Paul's Heart

Life As A Dad, And A Survivor

Archive for the month “January, 2013”

The Bully At Work


I always cringe when I hear the comment that bullying is “just a phase all kids go through.”  But my belief, what you do not deal with as a child, so shall you deal with as an adult.  If you are unfortunate enough to talk with an adult who was bullied as a child, it is sad what you will hear.  “They have no idea what that has done to me in the adult life I lead.”  My life proves such an example.  While I credit my being bullied with my high tolerance for pain, the toughness to endure surgeries and treatments of life threatening illnesses, my inability to “quit” anything, there is a dark side that I do my best to conceal because it is not how I want people to see me.

The problem with school bullies is that they grow up to be adult bullies.  And while the public physical abuse outside of the home may subside, the dominating behavior is brought into the workplace.  It is not bad enough, that competition can force aggressive behavior between employees, but then certain environmental circumstances are used as kindling to start fires between co-workers at the hands of management.  For instance, an employee is habitually absent due to a chronic and debilitating illness.  A supervisor often finds himself scrambling to find people to do the work that risks not being done and is therefore inconvenienced.  With no legal recourse to make that employee pay for her selfishness, the manager instead subliminally encourages discourse through other subordinate who in turn are being punished with the extra expectations.  The absent employee is now getting abuse from both hourly worker and manager.

And if you are unfortunate enough to work for a large company, then you have the extra ladder rung of Human Resources which no manager wants to go through because HR does not want the legal ramification of harrassment in the workplace.  So the manager instead churns up the activity against the employee, the co-workers fall in suit, until the employee feels they have no other choice but to leave.  I have personally watched three other employees go through this process and have been watching two more currently.  I realize that I am presenting myself as a helpless coward because I am doing nothing on their behalf to help them.  And my reasons are quite simple.

One.  They do not want the help, nor are they asking for the help.  As far as they are/were concerned, nothing was going to happen.  It was shocking to see how oblivious people are to the efforts of sabotage around them.  But second, I have my own issues to deal with in this manner.

Imagine a worker who has been battling a crippling condition that over a dozen different disciplines of medicine have not been able to put their finger on.   What starts out as an act of “cattyness” between two female workers has continued toward the most aggressive and time consuming effort to eliminate her from her job.

Imagine that,  co-workers believe that they have the right to tell a person if they have the right to earn a living and how.  It matters not if the employee has a family to support, a close relative battling a severe illness, or the employee themself, if your co-workers do not want you to work, they possess the power and believe they have the right to dictate your employment.  Do you recall that “phase” that kids go through?  This is what the continuation of that phase looks like.  There is a lot more to this, and I will make that a different post.

But the downside to me having been a victim of bullying, is I do not pick my battles.  I now fight everything, and everyone.  If I even get a whiff that someone is trying to overpower me, I react in the most defensive posture and releasing a tirade of accusations which I can not only back up, but do so without worry of the ramifications  to my employment.  You see, I actually believe that some day, when someone actually sticks up for themselves, the right thing will happen eventually.  But it has to start somewhere, and the best place for that, is where the behavior starts.

The playground bullying and school bus harrassment must stop.  It has been decades since I faced that torment, yet the memories today are as destructive to my well-being as the bruises left behind.  Today, the results of bullying carry much more severe consequences as the efforts to defend against the domination reach extreme levels of resolve too many times resulting in death.

Bullying has been a difficult conversation for Wendy and I to have as parents.  We are both on opposite sides of the experience though we both agree, bullying should not be tolerated.  I have insisted that my daughters do not tolerate any physical or mental abuse from another classmate or friend.  If it is verbal, they have been told to walk away.  If it is threatening, tell a teacher or another grown up right away.  But if it is a physical shot, meant as anything more than a pat on the back for a job well done, they will defend themselves which I will completely stand behind them.  They are learning self-defense tactics for this very reason, because I was bullied, not because they were.

My daughters have been taught to respect everyone, even if they do not like a person, they must still respect their right to be here in this world.  They are never to throw the first punch and I believe in them not to do so.

We are fortunate in our school to have a strongly supported anti-bully program.  And as a school board member if elected this year, bullying in schools will be a major platform for me.  I hear of so many students being abused by classmates, and yet, nothing is done to correct the incidents.  When all else fails within the school, a parent must understand, a child has civil rights.  And if they are being bullied, those civil rights are being violated.

Look at the alternative.  Continued tolerance will lead to only two things.  A victim growing up skewed against society, trusting no one to do what is right, and an agressor who will lead companies by trampling the grown up rights of the youthful victims they began their reign over.

The “Benefits” Of A Union


If you want to start a divisive conversation with anyone, state you opinion on labor unions.  The chasm between supporters and opposition is huge.  There is hardly any acknowledgement of real estate between either side.  You are either for them, or against them.  Both sides often present skewed information to prove their value and refute effectiveness of the other side’s arguments.

I am not going to get into the middle of that discussion either.  I do have an opinion on labor unions, but that is not the purpose of this story or the blog in general.  Instead, I want to talk about one of the good things to come out of union membership.

From the day I was diagnosed with Hodgkin’s Disease, I became a “prisoner” to my current empolyer.  As with many health challenges, once you become a liability with your health, insurance companies do not want you or your premiums that you pay.  While they do pay out claims, they are in the business to make money, to gamble against you and your health.

The first job that I ever had that gave me health benefits was Wagner Appliance Parts, a “family” type business in the Allentown area.  With the help of a good reference, I was hired by Jeff Wagner.  Two years later was when I was diagnosed with my Hodgkin’s.  It was also at that time, that my employer realized what he was not getting for his investment.  Wagner’s was not a union business, so benefits were at the generosity of the Wagner’s.  And for years they felt as if their employees had good health coverage because why would their agent sell them anything less.  But with my diagnosis came a sad realization for Jeff, that our plan had many exemptions and limitations that could have profound impacts on diagnosis and treatments.  The night I told Jeff of my diagnosis, and the doctor’s plans due to my health benefits, is when he called his insurance representative and upgraded our coverage.

For three years following, I was an employer there.  But an opportunity came up to operate my own business/franchise, something that I had been denied in spite of my qualifications, or the fact that management constantly had me training the future managers.  There was going to be one catch.  I would not be offered any benefits because of the prohibitive costs.  But my career had plateaued and this would only be temporary to give myself experience.  Five years went by, had it not been for the HMO my wife had.

A break came when I landed a job with an entirely different company, a major, international firm.  I would be starting as a custodian, the lowest scale of the local union.  But what the union offered in health coverage was more than I could ever have hoped.  The great thing is, it could not be denied.  In the last five years, I have had my share of claims paid and I would have been dropped long ago.  But with this group policy, it cannot happen so I am told.

The economy and the new universal health care are creating issues which my opinions in these matters are not what this post is about, but rather reveal what employers are doing to skirt around having to offer benefits from under-enrollment, cutting hourly workers below full time.  As far as I am concerned, you must fight to keep whatever coverage you currently have if you are happy for it.

Jennifer’s Story


One of the first things that I wanted to do once I was done with my chemotherapy for Hodgkin’s Disease, was to find some way to “give back” to that which saved my life.  I never studied to be an oncologist, so that was out.  The American Cancer Society had been rolling out a relatively new program called Cansurmount.  Cansurmount was a “peer to peer” program that matched cancer patients by type of cancer as well as other factors such as age and gender.  The goal was to help patients deal with their illness by realizing that others had gone through it before themselves.  There was training involved which mostly involved learning to listen, listen real well.  Patients needed two things, one more so than the other.  The thing that cancer patients needed was to be heard by someone who understood what they were going through.  I know I personally dislike the expression “I know what you must be going through.”  No, you do not.  The second thing needed, is empathy, to be told the way that they feel is normal, and to be inspired by me, an actual survivor.

Having completed the training course, I was good to go.  In just a few short days, I had been given my first patient.  Her name was Jennifer, a 14 year-old student with Hodgkin’s Disease just like myself.  As I read through the profile, I thought to myself, “this won’t be bad at all”.  But then I got to the prognosis, which I was not prepared for, “terminal.”  I could not believe it.  Right from the gate, I was given a child who had nearly the same cancer as me, only she was going to die from it.  I had barely come to terms with my Hodgkin’s, and only recently celebrated my remission, but had to reign it in when I met with Jennifer and her family.

I met with Jennifer’s mother first to tell her what Cansurmount was all about, and then, who I was and what I had been through.  She never did ask me, how soon my Hodgkin’s Disease had been discovered to allow me to go into remission, when her daughter, only aged 14, would die from it?  There was not one visit that did not occur when the thought “why her, and not me?” did not go through my head, or wonder if her mother felt that way.  This is called “Survivor Guilt”.  It is something that I have carried with me over 22 years now.

My visits were weekly and lasted anywhere between a half hour to an hour.  Most of the times, it was Jennifer’s mother asking me questions, still looking for any kind of hope that things would turn out differently for her daughter.  Jennifer barely said more than “Hi” to me.  We just sat there, watching whatever television show she had on at the time.  This routine would go on for months.  At times, I would forget, that Jennifer was not going to survive.  She had not been told of her worsening condition.  She was only told of things when she was going through treatments or doctor appointments. 

She would celebrate her 15th and 16th birtdays.  For her condition to be terminal, this was taking a long time.  But there are different types of Hodgkin’s Disease and there are different types of growth.  Jennifer’s was the slower growing type.  For Jennifer’s 16th birthday, she had made a very unusual request.  Though she had not been in school for a very long time, she longed for her vo-tech education.  This was the year she was supposed to learn to drive the fork-lift.  I do not recall her talking about her prom as more treatments were beginning to take their tole on Jennifer.

By Jennifer’s 17th birthday, her condition worsened dramatically.  The family made the decision to bring hospice in and asked for my help to arrange this.  After all this time, all the visits, I was finally making a contribution to Jennifer’s care.  And then it was time to tell Jennifer that she was dying.  Her family broke the news to her, while I just sat there, tears welling up.  Jennifer talked about wanting to graduate from high school as the last thing she wanted to do if she could.  There was a brief moment of silence, and I took that opportunity to tell Jennifer and her family about the hospice program, the representative that would be coming, and what to expect from them.  In all the visits, Jennifer barely spoke to me, at least nothing that would have confirmed that my visits with her were nothing more than taking space in her living room, which now its furniture included a hospital bed.

“You’ll still come and visit with me won’t you?”  At that moment, I could no longer hold back the tears.  I was certain that I had meant nothing to Jennifer and here she was concerned that I would stop visiting her just because hospice would be taking over.  I promised I would stay with her.  A month later, Jennifer got a surprise, it had been arranged for Jennifer to graduate from high school, ceremony and all.  It was a moment that I will never forget, because with her fate just before her, she had given a smile that would last forever.

Soon after, her condition worsened and had to be hospitalized.  And then she let go.  Her pain and suffering were over, but it was on her terms.  She got to do the few things that she wanted to do before she passed.  Jennifer touched so many lives and is someone I have never forgotten.

I was dealing with several other patients at the time of Jennifer’s passing, but took her death so hard, that I needed to ask for some time to deal with my grief.  It would be unfair to my other patients, and I defnitely did not want my actions reflecting on them.

I returned to Cansurmount for several more years, and then the internet came along, and found that I could help so many more people, which is where I am today.  I participate in several blogs and internet support groups, have given survivor speeches, and held many one-on-one conversations with people.  I am hoping to see the day when all cancers are cured, but for now, we cannot forget about those who still must fight and make sure we meet their needs.

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