  But that never kept me from trusting them, surrendering the temporary control of my life, so that they could save my life.

Like I said, I am naive.  The only way that you can truly appreciate this type of thinking, is to go through some sort of trauma like this yourself.  Sadly, this crisis is that trauma.  But unless you have gone through something before this moment, you cannot relate what I am saying.

But just as my battle with cancer, with Covid19, we are being asked to take precautions.  One of those precautions we must take, is to protect us from others that we cannot rely on to also take those precautions.  The contagious period is only up to fourteen days.  In theory, with what was being asked of us, with 100% compliance, worst case, we could have been done with this no longer than three weeks, at worst a month wrapping things up.  Yes, to do that would have meant giving up control, or as the protesters call it, their freedom.

So now, as restrictions ease up, in spite of continually climbing numbers, which means it is still bad and getting worse, but it is going to return us to the reckless exposure and risks, and we will have even more gruesome numbers to deal with that have been bad enough to take in.  And instead of a short time loss of control, or freedom, we will be looking at an extended and sustained period of loss of control.

I get it.  It was a political point you were trying to make.  But in reality, it was about giving up control of your life.  Most if you are fortunate, have never had to do that.  As a cancer survivor, I did.  I knew what to expect during this crisis.  I went through so much worse than we were being asked to do during this crisis.  I lost financially big time.  I know what it is like.  I know what financial loss feels like when you cannot work.

What it boils down to is the comparison to the three year old spoiled and defiant child who will not be told what to do.  In the end, that child has no choice, one way or another.  Except in this case, one way is dealing with the crisis in an accepting and cooperative effort, the other way is living with a death count that is unacceptable.  And being one of the lucky ones not to succumb to Covid19 does not make you right in your decision and stance.

This is not about freedom.  This is about control.  And right now, the Coronavirus is in control.  Are you going to make it worse, or are you going to do your part, as the “United” States of America, so that we can get through this, recover, and rebuild?  That choice you do have control over.

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