Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Cancer”

Cancer Survivor Day 2015


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My name is Paul Edelman.  And I am the author of “Paul’s Heart”.  I am a 25 year survivor of Hodgkin’s Lymphoma, a form of blood cancer.

June 7, 2015 is National Cancer Survivor Day.

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If you are reading this, not only do you know of one cancer survivor, me, but I am willing to bet, that you know many more cancer survivors.  Back when I was diagnosed, it was difficult, let me correct that, I never heard of National Cancer Survivor Day.

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Today, there are well over 12,000,000 cancer survivors just in the United States alone.  Cancer survivors are a special group of people.  Not only do they survive a once definite death sentence, but their presence now also contributes to better cures, and better follow up care, so that one day, not only a cure can be found for everyone, but perhaps even prevention.  And I do believe in my lifetime I will see this day come.

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Please, today, whether it be on Facebook, Twitter, or any other social media, please give a shout out to cancer survivors you personally know.  I literally have met over a thousand survivors over my 25 years, and I could not possibly name all of them on this blog without forgetting a name.  But two that immediate come to mind that I definitely want to wish a Happy Cancer Survivor Day to, are both subject of prior posts on my blog.

Stephanie, every day I see yet another huge leap in the battle against cancer with you.  You are an inspiration to me because I know what you have gone through to get to this point in just a few short years.  You will touch so many lives in your care of patients, perhaps some who have developed issues related to their cancer treatments themselves and because of your history, you will have a completely different perspective with patient relationships.

And Jeff, it is bad enough that we have to go through this shit once.  But yet again, you have been challenged.  You have dedicated your life to fighting against Lymphoma, and the cruelest of ironies, you are battling it yet again.  As I write this post, I know you are on the upswing from your transplant.  Please know, that no one is pulling harder for you, than to someday soon, here those words again, “you are in remission.”

To everyone else, whether it is weeks since you completed treatments, or decades, today is an important day for all of us.  I wish you all well.

Screenshot_2014-12-26-12-30-08 Paul Edelman

Remembering My Father… 1 Year Later


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It has been one year today, since my father passed away from lung cancer.  With all that has been going on in my life over the last two years, I have not taken any time to grieve for my father’s passing, let alone, remember better memories that I have of him.  My childhood memories are vague because I did not get to spend a lot of time with him, something he always told me that he wished he could get back, as did I.

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I would like to dedicate this post, to the memory of my late father, Paul Edelman, Sr.

Dad, I miss you.  But I also remember you.  And those memories are what I carry with me, during my difficult times, and will carry with me during my happier times, because I believe in spirit, you will always be with me.

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I remember a German Shepard named Duke and how you used to play with him.

I remember going to Dino’s Drive In for soft ice cream in your red convertible before taking me home to my mom.  You always ordered raspberry.

I remember visiting “pappy” in Jim Thorpe.

I remember Easter Sundays.

I remember my first and only “legal” beer with you, at the Buckeye Tavern.  I’m sure by now you have heard what happened.

I remember the day you told me, “I’m sorry.”

I remember how much you loved my daughters.

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I remember how much they loved you.  They miss you very much.

I remember how much I had to fight with you to take it easy during your treatment period, but how you insisted on getting to the “music in the park” in Albertis, because you enjoyed the simplest of Sundays, good music and bingo.

But one of the best memories I have was when Madison sang to you, when you could no longer get to the music.  And when you recognized the song, you nodded in approval.

Dad.  I miss you.  But I also remember you.

 

Describe The Feeling


One of the statements that always frustrates me when I hear it, is “I know how you feel.”  No, you do not ever know how I feel because you have not personally experienced what I have felt, thought admittedly, you may have an understanding, perhaps because of having had a similar experience.  So, gasp, at the risk of being “politically correct”, gulp, something I am not very good at to begin with, yikes, perhaps instead of stating “I know how you feel,” if you feel a need to respond, simply say, “I understand how you must be feeling.”  It lets us know that you have heard us express what we may be dealing with.

There is a pretty good chance that if someone is expressing something that appears painful, physically or emotionally, that person is either trying to relieve some of the angst or negativity, or is reaching out for help.  And though it may seem harmless, to say “I know how you feel,” and perhaps you may be trying to say “I hear you”, that is not how it will come across to the person seeking someone to just recognize that the individual is not alone.  What that person hears, is that you also have your own problem, and there is a good chance that now guilt will be added to the other’s issue, or perhaps if it is someone who has the personality of taking more on their shoulders than they should, they will add that to their issue as well, because friends do not turn away friends, especially when in need.

Okay, so I got off topic with the title, but I could not help writing the first two paragraphs, whenever I hear people discuss how they are feeling, or what something feels like, and I always hear the same thing, “I know how you feel.”

So, the other day, I was asked, what did it feel like to get diagnosed with cancer?  To get diagnosed with a major heart issue?  To find out that the price of my survival has been more physical ailments caused from the severity and toxicity of my treatments decades ago?

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Yeah, like that.  Like having the wind knocked out of me.  At the time of my cancer diagnosis, I was six months away from getting married (the first time), had a great job.  Things were looking great.  And just like that, it all changed.  When it came to my heart issue, again, everything was going great, my daughters were growing rapidly, the house was in good shape (and so was the economy until a few months later).  And just like that, it all changed.  As for the other issues I am dealing with, they have not presented themselves yet to the point, that I am left with that “punch in the gut” “knocked the wind out of me” feeling.

But just as fighters get pumped for their big fight, something they have looked forward to doing, so it is with events in our personal lives.  But eventually you have to get into the ring.  Sometimes you just get hit with jabs.  Sure, they sting, but not often do they have the impact that a good punch to the rib cage will cause gasping for air, like wondering “what just happened?”  And very quickly you need to regain your focus before you end up taking another severe shot.  Very much so, once being given a difficult diagnosis.  It is so important to regain that focus.

There is a lot of information that will follow that “punch in the gut.”  And unless you have someone else with you to help gather the information, you are the only one in that ring.  You have to defend yourself and get on the offensive.

I have people who have given me news of diagnosis, getting divorced, deaths of loved ones.  And while I have a strategy for getting through these events, some work, some do not, it is not a “fitsall”.  But neither are the feelings that I had when experiencing these things.  But what I do have, is an understanding of what someone may be going through.

“I understand how you are feeling,” may just open the door for the other person to reach out for help or support, that if originally told “I know how you are feeling,” the person may just shut down feeling you have your own burdens and then not wanting to burden you with anymore.

And just for the record… I have taken a punch to the rib cage knocking the wind out of me.  Emotionally for me with my diagnosis, it left me with the same feeling, just mentally, instead of physically.

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