Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Adoption”

What I Learned From My Oldest Daughter


March 14th has two meanings in my life. My maternal grandfather’s birthday was that date, a date I will never forget, because of what happened twenty-two years ago, the day I became a Dad. I need to mention, I am not making reference to my daughter’s birthday, but rather the day she was placed into my arms, and through the adoption process, became my daughter. Those of us in the adoption community refer to this date in many ways, “Gotcha Day” or “Forever Family Day.” So each year, both of my daughters have two dates that get celebrated, their adoption date, and their birthday.

Both of my daughters, now adults, understand how the decision came to be, that I would seek adopting them. Cancer treatments had left me unable to have biological children, and scientific alternative methods were also unsuccessful. If I was going to be a Dad, adoption would be my only option. And once the decision was made, where and from who, on March 14, 2004, the day after I landed in mainland China, my oldest daughter was placed into my arms. I was a Dad.

My experience, or rather role models for fatherhood were lacking, as my parents had divorced when I was three years old. Unfortunately from there, my relationship with my father grew estranged until we had made amends in my adulthood (long story, not for this post). But I really had no role models or ideas what a father was supposed to be like, other than when I would spend time at a friend’s house, and see how their fathers were. I had two main friends in high school that I watched and gained this experience. But still, would it be enough, for the day when it came, that I was responsible for a tiny young being, reliant on me, my responsibility to keep safe, to teach, and to prepare? Sure, I read all of the bedtime stories, went through the Santa and Easter Bunny traditions, helped with homework, and assisted with preparations for college. As adults, I now need to make sure that my daughters learn all they can about the adult responsibilities they will need to handle.

As much as I had to teach her, it was her that taught me so much. Things I would learn from her, her younger sister would benefit from that. As my oldest daughter, it was she who taught me patience. Seriously, as adults, we rush to get to work or to the movies, we expect things to go smoothly as planned, we want things the way we want them. That does not happen once you become a Dad. If she decided she was not going to wear something that I picked out, that was a battle I was going to have to choose if I wanted or not, usually not. And as much as I could plan things out, even with my daughter, if she had other thoughts, that would be extra time being dealt with, no matter what deadline or need was waiting.

And then there was taking extra time, not her, but me. I got a whole new perspective on things and life, through her eyes, appreciating all the things that she enjoyed, and why she enjoyed them. It could be a butterfly, the moon, whatever, each thing that she expressed amazement with, was from a perspective of an innocence I had not thought of.

I believe I always had empathy, definitely a result of having gone through cancer. But I learned to be much softer and more aware of someone else’s feelings, and they mattered to me. So I became a better listener. I needed to hear and listen what she was feeling, because that mattered. Life was no longer just about me, but what she thought of and worried about, mattered to me.

If there is one thing that I have been constant with both my daughters, is that I need to be there for them, I want to be there for them. The drives to school. The anticipation waiting for my daughters to wake up for Christmas presents and Easter baskets. Both have learned that they will always be able to count on me. Of course, they also realize with my health issues from my treatments, those days do not come easy. If there were any regret I have, is that I probably worked too hard, too much, too often. And there would be things I would miss. But I always felt that I was doing good by earning more, to provide more, to be able to do more, until my oldest asked one day, “how come you are never home Daddy?”, a fair question of my 50-60 hour work weeks plus weekend side work. All she wanted, and clearly missed, was time with Daddy.

There is not one moment that went by, too big or too small, that was not an opportunity to enjoy the “little things.” Through their eyes, my daughters taught me the world is a beautiful place. We got caught in a downpour of rain while riding bikes. Who cared?!? My daughter’s love of all creatures, even the lizards and water bugs that found their way into our pool deserved to be rescued.

The one thing I could not learn from my friends parents, was how to be vulnerable, to be okay when it came to being emotional. There was no preparedness to deal with fear and pain my daughters would experience from hospitalizations, to loss, whether it be friendships or family member passings. There have been countless times that both of my daughters have brought out so much pride as their father, that my eyes leaked. And that was okay. As they got older, their needs changed, situations got more complicated, and that meant that we all had to adapt. And that meant more patience. I must admit, I know that both my daughters have me wrapped around their fingers. There is nothing I would not do for them.

And because I always knew that I was being watched, the things I did and said mattered. I am not known for using foul language in conversations. My daughters do not see me drink and drive. I have done what I can to be their role model for when/if the time comes that they get involved with someone, and that ends up for the rest of their lives. I have made sure that it matters to them, that they are as respected as the respect they will give their significant other. They are to stand firm in what they believe, remember the virtues that I displayed for them, as that will make them the best person they can be.

And when it comes to love, and being loved, both my daughters taught me what that feels like and what it means to have that in your life.

Every year, on this date, I think about how my life changed, now twenty-two years ago. And I wouldn’t have it any other way. Not only has she been a great daughter, but also a great older sister.

I heard a very profound quote the other day, and I am paraphrasing, “I have spent most of my life, learning to live with you. And now, I spend my life teaching you everything necessary in life for the time you have to live without me.” And that hits hard as a 36 year cancer survivor with a very complicated health history. My daughters have family and friends who have lost parents. I am no one special to deserve to still be here with all that I deal with health wise, but I do have enormous pressure to make sure that my daughters learn everything they need to not just succeed in life, but thrive, before anything happens to me.

Being a Dad has been one of the most meaningful things of my life, and I have been twice blessed. My purpose in life changed the days that both of you were placed in my arms. I am proud of both my daughters in ways that can never be put into words. Both have great opportunities ahead of them, fearless, strong, and oh yes, determined. My biggest influence on them, is that hopefully I have given them the confidence to believe in themselves as I believe in them. They are both capable of achieving anything they set out to do, they carry my last name. And I hope that I have been the role model to them, that I did not have, to learn what strength is, what sacrifice looks like, and what unconditional love is like, because I know that is what we have, and no one, and I mean NO ONE can ever take that away. When things get hard, and life gets overwhelming, they will be able to hear the kind and supportive voice of their Dad in their heads, that they can get through anything. They are my daughters.

I love you Madison and Emmalie. For as much time as I still have left, and no matter how old you grow, you will never lose this enormous hold and space in my heart. But admittedly, forever you will always be my little girls. And you will never be alone.

Maddie And Emmy


The following is a short story that I wrote for another project earlier this year, a tribute to my daughters, my reason for being.

Maddie And Emmy

By Paul Edelman, Jr.

As a thirty-five-year survivor of Hodgkin’s Lymphoma, some would think that my greatest achievement is simply surviving.  Living as a cancer survivor for thirty-five years is indeed a significant milestone, surpassing the well-known five-year mark told to cancer patients, when they can consider themselves “cured” of their cancer.  However, I consider my greatest achievements to be my two daughters, Madison and Emmalie, the most important parts of my survivorship.

At the age of twenty-two, one of my main concerns was how cancer would impact fatherhood. Once I had completed both radiation and chemotherapy treatments, it was discovered that chemotherapy left me unable to have biological children, which devastated me.  I had always dreamed of becoming a father and had to seek other ways to make that dream possible.  Fertility treatments via artificial insemination and in vitro were unsuccessful.  My only remaining hope was adoption to help me achieve my life’s greatest purpose, fatherhood.

Maddie and Emmy were born thirteen and fifteen years after the time when I first started my treatments.  But it was halfway through my recovery survivorship, they witnessed my first health issue caused by late side effects from radiation and chemotherapy administered eighteen years earlier.  In 2008, when they were five and three years old, I nearly died from a severe cardiac event, nicknamed for its lethality, a “widow maker” blockage to my heart.  I will never forget the bone-chilling words that my cardiologist said to me, “it was not a question of ‘if’ you were going to die, but ‘when.’”  I underwent an emergency double bypass to save my life.  Three days later, my daughters were brought into the hospital, shocked to see my condition, yet relieved that I was going to be okay.  I survived this first of many health complications caused by my treatments.  The one constant has been my daughters, my inspiration through each health crisis faced during my survivorship. 

 

Cancer survivors generally do not want their experience with cancer or any subsequent health issues to define them.  What holds significant importance are moments like hearing “I love you Dad” from their children and witnessing their growth over the years.  

Balancing my medical appointments and parent-teacher conferences was a challenge.  My daughters remember good times with me from birthdays, holidays, amusement parks, and vacations.  Despite all my health issues, I made sure I witnessed each of their high school graduations.  Today, they are both in college, which seemed unimaginable to me thirty-five years ago.

My daughters are aware of my successful battle against cancer and openly discuss it.  Because they were not there during my treatments, they did not witness all the medical challenges I faced at that time.  However, as adults, I make sure they are fully informed and involved about my ongoing health concerns.  Their support and presence provide me with motivation and purpose, inspiring me to look forward to each new day as a significant milestone and the many more events in their lives that I will get to witness.

Before That Next Milestone


I have a huge milestone coming up in my cancer survivorship of Hodgkin’s Lymphoma. And unlike past milestones, I want to be able to recognize it, and celebrate it, because it really is and should be a big deal. But I have this issue, survivors’s guilt that I have carried with me my entire survivorship. And it is powerful enough, that with each milestone I recognize, there comes a “yeah but” with every recognition.

I have been this way my entire survivorship. Even as I was going through my treatments, I was so hard on myself, unable and unwilling to give myself credit for what I was going through in spite of pleas from my nurse and counselors. No one is tougher on themselves with survivorship than I am. It is even documented in my medical records. I went through lifetimes, that’s plural, lifetimes of levels of exposure to radiation therapy, and the most toxic of chemotherapy, and yet, my attitude was always “someone has it worse than me.” I was not going to allow myself to feel pity or mercy when others I perceived were going through worse. Through my survivorship, this attitude has continued with the various late side effects from my treatments that I deal with. I talk a good game with those who feel their issues are not as bad others, and I remind them, “that does not make your issues any less real, any less painful, any less important.” Empathy, having been there, done that, I feel a level of guilt each milestone, anniversary, or birthday that I get to experience, when others do not. My survivor’s guilt is not in having survived cancer, not at all. I am 100% grateful for all that I have gotten to experience over the years. No, my survivor’s guilt is for all those survivors that I have been blessed to have met in my life, in all stages of their survivorship from treatment to life after, no longer here, some never having even had the chance. That is my guilt. Why me and not them? As I write this, news has just gotten to me of yet another long term survivor of Hodgkin’s has passed. Of the first three survivors I ever met, over thirty years ago, only two of us still remain. A kid of 24 years old, in remission from Hodgkin’s only a few months before he passed away due to treatment side effects. Long term survivors who needed surgeries to address late side effects for their heart, lungs, skin cancer, etc., only to succumb to complications. And there there are those who have spontaneous events that their bodies just cannot go through anymore. I have had my share of time spent in the ICU, on the operating table, 3 heart surgeries and others, pending cancer diagnosis, and my list goes on. Why am I still here, and others are not? Please, do not tell me I am lucky. Luck has nothing to do with it or I would stand on the beach during a thunderstorm or play the lottery.

Over my years, I have heard my doctors and nurses try to encourage me, to get me to understand how extreme everything was that I went through. And I would tell them that I understood more than they knew. But my internal “toughness” was how I dealt with my cancer, and how I deal with my survivorship. As a result, each milestone, every anniversary, and all of my birthdays, I do celebrate with a “yeah but…” I want this year to be different. I want to give myself permission, that it is okay to celebrate as loudly as I can, what a big deal this next milestone will be. And I know there will be so many that want to celebrate with me.

After some thought, I came up with an idea this year to help me to really appreciate this upcoming Friday, while recognizing and remembering all those who came into my life through survivorship, but not here to celebrate with me. I am going to take care of this, as well as some other things before Friday, all that will be left then is to celebrate a very big day.

I maintain a memorial page of survivors no longer with us, who had the same cancer as me, Hodgkin’s Lymphoma. Some survived decades, and some never even made it into remission. I personally knew most of them. They provided inspiration to me. I miss them and wish they were here right now to see this day. And my thoughts are always with those facing surgeries and other medical interventions for the late side effects.

Now for the other part that I need to take care, and release if you will. There has been a lot of toxicity that I have carried over these four decades, and as Buddha tells us, I need to let this go, it does not matter. In fact, it never has. And so, I am going to let it go.

Friends, co-workers, and even family members who turned their backs on me, selfishly disappearing because of fear or the negativity of cancer having come into their life with me in it, even though I was the one facing it. Spoiler alert, I am still here, and you are not. And this behavior has continued as I dealt with all the late side effect health issues that I have faced. I know I sound angry, but it is more of a disappointment. In a time when I needed the support most, many chose to bail. Or worse.

I do not speak of it often, but when I say “worse”, it is not an understatement. For more than a decade during my survivorship, I found myself having to survive something I consider more difficult than my cancer and all of my health issues combined, divorce. Imagine, cancer should easily be one of the worst things a person deals with. But with cancer, at least there was going to be an end, and at least there was a plan to get me through it and the people responsible for getting me through it, I had confidence in doing so. Not so with my divorce. For ten years, I faced multiple players who felt they had a stake in my divorce, and the relationship with my daughters. Friends chose sides. Family turned their backs. All claimed to have my daughters best interests yet chose an involvement that meant to cause only the greatest harm to them, if efforts had been successful to keep my daughters from me, a fate that would have been worse to me than dying from my cancer. I actually have messages from trolls wishing me ill that I have not forgotten. But I cannot help but think, of all those that wanted to watch my daughters grow, when was the last time you actually saw them? Because if you had not turned your backs on me, against me, you would see how wonderfully they are doing, well in school, and beautiful young women. And yes, they love their Dad.

It is not lost on me, I do not take my milestones for granted, each possibly being my last one. I have great doctors who take care of what they see, which leaves only the unexpected to happen. Longevity is not something the paternal side of my family is known for, most barely reaching 55 years old, so that strike is already against me, then you add my cancer and all my late side effects. So I am more than aware of my mortality and how fragile it is. My father as he dealt with his lung cancer said, “all I want to do is reach my 70th birthday.” He passed at the age of 70. I am not making any final milestone announcement because I still have so many to reach.

And that is where I am going to leave this off. My next post, likely on Friday, is going to be about that milestone. I am releasing the things that bear down on me so that I can allow myself to celebrate this milestone. And it will be the best, as my daughters will be by my side, as they always have been.

Post Navigation