Paul's Heart

Life As A Dad, And A Survivor

Archive for the month “July, 2023”

Best Interest Of The Child


An interesting story came across my newsfeed this week. It was about a step-mother, who mentioned that her husband, had 50-50 custody with his children, an arrangement that had been working for nearly three years, as it was written. The step-mother was seeking opinions from others, about the potential to seek additional custody, as the children appeared under duress, stressed, and saddened as they returned to the mother after recent visits.. The step-mother felt that the emotional anguish demonstrated was cruel for the children, and felt that additional time with their father might help alleviate that.

My first thoughts were, “wow, your husband has 50-50 custody of his children? That’s awesome!” The original draft of my custody, had me going from a full-time Dad with no domestic issues whatsoever, to being able to spend time with them 20-80 which was completely unacceptable to me. I was able to argue for some additional time, but nowhere near 50-50 that I felt I should have had offered to me.

But there is one thing that I can totally relate to this person’s post. And I will do it two different ways. First, as I have mentioned in the past, I am an “ACOD” – adult child of divorce. My parents split when I was three years old. As I grew, visits with my father became fewer, by his choice, then eventually mine. By my choice, it is likely a combination of things I heard growing up about him, along with his actions of not showing up as expected. Of the visits that I do recall with him, I do not remember being upset at all. In fact, I did not even talk about them with my mother when I returned. I just returned to what I was doing prior to my Dad picking me up.

As an adult however, now divorced with children of my own, it has been a much different story. I went from kissing my daughters good night every night, waking them for school every morning, and greeting them as they got off the bus every day. We had dinner with each other every evening. We laughed, we played, we swam, and went for ice cream. Other than my health issues, there was never any question of our Father/Daughter relationship. Then I filed for divorce.

Of course the dynamics of the family change dramatically in a divorce, the parents no longer living with each other. It was not soon after the decision was agreed, that I would leave the house, however, that a comment came from my daughter’s mouth that caught me off guard. “I’m not the one who left their family(referring to me).” This was not a comment that should be coming from a pre-teen child, even in thought. Clearly she had heard it from another grown-up within ear shot. To which I quickly and calmly corrected her, “no, I did not leave our family. I am still with you and your sister. The divorce is just between your mother and I, not you, your sister, and I.” She was not being scolded as it was not her fault for what she overheard, but she did seem confused, the statement I said, made sense to her.

As an ACOD, I had it in my head, I did not want my daughters to have similar feelings I had when it came to my father. So it was my intentions to do all that I could to remain involved in my daughters lives, whether by video, by phone, or in person. Sure, it may not have always been convenient. But they were never going to know the level of loss that I experienced.

The first few custody exchanges went without any major issues occurring. Which I believed allowed my daughters to experience a new “normalcy” not much different than when we were all together. I would return them to their mother, with wonderful memories of the time just spent together. And current emotions were usually mine (because I no longer had those every night, every day experiences), which I kept hidden the best I could, as they walked away from me, until the next time that I saw them. They seemed content in those early moments, regardless of the unfairness of the visitation order.

Then something started happening. Without going into the details, there came interference with the visits, several times, resulting in the visits not being conducted. I never allowed my daughters to see my emotions which were very highly upset as I struggled to get some sort of cooperation. But when a visit was finally allowed to occur, when it came time to return, I was not the only one struggling with my emotions, but now my daughters also, more visible, in the form of tears.

I would assure them that everything would be fine. We would see each other again soon enough, which unfortunately did not always hold true, in fact, given the recent history, there was no guarantee they would be given to me. Their tears were not necessarily for the farewell from the wonderful times we had, but I knew, though we never said the words, the tears were because we never knew when the next time would be. Interference had increased, and visits ended up not occurring. I was helpless to do anything, because I was not the one in control. All I could do was reassure that more visits would come.

As my daughters reached their teen years, these incidents decreased, and so did the tearful goodbyes. My resolve to spend time with my daughters, something that was given and natural from the days they were placed in my arms, was stronger than ever. My desire to be the Father they had always known, had never changed. Even during the pandemic years, the tears eventually ceased because I was able to convince them, everything was alright.

For me, it is now a different story, because they have finally reached adult age, graduated from high school, and now, my younger daughter is going to be heading to college. There are no more tears from them, but now plenty from me, backing up in my ducts. This is the circle of parenthood, what it is all about. It is a natural progression, if you allow it to happen.

In the case of the step-mother, it is easy to transfer feelings from someone to another, or feel a certain cause for that feeling, and then decide the solution needs to be changed, even if not necessarily for the better. With the step-mother, the child may be hurting, longing for what used to be, or perhaps wanting more time with their Dad. But seeking additional time, when it is already set at 50-50, and both parents support the rights of each other and the children, those tears are not about more time for the parent’s benefit.

My time, twice now, as an ACOD and as a divorced parent, is passed. And though I recognize, there are plenty of special and intense situations also known as high conflict, regardless of how one feels about a former spouse, it is not natural or healthy to involve a child in that conflict. Like I said, there are special circumstances. But for too long, it is those special circumstances, that led almost all courts, not just in the US, but around the world, to have the starting point of custody to be favored towards a mother, with no science or evidence necessary. Courts are now recognizing the unfairness of this process, and slowly, states in the United States are now making 50-50 the starting point, and if custody is to be contested, then evidence needs to be presented, and hatred is not evidence. What a difference this could have been for my daughters had this been possible for me, to spend equal time with both parents.

For the step-mother, there is something that is upsetting for the child, not necessarily wanting to spend more time with the father, or wanting more away from the mother. The child could be struggling with the fact, that both parents appear to be getting along, and if so, why can’t they still be together? Is it possible the child feels there is something they could do to improve the situation. It causes no harm to ask the child, why they are upset, and then provide them the comforting answer that is necessary that allows the natural relationships between mother and father to continue.

On This Date, 1826


Happy 4th of July everyone! Hopefully by the end of the day, everyone has all of their digits on both hands, and no one is missing a fur friend who may have run away from all the “bombs bursting in air.”

As a Dad, sure, I took advantage of holidays to have fun wherever my family awas, but I also wanted my daughters to learn that the holidays were more than just some leisurely time off. From Martin Luther King, Jr. Day to New Year’s Day, they may have had the day off from school, but I knew that some day, they would become adults, and more importantly, registered voters, it would be important that they understood history, that in most cases impact their lives today.

Though not officially a federal holiday until 1870, and became a paid federal holiday in 1941, the Continental Congress voted on July 2, 1776 voted for independence from England, and two days later, July 4th, representatives adopted the Declaration of Independence, written by Thomas Jefferson. There were disagreements when our “Independence Day” actually should have been celebrated, but the date became July 4th.

Much has been made about why pilgrims came to America, escaping from religious control, but freedom from/of religion was only a small part. Once settled in America, bigger issues came to front, such as realizing colonists were nothing more than a source to wealth to Great Brittain, not being considered their own citizens free of England, and the impositions of several laws, making it even more difficult for colonists, is what led to the Declaration of Independence.

That is basically the simplified nuts and bolts of July 4th. Obviously there is more to the historical importance, but each year, as we celebrate today, a majority of Americans forget how we got here, as evidenced with the continued conflation between “church and state”, with religious influence once again finding its way into determining the laws of the people. There are reasons there needs to be this separation, and that is one of the reasons colonists fled England.

But one of the few unrealized significances of this date occurred fifty years later, exactly. On July 4th, 1826, both founding fathers of the Declaration of Independence and former presidents, John Adams – 90 years old (#2 – Federalist) and Thomas Jefferson – 83 years old (#3 – Democratic-Republican) died within hours of each other. Some claim this was a coincidence, some claim “divine intervention.” Really, how freaky is that two presidents, founding fathers would not only die on the same day, but on the date of the signing of the Declaration of Independence, but also, the 50th anniversary of that signing. Some believe, and if you have ever witnessed the passing of a loved one, that both held on as long as the could, their desire to reach that specific date, and once reached, felt they could “leave.” Adams and Jefferson were friends, became adversaries, and in the end, were once again friends. Their passings on the same day, could not have been more appropriate.

Of course, we would not be Americans if some sort of conspiracy was not mentioned. Such as relatives and others giving experimental medications to the presidents to buy a short amount of time for them to reach the date, or worse, euthanasia once the date was reached. And no, “Paul’s Heart” is not promoting this conspiracy or any conspiracy. Just repeating what can be read on History.com.

There is a movement today, like no other, to forget our history. It was bad enough that teachers were being forced in this direction years ago. But now we have people running for office, even the highest of offices, the President of The United States, pushing that same agenda. Once again, religious decisions are being pushed onto citizens, and rights that have been in existence since before I was born, are now being taken away. Our history tells us what we fled from. Our ignorance to learn or teach our history, is causing us to repeat, or return to the conditions or forefathers did not accept.

So as we make today all about fun, the beach, picnics, concerts, hot dogs and apple pie, and of course fireworks, let’s try to remember, July 4th is a really big deal, something we should never forget. Thirteen years later, the backbone of our country, the Constitution of the United States was written. And though many amendments needed to be added, the preamble or introduction made it clear, our country was not perfect, though we strove to be so, and we would have to work hard to not only get there, but keep it, all based on one statement, and I am quoting from https://constitution.congress.gov/constitution/ ,

“We the People of the United States, in Order to form a more perfect Union, establish Justice, insure domestic Tranquility, provide for the common defense, promote the general Welfare, and secure the Blessings of Liberty to ourselves and our Posterity, do ordain and establish this Constitution for the United States of America.”

Do you see it? “We the people.” That is us. We want justice, peace, protection, well-being (similar to happiness), liberty, and prosperity. I know when I was in elementary school, some fifty years ago, learning the history that was taught back then, the accurate history, not what is being taught to be scorned today, our country was on that path to building that more perfect union. I am hoping that we can get back on that path again some day.

Only Time Will Tell


From the day I was diagnosed with Hodgkin’s Lymphoma back in November of 1988, I firmly believe, the physiology of how my body worked changed forever. Surgeries removed organs and other parts of my body as part of the diagnostic and staging procedures, complicating my body’s day to day survival. Then my body was subjected to all kinds of toxicities from extreme dosages of ionized radiation to poisonous chemotherapy, all in the trade off for survival from cancer, and changing more of my body. And then, as time passed, decades in fact of survivorship, late developing side effects from my treatments now have the largest impact on my health.

And then, there have been all the major surgeries and trauma events that have occurred. My body is always under some sort of strain.

For the last fifteen years, I have been closely monitored by doctors who know and understand what late effects from cancer treatments are about. I get followed up with bloodwork, x-rays, scans, and even procedures to make sure that everything is still on the path of survivorship. Occasionally, there are things that do raise a concern, and when possible, they are dealt with or managed.

Bloodwork is a valuable tool, in that numbers, whether too high or too low, can indicate a problem and the need to investigate further. Some of those blood tests may just be a wake-up call, that something needs to change. My thyroid took a major hit from radiation damage. My blood is monitored annually, my thyroid scanned for polyps or tumors, and medication is taken. I am currently at my highest dose since I began taking it long ago.

Cholesterol is another bad word around me, and I kind of get a double whammy. High cholesterol runs in my family history. But the fact that my liver took a hit from my chemo, makes treating my high cholesterol complicated, as even medications struggle to keep levels to a safe range. I already eat a low cholesterol diet, and exercise as best as I can, but it often feels like I am going up a river in a canoe without paddles.

Recently, another blood level has reached an unhealthy level, and it is just as confusing because between my activity lifestyle and my diet, below average in carbs and sugars consumption, my A1C, the test that measures your sugar levels over the last three months and the answer to cheating for the simpler blood sugar test, has reached an all time high for me, and well into the diabetic range. My A1C has been on the constant rise, in spite of my diet, in spite of my exercise, in spite of being on medication. While my doctors try to figure out what is going on with this issue, I have my own suspicions, of course, just more late side effects leading me to be insulin resistant. My current weight, which has been the same for as long as I can remember, has not decreased at all, in spite of my diet and exercise, but of course is also associated with the higher A1C. My inability to lose any, did I say “ANY” weight has always baffled me.

I know stress also has played a major role.

My exercise regimen, not anything that would lead me to a physique like Lou Ferrigno, simply a large amount of walking, and some upper body strengthening, are meant to either get me into shape from a recent surgery or procedure, or to prepare my body for the next surgery or procedure. I always thought I was doing the right thing. A new situation has me wondering.

Recently, I cracked a rib on my right side, with a casual motion sitting on a chair. The susceptibility from decreased bone density because of my cancer treatments, is responsible for this easier injury to occur. While I am able to function, my arms and legs work, I have had to stop exercising because of the soreness to my rib cage. After one week, and note – nothing after nearly two years since my last heart surgery, I have dropped four pounds. But that is not all. An obvious physical symptom to spot with the naked eye, swelling in my ankles is also down. I have been involved in medicine now for a decade and a half, and can hypothesize, there may be something else at work. And given the history of the health of my body, anything is possible.

As I said, I have been baffled why I have not been able to drop weight all these years of exercising. But as I recover or give myself a rest while my rib heals, I have not been able to exercise. And given my last A1C blood result, and inability to afford the new diabetes medication my doctor wants me to take, I am resorting to the same method I do every time I get confronted with a health problem, major denial and I will prove them wrong. So, two months ago, when I got this news, I made the change to my diet, eliminating 75-90% of any of my carbs and sugars. It is still two months until I will have my A1C checked again, but in the two months I have been doing this, no weight loss.

But after one week, resting from an injury, I got results? Now I know, previously, when I have had to skip exercise for a few days, I recall the loss of swelling, and maybe shedding a pound or two, only to gain everything back, including the swelling, once I returned back to exercising. Again, I am not built like a body builder, and as much as I would love to lean on the theory “muscle weighs more than fat,” something more sinister may be at work her.

Congestive Heart Failure. Do not panic. I know I did the first time I saw it on my chart, which oddly enough did not occur until thirteen years after my first heart surgery back in 2008. But just before my aortic valve was replaced two Octobers ago, there it was on my chart, at least me noticing for the first time, the words, “congestive heart failure.” The term refers to the hearts ability to pump blood and becoming progressively more difficult. The fact is, many heart patients are likely to be considered in CHF.

But my diagnosis of CHF actually makes sense. Though honestly, I do not feel any differently, and actually have been impressed with my exercising and my breathing while doing it. But if the heart is not pumping correctly or maximally, it can cause fluid retention (also known as swelling and weight gain) and other issues. By exercising, I have been making my heart work harder, pump harder. But the time I have taken off to recover from my injury, my ankle swelling has gone down, and I lost a few pounds.

It will be two months before my blood gets tested for my A1C, and will see if my Draconian diet change had any impact. But I am going to refrain from exercising another week, just to see if my current conditions continue, and just as importantly, see if I lose any further weight. Yes, it is a “catch 22”, but if I lose more weight, that is a very important symptom for my cardiologist to be aware of with my history.

If you are someone who has never seen the inside of a hospital, as a patient that is, and have had nothing more than routine annual exams, I am so happy for you.

Post Navigation